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Thursday, February 19, 2009 laz asks

Q: why do bipolar patients stop their meds over and over

My fiance stopped his meds again.  I don't even know how many times this makes.  His doctors let him lower his dose since he convinced himself and the doctor that 2 mg was too much of Risperdal so they let him take the generic Risperdone 1 mg and now Jesus has healed him.  I see severe mood swings and I am the one who gets accused of giving him drugs in order to keep him sick acccording to him.  It is very difficult to try and get through to him even when he is taking his meds but without the meds it is almost impossible and I don't know what to do.  All of this is very upsetting.  I am watching him self destruct a little more each day.  His family isn't any help since they don't know what is happening in the first place and they have problems sleeping as well.  I have tried to tell his therapist and doctor but they have to take his word (HIPPA LAW) over mine.  I know this is going to get bad and I just am sooooo lost.  Please, Please...any advice would be greatly appreciated.     Thank you - Laurie 

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Answers (3)
John McManamy, Health Guide
2/21/09 2:23pm

Hi, Laurie. You have helpful advice here. A couple of things to add:

 

Bipolars tend to go off their meds because the meds aren't all they're cracked up to be and people often quit in frustration before finding something that works.

 

Another reason - bipolars often feel better when they quit their meds and you would too if you had to take one. Suddenly the head clears up. Clarity of thought. Not a zombie. This isn't being addicted to hypomania - this is what normal people take for granted.

 

So - when your fiance eventually cycles down - you two need to have a discussion. He needs to hear from you that you understand what he goes through and that you will support him in his efforts. That means if he complains about his meds, you won't say be compliant. Instead, you will say, let's work with your pdoc in finding something that works better.

 

By the same token, he needs to promise to work with his pdoc and remain compliant. Also, he needs to understand any boundaries you may draw and rules you may lay down.

 

In short, you need to understand where he's coming from, and he needs to understand you're not going to countenance any of his crap.

 

Re HIPPA, the law was designed to restrict info flowing OUT from the doctor, not IN to the doctor, so don't put up with any doctor nonsense. Also, your fiance can waive his privacy and it's in your best interest to insist on it.

 

A competent doc will ALWAYS involve the family member. You are their best unbiased source of info. Also, you need to know what's going on. If the doc won't cooperate, then put your foot down and insist that your fiance switch docs.

 

I feel strongly about this. I wish I had done this regarding the quack who treated my former wife. You fiance may be the one with bipolar, but YOU are the one who suffers from it. Yes, your ex needs to discuss things in private. But you need to be in the room with him for at least part of his visits.

 

Hope this helps.

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2/19/09 2:09am

Laurie,

 

I'm so sorry that you are hurting so badly through this situation. I wish I had magic words to make your situation all better.

 

I suppose that some BP people stop taking their meds because they start to feel better and they might think that they don't need the meds anymore. Also, this could be because your boyfriend is in a manic phase which can bring on the behavior that you describe; arguments, risk taking, grandiose ideas, and feeling so good that they think they don't need the meds anymore. This can all be part of his BP personality.

 

It's hard to be BP. I know because I am BP, but I know that stopping my meds makes it worse. Your boyfriend may know this, too, but he may be wishing and praying and hoping that he can get through life without meds.

 

It's good that you are seeking support for yourself, as you need it, too. This support group is very good for an online support group. I have found a lot of comfort here and the people are kind and informative.

 

I don't know if I have helped, but I just wanted you to know that you are not alone. We care.

 

~Cathy

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2/19/09 4:11pm

Having done it a few times, I'd say many reasons are the illness itself. Many don't even admit it to their doctors but confide in other patients.  I'll give you a few. 

 

During a paranoia I believed that everyone was out to get me and drugging me to control me. I didn't tell the doctor, cause obviously he was in on it.

 

Another was my illness tricked me into thinking that I was all better now. I thought I was divinely cured by God because I was done with that burden I needed to carry.

 

Another was "what's the use? they aren't helping me."

 

Oh, there are so many that I've heard from fellow patients that the list goes on and on. Like, I cannot afford the medicine, I'm getting Fat, my hair is falling out, the tremors are maddening etc.

 

Many of us don't say why we stopped because the reasons sound CRAZY or we're embarrassed by the thoughts we have in our own minds and think that no one "GETS IT".  What is truly unreal is that many people think we have total control and are making a conscience decision of stopping when it's not always the case.  We are made to feel like we've done something bad on purpose. It's even part of the stigma of the disease.

 

Sorry if I sound bitter or harsh, but I know where he's coming from and I truly know where you are coming from as well.  Truly believing that the meds help; gives my mind a defense to fight back those demons that say, "it's ok to stop".

 

Judi~

 

 

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5/28/09 3:16pm

I truelly can relate to all that you have said. I have stopped my meds. for a few months, because I wanted to spend my money on other stuff than a DR. visit and meds. I know it was wrong to stop, because I have had to fight all those crazy moods all by myself. It has been a struggle and I am tried of fighting it. I go back to the DR. next month and can't wait to get back on some meds. that will help me deal with all these crazy thoughs and moods I have been going through.

Peace,

Candy Kay

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By laz— Last Modified: 11/17/10, First Published: 02/19/09