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At least, I think I am

By TMarie Wednesday, January 23, 2008

Hi, everyone - I don't have an official dx yet but a 'strong provisional diagnosis for bipolar disorder' as per my psychologist and my gp. They are setting up a first appt. with a pdoc - not sure when it will be yet. I do have some family history of bipolar also. I have a question but I'll give a little background first...

 

It's amazing how similar so much of this sounds, articles and posts on here - I've been reading for a month or so, and in other places as well. I believe I've had symptoms at least since my 20s, when I first had postpartum depression.  Now I'm 39 - I've had several episodes of major depression and was treated a few times with prozac, the last of which (2002) probably spurred a hypomanic period (not necessarily my first). Went off it three years ago. Hypomania?  I think to a degree it is part of my temperament. ? I've had those moods for so long that it's hard to determine what my normal would be - but now it's been increasing and interfering with everything. 

 

For a month and a half I've been tracking my mood/sleep etc. (found a good site that charts it) and I am realizing that I am likely in a rapid cycling/mixed state. My brain can't shut off all the stimulation.  I didn't realize just how pervasive and intense it was until I started a low dose of depakote and feel calm for the first time in....?  My gp had wanted to start me on an anti-depressant but luckily, before I took the first pill of the sample she gave me, I did more research on meds and found that in a rapid cycling state that could be a disaster. Whew. Although again, I'm not sure of my diagnosis, it seemed depakote was a safer first try.

 

It was a horrible feeling, the moment I realized this might be what I have, but right on the heels of it was a moment like pure enlightenment - "OH! I've been fighting all these monsters on this side of me (trying to make tons of lifestyle changes over the years to, basically, get my act together already), when here it's THIS monster over here that's causing all the problems!"  You see? New weapons required (and - ta DAH- available!).

 

But it seems you only figure out something is wrong when your life begins to run amok. I already bowed out of my business (husband runs it now) a year and a half ago, not knowing why the work I used to love had gotten so I couldn't handle the stress, worry, responsibility, etc.  I took a part-time quiet office job and have been there over a year. It was easy work at first, but in my increased brittle state, it's harder and harder to keep up my normal happy face, and cognitively, my brain is for crap at times. I'll find mistakes I did the last time I worked and get so forgetful during a simple task - "why am I holding the stapler?" I've always done this a little bit but this is not a little bit.

1/23/08 7:31pm

Our therapist gave us some really good resources to contact for free meds and "wrap around" medical care.

IT doesn't hurt to ask.

1/23/08 8:34pm

Good idea - I hadn't.

 

Crashed shortly after posting, everything seeming impossible.

 

Thanks for your reply, Hopeful mom.

1/24/08 7:26am

You’re on the right path and I am glad you have a supportive husband that wants you well again at any cost…that’s love. Here are a few helpful money saving ideas that may help.

 

Ask your GP or pdoc for free samples that they get from drug reps, ask your pdoc or GP to look at the Wal-Mart drug list when prescribing …these are now $4.00 scripts for a months supply…they offer a lot of psych medications, you can also contact certain drug manufactures that offer discounted and sometimes free medications based on your income.

 

Get in with a state run clinic…most offer services on a sliding scale based again on your income, there is also usually a waiting list to get in. Some also offer free psych medications paid for by the state.

 

I know you are educating yourself with the illness and that’s only natural…but be leery of trying to decide what medications are good for you. “My gp had wanted to start me on an anti-depressant but luckily, before I took the first pill of the sample she gave me, I did more research on meds and found that in a rapid cycling state that could be a disaster.”  

 

I also am classified as a rapid cycle and take two antidepressants in conjunction with a mood stabilizer and it has worked great going on 8 years so don’t believe everything you read. Each person is unique in how we react to medications. Good luck

1/24/08 8:50am

Eric - thank you for your kindness, and for these ideas - it's a real help. Yesterday morning I felt so confident about figuring this out but today...I have to copy these ideas off and hand them to my husband, because I need his help, and realistically, he'll be doing most of this stuff.

 

You're also right about being leery of self-diagnosing/self-medicating. My gp was ready to prescribe whatever I wanted (meaning whatever I said, not choosing among her suggestions), which shocked me. But I can't get into the pdoc for a while, and it's not getting any better. I'm scared.   

 

One way I could get to a psychiatrist sooner would be a partial hospitalization program in our area. My tdoc told me about it last week, when I was in a 4-5 day period of fairly positive elevated mood. I didn't think much about it then. Coming down into depression...last night hubby said it might be a good thing and I know he's right. I think I'd have to quit my job in order to attend and I don't want to leave them in the lurch. We'll discuss it today.

 

Suddenly this winter I can hardly do anything on my own, can barely contribute anything to my family - I know I shouldn't feel shame and guilt but I do. I've been crying and crying. This is not me.

 

Anyway. Thanks again.

1/24/08 1:05pm

p.s. I made several calls - part of accepting there's a problem is to take these steps myself, as much as I'm able, I think -

 

I will have a screening for the partial hospitalization program next week.  Maybe we'll start to figure out what's going on.

 

Also, I called our county human services office and she was nice (I cried) and I'm getting forms for different kinds of assistance and then will go in to their office.

 

Also, Eric, I'm glad you have a regimen that works for rapid cycling - that also was hopeful news and thanks for sharing.

1/24/08 2:31pm
Hello TMarie I'm new here and first time writing to try to help someone else. I read your post and wanted you to know that I understand about having to stop working because of the mood swings. I am trying to get through this year to retire because it is becoming too hard to get the energy to get up to go to my job on the down mood swings. Things have a way of working themselves out and I just wanted to wish you well on finding ways to get the treatment and medication you need. If you are close to a university or hospital that do research look into their clinical trials to see if there are studies you can participate in that could help with medicine as well as pay you to participate. I'm glad you have a supportive husband and children to help keep your focus on why living is a wonderful thing when things can seem dark. Where there is life there is hope so do not despair I am sure you will find a solution!
1/24/08 6:56pm

Thank you, Lidica - it's nice to hear from you. Do you retire in Dec. '08? I hope you can make it. Do you mean you're newly diagnosed or new to this forum? How are you doing? Anyway, thanks for reaching out.

 

Funny - just this morning I told my husband I'd found out that there are some medical trials that where they even pay your transportation (we don't live near a university hospital). Not that I've really looked into it much - just blipped on my radar. I admit to getting some heebie-jeebies at the thought of scientists monitoring me round the clock and pumping me full of unproven stuff. Anyway. This is actually something that I'd be interested in aside from money issues, as well. I'm weird that way.

 

Thanks again.

 

 

 

 

1/25/08 12:12pm
Hi TMarie. Wishing you a wonderful day! I will be retiring the end of December this year. I had wanted to work until 62 but will try to do something on a temporary basis so I can work when it is not so challenging. I have not been diagnosed but have an appointment with my doctor in two weeks for my physical and we will go from there. I know from this last episode with depression it is no longer something that I can manage on my own. I am learning a lot from reading on this message board. My goal hopefully is to be able to find a balance for the mood swings.  I've participated in a lot of clinical trials and it is not very different from a doctor's appointment.  You have to do what is comfortable for you not everyone like participating in them. It is just nice to know of different options to choose from. Getting samples is another wonderful idea I will try doing that with my doctor until I can find the right medication to help me.
1/26/08 8:38am

Good morning - I'm so glad you're seeking help also. Depression is so insidious about making a person believe that nothing and no one will really help. I hope you post after you see the doctor, I'll be interested in what you find out. Wishing you the best, and a restful weekend.

Anonymous
cynthia
1/24/08 6:16pm
TMarie, welcome to the real world. I was dx in 1992 but went untreated till 1999 when everything fell apart. I went to jail for being an accomplise to something I don't even remember, three months of amnesia(psychosis). I think  the important thing is acceptence, which you have accomplished. I have been on disability since that time. It only took me three weeks to get my first check(that tells you how sick I was). Now I am reletivly stable. My last hospitalization was in May of 2007. I had a major med change then. I acually started school in Oct, with my dr's blessings. I struggle everyday with the mixed episodes that I have. My latest battle being about 10 hours sleep in two weeks, yes, it is hard but we have to live that one moment by moment. I have a friend who is in a 12 step program for drugs and we talk a lot about recovery. Recovery in the bipolar sense is similar. We have to do almost all the things that an addict does to get better, and like an addiction it is lifelong, uncurable. Having the support of your family is good. As far as cost, medication manufacturers have their own programs for free or low cost meds, check with the pharmacy, food stamps get me through from month to month. If I didn't get help from these sources I would be homeless, or worse. Good luck and God Bless you. I will be praying for you and let me know if there is anything I can do.?
1/24/08 7:16pm

Sorry to hear about the rough road you've been on, Cynthia. You sound like you're in a pretty good place right now, knowing what works for you, having support; that's so great to hear.

 

Maybe I got to the first part of acceptance - but then I feel confused, upset, and angry again, fighting the part of me that says (for the trillionth time) 'just try harder.' Denial again; 'you don't need help.' Stupid pride is still alive and kicking! But I've got rheumatoid arthritis and lost both parents so the cycle of acceptance/denial is familiar. I know it's going to be in stages and it's a long road. Thank you for the well wishes - you've already helped. :)

 

 

5/29/08 7:22pm

check out the prescription assistance programs for those meds in which you

are prescribed.

 

your doctor should know all about how they work and what paperwork is involved.

 

God Bless

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By TMarie— Last Modified: 09/30/10, First Published: 01/23/08