Hi Johnnygirl,

From personal experience with my Nana & Uncle who both have this cruel disease,I found that they do follow routines like people with compulsive disorders such as OCD,My Uncle who is highly religous started coming out with some very foul language which was  not like him at all,he used to get offended when he heard a swear word but now he swears worse than a trooper and he even started cooking the dogs food on the stove and walked away   leaving it to boil over,every night we had to get up in the middle of the night just to turn off the stove cos he used to get up and turn the stove on and go back to his room some nights he wouldnt sleep in his bed and we'd find him on the floor sleeping  and his dogs would be on his bed, also he started mopping the carpet which he did every day  and his toileting habbits got weird too he wouldnt flush the toilet  even when he did a poo he said it will hurt the fishy and he would get really angry if you did flush the toilet or tried stopping him from mopping the carpet.

My Nana on the other hand was suspious and she always thought  you were out to get her,she used to get all of her jewellery  and put it in a stocking and she would put it in her bra  and she still thought you stole it so she'd call the police and when they came they couldn't help but stare at  her 3 breast which I had to explain to them what it was then she'd say to them I put it there,Also she used carry like 10 grand in cash at all times  and she used to buy  really expensive  clothes and she wouldnt wear them  she had that many clothes she could have opened a store  and every single piece of  clothing had there tags on them still .

I guess if there not harming themselves or others let them do there riturals cos interfering or trying to change them will only cause  them to become very upset ,think how you would feel if someone said you couldn't do something a certain way  how would you feel?

Good luck

Jacquelyn xx

johnnysgirl

7/25/09 1:16pm

thanks for your answer, i just wished as i know we all do, there was no cruel disease like this...

 

Jacquelyn 84

7/25/09 7:41pm

I know it's hard watching our love ones suffer like this and it's always the good people who get cruel diseases like this,I guess what makes it a little bit easier is knowing that there not aware of what's happening to them,cos I think if they knew it would make it worse for them so in one way this disease has one up side to it even though it's still hard for us to see how they change from the person we once knew to a person  that seems like a totally different person,My Nana to me is like a baby  in adults body she even calls me mum which was hard at first for me to get my head around, cos I've always seen her as my mum as she raised me like her daughter,now I look at it like this I must be making her feel safe and loving her like a mother would  so I guess she views me as her mum in her mind cos of the way I treat her.

 

Our love ones might seem different but if we show our love and support to them  that's one thing  they'll never forget  and this disease will never take that away from them or us

 

Take care

Jacquelyn

Carol Bradley Bursack, Health Guide

7/25/09 1:31pm

Well said, Jacquelyn. It's just one of the many changes people go through. The swearing is very upsetting to a lot of people when it comes from people who never spoke that way in the past. But they can't help it, so we must adjust.

 

Take care,

Carol