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misdiagnosis will end up my middle name

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Narelle

Narelle

Wed, August 20, 2008

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Hi,

Would really appreciate any assistance you guys can give me. I live in a state of hypomania most of the time - over confident, start new things and never finish them, ideas all over the place, work so productively have manager calling me "amazing", scream and shout at my child when something in her homework is not quite right (she's only 10) and then spend the rest of the night apologising. Then, occasionally, down I go like a rocket - sometimes connected to events in my life, sometimes not connected to anything. Then I try to "work through it" until I get to the point where I don't want to leave the house, talk to people, don't want to see my hubby or child unless I get angry for no reason, hide under a rock. That's when I end up booking an emergency appointment with my GP or P-Doc, and the latest (after postnatal depression have been on anti-depressants for YEARS having incredible reaction from the jitters to psychosis but they just kept trying one after another) doctor says its just (Just!) borderline personality disorder and that it's all to do with situations of childhood neglect (adopted mum's an alcoholic who I still love dearly - great when she's straight) and that meds are just not going to work. I am a bit culpable as I tend to take a mood stabiliser for a week or 2 then the side effect of not being hypomanic (which i'm only now starting to understand) makes me come off them. So Docs  sayno way no meds will help except a little seroquel at night which bombs me out. I know I am very sensitive to meds but I don't think that it's all to do with my childhood and although i'm totally open to CBT and MBCBT (done both and found helpful, specially in dealing with Mum) I can't control this sometimes - I just can't. I'm not being wilful or recalcitrant (that's how my doc made me feel this afternoon) I am really really down. I have lost confidence, I can't believe it when others say they have confidence in me, I fell like a bad wife and mother, I have no appetite, I can't sleep properly - seems to be pushing through the seroquel, I feel like a failure and an idiot cause I can't just pull myself together and get to work. I agree I may have some personality disorder but that does not explain these highs and lows. I feel lost. My P-doc and my GP don't want to know, it's hard to find another p-doc as they have all closed their books and I feel so down and everything is so bleak - even taking a shower is so much effort.

What is wrong with me - am I doing this to myself?? I just can't believe that. Last yesr they said Bipolar, now they say personality disorder, and i'm lost somewhere in the middle with no help.

NK

8/20/08 7:13am

Look…we all have personality disorder to a degree or we wouldn’t care about anyone or anything.  Being brought up in an alcoholic home (I know from past experiences) wasn’t pleasant but you survived it. You also went through post partum depression and came out on top somehow and again survived it.

 

I am no doc and don’t claim to be one, but from what you’re describing is bipolar II at its finest. Everyone knows that you never place someone that might be bipolar on anti-depressants without some sort of mood stabilizer in place.

 

My assumption is that they used the antidepressants to bring you out of post partum depression and you continued on them to a degree after coming out. This would explain being hypo all the time as it raises you above the middle bar. Hypo isn’t always that great box of chocolates for everyone.

 

Its effects are usually that of a great achiever but we also tend to do is transfer those thoughts onto others such as your child. If your child was what you would have considered a sub achiever while in this state, the normal response would be that of expectations greater than what was realistic. I could see you or anyone else for that matter becoming very upset to the point of screaming.

 

 

So as with any person suffering with classic bipolar you are looking at the things around you to explain why you are the way you are. Ummmm…my mom is an alcoholic, post partum depression, work issues and so on.

 

You need to find a good psychiatrist that specializes in bipolarism and its treatments. You will need to go on a mood stabilizer and possible light antidepressants to get you back up to the middle ground of being somewhat normal with normal reactions to the things going on around you.

 

You will need to be vigilant on taking the correct amount of medications at the specified times….no more or less than the psychiatrist ordered. Expect to be a little dazed or slowed down at first as your body becomes adjusted to the meds. Usually after 6 to 8 weeks, things will seem a lot better and back to your old self once again. Good luck

8/21/08 8:00am

That seems to dovetail with what I think too. The antidepressants were only stopped a year and a half ago - and then we tried all the mood stabilisers - I think the dumbing down effects were what made me think I couldn't handle them - I felt like an idiot at work, couldn't do what I normally do, or even close.  I got a rash on Lamictal which was working absolutely brilliantly - but I didn't ever take large amounts to get to side effects, and now the situation with my psychiatrist is "medication wont help" and I try Minfulness and CBT and can't get into it cause i'm either hypo or down - so then it's  "personality disorder". It's so hard to find a good doctor. I will keep trying. Thanks for the words of wisdom.

N

8/21/08 11:12am

Sounds like the medication you take for sleeping may be working till you have to go through the rest of the day.My mate takes nothing right now because he says it dummies him up to much but he is real strict about diet vitamins and seritonen levels .Like Whey powder and vit. B B6 and sometimes st John Wort it helps with depression.He also does a couple of other things and prays like an old desert Father from the Bible.

Boundries with kids are invinsible but they are pretty understanding do you do exercise ?Yoga and walking or swimming are good for the brain that might be fun for the kids.One day at a time .

8/21/08 6:54pm

Thanks.

I think the medication for sleeping is not working at all right now - but when it does work it does not seem to make much difference as to whether i'm buzzing away at a million miles an hour or am down in my black hole. I think I probably need to give Tegretol another go and put up with the dumbing down for a while, I mean i've lost the plot mentally at the moment anyway - so why not take soemthing that will help with longer term recovery.

I try to eat well and get enough exercise but am not leaving the house at this point - too depressed to get dressed right now.

Narelle

8/21/08 7:11pm

you are probably very beautiful in PJ'S Is that a Cat in your pictures ?Pet therapy is the best have a good day and get your rest God Bless

8/22/08 1:44am

Don't feel beautiful but I guess that would be asking alot today. Thanks for syaing so anyway.

N

8/21/08 5:14pm

i hope you find some solution, that is a funny pic, i would reshoot it with a pina-colada on his tummy, hehe.. get well

8/21/08 6:56pm

Thanks...that's a cat I used to have - Winston. He was gorgeous, lots of personality.

I hope I do too - I keep on trying to bang my head against this unbelievable brick wall - but i've done it before and can do it again.

N

8/22/08 1:24am

I was misdiagnosed schizophrenic when I was 20 years old (I am now 35).  A few years later, I was correctly diagnosed as bipolar.  It has been the most harrowing, distasterous experience of my life, and the most crazy, and the most depressing, and the most elated!  It was so difficult during the first 12 years or so, I wrestled in limbo with life, so I can commiserate with you about this confusion you and your docs are having with this imbalance.  Please don't give up.  I am a voice out there that knows you are suffering, and I want you to feel better.  I have finally come out of a huge slump, due to the kindness of some special people, and the patience my husband has had with me over the years.  I have no children, but I know what it's like to feel like you're being berated for what you can not help.  It's difficult to live with these ups and downs, but realize that they are what make you YOU.  Learn how to get a hold of it, and learn the strength you have within yourself to know when to say no, and when to accept help. 

 

Sincerely,

Rose

8/22/08 1:32am

Thankyou Rose, It's amazing how strong we can be when we have to. I have been in hospital a couple of times and I marvel at the strength of people with mental illness. I once met and Emeritus Professor in Economics whilst in hospital - he had Bipolar and very bad manias, and he booked himself in when he felt it coming, and then continues on in his profession, sitting on a number of Government Boards as well. He gave me many tips on how to get by professionally, and it's thanks to him that I even bother to try and continue with my PhD in Politics despite eveything that happens. I guess it's a down time for me and I have to accept that. It's hard to find a new doctor but I will, I am sick of being treated like a "neurotic" woman when I have battled do hard to get where I am and just to keep going sometimes.

Thanks again

N

8/22/08 1:42am

I am glad to see that you know you are an intelligent woman.  Good luck to you!

 

-R.

8/22/08 1:47am

Hardest thing is to know but not have the abiliy to use it - not right now - big time cognitive dysfunction. I meant by that post that you are all intelligent also, for your words of wisdom and for your insight. Wish the rest of the people I know had it...but impossible unless you've been there I guess.

N

8/23/08 3:38am

I am usually controlled with my Bipolar.  However this hypomania throws me for a loop!  Because I am caught in the medicare gap[ translated...no coverage for another $1500!]  tODAY N A FIT, AFTAID TO BE ALONe, BOUNCING OFF THE WALLS, with signs of maniz more this time. My Beloved must be nominated for sainthood in tolerating me when I get this way.  It seems I have the Hypomania more often anmd it lasts longer!

Well, I finally had to get the Zyprexa such a shall dose is just fine for me. 
For me the |Seraqjuel snowed me and the two weeks I was on it I slept 20 HOURS a day!!|  Depakote did the same thing but only sleeping 18 hours!

I knew I was Bipolar for 12 years sooner than it took the doctors to believe me!  It just takes some peoplle a little longer.  It doesn't matter the 'label' that is thrust up on us, it is still Hell-o|!

 

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