Tuesday, May 29, 2012

Tuesday, March 24, 2009 jackdebh asks

Q: Is it normal for a person with Alzheimer's to not understand why she can not be left alone?

My Mother-in-law recently moved in with us.  I am now trying to set up a companion to come to the home for a fews hours two days a week because I need a break and also time to get things done for the rest of the family.  She keeps asking me why she can't stay by herself.  She has some other medical issues (COPD-on 02 24/7, on thickened liquid diet due to silent aspiration) and she does need constant supervision (she will take her 02 off and forget to put it back on, she tried to get plain water....) but she denies that she needs help.  I am not sure how to handle this situation because she will get very mad about us paying someone to come be with her when we can't.  Any advice would be greatly appreciated.

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Answers (3)
Dorian Martin, Health Guide
3/24/09 4:43pm

Good afternoon!

 

My mom had the exact same situation (Alzheimer's and COPD) and behaviors (taking off the oxygen). I learned that sometimes finding a way to "shade the truth" helped Mom agree to do something that needed to happen. For instance, I might tell Mom that she recently mentioned that she missed visiting with people and that a person is coming to visit with her for awhile to hear about Mom's many travels. I'd cue the person in to what I said so she could ask the right questions, and once they got the conversation going, I'd make a graceful exit. I also found that the way I approached a request with Mom made all the difference. I wrote about this at:

 

http://www.healthcentral.com/alzheimers/c/42/1779/Its-How-You-Say-It

 

And of course, I never told Mom that I was ever paying for someone to stay with her.

 

I hope this helps. Let me know if you have other questions.

 

Dorian

 

 

 

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3/24/09 3:55pm

Dear jackdebh,

 

It is hard in the beginning. Now my father-in-law is in stage 6 with Alzheimer's, and at times he still says he would like to walk alone or even jog alone (he can no longer jog because he needs a cane and can only walk a long block now.) Sometimes these patients have the illusion that they can do the normal things they used to do. They have no idea they have Alzheimer's. My FIL has never admitted Alzheimer's whatsoever and now he is too sick to understand even dementia. Back in 2005, he was very stubborn not wanting to have any caregiver with him as he lives alone. Like your mother-in-law, he didn't want to pay the money (was cheap at that time as it was part-time; now it is 24 hours.)

We learned it the hard way. In Oct, 2005, the neighbor came over as we requested and said he was sick after he fell one time at the stairway, and his medication was too much so he was too sleepy and confused. They forced my husband to go there right away or they said they would call the social worker.

So my husband flew there with expensive airfare the next day and immediately found this home care service to have someone come over to see him one hour a day. We told my father-in-law it is the law and that he has to have someone. Later on in Oct. 2007, he got sicker and could not walk a long distance anymore. The caregivers told him he cannot be alone and got someone 24 hours overnight. The first night, my FIL called my husband and blamed him to get this overnight caregiver who "scared" him the first night as she was asleep downstairs at that time. In any case, the home care people managed to let him get used to the 24 hours care. He forgot at times and he didn't realize the girl was in the other room in the front and he stays in the back downstairs now so sometimes he has no idea at all.

It is true at times they don't admit they cannot be alone. At times, my FIL now says he cannot be alone but he likes to walk out alone and etc.

 

You probably need to tell your mother-in-law that you need to find someone to be with her or the neighbor will be angry. You see, when she is alone, she can wander to the neighbor's and complain!! The neighbors can be nice or mean and they will tell you that you need to get someone to be with her! Just tell her that the social worker says you need to get someone. Get some legal reason so she must accept it.

You can also get the person first and try it so she will get used to it. Later, she will stop asking. You can just say you hire this person for yourself. She may feel shameful if the person is for her. You could use some excuses like the person is working for your house and etc. So she can feel better.

 

Just my experiences.

Take care,

Nina

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AFA Social Services, Health Guide
3/25/09 1:07pm

Your mother-in-law's situation is understandable and not uncommon. Many people with dementia have impaired judgment, which means that they can't always make the best decisions for themselves or clearly understand right from wrong. This is not something she can control, and it may be difficult or even impossible for her to comprehend her own limitations, such as why she would need somebody to stay with her. That is what makes the caregiver's role central in this regard. It is up to the caregiver to put all modes of care into place and find creative interventions to ensure their success. If your mother-in-law would get mad about the idea of hired help, you may want to frame the situation differently from the start. First, it can be helpful if someone from the family who your mother-in-law trusts is present during the first few visits that an aide makes. That person should spend a reasonable amount of time with the aide, explaining your mother-in-law's care needs and preferences, and then continue on with the visit by engaging in activities all together. Aside from creating a friendlier feel between all of you, this could also help build rapport between the aide and your mother-in-law, which could make future visits easier. As this approach is less directive and immediate, it can also potentially be less intimidating. Once you find that your aide and mother-in-law have a good connection and can enjoy time spent on their own, it should be simpler transition to leave them together if you need to leave the house and take some time for yourself.

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By jackdebh— Last Modified: 10/19/10, First Published: 03/24/09