I just read this article that was given by Linda Golodner, NCL president at the FDA science forum...please check it out....this is yet another reason why i DO NOT want my personal medical information STORED in ANY govt or medical facility for access to, well to far to many to list.....feel medical information should STAY personal PERIOD...but that is MY personal opinion, not that i disagree with scientific research, just storage of people's PRIVATE medical conditions...thought i HAD To share with this forum since we are subject to quite a lot of stigma, ostericized, labeled and misjudged far too often....basically LUMPED into a single pile as if we are all the same in all ways, and nothing could be further from the truth, we are all VERY diverse even in our approaches and symptoms of this disorder.....okay here's the link....see what ya think!!

http://www.nclnet.org/advocacy/privacy/speech_privacy_and_gene_therapy_01002001.htm

ctrygirl