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Youth and the Explosion of Bipolar Disorder Diagnosis

By G.J. Gregory Tuesday, September 04, 2007

We’ve been hearing a lot about this lately, and it’s not surprise to most of us. But today it’s making news again, from my hometown paper to the New York Times. And when The Times covers it, it’s big news.

Bipolar Illness Soars as a Diagnosis for the Young.

I am not comfortable with this at all. In the past we’ve had several discussions about child and youth diagnosis of bipolar disorder here on BipolarConnect.com, and I’ve taken some criticism about my stance. But I stand by it, not from the standpoint of a medical or psychiatric expert, but as an experienced parent. I have 5 children in various stages of rearing, from ages 25 to 8, including one (that we know of) with bipolar disorder. In addition, I also suffer from bipolar disorder.

 

"The number of American children and adolescents treated for bipolar disorder increased 40-fold from 1994 to 2003, researchers report today in the most comprehensive study of the controversial diagnosis.

Experts say the number has almost certainly risen further since 2003.

Many experts theorize that the jump reflects that doctors are more aggressively applying the diagnosis to children, and not that the incidence of the disorder has increased.

But the magnitude of the increase surprises many psychiatrists. They say it is likely to intensify the debate over the validity of the diagnosis, which has shaken child psychiatry."


Children are, by nature, unpredictable. I get a kick out of parents that say, usually with a smirk, “my child would never do that." Unless parents have squashed the child’s ability to think independently, or vanquished their free will, there is no way to say that a child will or will not do something. That is the crux of my concern about the jump in bipolar disorder diagnosis in children: That given the already unpredictable behavior of children, accurate diagnosis is a dice roll.

I completely understand the desire to catch bipolar disorder as early as possible. There is a possibility that if my son’s bipolar disorder was caught earlier, school, and perhaps life in general, might have been much easier for him. But I also think his childhood would have been significantly different. He was a good athlete, strong as a horse and fast as a deer. While still in high school he ran 2 full marathons (26 miles each), winning his age group in one of them. He was active in music and theater, performing in a regional theater group, and in select singing groups. He had drive, motivation, creativity, and imagination. He was also different right from the start. As a baby he never slept more than a few hours at a time. His sleep habits are still not good. He struggled in school, and many things were very difficult for him. His temper was explosive, and his perfectionist tendencies were almost crippling in school. But if we’d started him on Risperdal, for example, when he was 8, his life would have been much different. Weight gain, loss of aggressiveness, a drop in creativity and motivation – all would have changed the things he accomplished – the things he valued back then, and what he looks back on today with fondness. Perhaps those activities and accomplishments would have been replaced with others just as rewarding. But when I ask him about it, he wouldn’t trade those experiences for all the stability in the world. Granted, I’m taking liberties with my assumptions, but it’s what he believes, and I can’t argue.

Anonymous
tabby
9/ 4/07 6:58pm

I am gravely concerned about children being diagnosed because of behavioral issues that may not be actually behavioral but more the adult's inability to cope with the child or the teacher's inability to control their classroom.  It is much simpler to take the child to the pdoc and get he/she drugged. 

 

The drugs on a developing brain, what will that give us down the road?  What will a "label" do to the child's self-esteem?  We see some of that with the issues regarding teenagers and young adults now - I bet most were labelled and given drugs as young children.

 

I'm not saying that there aren't children who have a sincere form of mental illness or a neurological inbalance.  I'm not.  Yet, I doubt the majority of the numbers being drugged are sincerely ill.

 

I worked for a local MH center and I transcribed evaluations and notes for the child pdoc.  She saw over 150 kids during the 2 years I worked there and transcribed.  All but 1 of the children were given meds - all but 1.  I say this because the 1 stood out to me.

 

It was so prevelant that I could actually type the dictation when it came down to the meds before I even heard her speak into the tape.  That is because once she noted the diagnosis, I knew from 100s of transcription what the med regimen was.

 

Most were referred to her by the school system, a few by their actual guardian.

9/ 4/07 9:48pm
Tabby - Wow, I'm simultaneously blown away yet strangely not surprised.  I believe you, every single word.  It's what we all hope is not happening, yet we all know it is.  Keep your experiences coming, I appreciate your willingness to share.
9/ 5/07 12:07pm

Thank-you for acknowledging the disadvantages caused by the side effects of the meds, such as weight gain and loss of creativity & motivation.  I struggle with these, as an adult, and hope to someday be off the meds, or at least Zyprexa, which helps relieve my disorganized thinking caused by the beginnings of mania, but instead makes me so tired physically, that I can't function anyways, so how much ahead are we?

 

I too, was highly functional growing up, being on the honour role, playing various sports, taking piano lessons, being on Treasurer on Student Counsel & president of a girls' leadership group, etc.  My advice would be to delay any use of meds & pursue CBT instead, at least to start with, since even when meds help the main problem, they cause 3 other problems at the same time (drowsiness, weight gain & loss of sex drive) which can be even more debilitating and traumatic than the mood swings, especially for a young person who is trying to build a life for themselves. 

9/ 5/07 1:00pm

su1,

Your question "...so how much ahead are we?" is a huge question.  Will early pharmacological treatment result in a higher immediate quality of life FOR THE CHILD?   Will there be a significant difference in quality of life once they become adults?  Or are we primarily concerned with the quality of life for parents, teachers, and caregivers?

 

Thanks for your thought-provoking comment. 

 

Anonymous
Joel
9/ 5/07 2:38pm
These are the two thoughts I got. 1. - They are getting better at diagnosing it. 2. - Bipolar people are breeding. (I know that sounds like a horrible thing to say but I am bipolar and I really want to have my own kids someday but I'd rather do something to help eliminate it... unless they figure out how to apply keyslot genetic correction to humans so they can "fix" us.)


9/ 6/07 11:19am
Joel - I agree that skill at diagnosis is likely getting  better.
On your other thought, I've heard many variations on this.  And while I understand your point of view, let me quote the character Hanibal Lector from the cinematic masterpiece "Silence Of The Lambs": "The world is more interesting with you in it."  And the same will be said for your offspring.  I had a great time as a kid, and my son who was born with bipolar disorder would say the same thing.  And the world is absolutely better for my son's presence.
Thanks for taking the time to read and comment.
Anonymous
Joel
9/ 6/07 4:46pm
I would have to agree with that. I have astonished many people with over-the-edge accomplishments and crazy stunt abilities that I probably would have never done if I wasn't bipolar.
Anonymous
Anonymous
9/ 5/07 11:11pm

Hello People,

 

I don't think you can "fix" what isn't broken.  I do not see people with bipolar as "broken" people.  They are people with a unique and sometimes very colorful personality - creative, imaginative and intelligent.  Yes, they (we) go off into the realm of no return at times, but we experience life to its fullest - savoring every moment we have - whether it be by being manic or by being depressed.  I don't think anyone could accuse us of being bland or boring.

 

I don't agree that we are getting better at diagnosing bipolar.  I think we are OVER diagnosing bipolar.  Just about everyone I run into these days has bipolar.  This is especially true of women my age - 50ish.

Could it be possible that we are just diagnosing typical behaviors and thoughts of a pre or post menopausal woman?

 

And then the kids.  Oh, the poor kids!  My heart goes out to the many kids who are slapped with a label so young in life.  And the medications!  No one knows what the real effects are on the brains and bodies of those children who take the "powerful" anti psychotic drugs.  G.J. - you said that your child had a wonderful youth.  Might all of that have gone for naught, if he had been medicated?  It very well could have.  I was told by a PhD psychologist that my son was depressed and he needed anti-depressant medication.  My mom and I did not believe the doctor, as my son was not showing any signs of depression.  Sure, he was angry and hurting because his dad had died and his mom was an alcoholic - but that didn't mean he had a mental illness!!

 

So good to see yet another thought provoking post from you, G.J.  I do look forward to hearing from you, as you always give me food for thought.  Keep up the awesome work!

 

Kay

9/ 6/07 1:39pm

Kay,

It is so nice to see positive, optimistic comments.  I absolutely agree with you that bipolar disorder is being over-diagnosed.  I sometimes feel like I shouldn't have been diagnosed (a statement my wife vehemently disagrees with). I talk about my son's diagnosis in the previous comment, but his childhood would have been significantly different had he been medicated. I'm glad we didn't take that approach at that time. But looking at the next comment, it's obvious that each situation is different.

Thanks again for taking the time to read and share your views!

Anonymous
Joel
9/ 6/07 5:05pm
I was medicated as a child and I still had a childhood that stuck out like a sore thumb of poison oak and bee stings.

I was given meds for ADD (misdiagnosis), I fell into severe depression, they gave me a antidepressant, within minutes I went psychotic, then into full psychosis, then into a coma. I was 12. I woke up more than a month later in a childrens mental hospital and I didn't know who or where I was, had to rehabilitate coordination and speech and eventually stuff came back and they told me I was bipolar.

After all that I was on Lithium, cogentin, and haldol but I was still significanly different and significantly more energetic and I did a lot of crazy self thought projects and built things. Now I am on liquid Lithium citrate(my metabilism is too fast for slow release, it comes out before it disolves) and Zyprexa.

I still have loads of energy. I guess you can still be hyperactive with stable moods. Maybe it's choice of activity.
Anonymous
Anonymous
9/ 6/07 1:40am

I realize that I may be alone here, but I am the mother of a 9 year old boy who has been 'diagnosed' as bipolar since the age of 7.  All of this happened after he had been treated for ADHD and depressive disorder with an antidepressant and different stimulant medications. He got dillusional, suicidal and violent with me. He has always been different---cranky as a baby with very poor sleep schedules and a very delicate 'routine'. It was always so easily toppled over with just a few out of the ordinary things.

 

He was hospitalized in May of '07 because he was voicing suicidal thoughts and hallucinating. It was the most horrible, painful, two weeks of my life as of yet.

 

He is still not doing very well. He is on 600 mg of Seroquel and 200mg Tegretol per day and I still need to slow him down almost every hour of the day he is around. We have tried other meds and those didn't work well for him either. Antidepressants make his moods very unpredictable but I know he is terribly lonely and depressed inside because I remember being just like him as a child. I am forty now so there just wasn't any help back then.

 

I guess my feeling is that of grief and loss but also of survival. I have three other children, ages 4-16 with the needs of normal kids. My 'bipolar' son is a 24 hr a day job, even on meds. As a parent, what am I to do?

 

Off the meds he is unmanageable, miserable, anxious, depressed, suicidal, impulsive, aggressive, etc.

 

And he is only 9!

 

I wish I knew of things to do other than to see all the hair on the bottom of the tub after he showers. Or the look on his face when he realizes that he is ravenously hungry without any restraint because of these medications.

 

We are so alone and meet resistance at every turn---with family, educators, strangers.

 

As the mother of these children, this child, what can I do?

 

 

9/ 6/07 4:21pm
Thanks so much for taking the time to comment.  We sometimes focus so intently on what we perceive to be the problems with the system, we overlook those that really and truly need the help.

My wife and I have experienced some of what you are experiencing, although nowhere close to the level you are experiencing. Of our 5 children, one has bipolar disorder.  He also slept little as a baby, and there were frequent problems.  Holidays or any other special occasion always brought a melt-down of sorts.  This was unfortunate to our other kids as Kyle got an inordinate amount of our attention.  Not that I would change much about those years, but each case is individually different.

I have a friend with a child that sounds similar to yours, and one time out of exasperation he told me "people think I'm a bad parent!"  He wasn't, of course, that's just one of the struggles he had dealing with a high-needs child.

I can tell you things get easier.  The problems changed, but eventually it did get easier for all of us to handle.  The older our son got, the more he learned that he had to help take reponsibility for improvement. It's still not easy for any of us, but it's manageable most of the time.

Do you attend any support groups?  As well as getting ideas about handling your particular situation, it's as much a necessity for helping us handle ourselves as handle our children.  

My thoughts and prayers to you and your family, and please come back and keep us informed.
Anonymous
Anonymous
9/ 6/07 6:21pm

Thank you so much for writing.

 

My husband and I are seeking help as a couple in order to parent him together instead of fighting each other. It has had a large impact on our relationship and also a large potential to divide us. Errol has sensed that and knows how to work things to his advantage and we need to make it stop.

 

I see a therapist and read a lot about how to help all of us, although just reading about it can make me feel quite manic myself. I was a working artist before things got to this level and now find myself at a loss for creative drive, which saddens me.

 

We know we need help and our step just to seek therapy together is a huge one. There are also appointments for IEPs, medications, therapy, etc., all just for Errol and these don't include the normal appointments necessary for the dentist and  pediatritions, etc. for all the other kids. I am overwhelmed some days.

 

There is Parents Helping Parents not too far away and we will be looking into that soon. We live in a somewhat rural area and everything seems far away.

 

Thank you for taking the time to document so much about your son. I came across that blog a while back and it helped me understand a little more about what was happening with our family. I know it must all be very very painful for you and your wife.


Peace,

Angie

Anonymous
mro
9/ 8/07 11:42pm

Angie,

Oh do I remember the days as you write your story.  It was as if it were my husband and I raising one of our sons all over again.

 

The outcome is, The Errol is our life, is now away at college...managing his own life and meds.  I can't say I always agree with his way, but he is a man now, and I have got to let go and let God. I used to worry when he went on a spending spree.  I used to worry when he didn't get much sleep. I still hope he checks in with a doctor every once in a while...but in the end...I only have control over my own actions. He will, I believe do the right thing, because he has seen me in my illness, well-managed, working full-time and taking good care of myself.

 

We spent many endless, minutes, hours, days working with him, loving him and I do know exactly what you are going through. 

He was isolated at school... more intelligent that anyone could ever imagine.

140 I.Q when he was still enough to be tested.

 

But today, sadly enough, our marriage is in name only. We live under the same roof and that's about it.

I feel that we are not even friends.

 

Live raising our son was different from everyone else's and I know how exhausted, not tired, but exhausted, I was every single day...drained, nothing left.

 

My husband was always angry that I looked into everything.  He wanted to minimize all of his behaviours as did his family.  I went to all the I.E.P meetings..and I alone finally went head to head with the school district and won to have him in a private school for kids that have learning disabilities.  It wasn't the perfect place, he didn't get the extra courses that he wanted, but he was shown

lovel, respect and patience.  Today, he is an Eagle Scout, a leader and enjoys teaching kids how to do things.  He loves animals and nature...all the things we did with him..it all stayed in his heart.  You have to have been given love, to give it away.

 

If possible, every week, take the time intentionally to do something special with your husband.  Even if it is a walk around the corner after a long hard day of work.

Plant a garden together.  If you are really lucky to have someone watch your child,

go to the movies and laugh belly laughs.

Go to the beach or a pool, swim and extra lap and jump in the waves or the pool like a kid.  Have a good time, if only for a very short while.  Let your son see that although you love him, he is not the center of attention, you have a husband, you have a life and show him how to live life.  Very difficult to do, but it will pay off in the end.

You will have a relationship with your husband and you son will have healthy relationships as well.  Fight the good fight.

Just do the best you can, but do. 

 

 

 

9/11/07 7:46pm

MRO - having a bipolar or special needs child can be so stressful on a marriage.  My wife and I used to, and still do, disagree on many things with respect to our bipolar son's handling and treatment.  And whether consciously or unconsciously, he would play us against each other also.  Throw in my personal bipolar disorder and it's a true miracle that we have stayed married, and in love, for so long. 

 

You give great advice, and if you don't mind I will take that idea and write about it at some point in the future.

 

Thanks for taking the time to read and leave a comment. 

Anonymous
migraineur
9/ 6/07 7:26pm

Oh, how I silently begged my parents to take me to the doctor and relieve my suffering while growing up as a bipolar child. I spent nights crying and praying that someone, anyone would help me. I remember being suicidal for the first time around 8 years old, and depression was a constant theme throughout my entire childhood and permeates some of my earliest memories.

 

We know that bipolar disorder is often a progressive disease if left untreated, and I feel that leaving my bipolar disorder untreated for 17 years during my childhood did have a significant negative impact on where my illness is today. This doesn't even mention all of the very unnecessary longterm emotional fallout that leaving it untreated caused. I was so disabled by my untreated BP that I wasn't able to live and grow and experience all of the good things in life the way that normal children do. I'm still feeling the effects of that as an adult.

 

I can't say for certain that medication as a child would have made my life peachy, but I believe it certainly would have given me a better future at successfully managing my bipolar. All in all, I do pretty well with my BP, but I really grieve all of the things I lost growing up because of untreated BP.

Anonymous
Anonymous
9/ 6/07 9:22pm

Dear migraineur,

 

I really felt for you when I read your post.  I, too, was untreated as a kid, and I drove myself into the ground, trying to be the perfect child with perfect grades and perfect extra-curricular activities and so on and so on.  All of it came to a screeching halt after I went to Bolivia, came back and fell into a deep depression.  I was never medicated for it, and basically, I had to toughen up on my own.  That became the foundation of what would be a roller coaster ride of a life from then going forward.

 

Still, I do so wish that you would not lament the past that you never had.  You don't know with any degree of certainty that your life would have been much different had you been medicated.  And even if it had been different, who is to say that it would have been better?  I just think it is a shame for anyone to grieve over what they never had or what they never knew.  Our lives are what they are - for better or worse.  We all have a hand to play and we do the best we can with what we have.  Instead, celebrate the person you have become, and keep in mind that the person you are today is a direct reflection on what you were in the past.

 

I could wonder if my life would have been better.  I could wonder if I would not have attempted to commit suicide three times (and nearly succeeded twice); I could wonder if I would not have become an alcoholic.  None of this wondering helps me in any way and, in fact, it keeps me rooted in the past and doesn't let me get on with my life.

 

No matter what has happened to us in our lives, we have to get up every day and face the world, at least to some extent.  If we face it with a feeling of optimism and hope for today, and come to terms with our past, I believe we can make our future different.  Try to remember any little, tiny thing that was good about your youth.  No matter how bad it was, I believe there must have been something good that you experienced.  Yes, my childhood was filled with turmoil.  Yes, I suffered a great deal of pain.  Today, I am a relatively happy individual, working in the community and mothering a 15-year old son.  My life is far from perfect, but I look forward to each day with a fair amount of optimism.

 

So, please, don't regret what you did not have.  I could regret the fact that my parents got divorced and my mom and my two sisters lived in near poverty, without a car, until I was a Junior in high school.  As bad as it got, sometimes, I believe the experiences I had, have made me a better person today.  I am much more able to deal with tight, financial situations as a result of my childhood.  I am much more able to see both sides of an argument, because of the fact that I have been on the giving and receiving end of bipolar.

 

I will keep you in my prayers, and I wish you the very best as you continue throughout each day.  You are unique and special, just as you are.  Changing the past is a journey headed nowhere.  How can you miss something you never had?

 

Warm thoughts and hugs your way,

 

Kay

9/11/07 10:27am
Thank-you for sharing your optimism.  My sister once helped me, too, when I asked her "Do you believe in fate or that Things Happen For a Reason?"  She said "Sort of - I just believe that everything tends to work out in the end."  This also has given me great comfort.
9/11/07 8:00pm
migraineur - thanks for sharing your experiences with us.  You, along with others, show that nothing about this disorder is black and white.  For every "rule", and "expert" opinion, there are exceptions.  Everything about bipolar disorder is a shade of gray.
9/11/07 8:03pm

Kay and Su1,

Once again, I am amazed by the wisdom and depth of compassion of the people in this community.

 

Thanks for your contributions. 

Anonymous
Migraineur
9/11/07 11:08pm

I'm not a marginal exception though.  There are a significant number of bipolar children who experience this illness the same way I did, and whom it is imprudent to withold medical treatment from.  I'm not saying we should be loading all of them up on atypical antipsychotics (heck, I won't allow myself to be put on atypical antipsychotics for long-term maintainence), but traditional mood stabilizers may be beneficial in many cases.

 

Here's yet more evidence of the effect of BP on the brain:

http://www.nimh.nih.gov/press/bipolartrajectory.cfm

Perhaps starting children on proper medication could slow or stall some of these brain changes.  Of course, this is speculative now, but we've found that in adults, treating BP slows down the progression of the disease.  Furthermore, childhood onset tends to have a more difficult course than early adulthood onset.  Early treatment could offset this.

 

I certainly don't condone forcing treatment on children.  They should be active and willing members in their healthcare.

 

I appreciate the optimism of the above posts, but I still genuinly believe that proper medication and therapy as a child would have greatly improved my quality of life.  It at least would have been MY life rather than a life dictated by BP.  It was important to talk about my experience because I know I'm not alone.  Ideals are nice, but there are some harsh realities to this illness that sometimes get overlooked.

 

I think grieving is a natural part of this disease.  At some point or another, we all go through Kubler-Ross' stages of grief.  I'm okay with that.  The grief I feel is okay and natural and something I will spend some time learning and growing from (not wallowing in).  It's a process I'm also going through with my chronic pain disorder.

 

I am today a pretty well-adjusted adult.  It has not been an easy journey, but I've been excessively fortunate in finding 3 excellent therapists with and been a very good responder to mood stabilizers (not to mention I hit the right one on the first try!).  I'm married, graduated with my BA in psychology and Spanish with honors, and am currently working on my master's degree in sociology.  I haven't had any major episodes since I started meds over 2 1/2 years ago.  I certainly wouldn't say things are perfect, but I know I'm one of the lucky ones.

9/ 7/07 10:37pm

I had a son with ADHD and was soon diagnosed with it myself. It was in the early 90's and adult ADHD was "coming out". There were so many ads on medication to treat it. It seemed like the new cool disorder. Somewhere around 2000 the focus seemed to move to bipolar, since it sounds so much better than Manic-Depressive. I was so glad I didn't suffer from manic-depressive like my cousin's daughter did, as well as my aunt. But I don't mind bipolar as much. It doesn't sound like what it really is.

 

Now the ADHD ads are being replaced with BPD ads. How much are these ads in family magazines pushing parents and the pharm. reps who give the samples to the Pdocs have to do with diagnosis.

 

It seems I don't have ADHD anymore, I've graduated to BPD1. I do think they got it right this time.

 

--K

9/11/07 8:11pm

Karmas - You are exactly right, the  pharma companies are marketing this disorder exactly like they did ADHD in the past.  I try to look on the positive side, it has brought about increased awareness, and that's not a bad thing.

Thanks for taking the time to read and leave a comment. 

Anonymous
Just Me
9/ 8/07 9:17pm
I'm with Kyle.  I will always wonder what might have happened if I was diagnosed a few years sooner, but I also am pretty certain some of the better things that have happened to me in the last ten years happened because I had several unmedicated years after my first significant manic episode (that nobody saw).
9/11/07 8:13pm
JM - This gets my mind moving in a different direction.  Do you think perhaps there are people, situations, or manifestations of bipolar disorder that are better unmedicated?
Anonymous
Just Me
9/12/07 10:44pm

I answered on your other page, but for the sake of discussion here, yes, I do.  I do not think I am one of them; in fact I have taken great pains to ensure that if I accidentally change my mind that I will be forced to take meds (and I do mean forced; I have asked to be held down and injected if needed).  But I also know that I made it through graduate school because I wasn't diagnosed.  I could not have done it on meds.  I am sure the way I went through school wasn't entirely healthy, but it was the only close to healthy, fairly normal adult life I will ever have.  The only thing different was that I did most of it in overdrive.  However, I was really only hitting hypomanias then that could be unpleasant but generally only from lack of sleep. 

 

During THAT TIME of my life, being an unmedicated bipolar was the saving grace (given I had to be bipolar).  They tell me it is amazing I wasn't diagnosed or have really serious problems sooner, but I think there just was a good fit between my level of illness and my life at that time.

 

That time also gave me a very special 6 weeks when I had completed all my course work and my thesis and was waiting to do clinicals.  I started to get noticeably sick those weeks (looking back), but those were the last weeks of my life before the monster bit off a huge chunk.

Anonymous
mro
9/ 8/07 11:15pm

Your share was interesting to me as I have raised two sons, one of which, was diagnosed very early on - as lithium was like magic-. His activity level and moods became much more normal.  He is highly intelligent and is away at college now.  I do know that if he didn't have medication, his quality of live would never have been what it is today.

On the other hand, another son of mine, rejected medication.  He can manage without medication but it isn't always easy.

He is extremely creative, musical, into science, history and is such an interesting person to be around.  So is my other son,

however the second son, people just want to be around him because his mind is so creative.  He loves people and people love him.  If he had been left on medication, I don't know if all of these wonderful talents that he has, would have ever surfaced.

We parents just do the best we can, and my feeling is God wanted him to be just the way he was unmedicated.

There's merit to what you say, however sometimes, a person just can't have a quality life without medication.

Thanks for sharing.

9/11/07 8:20pm

MRO - your quote below is so wonderful:

 

"We parents just do the best we can, and my feeling is God wanted him to be just the way he was..."

 

Thanks for sharing that.  

9/11/07 10:40am
Then there is the question of what meds the doctors decide to treat the BD with.  I have been to a couple seminars, and Lamictal is the overwhelming favorite treatment for BD II, especially if your disorder is predominantly depressive (this is all true for me).  For BD I, I've heard several times that Lithium is still the gold standard.  I like the idea that it is a natural salt instead of a synthetic drug.  I have always been curious about it, yet the doctors all seem to want to put me on the latest medication & it makes me feel like a guinea pig, especially given that these drugs have not been proven to be as successful as Lithium has.  I am struck by how one of your sons was treated with Lithium right away & has done very well with it.  I have heard Lamotrigine & Lithium combo can work very well for people like me & would love to hear anyone's feedback on all of this.  Thanks!
Anonymous
Just Me
9/11/07 12:28pm

Lamictal is a favorite because as long as it is tolerated (no rash) it is a fairly mild drug.  The side effects still can be lousy, I say that as someone who threw up daily on it for a year, but there isn't weight gain, etc.  Overall, it's less damaging.

 

Lithium is natural, but it is also dangerous and the side effects are difficult.  I had lithium toxicity in the spring of 2006 and still have some effects.  It is very hard on the kidneys and the longer people are on it the more likely they are to have problems.  Having said that, I tried being without lithium because it is so hard on my body after the toxicity, and after a few months I chose to go back on a tiny dose because I feel that my body NEEDS lithium.

 

Lamictal wasn't approved when I started treatment, and my story with it is crazy (was in a clinical trial, took it for a year with vomiting, went off, tried again in desperation, did great, got out of the high risk weeks for the rash and broke out badly.  No more for me), but I kind of wish it had been and that I'd had a chance to try it alone.  It would have had little chance of working alone because I'm BPI mixed and severe rapid cycling, but so far lamictal did the best job in increasing my fragile control.

 

Also, the meds have to be so closely catered to individual needs.  There are generally specific reasons behind most choices.... 

9/11/07 1:21pm
It's so tricky, especially with Rapid Cycling, which is what I have, too.  That is why my pdoc had insisted Zyprexa is the best choice, because I can take it as needed, to get an immediate effect when I go too high, then go off of it when I am normal or too low.  I just hate how it's so potent, though, because I only take 2.5 mg and it's like getting hit over the head with a sledgehammer.  Maybe I should try cutting the pill into thirds.
9/11/07 8:27pm
Su1 - we have no experience with Lithium in our family.  While I think Lithium may have done a better job handling some of Kyle's symptoms, like Just Me said you have to be very careful to avoid Lithium toxicity.  And I was scared that Kyle would not monitor this enough to be safe.  So given that I think Lamictal was a good choice.
Anonymous
Just Me
9/12/07 10:14pm
And just so that it is clearly said, because this happened to me and I thought I knew what I was doing:  it doesn't take much to not monitor lithium well.  I was perfect with my labs for years.  I knew I needed to be because my levels were on the high end of normal.  I got depressed and physically sick at the same time.  It took months to figure out that the reason was I was toxic and would get sick, go off lithium for a few days, then go back on and get toxic again.  By that time the damage was done.  I will always regret being too depressed to get blood drawn, yet it was just a matter of my support system drastically changing, physically not feeling well, work demands, and winter.  Now I have people closely monitor my blood draws for compliance.
9/14/07 12:03pm

Going to get bloodwork done this month to see if I'm in good shape to try Lithium.  My pdoc says he doesn't mind using it as a small add-on.  I trust his guidance.  The other thing I'm happy about is that you feel results right away, so I will know very soon if it's going to work for me or not.  I know there's a lot of blood tests required in the beginning, to properly monitor it, but I'm off work right now, so the time is right.

 

I've been off Zyprexa for over a week now & just feel so much more human & alive.  Yes, I'm a wee bit on the hypomanic side, but my thinking is sharp (instead of the disorg'd thinking associated with psychosis) and I'm getting decent sleep by using 0.50 mg clonazepam each night.  I don't intend to use clonazepam long-term because of its addictive qualities, but I'm using it as a transition drug while I 'dry out' from all the extra caffeine & alcohol I would use while on Zyprexa to shake myself up because I was feeling so awful. 

 

Just got over a cold & because I am off work, I don't have to turn to cold medicines - just have lots of liquids & sleep as much as I want.  It's so nice to go natural, and I can feel my immune system rebuilding over time (I used to pop 'daytime cold' pills like candy because I was just always getting sick before my diagnosis). 

 

Lamotrigine (200 mg) and small dose of Prozac (30 mg) combo is still working for me beautifully, so no change needed there.

9/14/07 1:27pm
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By G.J. Gregory— Last Modified: 12/26/11, First Published: 09/04/07