Monday, February 13, 2012

Thursday, August 13, 2009 LMyers1020 asks

Q: Just need to know, explain my mothers disease

My mother has been diagnosed with mild to moderate dementia.  I have been reading over every one's post but just haven't come across one like mine.  My mother has times that she is with us, mentally.  However, her short term memory is not the best.  Sometimes I think it would be easier if she would forget.  Is this common?  She still remembers my father's death, and remembers parts of alot of things.  She broke her hip several years ago and has trouble walking, therefore she is in a wheel chair, she can not remember to take her meds, has trouble with UTI and just recently had a terrible bout with depression.  My brother and I decided it would be in mom's best interest to have her live in asst. living that specializes in dementia.  I feel like I am on a roller coaster of emotions.  I know that she can not live by herself and the cost of having full time caregivers far out weighs her apt. at asst. living.  She gets great care and probably is entertained more there than if she were at home.  Does everyone  else feel this way?  I constantly second guess myself.  Mom has been in asst. living for almost a year now and I guess I just though that by now I would have gotten use to it.   She still wants to come home and have someone stay with her.  I know that this is not the answer but I still question everything.  I thought by now mom would be advancing  more than she has, I guess I just need to remind myself that this disease progresses differently  with every one.  Thanks for listening.

Lesa

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8/15/09 7:53am

Hi, LMyers,

 

In my experience, dementia does not follow a linear path of decline. And the progression is different in everyone. My mom early on would be very "with it" one day, then seem to lapse the next day, and then be close to normal the third.

 

As for the placement, I think you are doing the right thing. My mom also wanted to come home when she was first placed. She'd ask me why she was living in the facility. I'd hold her hand and say, "Mom, do you realize that I come and visit you every day?" She would reply, "You do?" I'd answer "yes," and then proceed to tell her where we generally sat, who we would sit near, and what we would talk about. I'd get one of the facility staff to listen in and tell Mom that this was true (which it was). Mom would look surprised and say, "My memory isn't as good as I thought it was." And I'd have to repeat this same conversation for several days straight when I visited.

 

The realization that I came to following Mom's placement is that my caregiving duties didn't end; they just changed. I didn't have to deal with the day-to-day issues with Mom. However, my role switched to being an advocate for her with the nursing home. And I realized that as much as I wanted her home, she was much better off with the care she got in the nursing home. I realized that Mom's health, due to both Alzheimer's and Chronic Obstructive Pulmonary Disease, wasn't going to get better. She was increasingly going to face complex medical issues and I wanted to make sure that she was residing in the best place for her. It was hard to come to peace with that realization, though.

 

In hindsight, I also now know that I wouldn't have been able to keep my own life afloat financially, emotionally, and physically if Mom was living with me as her health declined, even with the help of full-time caregivers. And I know that Mom, prior to Alzheimer's, would never have wanted that for me.

 

Take care and keep us posted!

 

Dorian

 

 

 

 

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8/14/09 6:20am

my soon to be mother inlaw was the same as your mother is it got really bad cause she would not eat are drink anything at all and it was getting really hard on me cause i take care of her while your son is at work and i have ms fibromyalgia to  and we had nures come out and check on her will one day me my b/f and the doctor said it would be best to but her in a shot team behavioral program so they could see how she was acting and see about her meds will she was in there for 3 weeks and now we got her at home and she is doing alot better then she was  maybe this would be something you and your bother should think about

Anna

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