Thursday, May 31, 2012

Life after Alzheimers

By Connie Moore Wednesday, March 04, 2009

 

It has been a way for me to push past the grief and focus on repairing damage. The answer to my question of is there life after losing your loved one. Yes there is it may be dramatically changed but you continue to get up you continue to live and you find your place in this life we are given. To give up after losing your loved one would be so wrong they wouldn't want that. I live each day in some of the same ways as I did after the horrible diagnosis of Alzheimers. I ask my self as I would when caring for Ray would he have wanted it this way if he had the choice. He lost so much and ask so little. He would tell me stay on this site and keep talking keep sharing.

 

I no longer care for a loved one with Alzheimers but I have learned some things some very important life lessons the hard way. When you think you can't take it one more day and you think you can't go on ask your self this question. What would your loved one do if he or she could choose this life without having this horrible disease invade there minds. You answer that question and you have all the tools you need to keep going. Treat you loved ones as if there are no more tomorrows. When all is said and done that is the most important thing. Help them keep thier dignity but don't lose yourselves in this they would not want you to do that. Do the important things and don't sweat the small stuff there will be a tomorrow to play catchup. Right now you and your loved ones are the only truly important things happening in your life.

 

It dosen't matter if we keep our loved ones at home or find them a place where they recieve the best care. We each have to make our own decisons on how we deal with this disease. We each have to live with our decisions and know that we have done our best. I did. I chose to keep Ray home not all are as blessed as I was to be able to do that. If you have to place your loved one do so if that is what is best for them and yourselves. It dosen't really matter in the end we all can only do so much and we all have to learn what our path is in this life. Friends you are all dealing with the question am I doing the right thing have I done the right thing did I do this right. YES I did you are no matter the place or time as long as we keep loving our Alzheimers loved ones and as long as we continue to move forward we have and are doing it right.

 

Take care dear friends. I will not leave I will be on. If I can help or if you just need an ear to listen to you or words to encourage you I am here. You all helped me so very much all those late nights and early morning and all the times I thought I could not continue on. I only have a life lesson in this but I have a life time of experience of the pain and suffering that goes with the job title of caring for a loved one with Alzhiemers. Until next time dear friends. If I can help let me know it is the least I can do to repay all of your kindness. You can do this we can all do this with each other to lean on. May God bless and keep you. Your friend in Texas. Connie

3/ 4/09 9:14am

 As I think back to what I go through at times and feel like I have nothing in my tanks I come here to this site and find that I am not alone. This it self is fuel in the tanks! And to read your words I am selfish as I read, wanting to believe you are writing to me. How your words must relate to others as they do me touch me in ways only US, the caregivers could ever understand . Your strength is unmatched in my home. you have been there for me at all the right times. How nice it would be to live closer to you and be able to repay your help by helping you at home. who knows? I have help now and I could pop on over!  hehe

 Connie, I normaly would never speak for others but I am sure I can thank you for your support that you give out so graciously for all of us that you have touched. Certainly you have touched and helped my life.

 "Thank You"

 Until we get to talk again I wish for you health and happieness.

 

Hugs for you

Always, Bill

3/ 5/09 4:55am

Hi Bill

Thank you. I wrote the post because that is truly what is in my heart. It is what I learned during my journey with Alzheimers. It is the gift my husband gave me. I had all the same feelings all the frustrations you are going through right now. You are not alone no one going through this is. This site needs more advertisement. Many more are out there that have no knowledge of this site and that has become my new mission in life. I will find a way to help bring others here. Here is where as care givers we find the support the strength to face each new day and each new challenge. We don't have a hand book to follow and no two patients are the same but we all share a common bond caring for a loved one with alzheimers. We can all survive this we can all help each other survive this just by saying you are not alone. Keep writing keep sharing you frustrations and your joys. Take care. Your friend in Texas. Connie

3/ 4/09 11:06am

Connie,

I read what you wrote here and I am quite moved. You said we all do the best and the right thing. It strikes my heart so. You know how all of us caregivers/family feel. Yes, there is life after Alzheimers, and I hope you will again pick up what you used to like or do and become active in the local community again! I am sure you are doing so well! I am surprised you can write this nice post after what happened and so soon.

Your posts have helped me a lot and made me feel we are not the only one.

That is why we need this support group, online or local.

Thanks for your post and I will read it again sometimes because it is so nicely written. I can feel what you said or felt.

Take care and I hope you will soon find what to do again for yourself.

 

My father-in-law's house is also old and we are in the middle of unclogging this big clog by the plumbers. They said we would need to fix the old rusted pipes one day. The tree root came too far in the old pipes! We do have lots of problems. We even caught 3 squirrels and hope that is it and we will animal proof the attic. Then we need to fix the broken insulation and woods in the attic... It is hard to know where we will stay. My FIL may stay here or he may go to a nursing home next year because this house is really getting too old and needs lots of repairs without him being in the house.

Like you said, we all try to do the best!

 

Thanks and take care,

Nina

3/ 5/09 5:05am

Hi Nina Thank you. You have helped me so much everyone on this site has helped so much. I wish I could reach in my computer and give everyone a hug. I could not have made it without all the dear friends I have made on this site.

My house is actually only 15 years old. The problems I am having are unusual for a house this age but this to I will survive. One of the biggest lessons we learn during this journey is survial mode. In what ever form we can find it we will and have to survive. That is the legacy we pass on. How ever what ever it takes you honor yourselves your loved ones by continuing the battle they are no longer able to fight. Their choice has been taken away when each faced the diagnosis. We as care givers fight the fight for them now.

I will never stop loving and missing my husband but he was such a fighter I can do no less. Take care dear friend. Hugs Connie 

Leah, Health Guide
3/ 5/09 3:32pm

My dear friend, once again you are reaching out with your heart to help alleviate the pain and guilt felt by others who have lost or are in the act of losing a loved one.  Your words are valuable for anyone who is grieving.  Keep writing, my dear; you will become stronger the more you write--and so will will your readers.  God bless you, Connie.  You are certainly blessing our lives!  Leah

3/ 6/09 6:25am

Hi Leah

 

Thank you for your kind words. I wrote what was in my heart with the hopes of aleast sharing my grief would benefit at least one person. This journey we all face is long and can be so disheatening. We think at times we can't do it but with all the support we get on this site it gives us strength. Talking sharing and trying to help others we help ourselves too. We are able to realize even though it seems we are alone in this we are not. Thank you my friend, Connie

Anonymous
deparker
7/16/09 6:51pm

Hi Connie,

I was just looking through some of the Alzheimer's info and found  your comments.  I to live in Texas and have a husband with EOA.

I am so sorry to hear about your husband.

My husband has had it for 4 1/2 yrs.

He can't carry on conversation any more. He loves to go to Church.  And out to eat. He gets so tired of staying at home.  He was such a hard worker he was my rock.  I miss him so much.  Sometimes he doesn't seem like my husband any more.  But I love him and will take care of him as long as I possibly can.

I have so many questions I would like to ask you would you mind emailing on our private email address.

Debra Parker from East Texas

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By Connie Moore— Last Modified: 12/19/10, First Published: 03/04/09