Thursday, May 31, 2012

A Sense of Peace for Someone With Late Stage Alzheimer's

By Kristi Marie Gott Monday, December 10, 2007

The gentleman was in the late stage of Alzheimer's, but we still found ways to create a smile on his face.  He could no longer walk, and his speech was mostly garbled. 

 

Sometimes he waved his arms and looked at empty space, obviously seeing hallucinations.  His hospital bed was in the living room, facing a huge window and a door we could open to let the breezes cool the summer heat in the room.

 

He and his wife were in their early nineties. His wife explained to me that they had started their dairy farm in the 1920's.  

 

Recognizable words that he said included "horses, springs, calves, feeding, watering, leaves, and clean."  When I said, "The horses and cows are O.K.," he smiled.  I could see he wanted to be sure everything was alright.

 

Eventually we progressed to my saying, "Your sons have cleaned the leaves out of the spring."  And then to, "Your sons have fed the horses and cows.  The calves are O.K."

 

These were the things he had spent a lifetime doing, and the familiar words were still there.  I would smile big, and frequently say, "The farm is O.K., the animals are O.K."  He would have a big smile back for me then.

He was at peace.

 

When I walked out of the room for a moment, he would be smiling and waving at me from his hospital bed when I came back into the room.  I would wave happily and nod and it became a game.  When someone cannot verbalize, the person may be understanding more than we think. 

 

I believe he could not speak but was responding to familiar words and to a happy or reassuring facial expression.  It was instinctively important to him to know the farm was O.K. in order to be at peace.

 

He had been active as a singer in a men's Christian choir, and when I played tapes of his choir's music he laid back with a soft smile. 

 

He was on a soft diet, and I spoon fed him small bites, with the head of his bed elevated.  Playing the men's choir music, looking at the beautiful view outside, and bringing his dog to the door created pleasure for him.

 

Making him feel everything was safe and secure gave him peace.  This was important because it calmed the agitation.  His facial expression and body language would show he was mentally and emotionally comfortable. 

 

Of course, other aspects of comfort included arranging pillows and bed position, putting the covers back on when he threw them off, and other steps to make him physically comfortable.

 

Despite the fact he was in late stage Alzheimers, he was at peace.

 

 

 

 

Tracking Bracelets Rescue Alzheimer's Patients Who Wander
12/11/07 9:51pm

Kristi this is a beautiful post  thank you for sharing it with us.

 

Having peace in our lives can be a challenge - work, bills, family, friends - things pulling us in all directions.  But it seems clear that the familiar things that give us comfort also make us feel safe and happy.  It is refreshing to know this can be the case for someone so sick with Alzheimer's.

 

I'm glad your friend was happy in his last time of life.  God will be good to him and all those who care for him.

 

All the best, SMM 

12/12/07 12:14am

Dear SMM,

 

Thank you for your comment. 

 

Caregivers try to bring a sense of peace and comfort to relieve the mental and emotional suffering of others who are ill.  

 

But we need to find or create peace and comfort within for ourselves, too.  Caregivers often have so many things pulling us in different directions, as you mentioned. 

 

Kristi

 

Kristi

12/13/07 9:18am

Kristi:

 

Thank you for your beautiful and insightful post. The caregiving techniques you shared are important for caregivers to learn, especially as their loved ones reach the end stage of Alzheimer's disease.

 

Helping a loved one during the final months or years of their lives can lead to new challenges for a caregiver. More and more difficult decisions will be called for. Some of the most profound decisions may center on a goal of ensuring that a loved one's basic needs for respect, dignity and comfort are sustained until the end.

 

As you shared in your post, communication in the late stages of Alzheimer's disease continues to be important and may aid in providing comfort to a loved one. Individuals at the end stage of the disease have limited cognitive abilities and may not appear to be themselves. This does not remove their need for human interaction. A touch, the sound of music or a loved one's voice can go a long way in providing comfort.

 

Anonymous
Kristi Gott
12/13/07 11:52am

Dear AFA Social Services Team,

 

Thank you for your comment.  A sense of peacefulness is so comforting to people.

 

Whatever we can do to provide calmness and connections with others means so much, and is so helpful in quieting Alzheimer's agitation.

 

Kristi

12/21/07 5:27pm
There is no doubt in my mind that when my twin has a rough time of talking. I never second guess what she wants to say. Because, she gets more confuse. I always say I see.  I love your article
12/21/07 10:23pm

Dear Mazie,

 

Thank you for your comment.  That's an excellent point about not second guessing what she wants to say because someone can get more confused.  Just saying "I see" must be such a comfort to her.  Somebody "gets it." I imagine she feels the connection, the security, and relaxes.  If you ever feel like writing a post here I would like to read some more of your helpful suggestions.

 

Take care,

Kristi

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By Kristi Marie Gott— Last Modified: 10/22/10, First Published: 12/10/07