The ENT doctor prescribed Pulmicort Respules for my chronic sinus problems. I tried this with part water in an atomizer bottle and squirted it up my nose. This burned my nose and I even had pain in my gums. Is this normal?
I know the Pulmicort Respules can be used this way, but I haven't been able to find information on what the exact mix of water to respules should be. It sounds like the concentration you used may have been too strong, which I'm sure would make both your sinuses and the soft tissue in your mouth to feel uncomfortable.
I'd suggest you call your local pharmacist, who can help you better understand this off-label use. I assume this treatment helps the Pulmicort Respules work in much the same way as a neti pot, and it's important to get the concentration right.
I hope the medication helps your chronic sinus problems. If you're looking for other tips that may be useful in keeping well, these articles may help:
10 Allergy Terms You Should Know
7 Tips for Managing Indoor Seasonal Allergies
My sinus surgeon prescibed this treatment yesterday. The respule is to be mixed in 240 ml of distilled water in which one saline packet has been disolved. Have used twice now and no burning sensation at all.
Having had 5 prior sinus surgeries, I've probably tried just about everthing. Hopefully, this will provide long term relief.
How has this been going for you? I have also had 5 sinus surgeries and am due for a 6th. Two doctors have recommended this treatment to me. Should I try this now or directly after surgery? What this treatment successful?
Just happened to come across your site and I was prescribed this by my EMT two days ago: 2ml of Pulmicort Respules packets mixed with sinus irrigation mix. I had sinus surgery four years ago for removal of polyps but they have returned ad I suffer off and on from swelling in these areas. I also take Nasonex in the a.m. daily. Jean from Florida
if you mix the pulmicort with in a mild salt ssolution - 1/8 of a tsp to 8 oxx of water - there is not stinging.
This is not FDA approved yet for sinus treatment. That being said, both my ENT doc @ Massachusetts Eye & Ear as well as the allergist/immunologist @ Massachusetts General Hospital have prescribed this treatment for me as well. I have had 1 previous sinus surgery & possibly another looming. I have tried every spray known to mankind but this seems to be actually making a difference. My MEEI doc had me put 1 capsule of Pulmocort into my sinus rinse (no difference really noted) but my Mass. General doc has had me put the Pulmocort into a syringe & directly insert into my sinus area & then hand my head over bed as if I am looking under my bed so that it can penetrate way up into my sinus cavatiy. This really does make a difference!
I had sinus surgery in March after never ending chronic sinusitis and exacerbation of asthma. Steroids and antibiotics this whole year. My nasal passages continually get inflamed about a week after tapering the medrol Pack. When I saw him, my sinuses were completely blocked and now resolving on meds. yesterday he wrote the prescription for the Pulmacort for nasal rinse, but said to mix in water and do like a nasal rinse. He wrote the exact amount for the Pulmacort, but the way to do this installation was not explained. If you use a syringe, which makes sense to me, what do you mix the Pulmacort in and how much do you mix it in.
Thank you.....I feel hopeful about treated this locally...it makes sense and I could be inflamed due to rebound coming off the steroids all of the time, that my mucous membranes just don't ever get back to normal.
I also stated Xolair for allergic asthma. Injections every other week.
I look forward to hearing from you.
I hope my answer can help. I have Asthma, Salicylate Allergy and Nasal Polyps.
Over 20 years, 5 or 6 Polyp operations, nasal sprays and Prednisone injections it gets a bit much especially with no sense of smell or apetite.
I am allergic to salicylates in many foods and just about any airborne allergen. The last surgery lasted much longer as I was using a netipot bottle to flush a saline solution through the sinus's nearly every day for the last 5 years, however this year the spring time caught up with me and back to the blocked nose which is unbearable when trying to sleep.
Had been searching the internet for some natural rememdies when I came across some sites discussing using Pulmicort solution and going by some responses I felt this was worth trying out.
Asked my doctor who is helpful even though had not heard of using pulmicort for polyps prescribed it for me as I am an Asthmatic. I had intended on getting a referral to visit a surgeon and that was going to take 2 months at this time of year, I just could not go through another night bad sleep and waking up like the dog had pooed in my mouth.
Here is what I did, for the first two weeks I put in half a litre of boiled filtered tap water, two sachets of saline solution from the chemist and one 1mg in 2mL Respule of Pulmicort. Let the water cool to warm before putting in the pulmicort, mixed in the saline and pulmicort and ensured the temperature was just warm, about the same temperature you might put in babies bottle. That way it does not sting at all, I think the saline sachets also correct the PH of the water so it does not sting as well.
Flushed that through with difficulty as one side of the nasal passages were completely blocked, persisted and gently managed to get some through from one side to the other a few times, kept this up for several days and after 3 - 5 days I noticed a little easier to get the solution to flush through. After 1 -2 weeks I was clear and was able to easily flush through and even felt a bit high from the very clear feeling in my sinus's.
Keeping this up just once a day for two weeks I reduced the dosage of Pulmicort to half a Respule by counting the drops, there is an everage of 32 drops in each Pulmicort Respule and I use half a Respule each day ( 16 drops ), I kept up with the 2 Saline sachets and the 500Mls of boiled water.
After 3 weeks I was able to smell some scents around the home, after a month my sense of smell was the best it has been in 20 years and now I am about 5 weeks into this treatment course and my apetite has for the first time in years also increased which is fantastic.
I can sleep so well now and feel a 100% better, I am considering reducing the drops of Pulmicort down to 10 drops a day instead of the 16, this will mean 1 Respule will last 3 days give or take a drop.
The goal with any medication IMHO is to reduce it to a level that it is effective enough to have quality of life and reduce any possible long or short term side effects.
The method of use is the flush through from each side once and then using the last of the solution I fill up my sinus's and hold it there for a few minutes tilting my head side to side and shaking my head to ensure the solution is getting into all cavities in the sinus area, holding your breath while doing this is helpful as it puts pressure on the back of your throat to prevent leakage of the solution down your throat. I realise that 500 mls of boiled water my not be the correct amount but having such a large volume to use to rinse with helps clear a lot of the rubbish from the upper sinus area.
The drug company recommends you do not drink or swallow Pulmicort and therefore I am very careful not to do so and ensure I gargle very well afterwards and drink plenty of water.
I would have to say this is totally the best treatment for my sinus polyps I have ever had, no surgery, good sleep and the medication is being administered directly to the condition. Unlike taking prednisone tables which go through your entire system and digestive system this is much better, also I tried nasal sprays for years and the problem with those is they have little chance of reaching the upper area's of the sinus's where many of the polpys start to grow, they just do not work to the level this does.
I will see if I can update in a few months or a year on the effectiveness of this long term, I see on the internet that there is now a UK study into the cost effectiveness of this treatment compared to Sinus surgery.
Good luck to everybody as I totally know how bad it is to have sinus polyps.
Almost correct. NEVER USE PLAIN WATER. ALWAYS USE DISTILLED WATER.
Your reference to plain water may be missleading. The NelMed directions speciffically say to never use tap water, but to always uce distilled water.
I had 2 sinus surgeries about 10 years ago & have been struggling with infections ever since. I also lost my sense of smell over that same period. The polyps have returned & I was destined for another surgery. Thankfully, my surgeon wanted me to go on prednisone & antibiotics for 2 weeks & the pulmicort/salt water nasal first. I have not needed any antihistimines since then & my sense of smell has returned! Quite a milestone for me. He also told me to hold my head down for 5 minutes while some of the rinse is still in my sinuses to 'bathe' the polyps. I assume that this has caused the polyps to shrink. I go for a follow up visit in 1 week.
How are you doing now? Does the rinse still help you? Are you using it twice a day? I also wonder how much water you put in the Neil Med bottle? I have used this method for about 8 weeks and also had a Kenalog injection on my polyps which reduced them significantly and I have my sense of smell back. Since this is an off label use, i would like to know how safe t his is to use it this way. Could it cause bone loss later since the use of steroids could contribute to that. It has definitely helped me though. My doc said my polyps don't need surgery since the Kenalog injection on them helps so much and they are not that big, but when they are normal size, i have no sense of smell. But I really don't know how safe that is, and don't want to have them every 3 months for the rest of my life. Thanks for any info i can get on this. Patty
I reduced the frequency of the pulmicort/saline rinse to once every other day & doing saline rinses twice daily. I have noticed that my sense of smell is fading again so I will go back to doing the pulmicort rinse twice daily & see if that helps. I use 4 oz. of water in the nedi med bottle & hold the last portion of the rinse in my nose for 5 minutes with my head down while kneeling on the bed. I'm 70 now so I am not all that concerned about potential side effects of the pulmicort if positive results continue. Tom
Patty, I don't think you need to worry too much about bone loss from using Pulmicort Respules intranasally. Steroid contributions to bone density losses are usually from large doses of oral steroids (or perhaps injected) that are distributed throughout the body because of the way they are taken. The small amount of steroid placed into the nasal tissues is not going to get circulated throughout the body in the same way.
i've been using the pulmicort 1mg mixed into a syringe of 10 ml of sinus rinse water (1 neilmed packet per 16 oz distilled water) for about a year or so. it's been the only thing close to almost giving me my taste/smell back. can breathe through my nose & more energy too. due to eminent loss of insurance, i might have to go to .5 ml size. even generic w/o insurance is pricey for this stuff. anyone find it more reasonalbly priced elsewhere? canadian pharmacy's have it for much less. anyone else use them?
I have also just been prescribed Pulmicort Respules for chronic congestion caused by allergies, polyps, etc. No sense of smell/taste for a while now. I have used canadianpharmacymeds.com for years now for my pets medications and mine with NO PROBLEMS. Only thing is that it takes 10 to 15 business days to receive meds. My pharmacy quoted me a price of $250 because I have no insurance as well...Canadian Pharamcy Meds gives me the option of quantity I want to order and the price is about 1/4 of my pharmacy wants to charge...