Tuesday, June 11, 2013

Saturday, March 05, 2011 fustrated asks

Q: what do you do for a person with alzheimers that has no interests in doing anything

he doesnt even read the paper any more. never did puzzles or played cards never had a garden doesnt even talk much any more.
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Answers (4)
Christine Kennard, Health Pro
3/ 6/11 9:08am

Hi Frustrated

 

This share post on How Apathy affects Alzheimer's Disease and What You Can Do About It may be of interest and helpful to you.

 

Best Wishes

 

Christine

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3/ 5/11 4:26pm

Hi,

 

Do you have any idea what stage this person is in? Has he been diagnosed with Alzheimers? If he is in moderate stage or late stage, he can no longer read or write. He may read some words but cannot connect to understand an article.  As the result, he won't read anything to frustrate himself. It may be depression due to the loss of some abilities. Check with the doctor to see if he can take medcation for depression and Alzheimer's. Also the kind of people need structure and programs in a nursing home for memory impaired. Being at home is boring to him and he probably has no purpose or peers anymore so he gives up. He is also apathetic as well.

Check out the daycare center as well to find things for him to do. There are places where he can go for activities even after he stops reading or writing.

 

Regards,

NC

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3/ 5/11 6:55pm

he was diaganosed four/ five years ago. they just took his license away also. he is not in a nursing home he is still living at home with my mom as full time caregiver.which is taking a toll on her. he will not go to any place and do any activities. he has been a golfer for years but i dont see him doing this in the spring and my mom agrees.his day consists of dressing with my mom assistants, eating breakfast, lunch watching t.v. sleeping, eating dinner, appointments on occasion, and going to bed. help.

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3/ 6/11 12:48pm

CJ has said lots of good stuff to you. I just want to say it from our point of view. My father-in-law has stage 6 Alzheimer's and he cannot read/write but he talks and walks with a cane. His only last stage problem now is eating problem but he is on half puree diet (all meals, but not dessert or snack.)

Given this situation plus his congestive heart failure, he was dying at home even with 24 hour home care (4 caregivers came on turns.) The thing is the home has no stimulation and he wants to work!! Now this nursing home is like a big toy house for him and he is playing working all day and he has flourished.

 

So a nursing home is a good help in the end but we waited until he was really exhausted with all the stuff at home like reading or writing or memory with the house/family... When we moved him last summer, he was really in bad shape. He didn't care about his house but wanted to "work" with my husband. No way he will work anymore so this new nursing home provides him with peers and programs and safe 24 hour nursing care.

 

Everyone is different. You need to first of all understand exactly if he can read or write or do other things to decide what to do about him.

Your Mom will be sick one day doing this work 24 hour all the time.

 

Regards,

NC

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3/ 6/11 7:47am

Hello.  You are a loving person to want to try to help this situation.

 

My mother can still do puzzles and read, the two things that sustained her throughout her life, but I believe a time will come when can no longer process information well.  (She has trouble reading people's letters to her, for instance.)

 

The Alzheimer's Store has several different kinds of products for mental stimulation.  The one that most appealed to my mother are the jigsaw puzzles.  They have about 30 large pieces, and the pictures are of famous works of art.  If you work with your loved one, you can talk with him about the puzzle's picture, and so forth, because there are coaching questions that can prompt conversation.

 

There are also some memory games, some books that picture things from decades in the twentieth century, some movies and TV shows from that earlier era on DVD, and so forth.

 

There is also a wonderful DVD out there by Richard Taylor, a PhD and professor who was diagnosed with dementia and who has been talking about his experiences from the "insider's" perspective.  The DVD is called _Be with Me Today_.  It provides a really useful perspective on the situation your father is facing.  Golfing, for instance, is perhaps too complicated for him to think about unless someone went to help him, and maybe he doesn't want help.  Is there a miniature golf course you might take him to, just for kicks?  At any rate, the key issue is trying to meet up with your loved one where *he* is now, without any pressure that he be the person he was 20 years ago or 6 weeks ago.  I learned a lot from Taylor's DVD.  You might find it helpful, too.

 

Keep us posted on how things go.  I'm hoping some of the professional caregivers will come along and throw out some ideas for you.  You are a very loving person to want to help.  Sometimes our loved ones don't really want to be helped so much as - just - loved.

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3/ 6/11 8:09am

thanks for replying back. this is so complicated. i know there are agencies out there for information and assistant,but my mom nor dad is going want to do this. i know them real well. my mom keeps saying your father is fine and we will deal with the next step when we get there, which i feel is so wrong.going by the information i have read and the information thru the agency i talked to, my mom really isnt helping him.im just trying to figure out little things to do with him and im at a loss. thanks again.

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3/ 6/11 8:31am

Hello again.  When my father started down the road that led to his death, he had little strokes, which led to some dementia.  My mother remained in denial most of the time he was facing his dying illness.  Sometimes those closest to the loved one have great difficulty facing what lies ahead.  Maybe this is one of those times.  Maybe she is trying to protect him and protect his and her privacy from perceived intrusions by outsiders?

 

With spring coming on, perhaps just getting your father out for a ride would stimulate him.  Maybe going out for lunch with him?  My mother loves to have blueberry pancakes for lunch at a local spot.  Perhaps trying to find one event that brings a small pleasure would help.  Getting him out to a park (but remember to bring a sweater for him, to place over his shoulders, because the shoulders can get chilled) - that might help him see the birds and squirrels and other lively creatures of the natural world.  You can't press him to have great experiences; mostly you can try to provide a scene that might stimulate him and take it from there with him.  If there is a nearby park where you can feed birds or squirrels, this might make him feel happy.  

 

Your parents might have a relationship that is mutually dependent.  Your father might believe his wellbeing is tied to your mother, and your mother, vice versa.  This was so with my parents, but eventually my mother simply exhausted herself and had to call in her daughters for assistance.  Do you have other siblings?

 

You are very loving to try to help.  Keep us posted on what kinds of things are working for you, okay?  And again, those jigsaw puzzles were a real treat for my mother.  You can google and find the Alzheimer's store easily.

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3/ 6/11 9:21am

hello again thanks for responing, yes i have two oldser sisters, one is married with three children, no they are little toddlers,one is driving, i also have three children, one lives on her own and my son and other daughter live with me.my oldest sister lives with my mom and dad she is 53,no kids.they really are no help at all which is very sad will take all your suggestions to heart to help my dad in any way i can and my mom if they respond, i dont know. lets keep in touch this really helps me. thanks again.

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3/ 6/11 8:41pm

Good evening.  It's very hard on families when things go awry with parents.  For my family, my father's loss brought on all examples of our dysfunctionality.  Mostly, it's very hard because not all siblings can be on the same page, and the life partner, in this case your mother, sometimes cannot accept or face what is the reality or what's to come.  If you can bring your sisters at least to understand your "take" on things, that will help you all, in the longest run.  And it will eventually help your mother.

 

When it was clear my mother needed assistance, my sisters were not really there for her.  I had cooked for her for years, providing little frozen dinners that she could microwave, given that we knew she was not cooking for herself.  It was hard to see her so willing to live a deprived life, simply to live as she had lived for years.

 

I think if you could get your father out for an outing - a drive, a cup of coffee, an especially tasty lunchtime - you could then offer to do this again and make a "thing" of it - a treat for you to spend time with him.

 

You are so loving to try to find a way to make him have some good time in his last times. 

 

This site seems to offer opportunities for private messages.  I've never used the system for this, but if you would like to talk by email privately, I'd be happy to "talk" with you.  I too was the last child who was most willing to accept things as they were, when my father was leaving this world.

 

Best wishes to you,

CJ

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AFA Social Services, Health Guide
9/ 1/11 4:13pm

There could be many factors contributing to this individual's state.  Disorientation and confusion, both hallmark symptoms of the disease, can make the individual with Alzheimer's disease feel anxious, scared and/or sad.  Also, consider that any sensory impairments, such as low vision or hearing issues, can possibly make an individual feel isolated and detached.  Keep in mind that Alzheimer's disease affects the part of the brain that regulates mood, and the damage to the brain impairs an individual's ability to function properly.  He or she may not have the understanding or ability to change their own circumstances.  Not surprisingly, depression can also be a factor; it is quite common in individuals with this disease, and it is important that this person's doctor be alerted to this issue so that a full evaluation and assessment can be done.  It is important to engage with this individual with sensitivity, patience and calmness.  Focus on what the individual is still able to do.  Looking at old family pictures, going through a "rummage box," or listening to music from bygone eras could be gentle ways to stimulate and engage with this individual.

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By fustrated— Last Modified: 03/17/12, First Published: 03/05/11