Microsoft rolled out it’s HealthVault site today, (http://www.healthvault.com). Per the site’s home page:
"When it...
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Personal Health Site
Margaret Gates
Thursday, October 04, 2007 at 02:49 PMre: Personal Health Site
G.J. Gregory
Thursday, October 04, 2007 at 03:02 PMThanks, Margaret. I sometimes think I'm paranoid, so I appreciate other input. But you know what they say, just because you're paranoid doesn't mean they're not watching...

Thanks for reading and taking the time to leave a comment.
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Personal health info.
m
Thursday, October 04, 2007 at 04:15 PMThis scares the poop out of me, especially since I recently found out that one of my docs enters our conversations into his laptop, even if we're just gabbing about the family. No Way will I put anything on this new site.
Bill wears and medic alert bracelet and I wear a medic alert necklace. They both say, "see wallet" We both carry the details of our medical stuff in our wallet. All our docs and especially the ER ones, are delighted to have the info. they need.
I would caution everyone to think really hard, before you'd use the personal health site.
amen
replyre: Personal health info.
G.J. Gregory
Thursday, October 04, 2007 at 05:27 PMM - it's like that Seinfeld episode where Elaine was labeled "difficult" in a doctor's chart, and when she tried to get that corrected, it just got worse. Once that cat's out of the bag, it's not about to go back in.
Thanks for your comment, it's great to get several points of view on this.
replyre: Personal health info.
Just Me
Thursday, October 04, 2007 at 10:43 PMYou have a smart doctor. It's annoying, but medical people are so vulnerable. I had a patient recently who asked if I actually went to school to be a therapist. I told him yes, 7 1/2 years (I have a master's). We talked about it for a while. 24 hours later he was being as mean as could be ranting about how "she's not so smart, she doesn't know anything", etc.
It's a crazy world. Which is just exactly why the internet is no place for this kind of stuff!
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Healthvault! No thanks.
karmas
Thursday, October 04, 2007 at 08:34 PMI haven't visited the site yet, but I don't like it.
After working 15 years in the software industry and a sales person for ecommerce when it was just starting back in the mid 90's, I find it very hard to believe our information will stay within our control.The more people (hits) a site determines the advertising rate. If there are no ads on that site, it's being underwritten by some other company that we may or may not be aware of.
Maybe I'm having one of my more paranoid days...
replyre: Healthvault! No thanks.
G.J. Gregory
Friday, October 05, 2007 at 08:36 PMI'm right there with ya, Karmas. Thanks for weighing in.
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What I use
Just Me
Thursday, October 04, 2007 at 10:39 PMI would not use the Microsoft thing. There are too many ways for the information to get into the wrong hands.
However, after a ton of thought, I did start wearing a different kind of personal health device. I got a flash drive style medic alert tag from a company called portable health profile. It has a program that collects whatever info you want to enter and in an emergency can be plugged into anyone's computer and the information should come up without any program on the computer. It can be password protected.
I chose to do this not because of bipolar, but because I have so many med allergies even I can't be sure I list them all. That could be dangerous if I'm too ill to remember easily. Even the program my doctor uses to track her visits with me doesn't have enough space for my allergies.
I feel fairly safe with this; it's not easy to lose when it's worn around my neck, it's pretty private, and it's easily accessible.
replyre: What I use
tzar6751
Saturday, October 06, 2007 at 03:58 PMSounds like a very good device. What is it called and where do you get it - a much better alternative to the microsoft thing. Got me sold on it.
replyre: What I use
tzar6751
Saturday, October 06, 2007 at 04:41 PMSounds like a very good device. What is it called and where do you get it - a much better alternative to the microsoft thing. Got me sold on it.
replyre: re: What I use
Just Me
Saturday, October 06, 2007 at 09:16 PMAck, it ate my answer. I did a lot of searching to find the right brand for me. I did searches mainly for "flash drive" "medic alert". The brand I got I chose because it is in a metal casing that I'm sure will hold up, and because it actually showed what it will have you fill in on the program. I needed tons of space for allergies. Mine is from portablehealthprofile.com
I also liked the ones at https://www.sosalertproducts.com/products_data_tag.php
; they have armbands like the LIVESTRONG ones that weren't good for my job but I like the look. MedicAlert themselves have one but the info is in a central computer and I don't like that. Plus it required membership and wound up costing more than the $50 I paid.
There are different options to suit different needs. I wanted something durable (mine has a metal case) that clearly says that it's a medical tag, that went around my neck (the hardest part for me because I don't like it touching me, but I'm learning). I needed to be able to put in my allergy history and add additional forms to further explain that.
So far so good.
replyre: What I use
G.J. Gregory
Saturday, October 06, 2007 at 10:40 PMJust Me - thanks for clarifying that. I was assuming it was a standard USB flash drive.
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I agree
su1
Sunday, October 07, 2007 at 03:23 PMI, too, am a skeptic about this. I can't help but think what employers and insurance companies would pay or do to get access to this very personal information.
It's funny you mention about the cop heads-up thing. I recently challenged a parking ticket issued by the City & was a bit daunted when I got a phone call from a policeman (to discuss the ticket; they ended up waiving the fee) as opposed to a regular City employee & can't help but wonder if they had seen my police record showing that I had a psychotic, paranoid episode a couple yrs ago, which involved the police and an ER visit & thus the ticket issue was referred to a police officer.
replyre: I agree
G.J. Gregory
Sunday, October 07, 2007 at 04:15 PMSu1 - Thanks for weighing in on this. That makes you wonder when you get a call directly from the police officer on that ticket. It does sound like they pulled your history, doesn't it?
Thanks for taking the time to leave a comment.
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Health Site
onlylonely
Monday, October 08, 2007 at 03:07 AMHey G.J.,
You can count me in on the numbers of people who are "paranoid" about this whole concept. It is bad enough the way it is already, without giving people yet another way to find their way into our very private lives.
I'm sure many of you can relate to the story of going to the hospital for chest pains or some kind of stomach anomaly, only to find yourselves being treated by a psychiatrist, thanks to the information that was in your chart. Oh, no, it just isn't possible that a person with any kind of psychiatric history could be in the ER for anything else other than something psychiatric!? Funny, how chest pains or tummy problems somehow get misconstrued to be psychiatric issues, once the ER staff find out about your history with mood or thought disorders.
No thank you, I say. Our private information is already at high enough risk of exposure as it is. This would appear to be yet another tool to make that information even more public, under the guise of "consumer control".
I am joining you on the "paranoid bandwagon", G.J.,
Kay
replyre: Health Site
G.J. Gregory
Tuesday, October 09, 2007 at 02:30 PMYa know, Kay, what makes this concept inevitable is that if you, or I, or almost any of us worked for Microsoft we'd have killed (figuratively) to implement this new form of consumer information sharing. And because the vast majority of people in the world have nothing to fear in sharing their information it will be accepted.
That alone is scary, isn't it?
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You've got to be kidding!
ctrygirl
Saturday, October 13, 2007 at 09:11 AMThere is absolutely no way that I would participate in putting my personal medical information online anywhere. The past history of how bipolars have been treated just in case no one knows or remembers can be seen on this web site;

http://history1900s.about.com/od/holocaust/a/sterilization.htm
and also on this one:

http://en.wikipedia.org/wiki/Compulsory_sterilization
In China there is an issue of forced sterlization if you have a hereditary psychoses..
..in other words BIPOLAR OR SCHIZOPHRENIC or other mental issues that could be passed in the genetic makeup...there are reports of FORCED abortions also....these are not PARANOID feelings for us, it is the internal voice telling us that YES
you best keep your personal medical information as personal as you can. I personally don't even like my therapists putting anything on her laptop about our sessions but am unable to change that for that is the way their office works.
But so many people talk of how paranoria is ridiculous and not to fear this or that..i personally feel that fear or feeling is given to us for a reason..a GOOD one. To put all of ones information out on an INTERNATIONAL level
, regardless of Microsofts promises to me is just asking for issues.I am so with you on the paranoid thing over this...the more i have researched and read and studied (which is an obsession of mine to learn something new each day) I find discrimination beyond explaination toward bipolars
...all I can say is if you DO decide to do this, be prepared for the reprecussions for there WILL be some, to that i have NO doubt. As we all know as soon as you are identified as a manic depressive or bipolar the tone/mood/tune of the doctors or whoever you are conversing with CHANGES ....they don't understand the illness, plain and simple, unless they have it they dont' get what we go through and nor do they care, again most focus on themSELVES and how it will affect THEM. This isn't something to help us, this is to ME something to IDENTIFY us and others with various illnesses
. I am so confused as to how anyone can see this as a positive thing. The government and the healthcare industry are literally stepping over the bounds of PRIVATE information.
Just know this, that anything and i mean anything you put on the web is out there for any and all to see and read, regardless of how much microsoft assures you differently.
I am with you all the way on this G.J. all the way.....your not paranoid, your being discreet and SMART!!!
Sorry guys this is a real sore point for me for i live in a very very small town and trust me once ONE learns of your disorder it will spread like wildfire, not that it is anything to be ashamed of ...no no...not at all...but it is how you are treated AFTER people find out that makes the issue mute as to whether to tell others, post it on a health site, or whatever....discrimination LIVES and that is pitiful
but it DOES and if you simply take time to read the history of how bipolars have been treated over the centuries, well, you'll see my point. Please all be careful, please listen to your gut on this one, i'd hate to see any of you come to any kind of grief over trying to make things better for yourself medically by utilizing something they "TELL" us is safe...please be aware, be educated on the past treatment of bps and please be safe ....I worry about us all sometimes, but perhaps that is part of MY paranoria...but uhm this time it is backed with FACTS so please please beware!!! THANK YOU GJ FOR POSTING THIS SO MUCH i have wanted to address the isssues i have here for a while but thought it would come across as "my illness" making me feel this way...well guys read for yourself at the websites i put on here or go to goggle and put in "forced sterilization of manic depressives" and see what comes up MILLIONS of hits
....okay i've spouted enough but can only say i worry about us ALL.
stay discreet is my theme....Sincerely atthelake
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I personally think this is a great idea.
It seems that Microsoft is giving the consumer total control
over the content and who gets it.
Electronic medical records are a given in the next several years in hospital as well
as outpatient settings.
It is just simply more efficient.
Margaret G, Jax Bch, FL
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