Tuesday, May 29, 2012

Monday, June 13, 2011 incapable daughter asks

Q: My mom and some of my siblings say I'm not able to care for my dad in my home, even with hired help, even though I'm a registered nurse with years of experience in nursing homes. I'd like to try.

I'm not saying it wouldn't be hard, but I believe it's my responsibility and that there will be many blessings from it. I also feel that it would actually be easier for me to manage him at home than in a nursing home. He's in a nursing home now for rehab, and I've come to find out that they haven't improved as much as I'd hoped in the 15 years since I've worked in one. I have already hired 3 employees who helped us last year, and I have names of 40 more who responded to my ad. I'm very good at organizing work and balancing them with individual needs, as I have 9 children. My family sees this as a drawback, but I see my children as an asset. They can learn to care for the elderly, too. Two of them want to be nurses anyway. I'm one of the younger siblings (I'm only 42 - just a baby), so I think that's why they see me as incapable. My mom is always telling me I can't do things (meaning it's too much for me). She's very upset with dad's care at the nursing home, and with one breath, she wants to bring him home today, and with another, she's blaming me for bringing him home because I want my "chance to try." She said she wants to bring him back to their home and hire the help there, but I think she's just saying that because she doesn't think my family can handle my dad living here. She's complaining about how she won't have any privacy because of the hired help and how it will be so much work to train them. I think from talking to my siblings, I'm supposed to say, "Whatever you decide, Mom, it's okay. You took care of him for years, and you won't be able to do it forever (which is true)." But she would decide to keep him in the nursing home just to spare me. This is definitely not okay with me. I can hire 24/7 care for Dad for the same price the nursing home charges though I'd have to do some modifications in the bathroom, and he'd have to have some furniture for his bedroom. We'd also probably need a ramp. I doubt we will need 24/7 help all the time with all the people who live here. I just want to be ready. Right now she's planning on having him come home to her house, possibly just to spare me. Though his situation at the nursing home really bothers her, I can tell through her other statements and through what my siblings have said, I'm supposed to try to help her eliminate the guilt of keeping dad there permanently. I'd like to help her eliminate the guilt of having dad come here. I think it very well may be too much for mom to have him come home. But do I have to let others decide that it's too much for me?
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Answers (2)
Dorian Martin, Health Guide
6/15/11 11:32am

Hi, Incapable Daughter,

 

I think if you decide you really want to do this, you could be able to. I base this on two reasons. First of all, I have a good friend who did not have nursing skills, but who did a great job caring for both of her parents (who had Parkinson's, but not dementia) in their home. She hired quality caregivers to assist her and basically "ran" her own caregiving program. She also learned a lot about caregiving and was able to take on regular shifts (which is something you're already trained to do). She also was able to maintain a high quality control of what type of care her parents were receiving. And I think that you also can involve your children. My mom regularly took my teenage brother to the nursing home to help with care of her mother (who had dementia). My brother did a very good job and proved to be a very compassionate caregiver. However, I would also add that this effort also made it very difficult for him to take up any health care vocation (which he would have been good at) because it was so emotionally draining.

 

Take care and keep us posted!

 

Dorian

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6/13/11 12:01pm

Hi innocent daughter,

 

You have such a big heart wanting to move your dad to your home and care for him.... It is nice of you. Is your hubby going to support you as well? I agree the adult kids can help your dad as well. I understand this way 24/7 home care may be cheaper because you only need part-time worker and you and your kids are there a lot. Strictly speaking, he needs 24 hour home care but if you have enough man power to rotate, you may not need the hired help for 24 hours. This way it is cheaper than the nursing home.

 

But it seems your family does not like this. I think in a way, your 9 kids have their own lives. Eventually your Dad will decline to the point that you need to be there 24 hours unless you have help. It is not just the physical care, but it also has to do with the "watch" so someone can change the tv channel for him and motivates him to exercise and do the daily actitivitse. Lots of work.

My father-in-law had had almost 2 years home care. He had caregivers since late 2005 and the hours was added gradually up to 24 hours. Now he is in a residential home and got very good professional care.

 

About this guilt, I think it is not fair that your Mom thinks someone else needs to help to get rid of the guilt. You need to tell her, don't feel guilty. It is no one's fault. Caring for an old man with Alzheimer's is not easy. My FIL is a man, frankly I think a man gets more violent and is more dangerous.

 

Also, you need to be aware that you can never argue with your Dad and you only soothe him (I guess you know this as a nurse.) It is a lot of work.

 

I don't think you need to help your Mom to get rid of guilt. Your Mom needs to know that she has done the best and don't feel guilty and should not put it on her kids about her guilt problem.

 

I cannot help the part about what your siblings think. But you need to raise your 9 kids, you won't have time to do that if you have to care for your Dad for 24 hours. If all 9 kids are old enough as older teenagers, then it may be OK.

 

Good luck,
Nina

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By incapable daughter— Last Modified: 06/15/11, First Published: 06/13/11