What I miss most about trimming back my public speaking to almost nothing is what I learn from interacting with my audience.
Last week, at a Q and A with a NAMI group in Pasadena, a young man asked: "I have schizophrenia. Will I benefit from your book?"
Yes, I replied without...
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Holding hands
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Wednesday, July 16, 2008 at 12:46 PM -
I am Joseph, Your Brother
HeyJude
Wednesday, July 16, 2008 at 09:29 PMJohn...Thanks for the enlightenment on Pope John XXIII - what a remarkable man he must have been. A good lesson in papal history.
A few years ago, when my doctor first hooked me up with an antiphychotic med, it was a terrifying thought. If he's giving me zyprexa, I thought, then I must be schizophrenic. And that's the last thing I want in my life. It felt like a death sentence at the time.
Now I am not so naieve - I believe everyone with mental illness falls somewhere on the "mood spectrum" and that we are all connected in some way or another. I am no longer afraid of "schizophrenia" - I know a few that are fine people and can function reasonably well some of the time thanks to newer and better meds. And I have experienced some of their maladies during my lifetime, of that I'm sure.
I've loaned your book to a friend - can't wait to hear her thoughts when she's finished with it. I want to read it again.
Judy
replyre: I am Joseph, Your Brother
John McManamy
Thursday, July 17, 2008 at 10:38 AMMany thanks, Judy. Pope John was truly extraordinary. His photos reveal both kindness and a saintly spirit - very inspirational to look at. And his deeds match his image.
Funny you should mention my book. In my book, I point out many of the similarities between bipolar and schizophrenia, but I felt obliged to reassure readers that schizophrenia was somehow on the other side of the chasm. No way I would do that now. I was living in my own fear. It is far healthier in any situation to acknowledge what binds us rather than what separates us. We're all learning as we go along. Thanks so much for reassuring me.
replyMood Disorder versus Thought Disorder
Anonymous
Thursday, August 07, 2008 at 07:24 PMHey John,
I have been catching up on my reading, now that I am no longer hospitalized at the state mental hospital in Warm Springs. I was there for almost seven months.
I have a degree in Psychology and from my education, I was taught that Bipolar is a mood disorder and schizophrenia is a thought disorder. In my own experience, my husband had schizophrenia, and he "went psychotic" when he got stressed out. During one of his episodes, it was his thought patterns that were faulty. You say that schizophrenia goes into psychosis which goes into depression. My husband did not experience any kind of depression, even after he came through a bout with psychosis. It was his thoughts that were skewed.
One suggestion I have for you, John, is to stop referring to us as "bipolars". I am not, now, nor have I ever been, a "bipolar". I am a person who has been diagnosed with bipolar; it does not consume my entire identity, as I am so much more than my diagnosis of Bipolar. I think we people who have been diagnosed with mental illnesses have so many other, beautiful things going on with us. If we continue to refer to ourselves as our diagnoses, other people will be more inclined to see us as "bipolars" and put us in the bipolar box.
I founded a statewide support group for people with mental illness diagnoses in the late 80's and early 90's. We did not care what the person's diagnosis was. ALL people who recognized themselves as being "mentally ill" were welcomed into our group. We had members with schizophrenia, bipolar, personality disorders, schizoaffective disorder and so on. We did not make any distinction between one diagnosis over the other, other than sharing experiences we had.
I agree that we need to have compassion for people who have any kind of mental illness diagnosis. In our group, everyone was invited to join; we all worked together without putting up barriers for people who have schizophrenia or any other mental illness diagnosis.
In the end, it didn't matter who had what diagnosis. We were all people, after all. People need pretty much the same things in life: food, clothing, shelter, love, companionship. By making the distinction between schizophrenia and bipolar, you are part of the mentality that puts people in square or round pegs, with each diagnosis fitting into their pre-determined peg.
When it comes down to it, we all want to be loved. Yes, you did say that we are all related to each other and share many of the same "symptoms" of either group. I do appreciate that you talked about both diagnoses and how they are similar. Perhaps if we try to be more understanding of people, regardless of their diagnosis, we can bridge the gap between "those schizophrinics" and "we "bipolars" (as you might say).
Great topic for discussion!
Kay
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katysara
Thursday, September 11, 2008 at 11:45 AMI seem to remember Kay Redfield Jamison stating there is a genetic link between bipolarity and schizophrenia in her autobiography An Unquiet Mind. I have to say that I agree (although I also agree with an above respondent stating one is a mood disorder and one a thought disorder). Plus I have lived with people with these illnesses (when hospitalised), and seen many differences.
Although they probably could have been, nobody in my family history had a diagnosis of bipolar disorder - I am the first and there is NO doubt about my diagnosis. (There were many "nervous breakdowns," in elderly relatives that could well have been bipolar disorder but I will never know. What I do know is my uncle and my great uncle are schizophrenic, so I do believe there is some sort of genetic link - even if the illnesses are quite different, I concede there are also some similarities. (Hope that does not read too much like waffle!)
Best wishes,
Katy Sara x
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When we all hold hands to support and acknowledge one another, none of us will fall.
We are our brother's/sister's keeper.
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