It's been over two months, and my aunts son refuses to tell us where she is.
It's been over two months, and my aunts son refuses to tell us where she is.
Hi Michael,
This is really unusual. Is it possible that her son is so upset about "the way she is" that he doesn't want anyone to see her like that? Therefore, he lays the blame on the doctor and keeps family from visiting her? That is horribly sad, if that is the case. He likely feels it's the best, however, so I wouldn't judge him.
There's no medical reason that I know of (I am not a medical person) where this would be warranted. Having peers around her should be good for her. If she is aggressive and they feel she may harm other elders, then they should work with behavior, give her lots of attention and maybe medication to calm her, such as anti-anxiety medication. I'm assuming she is on Alzheimer's medication, already, or that it has been considered by a qualified doctor.
I've heard from some people who say that they can't visit a loved one for a month, or whatever, after they go into a nursing home. That is impossible for me to comprehend, and I would challenge any doctor who orders this, if indeed this comes from a doctor.
There's only so much you can do, since you don't have legal rights to visit, but my condolences to the whole family. Alzheimer's is hard for a family to cope with. Some family members are ashamed of the way the person afflicted with the disease acts, so they don't want them in public. Archaic thinking, but it does occur.
Try to stay friendly and in touch with your cousin. If you have a mutual friend, maybe they could talk with him?
Take care,
Carol
Hi, Michael,
In my mother's case, the nursing home did ask that my father not visit for a period of time since there Mom exhibited extreme hostility regularly toward my father. (Dad was the one who was always at home with her in the early stages of Alzheimer's and who would correct her when she made a mistake - which was often. The situation went downhill from there between them, and my very strong-willed and proud mother got extremely paranoid and angry, and started thinking Dad was "stealing" her money, which wasn't the case.) This isolation period (which didn't include me) wasn't a problem since Dad had to go back to the place where they lived in order to sell their house and pack up their belongings to move down here, which took about a year. By the time he returned for his first visit (about two months after Mom was placed in the nursing home), Mom had "forgotten" her anger and their interactions were friendly.
So based on that, I could see why someone with Alzheimer's could be kept apart from certain individuals. I'd suggest asking your aunt's son if this is the reasoning behind the isolation. If not, I think you deserve an honest answer about why this is being done.
Take care and keep us posted!
Dorian
This sounds like a difficult and distressing situation for you. Although there can be many reasons as to why your aunt's son is keeping this information from you, there may be some things you can do to change his mind. You might have to broach the issue by having an open and honest discussion about your aunt and her importance in your life. Explain to him that you are aware how challenging and complex caring for someone with Alzheimer's disease can be, and how you can only imagine what he must be going through. Find out if there is anything you can do to help him, to perhaps ease the pressure of his routine. By forming an alliance of sorts, you can help build a rapport and promote better communication. If he is resistant, try figuring out why he won't disclose this information, and be supportive of the response you receive. Perhaps there is an element of shame that he is trying to hide, or he is afraid of anybody getting too closely involved in her care. It is difficult to really know what he is thinking without hearing it in his own words. If he has trouble discussing his feelings with you, suggest that he join a local support group, or reach out to organizations that can help him through the process. You can encourage him to contact the AFA at (866) 232-8484, where he can have a confidential discussion with a licensed social worker. For all you know, it may be easier for him to speak with an anonymous person than a family member.
I am sorry about this. Like other people mentioned here, you may try to discuss with her son to form an alliance so he can let you in.
I am not sure what it means not telling you where she is. He didn't want you to mind the business or care where she goes? Or he is afraid you would see her there? Is there any problem with this new location? Maybe it is just for a short time like the first month when she is in the place? Is it a nursing home or what?
I cannot see that family is like this - one is not allowing the other to go. But it may be possible if the patient is easily agitated.
We have a situation that my father-in-law's lady friend may be using him to do whatever she wishes. If she irriates my FIL too much as he is sicker now (stage 6 and he sleeps in the day and wakes up after midnight), we may need to ask her not to come. But it would be hard as she is bossy and a long-time family friend.
It works both ways: either the patient is agitated or the visitor is agitating the patient. Either way the isolation would help.
Regards,
Nina
A lot of times it is the family members that are ashamed of the way their love one has become. Of the embarrasing tings that they may do, but unfortunately cannot be controlled.
No this type of isolation is not normal. It is like a kidnapping so to speak. There are many ways Alzheimer's patients are to be handled according to family circumstances but this is not the way.
It sounds like the son has personal issues with the family. If she is in a nusing care facility she should not be hard to find because a lot of them don't even take Alzheimer patients.
Important:
We hope you find this general health information helpful. Please note however, that this Q&A is meant to support not replace the professional medical advice you receive from your doctor. No information in the Answers above is intended to diagnose or treat any condition. The views expressed in the Answers above belong to the individuals who posted them and do not necessarily reflect the views of Remedy Health Media. Remedy Health Media does not review or edit content posted by our community members, but reserves the right to remove any material it deems inappropriate.