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"Dementia is Not Contagious" - And Other Lessons For Family Members

Leah
Leah
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has vascular dementia

A former teacher, majorette. A wife, mother of one, grandmother of...

Leah

Monday, October 22, 2007
View All of Leah's Posts
My family has celebrated a reunion for 35 years. This year, my role remained the same as it was in past years. However, this year was very different for me. In my previous post, I talked about how dementia affected how I handled my responsibilities. In this post, I'd like to talk about how it aff...
  1. Dementia is NOT Contagious
    Coni Townshend Halko
    Tuesday, October 23, 2007 at 01:17 PM

    Dear Leah,

     

    It is hard for folks to know what or what not to say when one has a serious problem--so, often, they say nothing....and stay away.  They care--they just are uncomfortable--and take the easy way out.  I cannot say I know exactly how you feel--but, I can relate.  When I have had problems in my life--when I had cancer -- many acted as if they thought it was contagious.  When my beloved husband was killed in the hand grenade accident at training camp--I was devastated.  I wanted to talk about it--and how I felt--our hopes and dreams, our loss, etc.--family, friends--simply blanked --eyes glazed over over and then they quietly disappeared.  I understood.  Tey simply did not know what to do or say--so, they stayed away.  New friends appeared--God was there and he sent me angels who helped me through the terrible times. 

     

    You--dear cousin--have always been there to help others through their crisis--your Dad when he was sick, Kitty when her arm was hurt, me with my problems, your older friend with her health problems--then the loss of her beloved friend.  I [we all] appreciate you--and your caring, loving nature.

     

    We only hope and pray that we can be there for you--in some small way.

     

    We treasure you--your laughter, your humor, your candor...and most of all your love! 

     

    God bless you and I pray he sends you angels as he sent to me.

     

    Love and blessings...Connie Leigh

     

    p.s. I still want to go to visit Dana, Alex with you sometime [smile]

    Reply
  2. Family
    Karen
    Wednesday, October 24, 2007 at 05:39 PM
    You have a wonderful husband..... but then you know that already.
    Reply
    re: Family
    Leah
    Wednesday, October 24, 2007 at 08:12 PM

    There's no doubt about that!  God truly blessed me when we were brought together.

    Leah

    Reply
  3. Hit the nail on the head, thanks.
    Sue
    Thursday, October 25, 2007 at 11:17 PM
    Big SmileThanks so much for your remarks. I am going to email it to my 3 daughters. I have both vascular dementia and alzheimer's. My daughters would call me several times a day when I was first diagnosis now I do good to here from them once a week. I guess I am progressing fast as they seem to think so I am okay. What they don't realize is I am progressing faster than they realize because they are never around to see me. Again thanks, it feels goods to know I am not the only one with feelings like you stated. I could easily have written those words myself, if I would have thought of them, LOL. Again thanks so much. livingwithearlyonsetalzheimers.blogspot.com
    Reply
    re: Hit the nail on the head, thanks.
    Leah
    Friday, October 26, 2007 at 06:09 AM

    Hi, Sue.  I'm really glad to hear from you as I, too, feel very alone in this world sometimes.  Writing allows me an outlet to express what I am feeling.  I am fortunate to be so verbal at this point.  It is not easy.  My fingers spell words wrong which I am continually having to correct once I see them.  I can't write as well as I once did.  I use TOO when I should use TWO, etc.  Please keep reading and let me know what you are thinking and feeling.  I hope your daughters will participate in this as well.  You are very courageous to fight this battle--especially doing it all by yourself.  I hope I can be of help and support for you in the future.  Take care, good friend!

    Leah

    Reply
    re: re: Hit the nail on the head, thanks.
    Sue
    Friday, October 26, 2007 at 04:14 PM
    Oh, Leah, I am not alone although it would be nice to have my daughters more involved. I also have a very wonderful husband that picks up where I leave off or finishes what I start. He is my mind, thinking process, sometimes. He knows what I am thinking and going to say when no one else does. I could not do this without him. Thanks for your kind words. It so nice to have someone to talk to. Sue
    Reply
    re: re: re: Hit the nail on the head, thanks.
    Leah
    Friday, October 26, 2007 at 07:52 PM

    I know what you are talking about, Sue,  when you say you have a wonderful husband.  I thank God that I found my sole mate and married him almost 3 years ago.  Like you, I couldn't do it without my hubby.  If you read some of my other blogs, you'll see me mention him.  I am much relieved to know that you are not alone.  Keep in touch. 

    Leah

    Reply
  4. Dear Leah
    Carla Hodges
    Saturday, October 27, 2007 at 02:41 AM

    Your story has touched my heat dealy. I am trying to help care for my father-in-law who has dementia and doesn't have long to live. The doctors say that he only has about weeks to live because he isn't eatting alot. I know that people could think that you are contagious but  you are a wonderful person for posting you thought online for the world to see. My father-in-law is now in a home with about 20 people who all have some type of brain problem (I say brain problem because I don't know what is wrong with them). When we go to the home to see him we talk to all the people down there. It seems to make their day for someone to just show that they care because of alot of them don't have anyone who comes to visit them. God Bless you because you are a wonderful person and I hope you friends and family can see that.

     

    Carla

    Reply
    re: Dear Leah
    Leah
    Saturday, October 27, 2007 at 04:14 AM

    Thank you, Carla, for your most kind words.  I am blessed to have a very close family, though most don't really know what to make of my dementia.  I've always been the strong, smart one of the bunch and now I have to depend on them for reminders, etc.  My husband has been wonderful. It is scary because I don't know how long I will be able to write and communicate how I am feeling.  I've just spent the whole night up, unable to sleep.  That happens sometimes.  Wears me out!  I am so happy that you care enough to talk with those who are living around your father-in-law.  You are a wonderful person to care so much.  Your family is very lucky.  Take care and God bless you.  Thank you for reading and responding to my blog.

    Leah

    Reply
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