- Introduction
- Diagnosis
- Treatment
- Prevention
-
Caregiving
- Coping with Emotional Changes
- Coping with Memory Loss
- Costs and Insurance
- Creating a Daily Routine
- Exercise
- Health and Wellbeing of the Caregiver
- Home Safety Adjustments
- Mental Exercises
- Respite Care
- Talking to Children about Alzheimer's
- Talking to Friends about Alzheimer's
- Telling Someone They Have Alzheimer's
- Transition to Assisted Living
- Transition to Nursing Home
- Work
- Related Conditions
- Resources
Q: should you make decisions that are against their will if it is for their best interest?
Hello!
My thoughts about your question based on my experience with my mom is '"it depends". On the big issues -- financial and major health care decisions -- then I'd say you need to go with the person's best interest. If the issues aren't that pressing, then I'd say let the loved one who has dementia have a say. For instance, I had to take over the reins concerning Mom's medications when she came to live with me since she wasn't properly medicating herself. And as much as she didn't want to go there, we did place her in a nursing home due to her need for skilled nursing care.
Otherwise, I tried to pick my battles carefully. And I found that I had to determine what were inconveniences and which were potential crises. With inconveniences, I'd give Mom a voice in what happened. In a crisis, I'd take control. I wrote about this at:
http://www.healthcentral.com/alzheimers/c/42/8596/lessons-crises
Hopefully, you or someone in your family has power of attorney and the major legal documents are completed. This also should help drive your decisions. I wrote about this at: http://www.healthcentral.com/alzheimers/c/42/1667/care-legal-road. Knowing what a loved one would have wanted (prior to Alzheimer's setting in) is so helpful in guiding decisions. For instance, Mom had made her intentions clear concerning a feeding tube (she didn't want one) and had signed the appropriate legal documents to that effect. So when we were faced with the prospect of that decision, we knew what Mom wanted. I wrote about this at:
http://www.healthcentral.com/alzheimers/c/42/8522/moms-feeding-tube
I'll be interested in seeing what others say in response to your question. Take care and stay in touch!
Dorian
Elders lose so much decision-making power that I feel that we must override them only when they are in danger or it's something very serious. They have likes an dislikes (and that includes foods). Is it worth the battle to make sure they have a balanced diet? There are supplements (liquids) out that can help them maintain health, and fluid is more important than food, anyway. If they don't have much appetite, fighting won't help, anyway.
Clothing? Who cares? If they want to wear a red sock and a blue sock, it doesn't matter. So many things don't matter. Not really. Sometimes, such as going out for a walk alone when they could get lost, really matter. Then, you have to prevail, but if possible, be sneaky about it. Distract until they forget. Take them "home" by driving around the block. Just try to stay away from arguing because Alzheimer's always wins.
In the end, it's about importance and how your preserve their dignity. Try to make things seem like their idea. Try to show respect, even if you aren't feeling it. And try to let them have their way as often as possible. The rest of the time, you need to punt. Weight the decision each time. How important is this?
Carol
This is a very hard question. If your Mother needed a bath and refused to take one would you insist that she did? Absolutely. They become children and you have to take responsibility for their well-being. You have to be creative in my opinion. Sometimes it works, sometimes it does not.beth
Important:
We hope you find this general health information helpful. Please note however, that this Q&A is meant to support not replace the professional medical advice you receive from your doctor. No information in the Answers above is intended to diagnose or treat any condition. The views expressed in the Answers above belong to the individuals who posted them and do not necessarily reflect the views of The HealthCentral Network. The HealthCentral Network does not review or edit content posted by our community members, but reserves the right to remove any material it deems inappropriate.
Featuring Content From:
By using this service, you accept our Terms of Use. Please read them. The consumer health information on is for informational purposes only and is not a substitute for medical advice or treatment for any medical conditions. You should promptly seek professional medical care if you have any concern about your health, and you should always consult your physician before starting a fitness regimen. Copyright © 2012 Remedy Health Media, LLC. All Rights Reserved.
