Sunday, July 04, 2010 Judy asks

Q: Alzheimers- My mother wants to "GO HOME"

My mother has Alzheimers in the late stages.  She still gets around good and has a lot of past memories, stories to tell!  I have moved into her home with her trying to give her happiness being in her home.  My problem is that she hates someone living with her.  She wants her privacy and wants to live alone.  She really hates that my husband is here.  I try to tell her that we are just visiting and she seems satisfied but then someone will ask her if we live with her and and she goes into a fit and tries to throw me out(along with my husband).  When I won't leave she then runs away!  The police have been involved many times and on one hand they tell me that I cannot do anything as I do not have power of attorney and on the other hand they tell me not to leave her alone.  What to do???  I have tried to get power of attorney but I have to have mother's signature and she will never sign over her life.. never!!!  The doctor told me that he would sign any paper that I need to sign after seeing her last time.  The lawyer still says that I have to have mother's signature!  I have the same problem as others.. she wants to "go home" and yet we are in her home!  I want to stay with her and keep her as happy as possible but I don't know how long I can stay with her as she keeps trying to hurt me, my husband and herself.  She has been very violent.  She had an aunt who was put in a nursing home for a short time and her children sold her home and car and then when it was time for her to get out she had no where to go.. this has always been on her mind and now it is even heavier on her mind as she knows it could happen to her.  I tell her that I will not let anyone put her in a home but I need the paper (power of attorney) signed.. she will not sign it but then during our arguments/fights she brings up that I have the "paper" and I am trying to control her!  Any suggestions would be appreciated!  Thank you!

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Answers (3)
Carol Bradley Bursack, Health Guide
8/ 8/10 10:12am

 

First  - for your own sake, please start rewording your promise to never put her in a home to I'll always do what's best for you or something. I know it's hard, but we don't know the future. There are times when that promise made in love brings great anguish to the person who made the promise, as circumstances sometimes give people no other choice.

 

She's got this sad memory. That won't go away, so you'll have to work with it. You are obviously aware that the need for POA is soon - or you'll have to go through conservatorship or something to take care of her, because her dementia will only worsen. Maybe you should see an elder law attorney now (or estate attorney) for advice on how to continue. Your situation isn't unique and he or she will likely have some ready advice.

 

Good luck - I know it's hard.

Carol

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7/ 4/10 2:14pm

My heart goes out to you in your (and your husband's) struggles, Judy.  Nothing is fun about Alzheimer's Disease.  Mostly, it's a seemingly never ending struggle. 

 

Given the information you offered, it is entirely probable you WILL be able to work through the court system in order to obtain a Power of Attorney.  Employ the help of your doctor and ABSOLUTELY find a different attorney.  Check with www.alz.org or Area Agency for the Aging for assistance in how to get started.  It could well be that ultimately, they'll also be able to direct you toward legal help in your own city.

 

Judy, 'keep on keeping on' in your endeavor to not only get on top of things and know you are accomplishing that which must be done, but 'koko' in order to maintain your own sanity.  By so doing you'll discover more and more people and agencies which are currently available to help you.  (Thank you for reaching out through Health Central as one of your resources.)

 

I will add that it is also important to journal ANY 'Lighter Side' moments you encounter...  as few as they may now be.  As you reflect on those LS moments during bad times, it'll help you bring things into perspective by helping you remember the 'real' person hidden inside that one you are now dealing with. During tough times, it's very important to remember the now mostly hidden 'real' person in order to help you maintain proper direction.  (See www.alzheimersinhomecare.com)

 

My best to you and yours...

 

Vernon

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7/12/10 1:37am

Thank you, Vernon, for your reply!  Your information is very helpful!  I will check with another lawyer on the Power of Attorney situation and I am recording the good moments with my mother!  I already see what you mean about the hidden 'real' person.. my mother is not the same anymore!  I already miss my best friend very much!!!  I appreciate your time, Judy 

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Carol Bradley Bursack, Health Guide
7/12/10 9:07am

Thanks for this information, Vernon. Good stuff!

 

Yes, a second opinion with a different attorney never hurts. One thing I would add, Judy, is that no one should promise a parent that they will never put them in a nursing home. We don't know the future and that promise just adds guilt to the other hard feelings.

 

Saying something like "we will always take care of you" can fill the gap - but sometimes that means outside help. You have a very difficult situation, Judy. Getting help from your local Alzheimer's organization and also the doctor are good starting points.

 

Carol

 

 

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8/ 7/10 8:54pm

My mother also has Alzehimer's in the late stages. I did have her Power of Attorney that was signed before she had Alzehimer's, which was a help.  I don't know in which state you live, but I would think that you could get her doctor to fill out a Physician's Letter Regarding Capacity of Proposed Ward or simalar document. She should be assigned an Attorney Adlidem (an attorney that would be assigned by the court to speak on her behalf).  You would have to go to court and get a judge to give you Guardianship over your mother.  Of course, this would depend upon your state's laws regarding Guardianship over a person that is unable to make decisions based upon their mental incapacity. You probably need to see a lawyer that deals in this type of law.

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By Judy— Last Modified: 10/26/11, First Published: 07/04/10