Tuesday, May 21, 2013

Asperger's Syndrome: Should You Seek a Diagnosis?

By Eileen Bailey, Health Guide Wednesday, September 28, 2011
Months ago, when I first began writing for this site, I did so because my grandson has autism. He was diagnosed around the age of two and is now five. He began receiving early intervention services and his progress was amazing. He began saying some words, could communicate his needs, let you know whe...
Jeremy Shane, Health Guide
10/ 3/11 12:43pm

Eileen, this is a great post, capturing the ambiguity of what a diagnosis brings, positive and negative, for children or teens who in the past might have been considered "quirky" or a "geek" but with today's diagnostic instruments could be classified on the spectrum.  Interestingly, your point about the long-term impact of a diagnosis for employ-ability was raised by John Robison at an NIH committee last week on different ethical and legal issues relating to autism and autism research.  He pointed out that what is helpful at a young age in terms of getting services and supports can be detrimental later on, and in fact, he mentioned the armed forces in particular.  Here are some of the points he made in his .ppt slides on the topic:

 

- For children, diagnosis is usually necessary to gain access to critical services.

- For adults, an opposite situation may prevail. A diagnosis may subject adults to higher insurance rates, exclusion from employment, etc.

- An on the record diagnosis may be a godsend for parents of a child, but a curse for autistic adults who are trying to make their own way.

- If diagnosis is done as part of a study, should it become part of the medical record?

-Should adults be able to keep an autism diagnosis private? (not in record)

 

These are difficult issues, compounded I'm sure for a teenager with all that age and high school brings.  I hope you continue to get the sense that your current decision to hold off on an official diagnosis is, for now, the right one.

By Eileen Bailey, Health Guide— Last Modified: 06/03/12, First Published: 09/28/11