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Beautifully written article about children with Bipolar

By mom2twins Wednesday, August 20, 2008

Written in a loval newspaper by mother of a bipolar child.

 

You see if only my son had childhood leukemia instead of bipolar... He would have a 90% chance of being cured and only 10% chance of dying. Family and friends would rally to support him and us. They would stay at his bedside. They would send cards and balloons and flowers. They would prepare meals for us. They would be there for him and us. Foundations would answer his fondest wish, and professional athletes and clowns would come to his bedside to bring him a smile. He would be treated on a caring ward in a beautiful children's hosptal made possible by gifts from private individuals and foundations. Our insurance company would not put a limit on the number of days he could spend in the hospital, and there would be plenty of understanding pediatric oncologists willing to treat him. If needed $100,000 for a bone marrow transplantation, medical insurance would cover it. If not, family, friends and strangers would donate money to ensure that he received the life-saving treatment. But my son does not have leukemia. He has a menat illness and ... he has more than an 18% chance of dying from suicide or drug overdose or some other complication of his illness, and there is no hope for a cure - only the hope that maybe someday he can take care of himself. Family and friends avoid us. They do not rally to help us. The do not as how he is and how we are. They are not there for him or us. There are no foundations seeking to grant his wishes, and professional athletes and clowns do not come to give him a smile. Our son has a mental illness, and that means his illness is not like leukemia, because surely it is his fault or both. His illness is certainly not something worth caring about. His wishes are not worth granting, and few people want to volunteer their time just to bring him a smile. There is no beautiful psychiatric ward for him, because who would want to watse their gifts on children like him? Instead, we close psychiatric facilities for childred and put up barriers to their receiving treatment. Our insurance company limits inpatient coverage to 30 days a year, so we pray he does not need more than that. Insurance companies do not adequately pay child psychiatrists, so, naturally, there is a shortage, and we feel lucky because we were able to a get a child psychiatrists to care for our son. If he ever needs residential treatment, which may require many months of therapy, our medical insurance will not pay for it. Family , friends, and strangers will not come forward to raise the $100,000 that is needed for his treatment, no matter how life-saving it may be. Yes, if my son had leukemia, he would have a realistic chance of being cured, and would receive that best possible medical care and support of family and friends and strangers. But he doesn't. He has BP, and that means inadequate medical care, cold indifference from others, and no hope for a cure. What a terrible wich a mother to have. To which that your son had leukemia instead of what he does have , a mental illness called bipolar disorder.

A Turning Point in my Life....
Anonymous
tabby
8/20/08 6:41pm

couldn't have said it any better

I have the illness and yet I'm sorry for what is going on with you and your son in the way of shotty treatment and indifference.  Sadly, it happens to us adults as well.  It's just more poignant to see it happening to the wee ones of us.

9/ 9/08 7:06am

It's always nice to know that others understand.  It's very sad but true.  When you have a child with an emotional/behavior problem they always look to the parents for blame first.  The hospital staff for the most part doesn't listen to the parents.  They figure we're the cause of the problem and don't know what we're talking about.  Having your child in the hospital is a very lonely, stressful, and demeaning experience.  The psychiatrist who treated our son didn't want to release him to us because of things our son said.  He didn't even bother getting the story from us.  Thankfully his caseworker spent enough time with us and watching us interact with our son to know what the true story was.

I wish people would see my boy as a great kid who's creative and loving.  Instead they see him as bad or spoiled or overly mothered.

8/13/09 10:04am

I worked with oncology patients for years...its horrible but many are curable.  But, If you don't have full mental capacity due to a mental illness there's no sure cure and its a life long up and down polarcoaster.  I personally believe it is one of the worst illnesses one could ever have. I have it so i know.

By mom2twins— Last Modified: 09/03/10, First Published: 08/20/08