Tuesday, June 11, 2013

Thursday, March 31, 2011 gerifitz asks

Q: respite

I am on a mini vacation from taking care of my husband with alzheimers. He is at a short care facility for respite. A few days ago the facility's social worker called because my husband was asking where I was, she gave my husband the phone to talk to me. I felt this was entirely inapppropriate and certainly sent me on a guilt trip. Was I wrong to think this inappropriate?

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Answers (3)
Carol Bradley Bursack, Health Guide
4/ 1/11 9:02am

No, Geri, you were right. They should have said that you would be back soon, or something soothing. They no doubt felt they were helping, so next time you take a little time for yourself, be very clear that only in an emergency are you to be contacted. Then, maybe you could help them think ahead of soothing answers for him. You deserve some real respite!

Carol

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4/ 1/11 1:18am

Hi Geri,

 

Probably you would need to tell the social worker ahead of time for not disturbing you. Maybe she thought it is Ok with you. Or maybe she knew it but could not cope with your husband's request. Maybe he was asking all the time that the caregivers had to come to you to calm him down.

It all depends what you agreed with the staff there. I would think she should call you first about it. For us, my father-in-law's home calls us first about any issues. However, my FIL can no longer make a phone call (to dial) himself anymore.

 

I think it is the communication issue. Sorry that your vacation has been interrupted.

 

Take care,

Nina

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4/ 2/11 1:17pm

Hello.  I've been thinking and thinking about your message.  My mother lives in my home.  She is entering stage 5 of Alzheimer's.  My husband and I are taking care of her needs.  My sisters sometimes come in to stay here when I am away on work business.  (I work full-time, so my mother is, during most daytimes, tended to by my husband.)

 

My mother can get agitated if she has not been told about what is going on in the house, especially about where I am.  When she doesn't know where I am, she sometimes makes up stories about where I might be.  Would she like to speak with me by phone when I am out of the house?  Yes.  She gets upset - doesn't sleep well in advance of my leaving nor while I'm away - when I am away for work-related business. 

 

Knowing all of this, I have to plan on speaking with her, about once per day, when I am away. I just call in and ask her what she is doing.  Would I like not to do this?  Sometimes.  But knowing that she can get upset or not sleep well, I imagine it's easier for my sisters and my mother if I call in, when I can, just to check in with her. She obsesses about keeping her cell phone with her at all times, in case someone might call her.

 

I think the others have given good suggestions: next time, in advance, if you don't want to be interrupted, instruct the care facility about this and make sure they have a note about this in your file.  You do deserve a rest.  I find I sleep ever so much better and wake up feeling so refreshed when I am away from home, even though I'm away on work-related business!  So I know what you mean about a rest. And if you are seeking real respite from constant caregiving, then you deserve that respite. If they are a care facility, whatever your husband is doing is likely something they have seen before . . . . 

 

Speaking from my experience with my own mother (which is, of course, different from speaking about a husband), I don't think I'd want *not* to be called if my mother were raising a fuss.  Sometimes just a tiny bit of reassurance from the prime caregiver is all it takes to resolve some momentary emotional chaos.  I'd rather she were at peace, since she's more easy to be around, then.  She is never physical with us, but I can tell when she is confused.  My sisters, not being around her so often, don't always know what the signs are. 

 

Each one of us needs to make the decision that works for us.  I'm sorry you are facing this with your husband.  You are a very, very loving person to be there for him. 

 

Best wishes,

CJ

 

 

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By gerifitz— Last Modified: 10/26/11, First Published: 03/31/11