Thursday, May 31, 2012

Surviving The Loss of Your Alzheimers Loved One

By Connie Moore Sunday, November 15, 2009

Hi I am Connie

It Has been almost ten months since the worst day of my life. My Love MY husband lost his battle with alzheimers and Congestive Heart Failure Jan 19, 2009.

I have cared for loved and lived with my husband with this disease. I cannot tell you how I survived this I cannot tell you how to survive this disease or the loss of a loved one. I CAN TELL YOU THIS DON'T DO WHAT I HAVE DONE DON'T LEAVE THIS SITE. I am back and I am so sorry I haven't been here. No I am not still living with this disease but it has touched me in a way I cannot walk away from if I can say one word to help any of you it is TALK  and then TALK some more talk to all here talk to your family talk to you friends just keep TALKING.

I do not know how to describe the range of emotions I have gone through you have gone through nor the ones you have yet to face. I can tell you this/this disease that so many don't understand haven't experienced is the most devestating time of my husbands and my life your lives it dosen't matter if your spouse, patient or care giver, I we have the hardest job. Our alzheimers patients first get lost in their minds and then we lose their bodies. I have to learn how to cope now with his loss. I am constantly being told it gets easier. YES parts do. NO I don't cry as much NO I don't sleep any more/sometimes I think less now. I constantly wake finding myself listening for the sounds that do not come. I find my self constanty headed for his room to check on him or to tell him something.

I have lost in the past ten months not just a husband but my best friend. I have also lost my brother in May and I just lost my Dad On the 10th of this month. I have let my grief consume me until I find I have hardly lived. I thought while caring for him I had stayed to busy to care for myself I now have come to realize I am worse then when I was running day and night caring for him.

This today is MY NEW BEGINNING. My dear friends Thank you all so very much for not walking away not becoming angry or leaving me as I left all of you briefly.

I was so angry when I learned of my husbands disease and then angry as I felt helpless to help him to get better. I became angrier when he died and I thought OH MY God how could you leave me. I became even angrier when my brother died so unexpectedly and now my Dad. My first reaction was NO this is enough not any more. More can happen more does happen and more will happen. I have to quit playing the blame game or this will just continue on I am the only one that can control my emotions my happiness my life.

I had become so angry with God with My husband for leaving this life and leaving me behind. I is just it so many times I say I. I did it before and now I find I am doing it again but this time I will use this in the proper context. I have to take control. I am the only one who can stop this merry go round I have been on and say yes I have suffered these great losses I will quit being angry and start taking control back of me back of how I feel back on how I deal with all these losses and how I can take such tragedy and help others.

11/15/09 8:30pm

 Connie,

 

 Thank you for coming back here. You have been through so much this year, your words help me through what I go through. It seems you have always been the strong one in our friendship.

 I see mom again tomorrow, another surgery. Another day of pain for ma..  But you always seem to find me and comfort me. I could never thank you for what you have done for me. Maybe our time will come and we can finaly meet? I pray for this day.

 I cherish our time in chat, emails and back when we would call each other. I do know none of us have to be alone in this disease nor do we have to be alone in times of need.  Thank you for trusting me. 

 We can all learn from your experience. I know I have. I know I/we have gained a true friendship also. Without your friendship and support of others I would be a worse wreck than what I am now. I hope nobody or anything ever pushes me from this site. The people I have met here have saved me more than once. Like you said, If it is only one word, one sentence one of anything that helps someone else then this site has done what it has set out to do!

 Thank you for posting Connie.

Have a wonderful trip and I hope you find your slice of heaven this week!

 

HUGS

Bill 

11/17/09 4:30pm

Thank you Bill

I will be here and any time you need someone to talk to just let me know. I have missed all my friends here and I am very happy to be back.

I have reached the time in my life that I am ready and I am moving on. The days are easier to get thorough. I feel like I am a work in progess but an improved one. Hugs

Leah, Health Guide
11/17/09 2:01pm

You are realizing that there IS life past grief.  As the process proceeds, it will become more clear.  Continuing to play the "victim card" is not healthy, nor desireable.  You have lost loved ones...but life goes on.  Welcome back, Connie.  As your attitude and outlook improves, so should your health. 

 

God bless you, Connie.  Keep up the good work.

Leah

11/17/09 4:38pm

Thank you so much Leah. I am still learning how to naviagate this new world I find myself in. I haven't given up in fact I am able to see things much clearer. Thank you for sticking with me dear spirit sister. Hugs

11/17/09 3:37pm

Connie,

 

I am so sorry that you lost your brother and Dad as well. I hope God can comfort you and know that they are at peace now, but I am sure it hurts a lot. My only brother passed away in 2001, so I know it is hard. It will take 1 or 2 years to get over with the hurt itself. 

 

I have to really say you people who do the caregiving at home literally for family memebers with AD (Alzheimer's) are really super people! It is not easy. A lot of times the family has to turn to the nursing home in the end after they burn out or run out of solutions or money. I know by doing so you also hurt your own mental and physical health. Unknowingly, you were probably very tired and sick without paying attention to yourself.  For myself, I realized my mental health does not seem to do better if I continue to "hate" our situation with my FIL. So I need to let go and relax myself. Now we are looking for alternatives by sending my FIL to an assisted living home for AD that is closer to us.

 

Now it is over for you and your husband is in your memory forever. You will miss him but you move on. I cannot think of a better way to reserve this memory than helping to support the people who are dealing with family members with AD now.

 

You need not to feel guilty. You have done the best in caregiving. You could not give more than you could have given...

Welcome back and we can support one another again!

 

Take care,

Nina

 

11/17/09 4:40pm

Thank you one of the most valueable lessons I have learned is quit being angry with the world for my heart ache and stop having pity parties and use this experiece to help others. Hugs

Anonymous
Cheryl Lamb
11/19/09 10:48am

Hi Connie,

I didn't know how many tears I had left until I found this website.  I lost my mother to Alzheimers in July 2008 after a seven year struggle.  Dad kept her home with my help until the last ten months.  We placed her in a nice home the last ten months and I was

there every evening to help with her.  Dad died nine months later, April 2009. 

I lost three husbands from 1981-1991, not to Alz, but other diseases.  So, I know your pain.  I have been living with someone for 17 yrs. and he has kidney cancer.  It scares me to even think of being alone again.

 

My heart goes out to any of you that have lost a loved one.  Just stay busy and do things for others.  It takes time to heal, even though you never stop missisng them.

Cheryl

 

 

 

11/19/09 5:35pm

God Bless and keep you Cheryl.

I am so very sorry you have been through so much. I get up every morning and think could all this happen to any one else but me. From the bottom of my heart I am so sorry to hear from a real person that yes there is so much grief in others I would not wish this on another living soul.

If you ever want to talk I am here If I can help in any way please let me know. Take care and know there is another one that understands your pain.

Your new friend Connie

11/19/09 11:08am

Connie, so many losses, but what a trooper you are.....an inspiration for the rest of us. I am so glad to see you back. Had wondered about you, but didn't want to intrude.

 

Deb

11/19/09 5:50pm

Thank you Deb

I am so sorry I didn't talk to everyone sooner. I became so lost in grief and it continuing on I thought it better to stay quiet. I should not have wish I had not.

All of the wonderful friends on this site helped me through so much with all you guys support. Hopefully if I can just touch at least one I could help as so many have helped me so very much. Thank you thank you so very much. Connie

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By Connie Moore— Last Modified: 12/19/10, First Published: 11/15/09