Have Dementia: Will Travel (Still) Part One

By Leah, Health Guide Wednesday, December 09, 2009

My next few blogs will be about traveling with dementia and are NOT an endorsement for the cruise lines.

Most of us have had experiences with our memory such as not being able to remember names. However, for those of us with major short term memory loss, the loss is so much more. Staying around home and having a regular routine makes life a bit easier for me. Traveling is another story.

 

My husband and I are taking an anniversary cruise in celebration of our fifth anniversary. Preparation for an extended trip was hellish for me and all I really had to do was pack my clothes... My husband has had to make ALL the arrangements. From the very start, he had to make the many phone calls to the cruise lines. During the process, we changed our minds many times, changing ships and destinations until we found just the right one for us. During that time, Bill would tell me where we were going and on what ship...and I could never remember when asked. When we finally chose our current cruise, Bill continued to make calls to get upgrades and discounts. He has had to ask that we have distilled water for my CPAP and a refrigerator for my insulin. I can no longer make those types of phone calls because I get very confused.

 

And then, there's the little problem with shore excursions-which ones to take. Long lists of available tours off ship on each island are listed on the Royal Caribbean website. As in past blogs, I have stated that the fewer choices I have, the better. We had to print out the lists several times before I could figure out which ones might be best. I kept losing the lists...then I'd forget what I had chosen, so I had to go through the lists again...this happened several times before we decided it might be best to just wait until we got aboard the ship.

 

Before leaving, friends would ask me where we would be going. I would jokingly say, "Who cares as long as it is warm?" when in actuality, I could not recall the names of the islands we would be visiting. Of the six islands we would visit, I could usually name, maybe, three. And it was impossible for me to tell anyone what it is that we will be doing on each island, even though I was instrumental in choosing the activities.

 

So what do I do to help me in this planning stage? I used to be able to say, "Okay, I need __ pants and ___shirts. And then, I would find so many of each and just pack them in the suitcase. I can't work like that anymore. Now, I need a great deal more structure. Here are some of the ways I made preparing for the cruise easier:

 

• I had to list on a piece of paper each of the twelve days, write where we would be, the activities planned, and the dress code for dinner. I printed out several copies of this and used one with the next idea. The cruise line will give us a paper each day listing all the information and activities being offered aboard ship... It is too much for me to take in all at once. I need small chunks.

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By Leah, Health Guide— Last Modified: 09/28/10, First Published: 12/09/09