Wednesday, June 19, 2013

Friday, August 24, 2012 NotSure asks

Q: We have been told that my mother does not have dementia

We have been told that my mother does not have dementia and she passes all the preliminary tests.  however, at home she constantly is doing, unhealthy, unsafe and plain old crazy things and then fights with you about it.

She is incredibly confused and forgetful.  If she doesnt have dementia, what does she have?

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Answers (4)
Christine Kennard, Health Pro
8/25/12 5:27am

Hi NotSure,

 

I am worried that you have come away from from a meeting with a doctor and he/she has not talked to you about other causes of memory problems.

 

This link to some information on causes of Memory loss dementia Alzheimer's will be helpful to you.

 

You need to go back to her doctor as she and you need to find out the cause of her confusion and forgetfulness which can range from anxiety through to physical changes in her brain that result from disease.

 

Please keep us posted.

 

Christine

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8/24/12 9:50pm

I am curious to who tested her. And you can score very high on the tests and still have early stage dementia. Do you have a place in your area like a memory care center? If not contact your local Alzheimers association. They are a great resource to help you. Working in the field for 13 yrs, it sounds to me that she probably does and warrants another opinion. Especially the combative part. Does she remember stuff recently? Like how old she is or you? When shes last bathed... Is she referring to the past in conversations??? Like does she know the current president? If I may suggest, if she's doing unsafe things like leavin the stove on or water runnin in the tub  or goin outside and roaming, you may want to take her to the ER at your local hospital and have a social worker assess her for their geriatric pshyciatric unit. Until then which I hope is soon, try to not argue with her about what  shes doin, but rather offer soft suggestions of doing it another way. But it should make her feel that she  in control and its an easier way or a shortcut to help her. It sounds as if what you say is happening regularly she shouldn't live alone until she has another assessment. She needs safety first. Please keep me posted and good luck. Sounds like you have a tough road ahead. Oh, I don't know her age but has anyone offered aricept or namenda? these are meds to help try to slow dementia down some and retain some mental clarity. God Bless, you are in my thoughts. 

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8/25/12 7:55am
She was in the hospital and it was the neurologist that stated this. She does not live alone as my extremely stressed out sister lives with her. We have an appointment with the neurologist next month for a follow up. I too believe it is more than forgetfulness. It is a highly volatile situation for all involved. Everyone fights and cannot seem to understand each other (my siblings). She always gets those basic questions correct and in front of doctors is quite different then when at home. Reply
8/25/12 9:21am

I am so sorry for the situation you're in. My family has been there too...Dementia and Cancer. Arguing and fussing!!!! I know this may be out of the norm but is it possible for you to video her actions to show the doc? And too I agree with Ms. Kennard that it could be another type of brain disease or mental condition. Thats why I suggested the hospital. I would still check into your local Alzheimers Association for advise, as there are soooo many types of Dementia. Like frontal lobe aka Lewey Body. It is in my experience the not so common type and people can be perfectly fine for a period of time, then not.  Also, being severly bi-polar can do this. If you need an ear just shoot me a message and I'm here. I'll be thinking of you and your family. Does she have a power of attorney? It would be awesome if ya'll could come to some common ground for your mothers benefit. But keep your chin up and stay strong. You can only do so much and take care of yourself. As your sister may need a break too, she needs to care for herself too.I'll say a prayer for ya'll. Stay in touch.

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Carol Bradley Bursack, Health Guide
8/26/12 6:08am

This is tough for you, but I have to agree with all that's been said. There are so many causes for behavior that can mimic AD. I'd take your mother to a different doctor. Describe her behavior. She should be checked for a brain tumor, have her medications checked for side effects, make sure she doesn't have a urinary infection or any other type of infection, and be test for all types of dementia. Not all doctors will take the time to do these tests.

It's sad you have to fight this hard, but many of us have been in your shoes. We just have to keep pushing.

Good luck. We are thinking about you,

Carol

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Dorian Martin, Health Guide
8/27/12 9:37am

Hi, Not Sure,

 

I also agree that you should have your mother see another doctor and find out if there's another reason for her behavior.

 

I say that because I've seen my father occasionally display some weird behaviors and erratic memory which worried me about whether he was getting some form of dementia. However, the times that this has happened, it turned out it was due to his pain medication. The first time, the doctor had raised the dosage; once it was lowered, Dad was back to normal mentally. The second time it was because Dad had left the old pain patch on and put a new one on as well, thus overmedicating himself. Once the drugs were out of his system, he was fine.

 

There may be a similar reason for your mom's issues. A doctor should help you figure it out.

 

Keep us posted!


Dorian

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AFA Social Services, Health Guide
8/27/12 11:29am

I understand that you have several concerns about your mother’s health and wellbeing, and are confused by the determination that she does not have dementia. 

 

As humans age, some memory loss and cognitive decline is considered to be completely normal. Although I am not a physician, there are certain symptoms, however, that are characteristic of Alzheimer’s disease and do not appear in every individual. These include a loss of short term memory (what they ate for breakfast or what was said 5 minutes ago), problems expressing thoughts or comprehending requests (trouble finding the right words or calling something by the wrong name), difficulty or inability to carry out activities of daily living (dressing, bathing, paying bills), changes in personality (becoming aggressive when they were always mild-mannered), confusion or disorientation to time, place, or person, unexplainable mood swings, loss of initiative in starting or completing activities, aggression, agitation, and depression.

 

If your mother is experiencing a few or many of these symptoms, it is a good idea that she undergo comprehensive testing. A complete test can include a cognitive screen, a blood test, a urinalysis, brain image scanning, and a comprehensive medical history. In order to find out if she has probable Alzheimer’s disease, it is necessary to rule out other possible explanations first. There are a number of other treatable medical conditions that can mimic the symptoms of Alzheimer’s such as depression, thyroid disease, urinary tract infections, and vitamin deficiencies.  If she does end up with a diagnosis of Alzheimer's disease, the earlier the diagnosis, the better so that she can begin treatment, plan for the future and take advantage of support services.

 

Consumers have the right to demand proper evaluation of memory disorders by a healthcare professional, and persons with dementia are entitled to care from professionals who understand basic treatment strategies for cognitive wellness. Some primary care providers are better versed in dementia than others. If you are not satisfied with the determination by your mother's physician, you might want to consider seeking a second opinion at another primary care provider or asking for a referral to a neurologist or geriatrician. 

 

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By NotSure— Last Modified: 08/27/12, First Published: 08/24/12