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Some Of My Story & Recovery

By Mercurial Enigma Saturday, January 05, 2008

Thinking of this subject has caused mixed emotions as I reflect upon the events of my life. It has been good but challenging and helped me to crystallise in my heart and head just how significant ‘my story' is - to me at least. Really the last 30+ years are intricately entwined in my wellness story. However, I have resisted the temptation to include my whole life story. Instead, I will give some of it - the parts of my recovery.

 

When I looked back trying to find my story of recovery, I discovered that there are many stories in my life - not just one. I'm sure the same is true in your life as well? This motivated me to document most of these ‘stories' into a compendium that I can return to time and again for encouragement and inspiration. It allows me to learn from the many successes that have occurred over the years; and enables me to look towards, and move forward into, the future.

 

I disagree with the notion that says we must never look backward - that we must only focus upon the future - and not to do so is a certain recipe for failure, a flaw of character in some crazy way. Quite the opposite is true don't you think? It is my view that if we don't look back we won't learn crucial lessons for success in the future; we won't be inspired or encouraged to do good things for ourselves and others. I believe we need to look back so that we can move into the future with wisdom and effectiveness; in a manner that enables us to accomplish more and experience a better quality of life - to live with the insidious illness that is bipolar in a more hopeful and empowering way. This will allow us to more successfully handle the events of life, in such a way that we are emboldened and ennobled to live life more meaningfully, creatively and fruitfully.

 

So I would now like to share some of my story & recovery.

 

To put things in perspective, my diagnosis is Bipolar Affective Disorder Type 1, mixed states, rapid cycling, predominantly depressive. I have epilepsy, co-morbid to the bipolar, as well as diabetes. I was diagnosed with bipolar in 1992, aged 32. However, successive doctors have identified clear symptoms of it since around the age of 10. I have also been diagnosed with a 'psychotic illness'.

 

In 1995, due to a bad medical decision, I almost lost my life. I was taken off all medications and subsequently experienced continuous epileptic seizures. I died and was brought back to life by a team of paramedics and died again on the way to hospital. After 3 months in hospital I had what was expected to be permanent brain damage. I did not even know what a knife and fork were.

 

I was then placed in an ‘old peoples home', at the age of 35 mind you. This place quickly became a supported accommodation facility. Although I didn't have a say in the matter at the time, it was the only place where I could be safe and secure.

After much long-term work on myself, I gradually recovered from the effects of this supposed brain damage, which according to my doctors was a miracle in itself. It's important to realise that during this time I was severely struggling with the bipolar disorder. Although I was very sick I handled this situation better than most - according to my Psychiatrist (mental health), Neurologist (epilepsy), and Endocrinologist (diabetes). I was also very sick with the diabetes - but that's a story for another time.

1/ 5/08 5:23am

God truly touched your life and gave you purpose.  That's very inspirational.  Thank you for sharing with us.

I am a teacher and find that teaching those kids and helping them has been a life-saver for me in many instances.  No matter what's going on at home, I still have those kids who love and depend on me.

Everyone needs a purpose.  No matter how sad you are or how stressed out, helping others really does take the focus off you and give you a reason to live.

1/ 5/08 6:47am

Hi Hopeful Mom,

 

Thanks for your kind words... I am always amazed that someone would take the time to read what I write. I feel humbled and helped by your words.

 

Your so right about God touching my life - if it wasnt for Him I really would not be here.

 

I like your comments about purpose, that is so important to me, it seems to give me a direction even through the tough times, as you said.

 

I'm glad you have the kids to teach - your doing a special thing by being a teacher, you know that dont you? Getting the focus off ourselves and onto others is so important isnt?

Anonymous
Judy
1/ 5/08 6:14am

Hi Peter...Your story is a shining example to all of us.  It is great to know that you are working to stay positive and healthy.

 

About looking/not looking into our past, I think you are somewhat correct.  It is not good to dwell on the past, ruminate about what's over and done, but it is VERY good to document your life, good and bad.  And it seems this is what you have done.  I think of Mary Ellen Copeland and her WRAP program, where positive AND negative lists are documented, and when we are not well we can read the positives and it can and often does help toward recovery.

 

I liked your list of 16 wellness points.  Certainly I will also make a list, probably borrowing a few of yours.

 

Congratulations on your public speaking - I'm sure it it very rewarding.

 

My illness is Bipolar One Mixed States with Social Anxiety.  I have been through some pretty tough time, as you have, but I have difficulty sharing or even writing about a lot of it.  Whenever I write, I seem to stay on the positive side, even when I write to this blog.  I need to re-evaluate.  Thanks for sharing part of your story.......Judy

1/ 5/08 7:16am

Hi Judy,

 

Thanks for your encouragement and for reading my Post. As I said above Im amazed when people read what I write and then take the time to commenton it. I get a real thrill from it, so thanks again.

 

I agree with you that we should not dwell negatively upon the past. But look at it so that we can learn from it.

 

You know I dont come across many people who have Bipolar 1 with mixed states. Its certainly has some unique elements of pain and suffering along with management issues doesnt it? 

 

My wife has social anxiety disorder and depression so I understand a little of what is involved - I am not only her husband but her carer as well. 

 

Of course there is nothing wrong with staying on the positive side. But as you say youve been through some tough times - Im sure you have some interesting stories to tell about what has happened to you?

 

Thats how I look upon writing about some of the negatives, I try to include both the negative and positive as part of telling a story. That may help others as they relate to your story.

 

Thanks again

 

Peter

Anonymous
Judy
1/ 5/08 7:28am
You have some fine insights and I appreciate your comments - makes me think about improving myself in regard to my bipolar and my views.......Judy
1/ 5/08 8:16am

What doesn't kill us, makes us stronger.  If there was something I would want to teach my son more than everything else is that it takes much more strength to fight for your life and make it better than it does to retreat.

I can say this until I'm blue in the face and he doesn't get it.  Maybe if we keep at it, he'll see it.  My hope is that by the time he's grown and living on his own, he'll have the tools he needs to live a productive, happy, and healthy life.

1/ 6/08 4:29pm

Because of your love for your son you want the best for him, I think that you are giving him the tools he needs more than you may realise. Its good to prepare your son for the future, when he is an adult.

 

Remember that I've had bipolar since the age of 10? I wonder if your son does in fact 'get it'. I wonder if he thinks he is a bad person because he simply does not have the strength to fight for his life so to speak? Bipolar can make you feel like that which I'm sure you know. Maybe he feels he is failing you because the ups and downs are causing what appears to be deliberate withdrawal?

 

As a teenager I felt that I was a bad person because I just couldnt measure up to others expectations. Even this far down the track there are days when I, "dont want to die, but I dont want to live". In other words just because I dont want to live because of my pain and suffering from the illness does not mean that I want to die.

 

You see I dont know how your son is really feeling and I'm not in your situation. It is right that you teach your son to fight for his life. I just wonder if he feels as though he doesnt measure up and so tends to give up?

 

Peter

 

1/ 6/08 4:58pm

I do know that's what it is.  Today he told me "nothing makes me happy".  It scares me when he talks like that.  He did have an increased med dose yesterday and he's feeling very tired and hard to motivate.  The problem is he's got finals this week and he has so much work to do but he can't make himself do it.

The school really doesn't understand all that's he's going through.  Some teachers don't even try.  Very few of them are even making the accommodations from his IEP like they're supposed to.

I know he feels like a failure and I'm trying really hard to change his mindset but it's difficult.  You can say it but it doesn't mean he believes it.

1/ 6/08 7:01pm

I hope you dont mind me saying this but I will keep you and your son in my prayers at this difficult time. It must be hard on you - I'm sorry the teachers are behaving the way they are towards him.

 

Peter

1/ 6/08 7:45pm

thanks

 

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By Mercurial Enigma— Last Modified: 10/04/10, First Published: 01/05/08