Thursday, January 15, 2009 Mary Kay Snyder asks

Q: Mother with dementia is legally blind and defiant against caregiver, what's next?

Due to macular degeneration,mom is legally blind.Caregiver makes sure she is well hydrated at all times.Has medical problems and has been to the dr.'s,also is seeing a surgeon this week for netting that is coming out of fistula,that has broken thru skin just above scare from colon operation back in 2001.Nurses come to the house weekly,blood and urine tests have been taken an we are waiting for results to come back.Caregiver is doing everything possible to make mom comfortable.My mother is stubborn & won't allow to be fed like a baby.Caregiver gets mom outside only to go to the dr.'s office,that is the only kind of activity she gets or mom allows.She is defiant all the way

Thanks for the advice,I'll tell caregiver but i really doubt if any of your suggestions will help at this stage. Concerned, Ms. Snyder

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Answers (3)
1/20/09 1:53pm

My mother can be the same way.  My key phrase is "what's wrong with her keeps her from understanding what's wrong with her".  She has been in assisted living since August and keeps insisting she's completely capable (clearly she's not) of going back to her home to live. One whiff of a condescending, patronizing or overly patient attitude from the staff sends her off and she's calling me to tell me how badly they treat her. I've discovered that some caretakers just seem to not want to take the time to explain things (having just done so probably a few minutes before) or enlist her cooperation.  Saying "Marilyn, we need to to this because ..." with some simple explanation or even asking "Could you help me out by doing this?" can sometimes work better than assuming that because there are dementia issues it's no use trying to communicate.

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1/21/09 7:45pm

I did take care of my mother-in-law for five years. Everything was an argument. I prayed for peace and patience every day. I found that if I asked her to do somthing It was always answered, Can we do it tomorrow? So instead of asking, I would say today is tuesday. This is the day we soak your feet or Wash you hair. My mother-in-law never wanted me to have any time to myself. I did finally take her to her sisters on Fridays, but by the time I packed her up and got her there I was exhausted. I always took her & her sister out to eat or some little thing and then left her. But I had to pick her up by noon, So it was a little break. Also, the depression? I was pretty stern with my mother-in-law. If she couldn't get out of bed, I would ask her if I needed to take her to the doctor? We either got up and lived somewhat of a day, or we went to the doctor. She loved watching old movies, & crocheted. I kept my mother-in-law five years, 24 hours a day, then two years went to see her in the nursing home. She could do nothing but she was fed, clean, clean clothes, given her medicine, and taken to every activity I went to with my children and her great grandchildren.  It was a very busy time and I know I aged 13 years in five. Then I turn around and my mother is asking me the same thing over and over and over. This time I am older and I have no guilt. I can only do so much in a day. That is what all care givers need to learn. I was younger the first time, This time I have health issues and I love my Mom with all my heart, but I do what I can and Love her. God knows what is in your heart and he is with you always. Thanks, Mom's Baby 

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2/ 4/09 1:52am

looking for some of the same answers defiant, does not know reality from dreams and thinks everyone is "out to get her" for lack of a better word (parinoid?) i could use help also...

 

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By Mary Kay Snyder— Last Modified: 10/26/11, First Published: 01/15/09