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End of the line for Invega; Running back into the arms of Risperdal

By Purple Flamingo Friday, November 12, 2010

Invega is an endangerment to me.  My apathy was a waving red flag to an already stressed bull and fights have ensued for the last two weeks.  Big scarey fights, teetering on the verge of out of control.  And I have to say it wasn't all that terrifying to me.  Just confusing.  But the fact that I should have been on the defense and taken the outbursts seriously instead of trying to find out why we were fighting and what the fights were about... well, I was there, wasn't I?  But it didn't feel like I was the center of attention.  Sort of... 'watching from the sidelines.'  Confused is definately not the cheer to shout if the other person is on the verge of crazy because you don't care anyway.  Especially when you should care.

 

Final straws were stepped upon.  I wanted to get off of Invega anyway but I was waiting for my pdoc appointment next week.  No go.  Invega is making me sooo exhausted.  I sleep and sleep and sleep.  Dehydration is giving me actual nightmares.  No, I tested it.  Truth.  Don't know if I can blame the medicine though.  My body temperature has stayed on the warm side.  I was too cold forever; now everyone stays toasty on my account.  I used to love the cold.  I'd freeze the household, and I'd avoid the heater if I could during winter. 

 

I nearly had a car accident today.  I know I was kind of spacing out.  I saw the van ahead.  He was stopped.  For whatever reason, it just wasn't registering to hit the brakes.  I got around to stopping the car.  It scared me a little that I couldn't grasp it right away.

 

My memory is so fragile now.  My vocabulary is still M.I.A.  I struggle to speak.  My train of thought officially has no track; it just goes where it wants.  To help myself some, I've been repeating everything I hear people tell me.  People complain but so often I'm hearing it wrong.  Or worse, I am not understanding the words.  And sex is off the menu.  I think it may be out of the kitchen entirely.  I feel numb.  Definately mentally numb.  Even a bit numb physically.  Nothing seems important.  I'm not looking forward to anything.  I haven't been on the computer in ages.  I am avoiding the phone because I can't hear and I'm just not that interested in where Bill has been the last six years.  Sitting in semi-silence long distance just made us both feel stupid.  I told him I was sick and I was getting over an ear infection.  Sounded good at the time.

 

So, the plan is to avoid Invega for the next week.  I will ask for the Risperdal 1mg, let that build in my system for a few weeks to register the pain, and probably switch it up to 2mgs.  My family is willing to pick up the slack if it will bring me back into focus.  Good.  I miss being happy and laughing.  My goal is to have a merry Christmas this year.  The last five or six holidays haven't been too festive.  It gets hard to make cookies while you cry.

And did I forget to mention that she's bipolar, too?
11/12/10 11:08am

Wow! That really sucks, and I thought I had problems from invega! I'm so sorry. Hang in there though. It will get better. Hang on to that!

Anonymous
Janice
6/ 7/11 5:06pm

My brother took Invega everyday. He did have a diagnoses of Schizophrenia but was completelt independent. They quit making his medication last year and was put on Invega. He was an excellent bowler, fisherman, etc. He developed Neurolypic Malignant Syndrome, became completely dependent, all his organs failed, he developed this syndrome in Dec 2010 we just buried him 4 weeks ago after being dx 5 months ago. It has torn our family apart. I am so glad to hear you got off of it.

Janice Owen

janiceowens@hotmail.com

 

6/ 8/11 10:56am

I am so sorry!!! Wow! I mean I still have a residual twitch in my left eye when the sun shines on it, but otherwise I'm unscathed. I can't begin to relate with the horror and resentment your family must be feeling. Just plain awful! Were there any warning signs the doctors should have picked up? I'm just curious, if you don't mind.

Anonymous
janice
6/ 8/11 9:04pm

He was in the hospital the first week of December. He had fallen at his appartment and could not get back on his feet my mom called my husband. My husband called the EMS and we went to hospital. He could barely movehis body heart rate usually ran in the 70's that morning he was in 120's. The ER doctor admitted him. The primary doctor that saw him in the hospital said he thought it was "probably" urinary tract infection. I could not make anybody beleive that he was independent, that he walked, fished, bowled and etc. I don't think they would look past his diagnoses of schizophrenia. But he always took care of himself. They sent him home in a wheel chair. Within 72 hours he had no movement in his body only eye movement. My husband and son in law picked him up put him in car and carried him to another hospital whithin hours he was diagnosed with his Neurolyptic Malignant Syndrome. This past Monday it was a month when he died from complications. Our world is still turned upside down. I have to honestly say that second hospital fought for his life they were the best. The first hospital I am so angry with. I asked the doctor at least twice did he think it could be his medicine. His reply was I "don't think so" I have carried guilt because I did not look up the medicine. He had the top 3 symptoms, tachycardia, fever of unknown origin and muscle rigidity. I wished I could go back and re-do so much. My heart hurts everyday over his loss, it was an uncalled for death with the medication  

6/ 9/11 5:00pm

I know it's hard, but you can't beat yourself up over what you could've done. Besides, it was THE DOCTOR'S JOB along with the hospital to look into every possible cause and know the medications and their side effects enough to have done something. They dropped the ball, big time! And I'm sure you know that. Gosh! Again, I'm sorry and my prayers go toward your family.

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By Purple Flamingo— Last Modified: 10/26/11, First Published: 11/12/10