I HAD A HEAD INJURY THAT TURNED INTO 5 YEARS BEING MIS DIAGNOSED.I HAD CHIARI MALFORMATION. NO ONE BELIEVED ME. MY HUSBAND DIDN'T HELP AT ALL. HE SAID I WAS FAKING IT & WAS VERBALY & EMOTIONALY ABUSIVE. THROUGH ALL OF IT I HAD STRESS FROM MY JOB A DIVORCE & AFTER CHIARI DECOMPRESSION I HAD MORE PAIN. DOCTORS DIDN'T BELIEVE ME SAID IT WAS ALL IN MY HEAD, HAD ME ON TONS OF PAIN MEDS & AFTER 1 1/2YRS I HAVE BULDGING DISKS,BONE SPURS. HAD DISKS FUSED BUT STILL HAVING MORE PROBLEMS. I LOST MY JOB OF 10 YRS, I'M 39 SINGLE NO KIDS & ALONE. WHERE CAN I FIND SOME GOOD INFO TO HELP MY FAMILY & FRIENDS UNDERSTAND THE PAIN & STRESS A PERSON FEELS WHEN THE GO THROUGH A HORRBLE ORDEAL & THEY DON'T HAVE GOOD SUPPORT FROM ANYBODY. MY FAMILY BE LITTLES ME & MY FRIENDS JUST DON'T HAVE THE TIME TO HELP ME.
Q: Need info to give to friend to understand emotions that a person with no help feels when their ill.
I am sorry you are having such a difficult time. It must be quite hard when no one seems to understand what you are going through.
I did find the following two web pages with information on Chiari Malformation. One of the pages does have a link at the bottom where you can request an information packet and both have organizations that may be able to provide you with more info. Possibly you might also be able to find a support group, even one for chronic pain, where there would be other people that understand what you are going through.
What is the Chiari Malformation?
Chiari Malformation Information
I hope this information helps
Eileen
Important:
We hope you find this general health information helpful. Please note however, that this Q&A is meant to support not replace the professional medical advice you receive from your doctor. No information in the Answers above is intended to diagnose or treat any condition. The views expressed in the Answers above belong to the individuals who posted them and do not necessarily reflect the views of Remedy Health Media. Remedy Health Media does not review or edit content posted by our community members, but reserves the right to remove any material it deems inappropriate.
Featuring Content From:
By using this service, you accept our Terms of Use. Please read them. The consumer health information on is for informational purposes only and is not a substitute for medical advice or treatment for any medical conditions. You should promptly seek professional medical care if you have any concern about your health, and you should always consult your physician before starting a fitness regimen. Copyright © 2012 Remedy Health Media, LLC. All Rights Reserved.
