Hi, Mendy. I am 59 and diagnosed with dementia. Unlike your sister's husband, I am in the earlier stages and not having problems with anger. I have been doing a lot of reading and know that at one point it is necessary to place the patient somewhere else. Your sister needs to be upfront with her husband's doctor about the violence and her inability to keep taking care of him. That is a first step for her to take. She can also go to ouralzheimer's.com for caregiver help and support. Also, reading Carol Bursack's posts can be very helpful.
My prayers go out to you, your sister and her husband.
You can email me at leahtown@comcast.net if you would like to further communicate.
Leah
My mother is 87. My father passed almost ten years ago. My brother and sister both work and so are unable to take care for her. She, too, is in stage one which I believe is the worst because they know that they forget things and get mad at themselves. She has always been a worrier and now it is even worse because she looks for things to worry about even when there are none. Her anger was really bad when she first came but about a year later it seemed to diminish so that the incidents only happened every few weeks where she would hit me or kick me. However, lately, her anger returns without warning; hitting me with her purse when I am driving; kicking and hitting me when I bring her nighttime medicine. She does not want to leave her room and argues about going out for anything but church. Her doctor is meeting with me tomorrow to talk about possible medications to keep her calmer (taken regularly not as needed) and to help me understand how to protect her AND myself when she gets violent.
I am now in God's hands to help me to help her have a life with some joy in it. It is very strange how some Alzheimer's patients become very passive and others turn so violent and angry with the world and everything around them. There are no rules for us to know what do do because each person is diffrnt and react to different things. I found that I have locked out some channels on the tv because she would watch CNN a lot instead of the religious channel with songs and spiritual listening. The news is depressing even to us without this disease. With Alzheimer's it can only make them more depressed and anxious. Every day is learning experience. What worked yesterday does not necessarily work today - but we keep trying.
I went through a very rough time with my mother who will be turning 94 in March. She is diagnosed with MCI but I never expected her to turn violent. She spent a few days in a geriatric psych ward because medically there was nothing wrong with her but she was threatening to kill herself and was hitting and kicking me. I suspected a UTI but three tests came back negative. Finally, the med doc at the hospital cultured her urine for 5 days and sure enough, it came back positive for multiple bacteria. Once my mother got her UTI cleared up, the violent behavior stopped. Have you looked into this. I know caregivers who have their patients on a continuous low dose of an antibiotic because their loved one continuously developes a UTI.
Hi, Mendy,
Thank you so much for caring about your sister's safety. She's lucky to have someone like you who is focused on her well-being (while she focuses on her husband).
Outbursts are challenging to deal with, and I'm sure are especially difficult to handle when the loved one is in good physical shape. Because my mom didn't have the physical ability to really react in a violent manner (although she did have extreme emotional outbursts and did threaten to do things), I decided to seek advice from the excellent book, "The 36 Hour Day" by Nancy Mace and Peter Rabins. These authors noted that often combativeness can be prevented by watching for signals that the loved one's stress level is rising. "When a person becomes agitated, immediately stop whatever is upsetting him and let him relax," the authors said. "Do not continue to push him....Look for ideas for preventing outbursts or stopping them when they first begin."
I've also noticed that in the past when my mother's stress level started to go up (which could lead to a major outburst), I have had to really focus first on keeping my own stress level down. Otherwise, Mom "read" my emotional signals, and her stress level continued to spiral up (which would increase my own stress level). In other words, the loved one and the caregiver can contribute to this never-ending cycle that leads to these outbursts. By maintaining my cool, I'm often able to read her stress signals and then figure out how to calm her down and redirect her attention to something less stressful.
Again, thank you so much for caring for your sister's well-being. Encourage her to take part in this forum so we can all continue to help each other and our loved ones who are dealing with this terrible disease.
Dorian