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Lamictal Night Tripping

By G.J. Gregory Wednesday, August 15, 2007
I take my dosage then go to bed, hoping that the effects aren’t too bad. As I relax I begin to feel thousands of mini “eruptions” in my brain – it’s like I’m feeling every synapse. They’re like tiny electrical jolts, not pleasurable, not painful, not irritating or welcome. They’re just there. Some are stronger than others, sometimes they send a jolt through my body that stimulates my senses just for a millisecond. Sometimes they show up as flashes visible to my closed eyes.

While this is happening, the images start coming in, clearly visible and vivid to my closed eyes. Sometimes it’s colors – colored abstracts, shapes, blobs, or sometimes smooth waves of colors. There was a short period of time in the past where I’d get waves of mud sliding in – that was not pleasurable. Last night it was very strange: real life images, in a psychedelic format. An Alice In Wonderland type of thing, shapes growing faces and talking. Very, very bizarre. And when it all gets too strange, all I have to do is open my eyes. Poof. Instantly gone. I’m feeling normal, sitting in a normal world. Close my eyes and relax again, and it’s back as if it never stopped. These aren’t dreams, in fact once I fall asleep the dreams aren’t any different than normal.

Am I flashing back to 1978? Or am I taking hallucinogens as a forty-something middle-aged man? Actually the truth is stranger than the other possibilities. Would you believe, this is bedtime after my Lamictal dose?

In the past, having undiagnosed bipolar disorder I self medicated to an alarming level. I didn’t know it was self-medicating, it’s just what I did, it was part of my daily life, it’s who I was at that time. Also in the past I lived through bouts of extreme hypomania, and also several full-out manias. Today I rarely have the desire to self-medicate, and my manias are more controllable. I thank my primary medication, Lamictal, for that. The Lamictal is doing it’s job, helping to keep me stable. But it’s sneaky. I don’t normally “feel” it working like many other meds. When I take a Seroquel, I absolutely feel it. Ditto Risperdal and others. But usually Lamictal just kind of hangs back there, chillin’, taking care of business in a low-key but powerful way. There are times, however, I can feel some of what’s going on as I described earlier. For all it’s subtlety, Lamictal is no lightweight medication.

Now the “normies” out there are probably horrified at this kind of medication side effect. But honestly, I have it easy. Lamictal doesn’t put me to sleep, doesn’t keep me awake, doesn’t make me put on fifty pounds. A little bit of minor nighttime ‘tripping’ is a measly price to pay. Many of my peers have it SO much worse than I. As sufferers of bipolar disorder, medication side effects are part of the package. Some medications are worse than others, and they all impact each of us differently. But one way or another, it’s something we all learn to live with.
8/23/07 5:53am

I've been through all the mood stabilizers and anti-psychotics and Lamictal is the only one I can tolerate. The price being clumsiness and accidents, but I'm awake alert, not zombizied and the doc says it can prevent further debilitating depressions which are always the pits. Hang in there!

8/23/07 11:11pm

I'm liking the Lamictal, and the side effects are mainly non-existant.  I just find this one curious.  I'm not finding any additional clumsiness, and that's a good thing.  I'm not the most graceful person in the world.

 

Thanks for sharing your experiences! 

Anonymous
MJ
10/29/07 12:14am

i just started

i am looking forward to email you

can you email me at idramjoy@localisp.com

 

THANKS U

 

M J

8/23/07 5:58am
I forgot to mention that one of the side-effects of Lamictal is takling out loud in another managuage while I "sleep" and waking myself up. Still small potatoes compared to others.
8/23/07 11:09pm
Hailey - I snore too much to be able to get a word in edgewise. ;-)
8/24/07 5:09am
G.J. G.J.

I thought my husband's C-PAP contraption was horrible: it sounds like someone's drowning all night. I really needed the laugh...thank you. Caremark lost my Lamictal prescription, the psychiatrist went on 3 weeks vacation and I'm sleeping 3 hours.

8/23/07 9:49pm

I like my Lamictal.  It rescued me from a stubborn depression in 2005, and after trying to unsuccessfully wean off, have stayed on it.  I was taking 100mg in the am, and 100mg at bedtime.  (200 at night made it hard to wake up)  But 100mg was too much in the morning.  I am very senstive to too much-too little.  One morning I was over-sedated and standing a little too close to the propane heating stove and caught my shirt and pants on fire.  I still have scars from that.

 

Now I use 50mg mornings, 150mg at bedtime.  My mood is usually ok, and I can wake up and not catch myself on fire. 

8/23/07 11:13pm

Angie - I'm not laughing at your obvously painful accident, but your line:

"My mood is usually ok, and I can wake up and not catch myself on fire"

has me laughing out loud.   Thanks for the laugh, I needed it.

 

 

8/24/07 5:02am

Good gravy! I thought my clumsy accidents were bad, and can barekly stay awake during the day on 50mg of Lamictal....thanks for the feedback.

Anonymous
Meg
8/24/07 11:12am
Here is what happened.  My psychiatrist was trying to find a medication to help me (she hadn't diagnosed Bipolar) and was working off the fact that all the usual depression medications weren't working.  So,  she gave me Adderall.  I was only taking it for ONE WEEK at a low dose when I had full blown TD (tardive dyskinesia).  This was so freaky I am scared to take ANY medication now.  TD is usually associated with other medications and usually associated with higher doses of them and taking for a much longer time frame.  Anyway,  we're all different.  My full blown signs included -lip smacking about 100 times a minute!  They have subsided a lot but I'm not totally free of them.  So,  now that I have been diagnosed with Bipolar.  I "chose" Lithium over Lamictal because somehow I am thinking it may not cause any TD reaction.  But I've had the medication just sitting here since February and I'm still sick of course and I'm afraid to take it.  My husband told me after the TD symptoms subsided that he wouldn't have been able to live with me if they hadn't lessened.  I don't really think he would do this but he was trying to tell me that it was bad.   Those of you who have tried both Lamictal and Lithium what do you think?  God knows, I want to start feeling better but I am very afraid of the side effects.   
8/27/07 10:36am

Meg - I understand your concern 100%.  I think many of us have had a med that has given us a bad reaction, although yours sounds horrible.  As far as Lamictal vs Lithium, both have been of immeasurable help to many.  It would be hard for any of us to tell what is best for you.  But I do have first hand knowledge of both medications changing many lives for the better.  

 

Thanks so much for taking the time to leave a comment, and best of luck with your decision. 

Anonymous
purplehaze
10/11/08 11:38pm

Hey i can defininetly relate, I had a few terrible experiences with antidepressants, I took zoloft which sent tme into a manic psychosis, it didn't subside for a few weeks, then I reluctantly decided to take pristiq which pretty much did the same thing, so needless to say I was pretty afraid to try anything else. My doc concluded that I was bipolar and gave me lamictal. I sat with it on my night stand for 2 months everynight debating whether or not to take it and coming up wit different reasons for putting it off and all the while getting worse and living in hell with my bipolar, not to mention what I was putting my poor husband through, well I finally got brave enough to take it and I was suppose to take it at night but I chose to in the morn because at least i could monitor what it was doing, my doc also suggested i take half the dose at first and it seems to be really helping me and it's very subltle, not like the others, and the only side effect i can see is i aget headaches ,but i just started, so would say you just need to so go for it!!! Good luck, you will be fine I am sure, adderall can be a scarey drug, I know alot of people who take lithium and lamictal and i have never heard horror stories like that...good luck!!!

Anonymous
Hannalee
1/15/10 1:58am

 

These drugs are very scary and more dangerous than I think psychiatrists and other medical people want to face. I hate antipsychotics after seeing the effect of Abilify and Seroquel on my elderly mother. The good news: she's taking Lamictal and a small amount of lithium, and they work well. I wouldn't be afraid of Lamictal for TD. Do a little more investigation, but I think Lamictal is fairly benign. I take Lamictal and also a small amount of lithium. I'm not having any problems.

Anonymous
Anonymous
1/15/10 11:09am

Since I wrote my post, a lot has happened. I did try the Lamictal but really briefly when I was in the hospital!  I seemed to get a rash and the Dr. said let's stop it.  The rash was where they were putting the cuff on me for frequent blood pressure checks so it could just as well have been a reaction to the latex in the cuff-- anyway, I continued to have my blood pressure taken during my stay and I didn't see the rash again.  Now, my medical chart says allergic to latex!   Anyway, what I wanted to say and this is the best part -- I feel well now.  I am now taking an MAOI drug and a tiny dose of Clozaril-- this last drug required weekly blood tests--then every two weeks and now, for me, in February of 2010 -- it will be one year and the blood tests can now be taken once every 4 weeks for as long as I take this drug....it's inconvenient for sure.  The whole blood test thing -with driving to the hospital and waiting etc. takes up most of a day....but it's all good if this is what I must do to stay healthy in my mind and spirit.  Thanks for thinking of me and writing a comment to my post.  I know that antipsychotics carry the most risk for TD.  I just wanted to point out in my original post that the risk for TD also exists with a much larger body of medications -even caffeine-if you are suseptible, I guess.  Or, if you've had residual damage to your system from an earlier drug. I still have the symptoms but they are not very noticable at this point.

-Meg

Anonymous
Hannalee
1/15/10 12:48pm

 

I'm so glad for you. It sounded like an awful experience. Probably TD is the thing we dread the most. My mother also has Parkinsonism that I'm sure is related to the antipsychotics (and neurologists have suggested that it is). She's coming off Abilify right now. I'm hoping with all my heart that she is mostly having withdrawals and will eventually recover her balance and ability to easily move. She was perfectly okay until the latest illness. She has psychotic depressions and manias. Very traumatic in my intelligent, independent mother. I'm almost at the very end of my strength.

 

I admit that I have a chip on my shoulder. I am very skeptical of psychiatrists at this point. They are too gullible about drugs. This profession may not police itself as it should. Remember terrible approaches gone wrong, such as lobotomy. I am also not at all convinced that EMT is such a good thing, even if one no longer thrashes around so much. I guess for some people it must work. I also don't want to be unfair. Shrinks have to live with the most disturbing human behavior we know. They do help people.

 

But everyone, what is the pharmacological industrial complex doing to us, especially when it comes to mental health? If I hear of a class-action suit for Seroquel, I will consider joining it, IF my mother doesn't recover her physical health (she took Seroquel last year--it appeared to me to be very harmful). The only reason I don't think of suing our shrink is that he has been kind to us and never intended harm. Which leads to my point: are these people sufficiently critical of modern methods and modern drugs? This applies to all medical folk, not just shrinks.

8/27/07 9:11am

I've been grateful for Lamictal - it brought me out of the horrible depression without causing mania like anti-deps do.  Before I was diagnosed with BD, I was treated for depression with Celexa & then Paxil, both which worked wonders, until they fizzled out.  Wellbutrin & Effexor made the depression worse, and then Zoloft threw me into psychotic mania.  I've had mood swings naturally since age 15, but not to the same extent as those induced by various so-called 'medications'.  I am grateful for Lamictal, and I also take Zyprexa to keep mania tendencies at bay; however, overall I resent medications since I feel that the stakes are so much higher than going 'au naturel'; when they work, sure I feel great, even better than ever sometimes, but when they don't work, they make me worse than I could ever imagine. 

I repeatedly hear from so many people with BD who have to go through trying so many different drugs, and we all know that for most of us, treatment is far from an exact science (then there are the side-effects, which is a whole nother can of worms); in fact, I find the whole psychiatric field quite primitive & if I could turn back time, I would never have started any meds. 

 

By the way, my recent poem is getting published in a couple local newsletters, with my photo & everything. 

8/27/07 10:45am

su1 - thanks for sharing your experiences.  I know many people feel as you do, that medication has not been the best route for them.  The decision to begin Lamictal was one of the best decisions I've ever made, but I fully acknowledge it may not be the best for all. 

 

For those who want to read it, (I recommend it), here is the link to Su1's poem:

http://www.healthcentral.com/bipolar/c/7061/12133/poem-give/
Anonymous
Samantha
8/27/07 2:49pm
I've had mood swings since I was a child, and no one knew what was wrong with me. Through my 20's and 30's we (the doctors and I) decided I had severe PMS and so that has always been what we thought the problem was. I kept going to them for some medication that worked. I have been prescribed Buspar, Zoloft, Prozac and several others I can't remember. But not until just last year, in Nov. 2006 did a new doctor tell me they thought I was Bipolar and got me started on Lamictal. Oh my gosh! I am a new person. I am so even keel now. No ups and no downs. I am even level during very stressful times. I can think now, I'm clear headed (unlike being a zombie on the anti-depressants). I love me, my husband loves me, my family loves me and life is good now! If I had known about this in my first marriage, I would probably still be with my ex-husband. But it's never too late to be diagnosed and treated correctly. Even at 43 I now feel like my life has started brand new. It's a miracle drug!
8/27/07 3:17pm

Isn't it wonderful when things work out like that?  For everyone who has had a bad experience with psych meds, there's a life-changing success story.   Thanks, Samantha, for sharing that!

Anonymous
Hopeful success story
5/ 6/08 11:03am

After reading your story, I feel a little more optimistic.  I, too, have had mood swings all of my life.  I couldn't for the life of me figure out why PMS would last for two weeks out of the month.  What my doctor thinks is happening after months of monitoring is that I am bipolar II and that the hormonal fluctuations are activating my bipolar symptoms each month.  I have started on lamictal and do feel a little better.  I am only up to 75 mg right now.  I also have ADHD symptoms.  I took concerta for the adhd symptoms and thought I was doing well at first then I fell into a deep depression.  Are you still doing well with the lamictal?  Have you had to take anything else or adjust the amount of the lamictal you are taking?  Thanks for your story.

9/ 1/07 6:35pm

OMGosh!! i too am on Lamictal and to be honest after trying 54 different meds over a period of 3 years, well, this one is the best so far in controlling my bp symptoms. BUT i also have slight, well what i would call tripping too, but i take mine in the morning and well, maybe i should change that. However, I notice things like shadows and hear tingling in ears kinda weird stuff, nothing major like some of the other stuff they had me on. Glad to hear someone else say this for i thought i was losing it sometimes, even perception in visual means is off sometimes. I certainly DON"T drive when taking lamictal, however, to be honest the sides are so much less intense than anything i've ever been prescribed and i am fully and completely happy with how it helps to control my symptoms..I really think they have something with this med, however, i often wonder (being a hololistic type gal) what the long term effects will be for am i wrong, but i think this is a rather new med and who knows 5 years down the road ya know, but heck that is with even over the counter meds.

But yeah, I get that spaced out kinda with you kinda not, daydreaming yet not manic or depressed stage....my husband sure notices the difference since i've been on lamictal....true testiment that its working when your loved ones say "this med is working better for you" now don't get me wrong not the MIRACLE drug and certainly doesn't handle all the symptoms, but have other meds for that...but glad to hear others had weird feelings when taking the lamictal, however, not too bad, didn't live through the 60's except as a very small child, but have a feeling it's kinda like a small dosage of what woodstockers felt...just that detached feeling which sometimes i REALLY REALLY need...kinda puts me inward and thinking ya know...so thanks for sharing!! it made this gal feel better to hear!!

Anonymous
Kate
11/ 4/07 11:37pm
Hi, I'm 23 and have been diagnosed as Bipolar II. For the past 6-7 years I've gone on and off and on various meds, and the only combination that I've been able to maintain is 300 mg Lamictal and 200mg Lithium. It was really, really hard to get up to the 300mg dose- I think that it took almost 2 months of feeling exhaused, and irritable and "creepy crawly", like something was under my skin, but now about a year and a half later the only persistent side effects I notice are a constant mild thirst/dry mouth- though this could be from the small amount of Lithium, and those  "lightning bolt" moments inside my head, like you describe. I was very clumsy at the beginning, but that has gotten better. I am finally stable enough for school and work! I just hope that I can maintain my mood like this. On the whole though, much better than the other 15-20 medication options I've tried since I was diagnosed with mental illness. 

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By G.J. Gregory— Last Modified: 10/26/11, First Published: 08/15/07