Beginning Life With Dementia
When it comes to dementia, most literature is from the caregiver's point of view...or research. I suppose that shouldn't surprise me since most people with dementia wouldn't be in much of a position to write--either physically or psychologically. And then, there's me. I love to write. Loved to read. Loved to live life as a normal person with the occasional lapse of memory. "Oh, that must have slipped my mind!" or "Having a senior moment!" ... And now I am living the nightmare of learning to live the rest of my life with a new partner--dementia. Unfortunately, my husband has to live with the new partner, too.
When I heard the...prognosis...verdict...what is that word for when the doctor tells you what you have?
Well, anyway, when I was told I have vascular dementia, I saw it as a death sentence. Then I started looking into it and found that it was more like a life sentence... There was some good news. Being vascular dementia, I have a better chance of maintaining a more normal life for a longer period of time than other forms of dementia and alzheimers. It's important that I keep my glucose and blood pressure levels within normal levels to stay off any further mini strokes (or worse yet, strokes).
When I first found out about it, my first thoughts were for my husband of almost three years. "What have I gotten him into?" I lamented. I grieved over the loss of our future. I was a wreck for about a month. But, I continued to research and found OurAlzheimer's.com. It felt like home. The contributing authors have been so informative and kind. I am making friends--even if they are (only) internet friends. With their encouragement, I continue to write. And it feels good. And, a bonus, the more I write, the better I get. Isn't that novel? Just like exercise, I guess.
I'm now over the 'Poor Husband' stage and am becoming more proactive. With my husband's help and encouragement, I am exercising my brain in as many ways as possible. I must say, though, it is not easy. I get frustrated easily. Lately I am becoming a little "snappish", something I have never had a problem with before. In some ways, though, my increased attitude has a positive side. Today, I was able to call a company which has been nothing but a problem for us, and I was quite...shall I say...assertive! (In the past, I've been a little mamsy-pamsy about everything, always afraid to make someone mad.) So, maybe, starting to live with this dementia is not so bad after all...