• Elizabeth Elizabeth
    June 09, 2009
    What can happen if you abruptly stop taking Lamictal (emotionally & physically)?
    Elizabeth Elizabeth
    June 09, 2009

    I know someone who abruptly stopped taking her Lamictal two weeks ago.  She hasn't had any side affects (she says) but I was very concerned because I believe Lamictal to be a pretty potent drug.  I also take Lamictal and thought that getting off this drug should be supervised by a doctor.  What's the worst that could happen if someone just stops taking Lamictal?  Side effects, dangers, illness, etc.? I think I'm just looking for a way of "sending it home" to her.  I don't want her to hurt herself as the result of failing to understand the medication she's taking. 

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  • Rosebud July 21, 2009
    Rosebud
    June 09, 2009
    I stopped my Lamictal abruptly and had no side affects .... for 3 weeks, and THEN after all the residual medication was out of my system the rapid cycling came back with a vengance as did the thoughts of suicide. So that was the affect for me stopping the Lamictal suddenly. I had to start back again at the lowest doeage and build back up. I stopped it because I was feeling balanced (not too happy / not too sad). I didn't think I needed it any more. I was WRONG! READ MORE
    • smiling
      February 11, 2010
      smiling
      February 11, 2010

      I was just looking around to see why in the world I pretty much freaked out in the last day or so.. well, I stopped taking  my Lamictal 150mg I figured I did not really need it and it's sorta expensive... no side effects for the last few weeks, here I was thinking I was home free... WRONG!! Yesterday I spent most of the day planning my suicide, I screwed up or finances in a huge way... it's awful!! I guess I know what I need to do... so glad I saw this..

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    • Rosebud
      February 16, 2010
      Rosebud
      February 16, 2010

      OMG honey, are you OK now?  I KNOW what happens when you stop the meds.  I'm 20 years old and I have to tell myself everyday, "I take meds to control the rapid cycling and suicidal thoughts and I control the rapid cycling and suicidal thoughts by taking my meds."  I know it's corny but it's what I have to do.  I struggled every day - some days are better than others but I never truly feel balanced - it there is such a thing.  I screwed up my finances in a big way too.  Before the medications (Lamictal and Lithium), I was a huge impulse buyer .... I bought two dogs, and I couldn't even afford to feed myself, let alone feed them.  For a long time I only focused on the here and now and that included what I wanted ... here & now.  Talk therapy has helped me a lot.  Now if I want something BIG, I follow the 3x3x3 Rule:  Ask myself 3 times if I need it / ask 3 people what they thing / wait 3 days.  Also, I too cannot afford my medicine as I have no health benefits at this time.  I reached out to Select Care Benefits Network (www.scbn.org).  They are a Patient Advocate group that will help you obtain the medication you need (direct from the pharmaceutical company) at a cost of $20 a month.  There is a one-time charge of $50 to process you application and then you are assigned a rep. who works with you and does everything for you to get the medication mail ordered to you.  The only thing you really need to do is to get the Rx from you doctor.  Good luck to you.  PLEASE write to me if you need to talk, vent or just let me know how you're doing.  I'm out here in cyberspace cheering for you!!

       

      Rosebud

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    • g0thicr0ses23
      August 12, 2010
      g0thicr0ses23
      August 12, 2010
      In April or May 2008 I abruptly stopped taking Lamictal. I missed my dose of like 2 days and then took it for a few days then I lost my pills so the first time when I missed my doses I thought I felt fine. So I stopped taking them abruptly. I didn't think I needed it anymore either. But as you were, I was wrong also. I had no side effects as well for a few weeks. The biggest side effect I had was delusions. When I stopped taking the pills my mom was really worried and talked to my pshycatrist and my pshycatrist just tried putting me on another medication along with Lamictal. I said to myself I didn't need any medications. In August 2008 I had a really dangerous delusion. I was listening to a live cd that my dad let me borrow and I thought the cd was a concert going on for me and that the government was there as well as my friends and family. Then a song came on where the woman said in the beginning something about one of her best friends then said "She was supposed to be on Pele, and she told me to 'F off'. Then she was suppose to be on Choirgirl, and she said 'you know.. no' and then she decided she wanted to be played live... so I play her alot. This is sort of my goodbye to you" I thought the concert was for me so that last part made me think that if I would lay down to go to sleep I was going to die. (I use to be an insomniac, still kind of am, but I was up for many hours so me needing sleep probably just made the delusion worse.) Then I remember going into my moms room and looking at her sleeping and the way she was laying looked weird so I of course thought the worst and thought she was dead. So I was like freaking out. I went back and she changed positions so then I knew she wasn't dead. She woke up shortly after that or I woke her up, one of the 2. I told her I had enough and I told her about the feeling that if I would have went to bed that "I would have died." So I went to the hospital psychward and was then diagnosed with something different. My first diagnosis was bi-polar. The 2nd was schizoaffective disorder. Which is pretty much schizophrenia and bi-polar together. However, at first I agreed to what my doctor said I had, but now I think I only have bi-polar with anxiety, cause I don't ever remember hearing voices. I told my friend about it earlier and she said I should find a specialist cause the doctors in my local area are mostly phony. May I ask you, what was your diagnosis, and do you remember any side effects you had? READ MORE
    • HLJ
      HLJ
      April 28, 2012
      HLJ
      HLJ
      April 28, 2012

      You just told my story. Same thing, except I stopped and didn't feel anything bad for about 2 months, then BAM. i'm slowly weaning up back up, it's hard, i was on 150mg a day, and I'm on 25mg a day now and trying to slowly wean up, one week at a time because of the rash precautions...what's the quickest you've gone up? 

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    • HLJ
      HLJ
      April 28, 2012
      HLJ
      HLJ
      April 28, 2012

      You just told my story. Same thing, except I stopped and didn't feel anything bad for about 2 months, then BAM. i'm slowly weaning up back up, it's hard, i was on 150mg a day, and I'm on 25mg a day now and trying to slowly wean up, one week at a time because of the rash precautions...what's the quickest you've gone up? 

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    • shadow696984
      August 23, 2012
      shadow696984
      August 23, 2012
      I can't take it anymore. The side effects are killing me. i am having more then half the side effects here at http://www.webmd.com/drugs/drugreview-4582-lamotrigine.aspx?drugid=4582&drugname=lamotrigine&pageIndex=3&sortby=3&conditionFilter=-500 it's predominately gotten worse since i have started taking it. I am pratically throwing up everyday.  I am feeling constantly now the tingling and numbness everyday. Also I am having a hard time with taking this medication because i fear getting a serziure. I take it for Bi-polar 1 and I am sorry as much as I like what it has done for me the side effects don't out weigh the help it is suspose to give me. I am also on Lithum and they are very contrdicting of one another. Also I was put on it for temporaly after getting out of an abusive relationship. But now since i am not there i don't feel suicidal and well never really did maybe when i was a teenager but now i am 28 and enjoy life. Plus there is to much to live for to just end it al. As i always say it is a long term solution to a short term problem. As much as i would like to slowly get off of it i can't take the numbing to much or with it messing with my sight way to much. Also it scared and scares the crap out of me when i feel like my heart is in a panic and with my breatheing it is messing with me and always making my body feel to hot. I can't take it anymore because i hate the whirl and twrils or that i am drunk or high constantly. i take 250mg of this but before i was on this i am on respidone, welbutrin, and lithum which worked and works great before they tried me on this medication. I noticed when I was off for it a week before i didn't really notice any withdraw symptoms or anything like that.   READ MORE
  • alisha123 April 21, 2010
    alisha123
    June 09, 2009
    I take Lamictal, and i go on and off all the time just to see what happens. I , personally, don't see a difference. But i was wondering what would happen if someone who wasn't bipolar/depressed took it.   READ MORE
    • cbeck
      July 21, 2010
      cbeck
      July 21, 2010

      It's never a good idea to take anything that isn't personally prescribed by a licensed physican/psychiatrist for YOU.  I don't even know why you would want to know what would happen; however, it could be something very serious like getting the adverse side reaction of the "rash" and they could die (worst case scenario).  Doesn't sound like something to try, now does it?  Plus, it is primarily used in prescribing to people who have epilepsy/seizure control.  Secondary useage is for controlling the cyclical action of people who suffer from bi-polar condition(S).

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    • g0thicr0ses23
      August 12, 2010
      g0thicr0ses23
      August 12, 2010

      I thought this was a weird coincidence when I saw your username and what you wrote. My name is Alisha, I'm guessing that is your name cause its your username. How is your name pronounced? Is it pronounced Alicia, Alyssa, or Alisha? I use to be on Lamictal, if you look above it has the whole thing about that on there. Do you have bi-polar or depression? I short of skip doses on accident and notice differences. How long were you on Lamictal for?

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    • Rosebud
      August 12, 2010
      Rosebud
      August 12, 2010
      You are VERY lucky that you did not have side effects from abruptly stopping the Lamictal.  I learned the hard way to respect my disorder and the medication used to control it.  I would never advise anyone to stop taking medication nor would I encourage anyone to experiment with perscription medication that was not perscribed for them just to see what would happen.  That's idiotic.  Find something else to amuse yourself ..... READ MORE
    • fivekitten
      November 16, 2011
      fivekitten
      November 16, 2011

      I take lamictal for back pain actually. The neurologist said he didn't know why some people respond to it, but it did help. I get headaches, dizziness, numbness, tingling feelings when I miss a dose. I want to get off it, but hate the side effects of going off. I'm also starting menopause and think the affect of it is changing with my changing hormones. 

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  • knowledgeborn07 November 01, 2010
    knowledgeborn07
    June 09, 2009

    I just stopped taking my lamictal....I'm on 200mg......i didnt stop perposely i just for got the last few days...now i'm wondering if I'll be ok to keep off it or if I need to just take the damn pill again....or should i take all of what I missed....i havent really been too happy about taking it .... i was seeing a psych bc of severe depression and he put me on this....he didnt take insurance and was too expensive to keep seeing so I had to start getting it prescribed by my family dr.....my fam dr basically told me I would be on this for the rest of my life.....not what I was wanting to hear......not sure what I'm gonna do

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    • christena
      February 23, 2011
      christena
      February 23, 2011

      HI all, i have been on 200mg lamictal for going on 2 years. I want to stop with it as i feel that i have lost my ambition, and feel almost "care free" go with the flow atitude.  I also often ask myself if i even had to be put on the meds, maybe i just had a nervouse break down? lol,

       

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    • JENN
      December 06, 2011
      JENN
      December 06, 2011

      NO NO YOU CAN GET OFF LAMICTAL JUST HAVE YOU DOCTOR WING YOU OFF OF IT THE SAFE WAY DONT DOUBLE DOSE YOURSELF IF YOU MISS ONE JUST TAKE THE NEXT ONE NOW IF YOU MISSED A WEEK OR SOMETHING CALL YOUR DOCTOR ASK WHAT TO DO YOU MAY NEED TO START OUT ON A LOWER DOSE AGAIN AND GET YOU BACK UP TO YOUR REGULAR DOSE IF YOUR OFF OF IT TO LONG AND TRY TO TAKE THE HIGH DOSE OFF THE BAT YOU'LL BE IN THE BED FOR DAYS WITH A KILL YA HEADACHE

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    • LaurB1
      March 08, 2012
      LaurB1
      March 08, 2012

      hi I have been on lamictal for 6 months and I wonder the same thing.  i think I just had a nervous breakdown and I think it is crazy to here it is a life long medication since i hate any medications.  if you want to talk email me laurencbush@gmail.com

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    • teethoven
      October 16, 2012
      teethoven
      October 16, 2012
      ..or should i take all of what I missed... No, just start on the same schedule. Never take missed doses all at once, my friend did that and suffered a seizure. READ MORE
    • julieapple
      December 20, 2012
      julieapple
      December 20, 2012

      I feel this way too.  Indeed, I have been on the medicine for two years also and it has turned me into someone I don't recognize or like.  Just to maintain the slightest agenda and keep myself going is difficult.  In addition, I have been on Prozak for 10 years and my husband and I never had the third child we wanted because I was on the meds (and a benzo) and we were just too scared.

       

      I don't know how it works with everyone else, but I think what got me on these high powered drugs (Lamictal and Seroquel) has really passed.  I also believe it was just a nervous breakdown.  I had anorexia and tried to kill myself.  Now I am 40 pounds heavier and have no desire to die.  I am just over a week with no Prozak and no Lamictal.  The Seroquel will go but it will have to wait.  

       

      I don't know what I'm really saying, just talk  to your doctor and make sure she/he agrees with a gradual program.  I didn't do it this way but after reading these posts am a bit scared of what will come in 3 weeks or so...

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  • JENN December 06, 2011
    JENN
    June 09, 2009

    HI EVERYONE WELL I HAVE TOOK LAMICTAL OFF AND ON FOR SIX YEARS 400MG  I HAVE BIPOLAR 1 MAJOR RAPID CYCLING DEPRESSION MOOD SWINGS YOU NAME IT IM A MESS WITHOUT IT I CANT CONTROL ANY EMOTIONS WHEN THAT LITTLE DEVIL COMES CREEPIN OUT I HAVE STOPPED THE MEDS COLD TURKEY A FEW TIMES NEVER HAD SIDE EFFECTS PHYSICALY BUT I ALWAYS WINDED UP 50 STEPS BACK WITHIN A FEW WEEKS MENTAL WISE BUT THE LAST TIME I STOP ABOUT A MONTH OR SO LATER I STARTED HURTING SO BAD IN MY BODY TO THE POINT I COULDNT HARDLY GET OUT OF BED COME TO FIND OUT THE DOCTORS BELEIVE IT WAS CAUSED FROM STOPPING MY MEDS AND NOT WINGING MYSELF OFF OF THEM  I HAVE WINDED UP WITH NERVE PROBLEMS IN MY HIPS LEGS ARMS AND SO ON  I HAVE SINCE BEEN ON MY MEDS AND TURNED AWAY FROM THAT "I FEEL BETTER I DONT NEED MEDS ATTITUDE" WHICH ANYONE WITH BIPOLAR 1 KNOWS WHAT IM TALKING ABOUT YOU KNOW "THE IM CURED FEELING" SO I ADVISE AND SINCERLY PRAY ANYONE WITH ANY MENTAL DISORDER TO STAY ON YOUR MEDS IT REALLY IS A DOWNER TO KNOW YOU HAVE TO TAKE MEDS BUT IT IS SO NOT WORTH THE UPS AND DOWNS IF YOU DONT I HOPE EVERYONE IS DOING OKAY I JUST WANTED TO SHARE WHAT I HAVE WENT THROUGH I STILL LIKE THE MEDICATION IT WORKS WELL AS LONG AS YOU TAKE IT RIGHT

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    • knowledgeborn07
      December 07, 2011
      knowledgeborn07
      December 07, 2011

      thanks...this helps a lot....... check out some of my music : )  from one lamictal taker to another ..hah www.knowledgeborn07.com

       

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    • celestialjada
      April 21, 2012
      celestialjada
      April 21, 2012

      I agree with you. My doctor went about 5 days without rewriting my Lamictal prescription. Then I forgot to pick it up yesterday. By last night I was driving out to the.beach feeling depressed and so restless it was crazy! I thought I was really having a breakdown, then I remembered I needed my meds. Don't stop taking Lamictal by yourself. Get someone to have your back remembering. It's hell cold turkey!

       

       

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    • celestialjada
      April 21, 2012
      celestialjada
      April 21, 2012

      I agree with you. My doctor went about 5 days without rewriting my Lamictal prescription. Then I forgot to pick it up yesterday. By last night I was driving out to the.beach feeling depressed and so restless it was crazy! I thought I was really having a breakdown, then I remembered I needed my meds. Don't stop taking Lamictal by yourself. Get someone to have your back remembering. It's hell cold turkey!

       

       

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  • Pojo Jigong April 21, 2014
    Pojo Jigong
    June 09, 2009

    Hey all -

    I've been on Lamictal for about 8 months (bipolar) and I titrated up to 200mg, except during the jump from 150-200mg I quit smoking cigarettes and marijuana at almost precisely the same time I upped the Lamictal dose.

    I read in some medical literature that nicotine suppresses the effectiveness of Lamictal, and I can only speculate about the marijuana/Lamictal relationship.

    So there I was thinking that I was taking 150mg, while smoking probably not so much. My body was probably absorbing/utilizing less that (quantitatively I do not know). From the dose jump, 150-200mg, I noticed a vast increase in the substantiality of side effects that Lamictal proposed upon me from the get-go. Light headedness, word-finding problems, difficultly reading/spelling, handwriting and math out the window, etc.

    The worst side effect for me, a 28 year old male, has been oily skin. This is fairly trivial, I know, however small annoyances add up. What dawned on me is, our skin can project our internal health, so this raised a flag. Based on the knowledge I have about our hormonal system, and the necessary balances, I decided to do some digging. (So odd, as I am writing this I had a deja vu, and then another deja vu about having a deja vu; unrelated but odd!) I digress, after doing some research and reading forums and blogs online, I came to notice many women were experiencing issues in relation to their birth-control/Lamictal dosages. This was puzzling to me, then again not really.

    I know that in some way Lamictal had to be affecting hormones in women, and if in women then why not in men? Finally, a touch of cognizance! After stumbling upon the potential connection between Lamictal and androgenic pathway changes, what did I discover?

    Lamictal is, without question an AI, (no, not the scary machines destined to terminate all humanity as we know it) with a curtailment of scientific data to which such information might be illuminated and examined.

    AI in this case equals Aromatase Inhibitor. Basically, it reduces serum estrogen/estradiol levels at the conversion point. This in turn leaves androgens such as testosterone, DHT (and many other hormones that coalesce through the androgen pathway) to be elevated, or worked out of balance in some form or another. Just as birth control is a synthetic estrogen, Lamictal has AI properties, now THIS explains something. Symptoms of fatigue, achiness, low libido, general sense of unwell-being? Yep, that’s a sign, for men, their estrogen and specific estradiols are tanked. There are also side effects from having too high of estrogen/estradiol, and for men they can amount from feeling like a 16 year old girl during her period, to “bitch tits”. Alas, oily skin isn’t the only factor here, moods have a huge tendency to fluctuate with altered hormones. (PMS, roid-rage)!

    This is a study that points towards Lamictal, and other anticonvulsants to have AI properties. http://www.rbej.com/content/9/1/92

    In conclusion, I believe that through my oily skin, I have discovered some serious health concerns that should not be overlooked when considering whether to choose Lamictal; not only pertaining to mental health, but potentially direct physical disservices that can put on at great risk. The same can be said about Lithium and the thyroid, and birth control in general.

    I am not anti-medication, and I am not looking for an excuse to cease my Lamictal (although some days I think the side effects do me worse than my bipolar), nor am I interesting in swaying anyone opinions about their therapy choices. I do find it important to share, and so that’s why I posted this. I hope someone can benefit from reading this post.

    Note: I intend to schedule an appointment with an endocrinologist to undergo blood testing for a full hormone panel, then update this thread with my findings. Then I can confirm, and to which degree, my speculations about the implications that Lamictal may have a way more profound affect on body chemistry then we are led to believe.

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  • Butterfly January 13, 2013
    Butterfly
    June 09, 2009

    I stopped a few weeks ago cold turkey because I didn't have the money for it and also felt like it was doing nothing, at first a few months ago  I thought it was working great but then started to feel a little to mellow and care free and not a happy care free more of a "who cares" attitude. I didn't feel like doing much, but the good thing was that  I didnt have the racing thoughts/ suicidal thoughts hardly at all, I just felt a little down. Anyway, thought I could feel better naturally without drugs so I'm experimenting, which I know, probably isnt that smart....Esp. considering right now I feel HORRIBLE. I need answers, and this site has helped a lot but I was wondering if what I'm feeling is something any one else can relate to?! At first when I quit (about 2 1/2 weeks ago) I felt crappy the first few days and had a throat infection at the same time plus the stress of the holidays and my gram passing.. so of coarse, I felt crappy. (headache,dizzy,confused,blurry vision,depressed,some suicidal thoughts,bad coorination) but it was tolerable and I kept going..but had a hard time getting up in the morning, groggy. Now starting yesterday but worse today I feel like I can barely move almost, slow pace, like slow mo version or something, so hard to explain.. my thoughts are racing,suicidal thoughts and pictures in my head..and dizzy, confused and just so low I can barely take it. I am angry and want to punch someone but then feel ok the next second. I recently stopped my Birth Control pills so Its really just an awful month for me...and I start school next week so thats what is keeping me positive through this whole thing..... ugh. I have always had such a passion for life,learning and love and I just feel like I'm posessed lately by some loser. Any suggestions? I'm going back to the physciatrist this week because I also have A.D.D and need to find a good medication to take for it without throwing my Bipolar off balance. Sorry this is so long. Thanks everyone!

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    • bun12
      February 07, 2013
      bun12
      February 07, 2013

      This post is so interesting, I am experiencing this very same thing! Here is what confuses me ... Ive taken this medication for almost a year now. It changed my life in such a positive way up until a few weeks ago. I had the same thing, slow moving, almost slow motion, it's like I physically could not walk at a normal pace, my body was suddenly so sore, similar to anxiety pains but it was my entire body, it was agonizing, I had never felt like that before. I developed some sort of cold / voice loss at the same time so of course that didn't help. My right hand started having shooting pains, tingling finger tips, one hand was very very cold, honestly I thought this was carpel tunnel but who knows. My vision has been quite interesting, i was seeing in double all weekend but found out I was dehydrated, drink a bunch of water and I was fine. However I am not dehydrated anymore, my vision is usually perfect, I can read the smallest font from far away, right now it's hard to completely focus on something, I don't necessarily have vertigo but when I stand up quickly the blood rushes to my head and I become very very lightheaded, sometimes when I have been standing for a little while I have to sit down because my legs become weak, I start sweating, eyes become blotchy and my hearing becomes muffled, feels like im going to pass out. This week I have the same symptoms minus the body aches, i have been crying at the tiniest things, just overly sensitive in general, im so irritable, haven't been able to sleep though the night in over a month, It's hard to tell if i'm "down" really or even have "anxiety" because there is no reason for both and I just can't tell mentally, only can tell something is going on because of the physical. 

       

      Tht being said, nothing has changed with my medication, nothing! So why am I feeling this way all of the sudden? I will have no more medication in a little less than a week since I just went off my familys plan and cannot afford medication of my own. Seeing how things have been the past couple weeks ON the medication i'm scared for my life how it's going to be when I hve to stop cold turkey. 

       

      I also am just wondering, the ONLY thing that has changed was that I was taking two 100mg tablets, I ran out of the 100mg tablets and started taking the 25mg tablets (but kept taking the same amount that would equal the two 100mg tablets I was taking) so ultimately the only thing that is changing is the smaller pills with smaller doseage in each one but the same amount that would have been in just two. 

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    • lovespeace
      April 14, 2013
      lovespeace
      April 14, 2013

      Hi I wanted to ask you if you are still doing the same without it? Like what are your latest symptoms or did you just go back on the med? Thx!

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    • Jeff
      January 29, 2014
      Jeff
      January 29, 2014

      It's sort of ironic when I read other peoples comments they are almost word for word-

       

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  • jjayt3 September 24, 2012
    jjayt3
    June 09, 2009

    I stopped taking mine about 3 weeks ago which is why I am on this forum.  Doctor told me there would be no side effects from stopping at once without tapering down.  Even though you have to taper up.  I have severe anxiety attacks 6-8 times a year and didnt want to be on medication to begin with but I decided to take my families advice and go and talk to someone so I was anxious about even looking it up. Even though I read the papers given to you when get your meds to begin with.  I was diagnosed within 30 minutes.  Was also told that I would have to be on it for the rest of my life. Long story short after 3 weeks of not being on it Ive had severe depression and thoughts of suicide but blamed that on various things going on in my life until I came across this.  My Psych apparently isnt very bright and he hands out pill like this as if they were candy.  Wish I had never taken it to begin with.  Liked my counselor more so I could actually discuss things that I had repressed and not talked about to anyone which is what I wanted to begin with.  Im also concerned if this could have altered my brain chemistry for the worst permanently.

     

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  • Kar09 May 13, 2012
    Kar09
    June 09, 2009

    Do you ever really wonder if you need to be on the drug to begin with? I mean it seems like doctors go from one drug the next to the next starting at low doses working their way up and back down, etc....Like in all honesty maybe my anger outbursts are a little less with medication, but even without medication, I was same way. In fact, I feel like medication has screwed me up more. Before Lamictal, I was on Zoloft which added 30lbs to my weight ! insanity! I have taken abilify too which didnt work and now Lamictal which seems ok weight wise so far, but can you honestly say it works? I am only at 100MG going o n 150 starting tomorrow? Isnt this all mental? Cant we control these episodes if we really wwanted to on our own? because i dont know about you but the drugs dont seem to do their part for me.  I am afraid I am screwing myself up much more than when i began medication.

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    • believer
      May 16, 2012
      believer
      May 16, 2012

      If you just stepped up to 150mg, please wait at least 6-8mos before looking at how it affects your temper.  I have been taking it for 2+ years now.  I didn't start taking it until my early 30s and it would have changed my life and saved me from making a lot of poor choices, which in the moment looked like "fun!"and from a lot of really dark and scary places that stress and the mind can push you too.  A lot of the reasons I did not take meds until so late were the same as others here; I don't need man made chemicals to help me control myself! I have to take this for the rest of my frickin' life?! I was stubborn and I made one mistake too many and had one too many trips to the dark side.  I said to myself 'that's it, it doesn't matter if you have to take it every day - if it will help keep you out of Paranoiaville and help you not act like a fool, try it.'

       

      Now, after having stabilized, I don't lose my temper to the degree I used to.  I've had a couple of trips to the dark side and those have been hard but I've learned skills for handling those.  So of course, you can learn to modify your behavior - we're all adults and we should be doing that as we grow wiser.  Lamictal gives your brain the stability and the time to see yourself acting out and to make those changes.  Without it, I was always reacting, always 'in-the-moment', so could not get enough distance analyze my own behavior in a meaningful way to make positive changes.  And if I forget to take my meds for more than 12-15 hours, I can definitely tell the difference.  My brain starts to slow down and it's harder to make decisions.  I get emotional reactive, too.

       

      My temper is much better now - heck, my whole LIFE is better, and that's not some goofy line (my work quality is better, my home life is better, I make more money now and I spend less of it frivolously and I'm WAY happier) - and I continue to make 'cognitive behavioral' changes.  We should all be evolving ourselves toward something better.  Best wishes with your evolution. :)

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    • fighter01
      May 31, 2012
      fighter01
      May 31, 2012

      i have been off of my "full" dose for a few days, i dont have a very nice dr right now who doesnt like prescribing my lamictal, so i've been going up and down on my usual doses,(im usually on 300mg), so ive been on 100mg, now im trying to find a way to get more because even with the past few days being on the 100 mg my heart feels weak but palpataing fast my body feels weak and tierd, my joints and bones hurt, and in general feel like im gonna pass out, not to mention a headache from haiti's. Bad pain

       

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    • spanky
      May 16, 2013
      spanky
      May 16, 2013

      Do I ever really wonder if I need to be on the drug to begin with? 

       

      YES! You are singing my tune!

       

      I'm 50 and just kind of falling apart in all sorts of ways, including a successful battle with thyroid cancer in 2003, a divorce, death of my mother, and being laid off from my 20-year career and not being able to find a new job even after 5 years of trying. So yeah, I have gotten depressed, even suicidal. 

       

      I've been diagnosed with bipolar, borderline, generalized anxiety, PTSD, and chronic depression. The only one they haven't called me is schizophrenic, but I'm sure all I'd have to do is make up some hallucination I had, and they'd call me that, too. You tell them enough things about yourself, they label you all sorts of things.

       

      But you know what I am -- an aging woman who has suffered a lot of setbacks and sad events and the accumulation of all of them has finally made me so sad I've had trouble bouncing back! I'm growing old and life is changing and the adjustment is hard!

       

      But no, I'm mentally ill. So I accept their diagnoses. I'm on Wellbutrin, Lamictal and Klonopin. The Wellbutrin's awesome -- it makes me lose weight and gives me more energy. The Lamictal is awful -- a few hours after taking it I feel like I'm coming down with a bad flu and I get migraines and jitters. So then I have to take the Klonopin, which makes me sleep. It's supposed to be an anti-anxiety medicine, but shouldn't a med like that be able to work and not conk you out?

       

      So I take the meds, but they're not a real solution. They probably solve a few things, but they also create their own problems.

       

      I take the meds mostly because I think my pdoc is a nice person and I trust her judgment and think she wants what's best for me. But she also isn't living inside my body, and all she's doing -- all any shrink is doing -- is making guesses based on what you tell them. And I'm starting to wonder whether the problem isn't a mental illness, but it's what I choose to tell the doctors. Or they look at your outsides and think they can judge whether you're mentally ill. Try it yourself -- go to the shrink in sweats with no makeup, and then dressed nicely with your hair done, and see the difference in how they treat you. Your entire mental health protocol could hinge upon how you were dressed when you visited the shrink. Seriously.

       

      I'm not saying mental illness doesn't exist. But I'm wondering whether so many of us who are diagnosed with mental illness are truly mentally ill, or just having a bad patch in life, y'know? But once they put you on these meds, they will NEVER take you off. They even tell you you'll go crazy if you go off the meds. But....what if you won't? What if you don't need those meds anymore? What if you could actually exist happily with no meds? Until you ran into a rough patch and then maybe you could go back on the meds? Do docs try that? No, they don't. Once you're labeled mentally ill, it's for life.

       

      Wish we could discuss this more. Just seems like if you challenge a doctor on medicating you, they'll just dismiss it and say that's your mental illness talking.

       

      But what if it's your sanity talking?

       

      Do I REALLY need to take a pill every day that makes me bedridden with flu symptoms? I'm starting to think no. And I meet with my shrink next week and I am going to tell her that and we'll see. I expect she'll dismiss me, but maybe she'll surprise me. 

       

      I don't mind being on Lamictal for life, if it really helps. But what if it's really hurting? I need to be able to say NO to a medicine without being called crazy. 

       

      Thanks for listening. 

       

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    • alone
      November 30, 2013
      alone
      November 30, 2013

      Amen !!!! God you are totally in my head !!! dang shouldnt have said that please dont tell my DR. LOL anyways feel the same way you do EXCEPT with meds and without i am screwed with anger and hate and insomnia... With meds i feel so sick i sleep. Without meds i stay up 3 to 4 days then pass out for 3 to 4 days... No happy medium... 41 and dealing with this crap sucks. have kept myself imprisoned in my home since 10/5/99 and its 11/30/2013... CAN I COME OUT NOW ? I have tried on several occasions to interact and exit my home and each time what ever is in me comes out then bam back in the house. If im not staring into the abyss i am staring at the stars. Love watching stars for some reason. Ok love you lots and the courage it took you to share. high five and thank you. Made me feel better reading what you wrote and shared but for me meds will be my life. sedation and seclusion are working so to protect the world from me i will continue on this course. Again thank you for sharing. 

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    • Jeff
      January 29, 2014
      Jeff
      January 29, 2014

      You and I sound alot alike- Especially since 8-29-99 I have been on 200 mg for 3 yrs and ampted up by a psych doctor 400 mg 3 months ago but I couldn't afford the psych doctor so this is my second day without it. Insomnia? 2-3 hrs every 4-5 days and the put me on Serolquel 3 months ago. It interacts with the lamictal -Lamictal is the high that brings you up and the Seroquel is the low that brings u down and eventually there is a happy medium. I didn't get that far due to lack of money cause I got hurt on the job 22 months ago. You want to sleep  a solid 8-12 hrs? Seroquel. I have Bi Polar I  PTSD and Agoraphopia (opposite of claustrophobia) Anyhow, I feel the same way you do- reclusive and don't want to leave the house and since I have been out of work for so long sometimes I don't leave for days possibly because I have no one here to encourage me. I really hate when people who have never experienced problems in the brain they say it's all in your head. Ah yeah, it is! Just cause you can't see something under a microscope doesn't mean it doesn't exist. I went through the "cutting" stage but have been good since March 19th 2009. Why I remember things?  have no idea but can remember every tiny thing from the past all the way to about 6 yrs old. I was being treated for all of the above but the Lamictal was used to slow the racing thoughts down. At the thrid appt a month ago, she seemed to think I had ADD- lol I am a 43 yr old male but that has no bearing on this issue. I don't know what is going to happen in the next week or two especially since I have flew off the handle already today for ignoring me one being the psych receptionist. I told the psych doctor I didn't have the money at the last appt but she kept saying not to worry about it. I had called 4 times in the past two weeks and she never returned my call. I am not a racist but for some reason they are all mid eastern descent. The receptionist kept saying $95 dolla $95 dolla over and over again and just irrate out of nowehre. The drug itself is roughly $12 for 400mg for 30days. The lamictal 200mg is about 35 for 30 days- I just didnt have the 95 today- So we will see what happens and wish you the best of luck. Just remember there are others out there that have issues like you and I and they do exist whether others want to beleive it or not so hang in there and as for me, I'll have to see what the side effects are going to be-- It's actually been one day now. Good luck to you. Hope the outcome is the best for you. Funny thing though is, I have been on Xanax and Klonopin since 1992 and the doctors kept me on the Xanax even though it is only a 6-8 week drug- they are low doses but still- take care

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    • ualabgeek
      October 09, 2014
      ualabgeek
      October 09, 2014

      I've been on 400 mg of Lamical for 12 years. And yes, I didn't expect to be on it for the rest of my life either.

       

      A couple of months ago I got a tick bite on a camping trip that turned into Lyme Disease. I was taking doxycycline for the Lyme, and Lamictal, Seroquel and Xanax for the crazy. Something in that cocktail caused me to break out in the most godawful rash ever, so I quit the doxycycline. But the rash didn't go away, and I started thinking about the physiological consequences of decades of powerful drugs, so I cut my Lamictal dose in half. A week later I cut it in half again, and then again. Last week I got the dosage down low enough that I felt safe quitting altogether.

       

      I've been off the Lamictal for a week, and I don't feel depressed or suicidal. Oddly, I feel like I'm drugged up to the eyeballs. I can't think clearly or finish a sentence. I'm hoping this is still part of the detox process because I'd hate to discover that during the last 12 years on Lamictal I somehow lost 40 IQ points. Does anyone know if this is a normal part of the process?

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  • chris January 26, 2014
    chris
    June 09, 2009

    Hi,

    I have been taking 200mg of lamictil for one year and it has totally changed my life.  No more cycking or thoughts of suicide or seeing things that are not there. I also take Clonozapam 1mg.

     

    I took my last pill yesterday and my perscription wont be ready till tomorrow or the next day.  Does anyone know if a pharmacy will sell me one does between prescriptions?  I am afraid to missa dose because I dont ever want to be like I was before.

     

    Also, does anyone know of any online support groups where i can talk with other people who have been diagnosed with having bipolar type 1.?

     

    And, There are coupons that i found online that recuded the cost of lamictal from 79 dollars per month to 14.  just do a google search for "coupons for Lamictal"

    thanks

    Chris

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  • bun12 February 07, 2013
    bun12
    June 09, 2009

    Here is what confuses me ... Ive taken this medication for almost a year now. It changed my life in such a positive way up until a few weeks ago. I had the same thing, slow moving, almost slow motion, it's like I physically could not walk at a normal pace, my body was suddenly so sore, similar to anxiety pains but it was my entire body, it was agonizing, I had never felt like that before. I developed some sort of cold / voice loss at the same time so of course that didn't help. It being flu season I just assumed I had some odd bug. but the symptoms are back again, theres no way i'd heal and then get sick again only a few days later. My right hand started having shooting pains, tingling finger tips, one hand was very very cold, honestly I thought this was carpel tunnel but who knows. My vision has been quite interesting, i was seeing in double all weekend but found out I was dehydrated, drink a bunch of water and I was fine. However I am not dehydrated anymore, my vision is usually perfect, I can read the smallest font from far away, right now it's hard to completely focus on something, I don't necessarily have vertigo but when I stand up quickly the blood rushes to my head and I become very very lightheaded, sometimes when I have been standing for a little while I have to sit down because my legs become weak, I start sweating, eyes become blotchy and my hearing becomes muffled, feels like im going to pass out. This week I have the same symptoms minus the body aches, i have been crying at the tiniest things, just overly sensitive in general, im so irritable, haven't been able to sleep though the night in over a month, It's hard to tell if i'm "down" really or even have "anxiety" because there is no reason for both and I just can't tell mentally, only can tell something is going on because of the physical. Reading so many of these replies it sounds like what I was experiencing were the typical withdrawl symptoms. But why? Nothing has changed except I had to start taking smaller pills with less mgs in each of them, however I take enough pills of the smaller form that equals the amount I was taking in the larger pills that had more mg's. 

     

    Tht being said, nothing has changed with my medication, nothing! So why am I feeling this way all of the sudden? I will have no more medication in a little less than a week since I just went off my familys plan and cannot afford medication of my own. Seeing how things have been the past couple weeks ON the medication i'm scared for my life how it's going to be when I hve to stop cold turkey. 

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  • KMILLER9010 November 25, 2012
    KMILLER9010
    June 09, 2009

    I WAS ON LAMICTAL 300MG..I HAVE STOPPED THE MEDS FOR 5 DAYS SO FAR..I DONT FEEL ANYTHING BUT RELIEF...I FEEL SO WEAK ON THE MEDS...I AM STAYING ON THE ABILIFY, BUT THE LAMICTAL HAS TO GO..I AM A 40 YR OLD MALE AND HAVE BEEN TEARING UP AT SAPPY TV SHOWS AND COMMERCIALS AND IVE HAD ENOUGH...ANY ADVICE YOU MIGHT HAVE TO GET THRU THE SIDE EFFECTS WOULD BE GREATLY APPRECIATED, BUT I CANT STAY SO WEAK...I DO FEEL MYSELF TO BE STABLE AT THE MOMENT, BUT IM STILL A BIT SCARED.

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  • Kimberly October 14, 2012
    Kimberly
    June 09, 2009

    I think that I have been on lamictal for over 15 years, My Dr just kept increasing the dosage until I'm now on 200 mg AM and 200 mg PM, 400 mg.  He also has me on Cymbalta I never noticed any change and Seroquel.  Of the 3, Seroquel was the only med that I really noticed a change for the good.

    I have had so many side effectsI from these drugs.  I have fell 7 times since Jan 12th.  This last time I broke 2 ribs, and so many more side effects.  This started July 1st while I was called to FL to help my Mom who was sick.  When I got up I just didn't want to take anymore pills and I had the same feelings at night. The word "cold turkey" never entered my mind, but that is what happened.  I think I was a mess, at least that is what my dad and brother told me, I thought I was fine.  The circumstance I was in was watching my Mother as she died in terrible pain for the last 2 weeks of her life, but I had 7 good weeks to remember forever.  I was there 9 weeks. I am now home, trying to recover from my Mothers death.  I'm still very sad, hurt and cry about my Mother, but I would think this is normal.  I would do it again if I had to and again.  Tomorrow I'm telling my Medical Dr.  This should be interesting and I will not see my psy anymore.  Good Luck and your choice. 

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  • chris January 26, 2014
    chris
    June 09, 2009

    Hi,

    I have been taking 200mg of lamictil for one year and it has totally changed my life.  No more cycking or thoughts of suicide or seeing things that are not there. I also take Clonozapam 1mg.

     

    I took my last pill yesterday and my perscription wont be ready till tomorrow or the next day.  Does anyone know if a pharmacy will sell me one does between prescriptions?  I am afraid to missa dose because I dont ever want to be like I was before.

     

    Also, does anyone know of any online support groups where i can talk with other people who have been diagnosed with having bipolar type 1.?

     

    And, There are coupons that i found online that recuded the cost of lamictal from 79 dollars per month to 14.  just do a google search for "coupons for Lamictal"

    thanks

    Chris

    READ MORE
    • Gerard
      January 30, 2014
      Gerard
      January 30, 2014

      The pharmacy should sell  you a pill if needed , but you'll need a script from your doc for it.

      I have been taking lamactial for a year and was up to 200mg a day,For bipolar 1and also vyanse 50mg for adhd.

       

      I weaned my way off lamactal and after about a month I have been feeling depressed and have bad mood sings. I now have to start at the bottom of my dosage and work my Way up and hope fully I'll feel better sooner

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    • chris
      January 30, 2014
      chris
      January 30, 2014

      HI,

      I found 4 pills in a bottle under the couch so that gave me time to get to a doctor.

      The doctor asked if I was taking lamictal for seizures and when i said no, that i was diagnosed with bipolar type one. her tone changed and i got some stupid lecture. and she wanted to change my medication.  I have been on this a year and been level the whole time. and never missed a dose.  

       

      when I was in the "hospital" last year the doctor said i would have to lamictal or some other drug for the rest of my life to help stabalize the depressive/mania.

       

      I hope you can manage your dosage back up and be better.

      why did you stop taking it?

       

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    • Gerard
      January 30, 2014
      Gerard
      January 30, 2014

      I stoped because I have never felt so in balance and thought that maybe it would be time to try lower my dosageuntil I was completely off but now I cant get through the day without thinking how much everything sucks and want to be left alone. I REALLY hate the idea of being on meds constantly and the damage I can be doing to my body. Im giving it a go again and will see if my behavior improves. Now on 50mg lamactal at night and 50 vyvanse in the morning

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    • Crystal
      January 30, 2014
      Crystal
      January 30, 2014
      Hi, The only on line support group I am aware of is medhelp.net. I can't believe the dr gave you such a hard time. Some dr.'s are just unknowledgable. I don't know what kind you went to see but you can't go wrong seeing a pscychiatrist for any kind of mental illness meds. I have Bipolar 1 also. I'm really glad you found a med that works for you. I hope you got your med refilled. That dr would have had to give you a rx just so you could wean yourself off anyways. Besides what dr in their right mind is going to take a bipolar med away that's working. I would definetly go to a new dr. They obviously are not trained in mental illness. Try to be more faithful in getting your rx from the dr or having the pharmacy call it in so you never run out. Ask your pharmacy in advance if this should ever happen again if they can give you a few days worth while waiting for the script. I know you mentioned on line groups. Have you ever tried either DBSA Bipolar groups or NAMI Bipolar groups? Also if you go on the NAMI website you can get a lot of literature on Bipolar as well as a list of their classes that they offer. READ MORE
    • chris
      January 31, 2014
      chris
      January 31, 2014

      Hi,

      Thank you for the information.

      I have never come this close to running out before.  I keep a calendar to help me remember when I am supposed to have them filled.  Even that has caused problems.  On my calendar I schedule to have my prescription refilled 5 days before I run out.  I got the third degree from the pharmicist about why I was filling it so early.  Then he started warning me that it wasa controlled substance and i better not be abusing it or selling it to someone.

      This was just upsetting because I really did go off the deep end when i have a mixed event.  I have never experienced that before and if the police had not found me i would have killed myslf this time for sure.

      What is/was upsetting is that I have never missed a dose since i started taking it.  I felt even more stupid because i went out to my car and sat there and cried.  It was hard to go back to work that day.

      I havent had the swings in over a year.and dont intend to stop taking these drugs.  Going to a shrink was upsetting too because now i have to tell all the child ilk over again.  every time I end up going to a new head doctor I have to start over.

      well that was quite the rant...

      thank you for the information.

      chris

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  • Tate January 29, 2013
    Tate
    June 09, 2009

    My sister has been prescribed the Lamotrigine 200 mg in addition to Prozac. I have been concerned as I am trying to help her get her business going and trying to help her as much as possible. We had a terrible argument a couple of days ago and she says she doesn't remember at all. We have had to close the shop and she has lost her part time job which basically gave her spending money, and not much at that. My question to those of you who take this medication, is what if she just quits? She has given me the meds and told me to discard. She seems to have aged years since this hellish cycle of trying to find the right meds, dosage, and still have her trying to work with the public. I told her she must see the Dr. with whom she has an appt. in two weeks. Sigh, do I measure it as prescribed? Do I allow her to stop cold turkey? Am I asking her to do something she physically cant do such as run a business? I feel like I am her mother, guardian and prison warden! I love her and want the best. I feel she was taking the meds not at all as prescribed and am so concerned. She has asked me not to contact Dr. She has a history of suicial episodes and depression. She seemed clear eyed and I left feeling better for her until I actually saw this site... scared for her! I only want the best. Any suggestions on how to cope/deal with a family member on this medication? Thank you.

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  • Baabygurl July 19, 2012
    Baabygurl
    June 09, 2009

    I was just recently prescribed Lamiatical today. My doctor gave me a starter kit and then after my starter kit, she has me already going to 200mg. But now after reading all of your replies, I'm TERRIFIED to take it. It can cause death? Should I take it?

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