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Tuesday, November, 24, 2009
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Am I Crazy or What?

Leah
Leah
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has vascular dementia

A former teacher, majorette. A wife, mother of one, grandmother of...

Leah

Wednesday, September 26, 2007
View All of Leah's Posts
I'm demented, but I am NOT crazy. I have lost some of my inhibitions, though... First case in point: I had to open the gate on my upper deck to let my poodle, Julie, out into the yard below. The "normal" part of me looked all around checking for any neighbors who might be out in th...
  1. Crazy or What?
    Carol Bradley Bursack
    Wednesday, September 26, 2007 at 07:16 PM

    If you're crazy we all should be so crazy. Your intelligence and your "normalcy" shine through your words. I'm honored that you've chosen Our Alzheimer's to be the showcase for the greatest teaching experience of your life, Leah. And I'm honored to share some writing space with you, as we, your students, learn.

     

    Oh, and yes - please get a new dictionary. :)

    Carol

    Reply
  2. dementia
    snuggles6751
    Wednesday, September 26, 2007 at 08:36 PM
    where does the physician draw the line between being diagnosed as having dementia and not having it.
    Reply
  3. question
    Leah
    Wednesday, September 26, 2007 at 09:13 PM

     

    Snuggles, I am not an expert.  You will learn lots through reading the information offered by this site.  However, what I do know is that a diagnosis can be made depending upon the results of psychological testing, MRI's, and patient history.

    Leah

    Reply
  4. Re: snuggles
    MK
    Friday, September 28, 2007 at 11:21 AM

    Hi snuggles! I'm MK and I am the producer of this site. Thanks so much for your great question- it's a good one!

     

    I am not a health professional, and cannot answer your question specifically, but there is information on this site that might help.

    Dr. Roeltgen's blog The Difference Between Dementia and Alzheimer's Disease - he gives specific definitions of dementia versus Alzheimer's.

     

    You can also check out our Dementia Diagnosis page - which can tell you about different dementia symptoms, and other symptoms of what may just be old age.

     

    Thanks again for writing. I hope this helps!

     

    MK

     

     

    Reply
  5. Am I Crazy or What?
    Steve Mettee
    Friday, September 28, 2007 at 11:33 AM

    Have you had a urine MMA test for B12 deficiency? It has to be this, a urine test. The others aren't a reliable. Most doctors don't know of this test or use labs that don't do it and such don't get it for their patients. The Mayo Clinic lab will do it for them.

     

    You might want to read up on it. Here's a start:

     

    http://forums.wrongdiagnosis.com/showthread.php?p=45615

    Reply
    re: Am I Crazy or What?
    Leah
    Friday, September 28, 2007 at 12:08 PM

    Thanks, Steve, for the information.  I will be going to the link to learn about it and tell my doctor when I see him next.

    LeahBig Smile

    Reply
    re: B12
    Leah
    Saturday, September 29, 2007 at 11:45 AM

    Thanks, Steve, for the information.  I have gone to the site mentioned and also to other sites dealing with B12 deficiency.  Looking at the list of symptoms, I don't believe this is my problem.  I will tell you, though, that I was borderline dysplasia and was on folic acid, vit. C and iron for most of a year until my blood counts came up to normal.  That made all the difference in the world where my stamina was concerned.

    Thanks again for your suggestion!

    Leah

    Reply
    re: re: B12
    Steve Mettee
    Saturday, September 29, 2007 at 12:51 PM

    Hi Leah,

     

    You're welcome.

    Take care,

    Steve

    Reply
    re: re: re: B12
    Leah
    Sunday, September 30, 2007 at 11:50 AM

    Hi, again, Steve.

    It came to me what I was trying to name when I was telling you about the condition I had.  It is called myelodysplasia.  I could only remember the last part of the name in my post to you.

    Hope all is well.

    Leah

    Reply
    re: re: re: re: B12
    Steve Mettee
    Sunday, September 30, 2007 at 12:36 PM

    Hi Leah,

     

    I see. I don't know much about myelodysplasia, but I see it has as one of its symptoms anemia.

     

    Take care.

    Steve

    Reply
    re: re: re: re: re: B12
    Leah
    Sunday, September 30, 2007 at 05:21 PM

    Hi, Steve.  Thanks for answering.  Hope you continue visiting our site! Big Grin

    Leah

    Reply
  6. Having Dementia and living with it
    Victoria Kelley
    Thursday, November 15, 2007 at 08:54 PM
    hello, I enjoyed your article. It so relates to the position I am in. for me it's started 1998 when I was 57, i had a slight stroke, which , affected my pheriphal vision. slightly. i did not at the time, realize tht it had caused me to start to have Alz. disease. I am very fortunate, it is 2007 and I am still very coherent. I have difficulty like you mention, short term memory. suddenly trying to figure out how to open a door.but, it goes away. I am on arecept and Nameda, they have really stopped it from progressing. everyone around me, just don't understand. they think there is nothing wrong with me. I am aware very much aware, at least for now. so hopefully they will never have to realize I have it. It is a devastating disease. Thanks for listening. Ginger Kelley
    Reply
    re: Having Dementia and living with it
    Leah
    Friday, November 16, 2007 at 10:56 AM

    I can relate what you wrote about when you said that those around you don't understand you really do have problems.  If you've read any of my other blogs, you will see that I had the same problem.  I decided that I would blab to everyone and anyone that I have vasular dementia and that I am doing okay at this time.  I want to change the way that people look at Alzheimers and dementia.  I want people to look beyond the disease to the person below.  Highly intelligent people such as yourself (and me), have a great ability to mask the symptoms, to get through life in a more normal manner for a longer period of time. I take Aricept, though I am stopping it for ten days to see if the dreaming I've been having will lessen in its intensity.  I play Nintendo's Brain Age every day which really has helped my focus time and cognitive skills.  I write for this site, which keeps up my communication skills.  And I hear from people like you who help further my socialization skills--and boost my mood!  Thank you for writing.  I hope you will read and respond again in the future.  I'd like to hear how you are doing.

    God bless you.

    Leah 

    Reply
    re: re: Having Dementia and living with it
    Ginger
    Friday, November 16, 2007 at 10:32 PM

    Dear Leah,

    I hope you receive this, I seem to be having difficulty getting it to go!!! it keeps say "error has occur" hopeful this time it will fly. Fun,you should say the Arecept causes you to have dreaming episodes, Between "6 am and 9" am. I have a terrible time sleeping, nightmares, talking in my sleep, by the time I get up, I have to drag myself up. this is a "type "A" personality person, have to be on time, everything done. Now I am lucky if I can MOVE.

    A little thing about myself. I live in Fl. retired with the hubby. I am 63. come from Massachusetts. the whole family live there.

    I am so happy you responded, this is the first time in 1 year, that I have actually connected with someone that has the disease. someone, that knows what it feels like. whether you are happy, mad,sad, or glad. someone knows. Please respond again. Thanks Ging

    Reply
    re: re: re: Having Dementia and living with it
    Leah
    Saturday, November 17, 2007 at 11:30 AM

    Send me your email address, Ginger, and I would be glad to communicate more directly with you that way.  Maybe then you won't have so many problems getting through to me.  I would enjoy having someone else with this problem to compare notes and empathize with. 

    Leah

    Reply
    re: re: re: re: Having Dementia and living with it
    Ginger
    Saturday, November 17, 2007 at 02:18 PM

    Hi Leah,

    This is the second time I have had to do this letter. for some reason, I hit something on the laptop, and everything I just did, disappears. I have noticed one thing, my spelling, and ability to be articulate, have totally left me.!!!

    By the way, what exactly is "Vascualar Dementia/Alz; I have never heard of it. I hope you don't mind my asking.

     

    Chat later Ginger PS: My email address is"

    gingerk92@hotmail.com

     

     

    Reply
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