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I've been kicked to the curb, but I'm getting back up now.

By Rena Sunday, January 15, 2012

I haven't done a share post in a while, so I thought I'd share. I've been through a rough patch this last year. I had carpul tunnel release surgeries on both hands which required me to stop my Enbrel for a while. That caused multiple really lovely RA flares.

Then after years (5 to be exact) of my complants of pain in both my elbows, I started showing signs of severe muscle atrophy on my right hand and slight muscle atrophy/wasting in my left hand. Up until now, my Rheumy as well as my Primary MD have told me it is "just my RA". Both my arms hurt. It feels like someone is hitting my funny bone with a hammer all the time. The shooting, electrical shock type pain up my arm to my arm pit and down my arm to my ring and pinky fingers.

After the visual signs started showing, my Rheumy referred me back to the Hand Surgeon who did my carpul tunnel surgeries. To make a long story short, mmy Ulnar Nerves in my arm (often referred to as "the funny bone") are not fitting into the grooves in my elbows right. My grooves are to shallow. The ulnar nerves are pulled tight and across the bones at my elbow every time I bend my elbows. This has caused my ulnar nerves to be smashed flat and frayed.

My surgeon says the ulnar nerves are very comparable to an outdoor electrical extention cord with lots of little electrical wires, each wrapped in a protective coating and then all wrapped inside another, thicker protective coating. Mine, he said...just happened to look like it was run over by a truck multiple times, smashed flat and with the little wires all fraying out.

My right arm surgery was on 12-2-11. The official surgery name is: Ulnar Nerve Anterior Submuscular Transpostion Surgery. What a mouthful! I had 30 staples, 25 interior stitches and a muscle group that was cut in two sutured back together. The muscles had to be cut in order to relocate the ulnar nerve to the inside of my arm in a safe and well oxygenated area I just got released from wearing a brace on my right arm this last Friday, 6 weeks post-op. The muscles are 80% healed at 6 weeks. I have started physical therapy, thank goodness. It feels good to be able to move my right arm again. The shooting, not funny bone pain is gone in my right arm.

The left arm is still constantly shooting pain and shredding my nerves. The surgery is scheduled for my left arm on 1-23-12. I am ready to get it over with!!!! I think that 2012 will be much better as soon as I have this final surgery and I can start taking my Humira. I had to stop my Enbrel in September due to side effects (increased pain, stiffness and fatugue as well as red rashed under my eyes). I am set to start my Humira as soon as I am done with this last surgery.

The pain of my ulnar nerves, not taking an RA medication and surgeries have really kicked me to the curb this last year. I went into hiding so to speak. I tend to withdraw, struggle with depression and suffer in silence.  I spent a lot of time in my "Dark Cave".  This, I have learned is all very self sabotaging to me. I am learning and working through it all and am trying to get back to living. I have a ways to go, since I still have one surgery ahead of me, but I think that by mid-February I will be feeling much better. I am really looking forward to less pain in 2012 and getting started on my Humira. I am also looking forward to getting more active in the site again and talking to all my online friends.  My unofficial online group and my threrapist are my best medications.  :)

Merely Me, Health Guide
1/16/12 10:05pm

Hi Rena

 

Thank you so much for posting this.  I had no idea all that you have been going through with so much pain and these surgeries.  I can't begin to imagine what this has been like for you.

 

So from what you are saying...this next surgery should help a lot?  And it is coming soon...this must be a relief for you.

 

You have a wonderful attitude and I just want to say how much we appreciate you on this site and the others.  You are always kind, compassionate and supportive to everyone despite all that you have on your plate.

 

Looking forward to hearing how your surgery goes. 

 

Have a good evening Rena.

 

MM

1/17/12 8:35pm

     Thanks MM.  Yes, the next surgery should help a lot.  After the next surgery 1-23-12, I will not have the "someones hitting my funny bone with a hammer all the time" sensation.  Thank goodness.  My nerves are shredded with that constant shooting electrical shock pain all the time.  It is at least subsided in my right arm now, I can't wait to have it gone in my left arm as well.

     I am going to keep posting!  It benefits me greatly.  I know this.  I just have to have will power to get online and I know being here will make me feel better.  It makes me feel connected and not alone.  So glad you are here!  :) 

1/16/12 11:32pm

Hi, Rena.  Wow, you've been through a lot.  With all the pain you've been dealing with, it's no wonder you've been feeling depressed.  I certainly hope things start improving quickly for you.  To me, there is nothing worse than chronic pain that you can't do anything about.  I have a cousin who is bedridden because of spine and pelvic fractures, due to osteoporosis, and nothing really kills the pain, I worry about what will happen to her.  I'm glad they can do something to help you.  We'll be thinking about you - let us know how everything goes.

1/17/12 8:47pm

     Thanks a bunch Judy.  I feel much better after I post and hear from you all.  Chronic pain is torture.  I feel terrible for your poor cousin!  How awful.  Our problems aren't near as bad as other peoples.  I'm so glad my arms are fixable.  The depression has been rough.  I feel like I have been pulling this wagon around that weighs tons and that I can barely move.  Sometimes I don't want to move at all.  I'm hoping that after the second surgery in the 23rd I can start shaking off some of this awfully heavy baggage.

     Take care of you.

Merely Me, Health Guide
1/17/12 7:47pm

Rena...

 

I am quite sure you probably already visit these sites already but our Chronic Pain site led by Karen Richards is one of the best.

 

And surely you are a member of our RA site run by our wonderful Lene right?

 

The great thing about Health Central is that we do have all of these different health sites for those of us who have multiple conditions. 

 

I hope you feel better soon.  Thinking of you....

 

MM

1/17/12 9:01pm

     Yes MM, I do visit the Chronic Pain and RA sites.  I am also already getting posts from Lene and Karen.  They are wonderful.  I am going to focus on staying connected on all these sites.  I have learned that withdrawing from all these sites is self sabotaging and not healthy or constructive for me.  I learn so much here.  Knowledge is power.  I need to keep learning and keep growing.  Stagnation is very distructive.  Thank you MM.  You are the absolute best!  :) 

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By Rena— Last Modified: 01/17/12, First Published: 01/15/12