A Sudden Caregiver

By shebuddy Friday, June 05, 2009

Hi there new friends,

   Things are happening too fast this year.

   Just last January, on the 31st, my younger brother passed away from Congested heart failure. He was divorced and lived on my parents land next to their house. He said he would take care of my parents when they got old and sick. I was fine with that, since I live 3000 miles away. But now he's gone first.

   When I went down to help with the funeral arrangements, I noticed that my Dad wasn't looking too well. He was extremely thin and his eyes were dark and sunken in. I asked him what was going on with him and he said he had a bad kidney. After he showed me a big lump on his left lower side of his stomach and said he felt full all the time and couldn't eat, I knew it wasn't his kidney, but cancer.

   I had flown back home to go back to work. I live alone, own my own home and have a few bills, of course.

   In the middle of April I got a call from my older brother, whom lives 10 miles away from my parents, that Dad wasn't doing so good. So I flew back down there....but I was a day late. He had passed away.

   Last summer when I had visited, I noticed that my Mom was lossing her memory. She couldn't remember things about her own body. Like her dental work, operations, and stuff. And she would get angry at my Dad because she couldn't remember appointments he was telling her about. Saying everyone was against her and saying she was crazy.

   But when I had flown down for my brothers funeral in early Feb., I noticed that she was doing a lot better. She was taking the drug Aricept.

   I had to make a decision on what to do with my Mom, now that Dad was gone. My older brother didn't have room at his place for her. In fact he very seldom visited my parents in the past. Maybe 2 or 3 times a year. My Mother never cared much for his wife, either.

   Although my parents land and house were paid for, I couldn't just move there to take care of her without me working. She only has $20,000 to her name, and hiring help is expensive.On top of that, work is hard to find in them parts and I had a good job in my town. So I moved her to my house just last Tues. the 2nd of June. We're hoping her house will sell to save the money in case she gets really bad and has to be put in a home, or need extensive medical treatment of some kind.She's scared to death that my brother or me will put her in a home. I told her I wouldn't do that unless she gets violent, or doesn't know me or anybody else. I would try and hire some help. 

   So here I am, looking up as much information as possible about her medicare and possible medicaid. Looking for a new doctor and stuff like that. I have to become her Power of Attorney, because she can't sign her name any more, and has no clue about her bills my Dad left.

   She's at the stage where she'll forget something I just told her 10 minutes ago. I guess you could call it her short term memory. She remembers most things about her past. She sometimes has a hard time doing simple things, like how to turn the light on in the bathroom for instance. I notice she can't see well either..... I think she has cateracts.

Carol Bradley Bursack, Health Guide
6/ 5/09 10:02am

Welcome, Shebuddy. I'm glad you found this site. You've made a brave decision and now you will be coping with your mother's progressive dementia. Aricept is a common first prescription. Often the doctors add Namenda. Each person is different, so it's a day at a time.

 

Keep telling her that you will take the best care of her that you possibly can, but stay away from promises about nursing homes. You at least made some "what ifs" and that is good. Nursing homes today are, for the most part, much better than in the past. There are still terrible ones, however, and I don't know where you live.

 

I would suggest you look reality in the face and tour local homes so you are in a position to know where she should go when the need arises. You won't be able to care for her alone and work, as well. She will need in-home care, adult day care and eventually nursing home care, unless some disease takes her before the late stages of her dementia. It's good to find a good home and get on their list. Then you are prepared for the future.

 

Whatever money she has will likely go to her care. That's what it's for, so use it. It will give you peace of mind to know she is looked after when you are at work. Wandering is something that is common, and people with Alzheimer's have been found on highways, or out in freezing temperatures, or driving the wrong way on an Interstate highway. So, in-home care may be in your future - or adult day services. Adult day services (or day care) could be a blessing, as she would have social contact with peers and would be looked after.

 

Good luck with all you have taken on, and bless you for your caring heart.

Carol

Leah, Health Guide
6/ 5/09 7:15pm

Oh, my, shebuddy, this has NOT been a good year for you and your family!  Please accept my condolences in the loss of your brother and father. 

Life is taking many twists and turns, but you sound like you have a level head on your shoulders.

Have your mom checked out from head to toe by doctors.  Aricept is wonderful; I take it and it has helped me to live a fuller life.  Watch for depression in your mother as it often accompanies dementia; don't just write it off to the recent losses of loved ones.  There are many great meds on the market which can be helpful; check with the dr.

Watch for wakefulness, or sleeplessness, in your mother; that, too, often occurs with dementia.  You will need to be aware of what lies ahead and how to handle it.  This website should help a lot!

Please know that we are all here for you!  God bless you and your mom.

Leah

6/ 7/09 6:35am

Carol, Thank you for your helpful advice. I have a lot of homework to do concerning my Mother. I wasn't really thinking too much about a "home" right now, but you got me thinking that I should  be checking them out and being prepared. I'm going to be looking for someone to come during the day while I work 3 days a week, at a reasonable price I can afford. That last company wanted $2256 a month! Whoa! Maybe I'll find a friend of a friend who needs a little extra money and doesn't work.

   I was reading about that Namenda drug for dementia. I'm going to suggest it to my Doctor. I hope my doctor takes medicare patients.

 

Leah......My Mother is on an antidepressant, but when I looked it up, it said it was for compulsive disorder and described other things to that matter. I don't really think that's the right medication for her. To tell the truth, I don't think too highly of the last doctors she was going to. Glad I got her out of there.

   But about the sleep thing. She sleeps really good. Goes to bed about 9pm and sleeps about 9+ hours. I've been a bit concerned about her sleepiness. She complains of being sleepy all day. I know we've been working a bit hard this past month moving and all, but I learned that she has a stomach aneurysm. She had an ultra sound a month ago, and since we couldn't make it to the appointment for the results, they didn't tell us a thing. That makes me mad, to say the least.

   As soon as I find a doctor or am able to take her to mine, I'll get everything checked out.

                        Thank you for the reply.

                                                      Teresa

Leah, Health Guide
6/ 7/09 5:11pm

Wow, Shebuddy, when it rains, it pours!  It sounds like you have everything under control...well, except for maybe the doctors...and they can certainly be a handful!  I wish the best!

Leah

6/18/09 5:04pm

hi sudden caregiver. i to am a sudden caregiver. your story sound similiar to mine

except that i am an only child. my whole life seem to have been turned completly around since march. everyday bring something new. good and bad. i am the primary care giver. i am with my mom 24/7. i am no longer able to work unless i can find

someone to come in, howerver; i did find an adult daycare that is willing to let her

come in for a two week trial. if things workout then she will be able to continue the

program. that is my worry i am not sure how she will do there. so my prayers are with you.

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By shebuddy— Last Modified: 10/26/11, First Published: 06/05/09