Monday, October 29, 2007
This post has been deleted by it’s author, sorry for any inconvenience.
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Ask the Expert
Suicidal
10/29/07 11:42am
It wouldn't be the drug company would it LOL that sponsored the study? I agree with you about the experts - in the field and not. Even some of the support?? people on my other support group - Parents of Adult Children with BP. I had a "fight" with this one bixxch the other day about what she said about my son which I guess is my bp temper but after reading what she said both my older sister and brother agreed with me that she's awful and should be thrown out of the group. And this is a lawyer so we're told. Apparently this woman doesn't have bp, but her son is really bad and she has thrown him out of the house. Her other daughter lives in another country. After what she has said to me (and others in our group) I believe her children are the lucky ones to get away from her. And we're the "crazy" ones???
I just started low dose Abilify after weaning off of Effexor. Needless to say coming "off" Effexor has played havoc with my emotions, physical symptoms (lightheaded, dizzy, can't sleep) but I'm gonna try to stick with it. This is my psych who's monitoring me and I know the symptoms are normal because I've run out of Effexor years ago (stupidly, I might add) so I know what this feels like.
Sorry I went way off subject.
Betty
11/ 4/07 9:11pm
The "expert" who treated my son knew of our family history of bipolar disorder. Knew that the child himself had been previously diagnosed with the disorder. Still he diagnosed him with Major depression and put him on Zoloft without a mood stabilizer. He ignored my many calls saying to him that I was uncomfortable with the antidepressant treatment because it's not recommended for bipolar depression. The child was manic for 4 days and ended by breaking his own hand on a wall. He said later he's never felt that "out of control" before.
Why did it take him so long and something that drastic for him to listen to what I was saying? Because, he's the expert and I'm just a dumb mom. When it comes to our children, nobody is more of an expert than the parent who's loved and taken care of that child or the person who's lived with the ups and downs of the disorder.
What did I learn from this? The experts don't really know anything and sometimes you gotta yell a bit to be heard.
By Eric— Last Modified: 12/20/10, First Published: 10/29/07
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Yes, I agree, that some of the best resources (books, interviews, shareposts, etc) come from those who have the disorder themselves.
Real support, validation and knowledge is definitely provided by 'comparing notes' with others with BD met through support groups and internet forums, and this type of support is a very important part of our recovery.