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Monday, October, 13, 2008

Severe Asthma

by  Amandag5991
Tuesday, December 11, 2007
Amandag5991
Amandag5991
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I'm 30 w/ severe asthma. In the last 2yrs, I have been in ICU...

Amandag5991

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I'm 30 w/ severe asthma - I take Advair, Zyflo, Zrytec, Sprivia, Prednisone, Albuterol/Atrovent (DuoNeb), Allergy Shots (weekly) Ativan and I am waiting on my first injection of Xolair. In the last 2yrs, I have been in ICU & CCU for extended periods. I have now been placed on Oxygen Therap...

  1. Severe Asthma
    Arlene
    Friday, December 14, 2007 at 01:12 PM

    I too have severe asthm/copd.  I had steroid treatment for 4 years and was finally able to get off them with a dose of methotrexate. (i would crash each time I was taken off) 

     

    I think we all need to find what works for us.  In my case I finally ended up with advair, theophylline, claritin, xopenex, atrovent, and pulmocort, the last three in my neb.

     

    To this day, I go to the doctor and right away they want to put me on steroids and I absolutely refuse them.  I felt worst on them aside from the changes they put my body thru.

     

    I was told I would need oxygen if things dont improve, but even that I am trying to postpone as much as possible.

     

    I know what you must be going thru and my prayers are with you.

     

     


    reply
  2. change diet?
    susan
    Saturday, January 05, 2008 at 04:05 PM
    Have you ever tried the Gluten Free way of life?  It could help.
    reply
  3. Prednisone forever?
    Vicki M
    Friday, January 25, 2008 at 12:57 AM

    Hi Amandag5991,

     

    You don't say what you are allergic to. Is it molds, animal dander, dust and that kind of stuff? Or do you have allergies to foods? It

    sounds like you are on alot of medicine. I had really bad asthma as a kid and was not treated for it until after I was old enough to move out on my own. Alot of mine was attributed to damage to my lungs from working uncovered with cleaning chemicals. It took about 10 years, but with a combination of Theodur and regular nebulizer treatments and cortisone inhalers got me to the point where I am now where I only have to take albuterol on demand.

     

    I did some looking around here and you might want to try these links to see if there some information that might help you.

     

    You can check the medications you are taking here in the medicine's database. There might be treatments that would be good for you that you are not using now or might not even know about. You can read up on treatments here. This information is great if you need help asking the right questions for your doctor.

     

    Sloane Miller is a resident expert here on the asthma site. Not only is she a licensed psychotherapeutic social worker, she is an asthma sufferer herself. You can read more about Sloane here and read her shareposts here.

     

    I hope some of this helps. Stay in touch and let us know how you are doing!

    Vicki M


    reply

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