Sunday, February 12, 2012

Talking to Myself, In the Vegetable Aisle...

I have to whine today... Clearly, my dementia is not getting better. I cannot remember things from last week. I cannot remember that I've gone to the doctor or had a stress test. I forgot to go for my mammogram appointment...  My memory is also affecting my relationship with my husband ...
3/25/08 9:43pm

Hi Leah - Good to hear from you.  First let me say, whining is good medicine sometimes. Come here and use us for your sounding board - we are all cheering you on and want you to stay with us for as long as you are able!

 

As for talking to yourself, the produce department can be a confusing place.  They put everything in so many differnt spots. You think you are in front of all the apples and you turn and there are three other tables with more on each!  So keep talking to yourself if it comforts you - you mostly likely will not see those people again anyway!

 

Finally, I am so glad you have been able to get things rolling with the Sleep Apnea and the CPAP (continuous positive airway pressure) machine. I hope this is the reason for some of your "confusion" and with your increased stamina you find it a bit easier to sing!

 

All the best, sue

 

PS -  Read our material on the different stages of Alzheimer's  and the difference between Alzheimer's and Dementia.

 

PSS - Some of you may want to read about Sleep Apnea and the CPAP machine.  A recent post on our Sleep site by our expert Dr. Allen Blaivas might be of interest.

3/26/08 7:51am

Thanks, Sue.  I can always count on your continued support!  I think, too, that it is a great idea to add comments about other places people can go to get information and support.

Leah

3/26/08 9:09am

Dear One,

 

It is OK--go ahead and whine--it is natural when you are experencing so many changes.

We [those who love you] are here to listen to whatever you wish to share with us.

We are here to support you the best way we can no matter what you may be facing.

 

Heck...I know people who whine & they have no reason to whine...yet, it somehow makes them feel better.  That's OK too.  That's part of life.

 

When you truly love someone--you love unconditionally--and try to be there for them.

Now, I must ask your forgiveness...Please forgive me when I get caught up in my own drama--and somehow forget to let you know how very much I care!

 

Love always, Cousin Connie Leigh

 

3/26/08 5:46pm
I know, dear cuz, that you are always behind me, supporting me--as you do so many other people.  My deepest thanks.  Love you, too,cuz.  Leah Real Cool
Anonymous
louise
3/27/08 3:42pm

 

 

 

 

 

 

Louise

 

 

1 do the same, and I talk myself through getting dressed...I have trouble with any clothes item that is inside out  or back to front.

 

As for reminders, I am experimenting with having  my computer beep me as well as having the reminder on the computer screen. I have also discovered that doctors, hairdresers etc are very happy to call you the day before or even an hour before an appointment.

 

Lastly, I think that is very hard on our husbands, so if you can, try to get someone else to come and help when  there is something complex to do. and pay them if possibleI

3/30/08 4:53pm

Hi, Louise.  Your suggestions are good ones for anyone having memory problems to follow.  I am fortunate to have a most wonderfully supportive and tolerant husband.  He is getting used to telling me stuff over and over.  Probably one of the best things we have done is hire a cleaning lady to come every two weeks for four hours.  She helps me stay on track that day.  I "parallel" clean while she does, stopping to talk with her from time to time.  A label has been put onto the vacuum cleaner, so I know what it is and can remember to use it once in a while.  One thing I AM good at still is washing clothes!  Hang in there, Louise.  I hope to hear from you again in the future.

Leah

3/29/08 1:24pm

I just wanted to say (again) that I admire you so much.

((BIG HUG )) Kay

3/30/08 4:56pm

Your hug is HUGELY appreciated.  Thank you so much, Kay. Big Smile

It may not sound like it, but I do get down sometimes and it's support like yours which helps me get through..  God bless you!

Leah

Anonymous
DogsDontPurr
3/29/08 11:27pm

Hi~ I just stumbled upon your blog and have not yet had a chance to read all your posts, so maybe you've already looked into this: have your doctors checked your potassium, vitamin B, and magnesium levels? I suspect they already have, but if not, you should definitely make sure you are tested. A low reading on any of these tests can give you some of the symptoms you are having.

 

I'm off now to read the rest of your posts. Good luck to you. I'll be sending all good vibes your way. 

3/30/08 4:59pm

Hi, dogsdon'tpurr...I love your "name"! Big Smile

I have been tested every which way.  The sleep apnea and myelodysplasia that I have, plus the diabetes, probably have not helped the memory much.  I am using a breathing machine at night and am finally getting some good sleep.  I hope you enjoy my blogs as much as I enjoy writing them.  Hope to hear from you again!

Leah

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