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Thursday, May 29, 2008 kkclark, Community Member, asks

Q: how do I lose weight on seroquel?

I am Bipolar. Currently I have tried Trileptal, Lithium, Prozac, Wellbutrin, Tegretol, Depakote, Lamictal, Paxil and Abilify...for one reason or another they did not work. I am currently on Wellbutrin for Depression and Seroquel for Bipolar. The Seroquel is wonderful EXCEPT I gained ten pounds. After having an eating disorder history this is BAD! How can I lose weight but still stay on this medication because I have no other options. I have tried Hoodia an appetite surpressant and am taking weight gain medication but it is not working. I can't do a lot of excersise because time does not permit.

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Answers (78)
Donna-1, Community Member
8/18/11 7:51am

I can attest to the fact that different psychiatric meds can affect each person's weight differently.  On Prozac, I lost from 110 down to 93.  Then when I started on Zyprexa my weight zoomed from 93 to 186 (doubled my weight in a few months.)  My psychiatrist blandly and myopically suggested that I eat less and exercise more.  BEFORE the Zyrpexa I was able to run, and did run 5 miles or more every day.  I had done so for 20 years.  BEFORE the Zyprexa I never had a ravenous appetite 24x7.  But then I was on it for 13 years, with one short 2-year stint on 900mg of Seroquel every day.  I actually lost 50 lbs on Seroquel.  So, in effect, the weight gain and appetite caused by the Zyprexa were exactly what made it so difficult to exercise and eat judiciously.  Catch-22.  My psychiatrist was also astute enough to make his singularly uninformed statement that, "It is better to be fat and sane than skinny and insane."  Sometimes the weight issue contributed to the many stresses of mental illness.  But he was oblivious to that.

 

Yes, I tried the antipsychotics Trilafon, Haldol, Risperdal, Zyrpexa, Seroquel, Abilify, Geodon,  Saphris and now Latuda.  Plus many antidepressants, mood stabilizers and anxiolytics.  All of them have had side effects that I did not consider acceptable, but sometimes it is a matter of taking the best of the lot until something better comes along.  I just started the Latuda (the newest on the market) a couple of weeks ago and have managed to lose a few pounds.  The constipation that plagued me on Saphris is gone. The horrific appetite of Zyrpexa is gone.  The bladder pain of Geodon is gone.  The scary nightmares of Seroquel are gone.  The facial paralysis of Trilafon is gone.  The nausea of Risperdal is gone.  Now, I have this ongoing internal restlessness and fagitue with Latuda.  For now, however, it's the best I've got.

 

And just for the record, yes, there have been times when I would rather have been skinny and insane!

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pixiedust, Community Member
6/ 5/12 6:23pm

I have gained over 100 pounds on Zyprexa and Depakote...then when I had an extreme depressive episode and no antidepressants worked, my dr. took me off Zyprexa abd Depakote, and the weight just fell off...no change in exercise or eating habits. I had 8 ECT treatments for this terrible depression and then the ECT helped me get manic... I had to get back on meds, gaining over 100 pounds, going from a size 4 to a 16. My body image and self confidence is basically in the toilet.  I work out 4 times or more a week, and I watch what I eat, but it really doesn't seem to help. I'm chained to these meds! I'd much rather be skinny ! People look at me and wonder why I'm fat with all of the healthy things I eat and all of the working out that I do! I ujust completed 30 sessions with a personal trainer. Yes, I did become stronger, but I didn't lose one pound. Talk about devastating:(

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anntoot, Community Member
7/ 7/12 11:18pm

Hey I lost weight while taking this med.  Yes, I gained tons on it.  No diet and exercise was not working.... not even a little!  I was frustrated and considering flushing my medication.  But I kept researching and trying different things.  Then I stumble on something that actually work for me.  I had to share it!  So I wrote a page on google, to tell everyone how.  I hope you have success!

 

https://sites.google.com/site/weightlossonantipsychotics/home

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Vinnie, Community Member
5/30/08 5:36pm

I don't think that there are any tricks.  I know that some people have increased appetite and some have slowed metabolism.  I think exercise is key to compensate for some of that.

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AngryBuns, Community Member
8/11/10 12:27am

I am a 17 year old male currently taking 400 mg of Seroquel as well as 200 mg of Lamictal. The only thing I have found that works to lose weight would be to reduce the amount of Seroquel. If you then can not lose weight then you should talk to your doctor about that. He/She will be able to help you with it more than this blog can. If you go on a diet, seeing from your past of eating disorders, you should have someone else (family member of professional) monitor you so you don't do anything rash. I wish you the best of luck in all your medicational endevears.

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Angela Kristine, Community Member
2/ 6/11 6:39pm

I am a 17 yr old female and I've been on seroquel for a couple months. Before I went into the hospital, I weighed 102 pounds. Now I weigh 135. I am 5'3 so you can just imagine how I look. I dint know I was on this because I was bipolar. The dr told me it was a booster for my Cymbalta. I noticed I gained weight, but dint realize it was my medictaion causing it. I have also been on Wellbutrin, Zoloft and Prozac.

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Kana, Community Member
1/19/12 5:12pm

Wow,this hits home. I was just diagnosed Bi-Polar 6 months ago and at the time, weighed 220-big but not fat-I'm male, 54. In one month on seraquel I went to 250, a pound a day. I was at the gym 5 times a week, light weightlifting (cardio style) for over an hour and an hour of cadrio (elyptical and bike). It's been a y0-yo since then between 250-260. I watch everything I eat and seriously can't work out more than 10 hours week. I'm at my wits end. My family doctor wants me off seraquel and my shrink obviously thinks that;s a bad idea. I'm starting to wonder if going through another manic episode wqhere I lost 40 pounds and not sleeping might be better?

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Kana, Community Member
1/19/12 5:14pm

PS-I'm also on Lithium

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Ronni, Community Member
2/13/12 4:38am

Kanna I am also on lithium but managed to have it halved so only take one a day now, also on Lovan which is Prozac and now on Seroquel just 125mg at night to help me sleep but have put on 6 kilos (I am australian) and have stepped up my exercise so early days yet but will keep an eye on it all as I do not want to put on weight again and I know it is the Seroquel.  Blessings....

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Kana, Community Member
2/14/12 3:47pm

Thanks for the reply. I put on 30 pounds the first 30 days ( about 13 kilo's-lived in Canada a few years :)-on 900 mg Lithium and 300 mr Seraquel daily. I can't change my meds as they are working . I've always been athletic, but the only way I'm finding to lose weight is literally an hour and a half of light, cardio type weightlifting and an hour of cardio daily. Time consuming but it's working. Manged to lose 12 pounds but have a long way to go.

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Kana, Community Member
1/19/12 5:14pm

PS-I'm also on Lithium

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Kana, Community Member
1/19/12 5:14pm

PS-I'm also on Lithium

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Kana, Community Member
1/19/12 5:14pm

PS-I'm also on Lithium

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Kana, Community Member
1/19/12 5:14pm

PS-I'm also on Lithium

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Robert Allen, Community Member
3/30/12 6:31am

hi just wanted to respond to you. I am a forty six year old man. Have had a varying diagnosis over the years and all types of medication. It started off with schizophrenia in 1996 I was somewhere in my twenties which they say is typical.

I got admitted to the hospital after an overdose several times. Kept going to the county hospital.  They had navane back then. and the serious risk was tardive

dyskenisia. involuntary movements of the mouth. etc.  I was able to get some help and medical coverage outside of the county. Went to all types of psychiatrists

I was bi-polar, manic, had some ocd, lots of anxiety I started on seroquel, lamictal, and watched my weight gain and seroquel helped me out on that one. the saying skinny and crazy is true! so true! I was re admitted to the hospital this last year after two overdoses. Again they did monitor me in the hospital I am taking depakote  works like a charm! seroquel helps me relax and sleep, and doxepin, thinking about checking out latuda.. I had tried to get off my medication in fact I did yet could not sleep found that not sleeping effects my life and well being in so many ways. I now work evenings and do the best I can part time. Have had the help of many and a great teacher and hypnotherapist. The end result that I am trying to share is.  For me I feel awful weighing what I do

around 180 and I am a 5'6 man.  Yet choose sanity over the other. I was on a non stop trip to the other side befor. When I did go off of my medication they weighed me in at 140 on the hospital bed. Guess I have to live with this one I have found that dressing right and low carb diet does help. Its a journey and a process but guess we have made it this far! which is good!

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Kana, Community Member
3/31/12 6:12pm

Thank you so much for your reply. The thing is I can not live without seraquel. At least my days of not sleeping from anywhere to 3 - 11 days are now over (and when I did sleep I'd be lucky to get 3 hours). I never knew, for the past 30 years anyway, how it felt after a good night's sleep for both the mind and the body. I guess I'll trudge on with the extra pounds rather than being a walking zombie.

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Mace windu, Community Member
11/ 9/11 11:01am
Hi there. I understand how you all feel. I'm 16 years old. Been off and on few medicines for 2 years. I am 70 kg, standing at 1.80m. I am currently med free for 6 months. To be honest, it is more challenging living and sleeping without seroquel. However I feel that I am at least in control of my life and moods and can attribute my successes to my own diligence. To face the sleeping issue, I recommend you guys try natural means such as meditation , reading a boring book or listening to soothing nature sounds from your iPod. Let's face it . The main reason we have our moods can be linked to our sleep, or lack of it. Btw, before going on my first dose of lithium at the hospital, I weighed around 62 kg and sported a 4 pack. After 1 and 1/2 years, my weight ballooned to 75kg with seroquel( I stopped lithium after 3 months). 6 months ago, after my granddad passed away, I decided to stop my 400mg seroquel intake totally. Gradually, after exercise, living a balanced lifestyles and trying to maintain my moods, I maintained my weight around 70 to 75 kg range and am still physically fit. To challenge the weight issue, I recommend you guys try adopting a multiple prong approach. Firstly, you must love yourself enough to change for the better. 1. Eat 6 small meals a day instead of 3 big ones. This will jumpstart your metabolism. 2. Sip cold water and unsweetened tea throughout the day 3. Hit the gym and run if you can 4. Lifting weights boost lean muscle mass which helps you burn fat throughout the day. 5. Share your ambitions with your closest kin. They can motivate you continually when u begin to feel down and out 6. Live your life as you would want to live it! Be free and proud of your achievements. 7. Stay motivated and do not expect immediate results Hope this helped. Life is short. But you still gotta plan it. God bless all you. Mace Reply
Mace windu, Community Member
11/ 9/11 11:03am
Hi there. I understand how you all feel. I'm 16 years old. Been off and on few medicines for 2 years. I am 70 kg, standing at 1.80m. I am currently med free for 6 months. To be honest, it is more challenging living and sleeping without seroquel. However I feel that I am at least in control of my life and moods and can attribute my successes to my own diligence. To face the sleeping issue, I recommend you guys try natural means such as meditation , reading a boring book or listening to soothing nature sounds from your iPod. Let's face it . The main reason we have our moods can be linked to our sleep, or lack of it. Btw, before going on my first dose of lithium at the hospital, I weighed around 62 kg and sported a 4 pack. After 1 and 1/2 years, my weight ballooned to 75kg with seroquel( I stopped lithium after 3 months). 6 months ago, after my granddad passed away, I decided to stop my 400mg seroquel intake totally. Gradually, after exercise, living a balanced lifestyles and trying to maintain my moods, I maintained my weight around 70 to 75 kg range and am still physically fit. To challenge the weight issue, I recommend you guys try adopting a multiple prong approach. Firstly, you must love yourself enough to change for the better. 1. Eat 6 small meals a day instead of 3 big ones. This will jumpstart your metabolism. 2. Sip cold water and unsweetened tea throughout the day 3. Hit the gym and run if you can. In the gym you can be left alone to work out so minimizes the pressure of communicating when oars down. 4. Lifting weights boost lean muscle mass which helps you burn fat throughout the day. 5. Share your ambitions with your closest kin. They can motivate you continually when u begin to feel. down and out 6. Live your life as you would want to live it! Be free and proud of your achievements. 7. Stay motivated and do not expect immediate results Hope this helped. Life is short. But you still gotta plan it. God bless all you. Mace Reply
rvdlfo94, Community Member
3/21/12 5:25pm

I am a 17 year old male with 12.5 milligrams of seroquel and I have been excercising for the past month and a half, before I begun with seroquel I was able to have control on my eating and I was able to be healthy, but as time went by I started to get really hungry at random times such as 12-1 am and I can't never feel like I've eaten enough. I wen from 220 to 212 before the seroquel and now I am 230 after about a month of having it even though I am excersicing. I have a history of eating disorder( Ana/Mia) and it really bothers me because I have begun purging after I have been in control of it for a long time. It also causes stress because I have been working hard on the gym and to not see any results it really bothers me!! btw I am 6'0, 230lb my starting weight before any treatment was 149-156 and I have been having the same height since then !! 

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staceycurry, Community Member
2/25/11 11:23pm

I lost 20 pounds while taking seroquel.butit wasn't till I wason it for a year and mybody got used to it more. however i foundit hard to keep off. the way i lost it was literally counting my calories and excersizing like crazy. on the treadmill for 1.5 hours a day.my problem is my depression and anxiety function off my diet maning. i keep crashing. if i eat less then 2000 calories a day all crash into a depressiona and not be able to get off the couch. I take tons of vitamins imwondering if anyone has any advice to keep from crashing. email me at staceycurry101@hotmaill.com. oh and my doctor added zeldox and when added to seroquel made me bing eat like crazy and gain 30 more pounds im now trying to take them in the night  to reduce binging in morning but its been hard. i have gained a total of 100 pounds in 2 years. dieting and excercizing the whole time. but my depression is severe and i have tryed over 40 meds so i can't go off im really depressed about my weight gain however if there is anyone out there that has any advice please contact my email as i know i won't be back on here good luck everyone and how do i not crash? its so discouraging

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Brandi, Community Member
7/ 4/11 1:32pm

Crashing sounds like a blood sugar problem. Protein of corse stops that but also chromium stops crashes. try 200mg or cut a 500mg from a 1000mg pill with a razor or knife. Seroquel may be playing with blood sugar i have to research. This is going to take some research to fix this weight gain.

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mary beth, Community Member
8/ 5/11 2:44am

eating has nothing to do with the weight gain, i used to be on this medicine also, i got asked to try something that dont make you gain that much weight, now im on geodon, my doctor said its the one bipolar med that makes you gain the less weight and i love it. hope this helps you :P

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Vinnie, Community Member
5/30/08 6:40pm

I want to apologize for my previous response.  I did not realize that there was more to your question and that you do not have time for exercise.  I don't have other suggestions but probably would have refrained from commenting if I realized my comment would not be helpful.  Sorry.

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Kathleen, Community Member
6/ 8/08 6:17pm

I also experienced weight gain on seroquel.  I gained 20 pounds in 3 months.  I only take 100mg at bedtime.  I went to a doctor that specializes in weight loss.  I am doing a diet that is only 800 calories a day and on a prescription apetite suppressent.  I am not losing.  My weight is stuck!  I am 5'8.  I went from 155 to 175.  The scale will not budge.  I am questioning if the seroquel is preventing me from weight loss.   I am going to see my doctor next week and hopefully get to the bottom of this.  It is very frustrating.  I am thinking of stopping the seroquel.  However, I sleep great on this and that is why I take it.  It is a toss up sleep or look good.  Tough one!  Good luck!

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Sally Sue, Community Member
6/ 3/09 12:31pm

Kathleen- I was also around 153 and began taking Seroquel (for Bipolar) and now I weigh 166. I'm trying very hard to lose weight but I have not had success yet. I'm sticking with it for at least a few more weeks though because I need to give it a chance and Seroquel has worked very well for me in terms of fighting my depression. Are you considering going off of it? Not sure if you're using it just for sleep (because there are other medications out there) or for Bipolar like me where you may fear the return of old and horrific symptoms. It is a HUGE toss up! If my weight stays "stuck" like you said yours is I may have to stop taking it. Side-note: 800 calories a day is not enough...in fact you are starving yourself and are most likely slowing down your metabolism. Aim for more like 1,200...you'll lose weight (might be a bit slower) but you won't mess with your metabolism and it's a much healthier way.

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Adam, Community Member
2/ 9/11 12:52am

So, the easiest way to lose weight is also the hardest for most people to do. Work out, work out, work out. And then when your done, work out some more. It's pretty amazing when you do the correct combination of lots of cardio followed by a core and body weight workout, as well as a sensible nutritional intake through out the week, the weight flys off.  
Ask yourself 3 easy questions: 
1.) what's my motivation? 2.) what's my goal? 3.) am I going to follow through?
Now, get to it, and find someone to join you in your quest to trim it up. It's fun doing it as a team which creates support in your efforts. Go for it!

Sent from my iPhone

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PrncsLaura6, Community Member
4/ 2/11 6:12pm

I am Bipolar and have been taking Seroquel for almost 3 years now. I was a thin person before and could eat anything I wanted without gaining a pound. As soon as I started taking the seroquel regularly I started gaining. I used to weigh 100 Ilbs and I now weigh 190!! That's right I have gained 90 Ilbs. I hate myself and feel fat constantly. I have had to buy all new clothes. I dont want to go out anywhere becuase I dont want people I know to see how heavy I am. The seroquel has definitely helped me sleep at night and helped my manic episodes decrease but I dont feel it is worth it. I am not constantly depressed about being heavy and have a very low self-esteem. I have been bugging my doctor for months to take me off of it so he prescribed Lithium. It has taken some time but now that my Lithium levels are higher he has finally started decreasing the Seroquel. I have heard from a few different people that the weight was easy to come off. I really hope that is the case and that my body will go back to normal. When I started taking this med no one told me about this horrible side effect. If you are considering taking it please be aware that this could happen to you. I will let you know what happens when I am off of it and whether I got the weight off. I want to add that I did join a gym and started working out every day to no avail. I didn't lose even one pound. My stomach is distended and I get asked all the time if I am pregnant. The water retention makes you very bloated and puffy. In my opinion the benefit of the med is not worth the side effects.

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nc girl, Community Member
4/22/11 4:03pm

I see it's been a few weeks since you stopped Seroquel.   My story is similar, haven't gained as much but only been on it 6 mths- 15 lbs.   So I'm headed in the same direction and after reading have decided off of Seroquel I take for insomnia.    How is your weight loss coming along?

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STINKERBEAN, Community Member
6/ 9/11 11:38pm

If you are taking lithium you need to have bloodwork done regularlySurprised Sometimes Lithium will not even work on certain indivuals, others like my fiance it has worked miracles for while part of a Seroquel and effexor cocktail. The only way to know is to have your levels checked. It also can be damaging to your kidneys, this isnt the case usually but better to be safe. Make sure you drink PLENTY of water, lithium is very dehydrating hence the name.

 

There is a medication that calms the weight gain and other side effects of seroquel. It is called zantac, and will more than likely help. Im also pretty sure but not positive that it helps with prozac and other meds as well. Things like sex drive, weight gain, dry mouth etc. Of course check with your Dr. and they will send you down the right path that is best suited for you. If you have questions or concerns no matter how small make an appointment, thats what theyre there for. GOOD LUCK!!

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Maria, Community Member
8/ 2/11 3:17pm

How does the Zantac work. is it the heart burn meds or a weight loss pill i havent heared of??? I gained 30 lbs since I was diagnosied with bipolar 1 (mania) i am on all sorts of meds and even now i am  on thyroid meds due to one of my meds causing thyroid problems such as lithium as the culprit.  I have gained 20 lbs since this jan when I started on Levothyroxine (thyroid meds).  i been on lithium 900 mg, lamictal 600 mg, sequel 800 mg for sleep bc without it i cant sleep. im also on oxcarbazepine 600mg for sleep.

 

let me know if you know of any diet method or weight loss pill to help this, ps im extreemly tired form my meds and do not get out of bed until 10am or even as late as 12pm.  any suggestions

 

thanks Maria

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Eva, Community Member
7/ 5/11 6:11pm

You sound just like me! I worked out every day for two months straight and didn't lose a single pound! This has been sooo frustrating to me. My stomach is also distended. I feel like a big fat bowling ball! It's awful. Today I had to go out and buy some "fat" clothes. This will make you depressed in itself. Seroquel is a good sleeping pill though. I had a lot of trouble sleeping before I started taking it. Now I sleep like a baby (a very large baby)! All I want to do is eat and I feel too sluggish to exercise. It is 90+ degrees every day where I live and that just drains me so much.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Anita, Community Member
7/ 6/11 8:28am

Hi, I would like to reply to you. I completely understand what you have gone through. Before I was diagnosed with bipolar  I weighed in at 67kgs which for me was slim. Then I was put on ziprexa for a manic episode I had and ended up weighing in at 110 kgs. The thing the doctors dont seem to understand is that bipolar is exactly that two extremes of emotions. Depression and mania. I dont understand how this day and age they can not come up with a medication drug that doesnt have such destructive side effects. They dont seem to understand that body mind and soul work together, and if one of them is out then it upsets the balance. Body image is a major thing in our society, I had eating disorders when I was a teenager, but being over weight or obese is as much of a eating disorder as anorexia or bulimea. How we feel about ourselves determins our outlook, and if we dont like what we see then we can plunge into depression, anyone can, not just people who have been diagnosed with bipolar personally. Its funny, you take an antiphycotic and put on 30 per cent of your body weight., plunge into depression then they say oh your depressed, and are going through a depressed fase, then prescribe you with an anti depressant, which in some cases puts weight on aswell. Seriously, it needs to be said that doctors are not taking a holistic approach to the healing stages of the illness, and are just looking at the medication sides, without doing their job, simply saying take this drug and see if it works, on your way now. Regardless of the side effects. I acctually believe that people with mental illnesses are being taken advantage of because they are in a vonerable position when they need help and serious side effects of medications arnt taken into consideration, and they are put on these drugs involuntaraly. Personaly I am over the mass consumerism of medications within the western world, and the free and easy approach to presciption medication that is surrounded with conspirousy, that I no longer wish to take part in it and am going to trust in myself, and stay medication free, using natural ways to deal with my highs and lows. And believe me I have had them. I have been hospitalised 3 times involuntaraly for Bipolar Mood Disorder, it has been a long journey, but god gave me my brain, and made us all differently, and I dont believe that the higher power that created us all would want us to be taking drugs that are man made, to deal with society how it is today. It takes education, a true change to your life style for example not taking drugs in regards to substance abuse, nutrition and excersise, sleep and stabilty in your work, social and home life. Balance is the key, and medication to some degree is a bandade. Im not saying stop taking your meds, I tappered off mine and there were SIDE EFFECTS, its not an easy road, but at the end of it you have yourself, your true self. And thats what is most important in this life not to loose.

 

Good Luck I wish you the best

 

Anita.

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LYNJN, Community Member
8/ 6/11 10:05pm

Laughing     I DON'T KNOW YOUR NAME  BUT I JUST HAD TO SAY THIS   ...

 

I KNOW EXACTLY WHAT YOUR SAYING..... I'VE SUFFERD FROM MANY THINGS.. MY HEALTH SUCKS. I HAVE FOUND A BIT OF HELP  MEDS LIKE SEROQUEL CAUSE CONSTIPATION SEVERE ....  USE A LAXITIVE  IF YOU DON'TLOSE WEIGHT IT CAN BE BAD.. I TAKE 400 MG OF SEROQUEL GABAPENTIN VALUM CITRALOPRAM ......... I USESED TO BE ZONED OUT ON PAIN MEDS DOCTERS WERE KILLING ME   .. IT'S ALSO HEREDITARY  MY FATHER HAD IT AND WE DISPIZE EACHOTHER  ALL BECAUSE HE KNOWS I INHERITED IT FROM OUR FAMILY TREE...IT WAS ALSO HERITITARY THAT WEMEN SUFFER FROM RH...... NOTHING HEALS YOU JUST HELPS YOU COPE   ...     BECAUSE OF ALL THE SIDE EFFECTS OF ANY DRUG .. IM SUPPOSED TO TAKE SEROQUEL BUT NOT B DIAGNOSED AS SHITZO............ I HOPE YOU CAN TRAIN YOURSELF TO ONLY EAT ONCE A DAY BUT LITTLE PORTIIONS  , BIG PORTIONS  USE LAXITIVE  , GET RID OF THE FECAL MATTER LOSE THE WEIGHT...  

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Kristin, Community Member
8/14/11 10:17am

I know how you feel,I weighed 170 pds (at 5 ft 11 I wasnt skinny but definitely not fat either).I started taking seroquel late in 2008 and now im up to 225 pds!.Im not bi polar but  my depression and anxiety were out of control and I am also bulimic  and I have tried everything else, and nothing worked.Seroquel works but its also left me soooo huge and my depression has gotten even worse because of it.Im as active as I can be for a single mom with 3 kids, but all the exercise and dieting in the world isnt helping!.My belly is distended as well, im bigger than I was after having my third child, almost 6 yrs ago!.My pdoc will not switch my meds even though he knows how upset I am about the weight gain,so I am just going to stop taking it (I take 250 mgs a day) and see how that works.Its just not worth the weight gain in my opinion.

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Kristin, Community Member
8/14/11 10:17am

I know how you feel,I weighed 170 pds (at 5 ft 11 I wasnt skinny but definitely not fat either).I started taking seroquel late in 2008 and now im up to 225 pds!.Im not bi polar but  my depression and anxiety were out of control and I am also bulimic  and I have tried everything else, and nothing worked.Seroquel works but its also left me soooo huge and my depression has gotten even worse because of it.Im as active as I can be for a single mom with 3 kids, but all the exercise and dieting in the world isnt helping!.My belly is distended as well, im bigger than I was after having my third child, almost 6 yrs ago!.My pdoc will not switch my meds even though he knows how upset I am about the weight gain,so I am just going to stop taking it (I take 250 mgs a day) and see how that works.Its just not worth the weight gain in my opinion.

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Thefoxfan, Community Member
8/16/11 6:54am
I sympathise. I think I've had the worst luck of all. I was 144 and went to 215 I'm now 204 but I have seroquel for bi polar and DID as well as Prozac and buspirone. The prior for mood stabiliser and the latter for anxiety. If i stopped it I would be sectioned its that bad. I am only 5"2 so I look a d feel so fat and disgusting I want to kill myself. I gotta get off these meds Reply
Worriedhubbie, Community Member
12/12/11 5:50pm

Hi..Any luck on your weight lose since april. My wife is in the same boat. Was a thin girl now over 200 lbs. She is taking lithium at the same time though as the seroquel. I need her to get off it...

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astargzr, Community Member
12/ 5/12 12:11pm

You just explained my life for the last three years. I gained 65 lbs, to a 110lb frame. I feel hideous and disgusting. My doc has agreed to allow me to start weaning off Seroquel after the holidays. I didn't know that Seroquel would cause a 10lb a month gain for 5 months! This is heinous. I'd rather be manic than have to carry this disgusting weight. I can't WAIT til after Xmas!

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yummymummybondy, Community Member
10/30/11 6:23pm

Not helpfull. 

Most of us here are taking Seroquel that is 'holding' the weight on.....no matter how hard we 'work out, work out, work out' or want to 'work out, work out, work out'.

And unfortunately, because of this drug, no matter any of our best intentions to 'work out, work out, work out', that is the last thing we actually FEEL like doing.

I know everything you said above to be true but for some reason I feel extreemly unmotivated and am less likely to excersise now than ever before. 

Even during the weeks that I am able to rally myself out the door for a run 2-3x a week the weight is not budging and is in fact rising. 

I came to this forum to research my above symptoms/experience in corolation to Seroquel and I just found your post to be the most discouraging here.

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Cleo, Community Member
2/ 1/12 4:08am
I have been on seroquel since the beginning of dec and I was 102lbs now I weigh 125lbs it's soo frustrating because I too am going to the gym 4-5 days/week. I never feel fully and I hate that!! I used to feel full after a small amt of food but now I feel like I could eat 3 meals in one sitting :/ Sooo my choice is to either be fat and sane or skinny and nuts lol great choices! Reply
wildone123, Community Member
11/ 2/09 9:47pm

I have started on weight watchers meeting.  I also have thyroid problems and this is really a help.  It took awhile longer than the most people but it does work.  exercise also helps I just started walking and it really helps.  I am to two miles a day but did not start that way.  Good luck there is alot of support at weight watcher meetings.  I am on Seroquel also and only 25 mg and have gained the weight.  Maybe you can reduce your dose and it will help.

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hahajavi, Community Member
3/ 7/10 1:02pm

im 5'6 and i used to be at 145.  i've been on seroquel for quite some time and now i am at 206.  i've given up the exersise and dieting because none of it helps.  i think im just going to stop with seroquel.  i'd done it before and the pounds just shed away.  so i think that is what i will do. 

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Aliks Roze, Community Member
10/28/10 7:23pm

reading this terrifies me, because I have similar numbers -- I'm 5'6' at 150lbs.

 

how long did it take for the weight to increase?  was it gradual, or noticab

noticeable?

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tatie212, Community Member
3/24/11 6:08pm

I am 5'5 and was 135lbn when I started Seroquel 4-5 years ago. I do work out every day and eat healthy.... but I'm still 200lb. I am really upset about it! I plan on bringing it up to my doctore next time we meet... but.... I CAN'T stop taking the Seroquel or I will go back down the rabbit hole.... I wrather be sane and a good mother than give it up just to look better.

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Aliks Roze, Community Member
10/28/10 7:23pm

reading this terrifies me, because I have similar numbers -- I'm 5'6' at 150lbs.

 

how long did it take for the weight to increase?  was it gradual, or noticab

noticeable?

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sunny_03, Community Member
1/17/11 4:51am

you will never lose weight on seroquel, ever.  it will increase, slowly over time.  there are other alternatives.  seroquel had some pretty heavy duty side effects.  i stopped taking it and once again weigh 110.  and i feel clear minded and happier.  good luck on your journey.  i truly think this drug is intended for folks who are truly incapacitated.

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PrncsLaura6, Community Member
6/24/11 2:29pm

Hi I just finally weaned myself off hte seroquel I stopped taking it this past week. I haven't noticed any weight loss even tho I was at 200 mg's a few months ago and was recently down to 25mg. I am so focused on my weight because I am so unhappy with myself and I am paranoid that I wont lose any weight even tho everyone seems to say that the weight comes off. How quickly did you start to lose the weight and how long was it until you were back to normal? Did you do any heavy dieting or exercising?

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Anita, Community Member
7/ 6/11 8:36am

You are awesome. You hit the nail right on the head, its not a long term solution. I agree with your statement about thinking that this drug is intended for folks who are truly incapacitated. It is similar to ziprexa, my weight shot up to 110, I decided to tapper of it because I know there is a better life for me and the side effects were interesting to say the least, extremely itchy all over my body constantly like I had hives for a good two weeks, but it was worth it, as now I have clarity again in my thoughts. I have myself back again.

 

Wish you all the best and good luck with your journey

 

Anita

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LYNJN, Community Member
8/ 6/11 10:34pm

ANITA,

 

            I,M DEPENDANT ON MY PILS .. IM A CHRONIC INSOMNIAC..... I GET ALL TINGLY AS IF  ELECTRICITY SHOOTING OUT  EVERYWHERE ........  I WITHDRAWL , SIT IN THE DARKEST PART OF THE ROOM, OBSERVING EVERYONE...... I JUST HOPE SEE THAT WHAT PEOPLE SAY WORK , USAUALLY DON'T..... I HAVE BEEN HOSPITALIZED  AND TREATED LIKE A SUCIDE ATTEMPT  . WHEN ALL OF IT WAS A MEDICATION  THAT SENT ME  COMEPLETELY NUTS.I WAS  NEVER ASKED WHAT HAPPEND I WAS SCREAMING TIED TO A GURNEY SHACKLED AND ALONE. I KEPT TELLING THEM THAT IT WAS A NEW MED, I TOOK 4 PILLS AND BOOM ....I DONT REMEMBER ANYTHING BUT BEING TREATED LIKE A CRIMINAL DURRING THE DAY AND UNDERSTOOD AT NIGHT   ...   CRAZY

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md1128, Community Member
2/13/12 12:33pm

Hi

Did you replace it with something else?  I'm afraid to come off of it due to major depressive disorder which is controlled with serequel, lamictal and welbuitron.  The Serequel keeps my mood balanced and without it I can not sleep.  I take 600mg nightly.  Just wanted to know the side effects when you stopped taking it.

Thank you

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msigbotx, Community Member
5/12/11 12:49am

 I too am 5'6, and weighed around 145 before Seroquel. I now weigh 158. I refuse to get past 165 lbs (I once weighed 250lbs). I think I'll go off both the Seroquel AND the Depakote, which also causes weight gain.

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PrncsLaura6, Community Member
6/24/11 2:25pm

Hi

I just finally weened myself off the Seroquel. I haven't noticed any change in my weight as of yet and I was wondering how long it took before you started to lose some weight? I am trying to be patient and have changed my eating habits but I am finding it hard to be optimisitic since I still haven't lost any weight and I went from 400mg to nothing. I just got off it completely this past week.

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lindeelou, Community Member
7/ 9/10 12:25am

Same story here, sounds like we are all in the same boat.

 

I weighed 155 and after only one and a half months on Seroquel, I have now blossomed to 167. I have been watching my intake of food, walking, and never have been an overeater. I have noticed an increase in cravings for sweets

but do that in moderation, not enough to gain this much weight.

It is magic for helping me sleep, just love that part of it, but do think I will quit

because this fat belly is making me more depressed than anything I can think of.

I have Lamictal as well, so that should help me from going in to a Non- Seroquel episode, also I have Ambien for sleep and Klonopin.

 

 

 

 

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Sonshine55, Community Member
4/15/11 7:42pm

I don't know how old ur post is, but it caught my attention. Did u go off of Seroquel completely? Does the Lamictal alone with Klonopin/Ambien for sleep help u still, without taking Seroquel. I want to wean off Seroquel, and will ask my Dr. to start the process next month. He has mentioned weaning me off of it, but I have had such good effects that I questioned it while going through a family crisis at the time. Weight vs. Good Mood, I can only try to go without it and see what happens. New coping skills are helping along with exercise for mood and well-being. But no weight loss, that is the problem...eating under 1,000 calories, but I had a gastric by pass, that is not unusual for me. Never dreamt I would be in this place again with the weight thing, but this medication has helped me along with Lamictal.

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LYNJN, Community Member
8/ 6/11 11:12pm

BECAREFUL ON AMBIEN IT CAN MAKE YOU SO DEEP IN SLEEP THAT YOU FORGET TO BREATHE.MIXING MEDS ARE ALWAYS A RISK.............JUST A WARNING

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kglass2nd, Community Member
7/28/10 12:01pm

I too am on seroquel (400mg) and have an eating disorder.  Since the birth of my child- when I started retaking seroquel, I have gained over 10lbs.  I've tried everything...working out, detox, juicing, even restricting/purging and still no weigh loss. I'm really freaking out and am considering stopping the medication cold turkey.  I know this is stupid on the medical issue but the weight is really driving me crazy.

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kombiniyaru, Community Member
7/29/10 9:50pm

Same story!!!!!! I went from 95 lbs to 156 lbs in a space of one year. I have always been a small person and I look like a balloon, I am on a strict diet less than 1300 calories a day sometimes even 800-900 calories and the scale wont budge. In fact I keep gaining a steady 1 lb a day. I am also going to stop it because I cannot even move sometimes because of the weight gain. I would suggest other alternatives and I am pretty sure it is the seroquel causing your weight gain. Good luck with stopping it. There are some side -effects but overcome them as they are worth getting off it. I tried to come off it a couple of times as well.

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Ilka, Community Member
11/19/10 6:24am

I've been on 300mg of seroquel for quite a few months now and have been trying hard to find out if ecsessive weight gain is a general side effect.  I gained 27 pounds, more than I ever gained in my life.  My cousin gained 24 pounds on seroquel in the space of 3 months.  She is now going onto topamax and molipaxin as an alternative.

Seroqeul has done miracles for my insomnia and anxiety.  I wouldn't advise going of it cold turkey - I have tried that a few times with very bad results.  More succesful was lowering the dose every week.  I've transferrered to lamictal as a mood stabiliser and I can already feel my cravings for sugar going down in the one week i've been of seroquel completely.  I'll just have to wait and see if the numbers on the scale also go down.

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LYNJN, Community Member
8/ 6/11 11:25pm

I AGREE BUT LAMICTAL IS A BAD DRUG IT PUT SORES ON MYFACE AND ARMS  . SEROQUEL IF ITS NOT TAKEN  ITS LIKE YOU CANT CONTROL YOURSELF BOUNCING AND RESTLESS NEED I GO ON ?  ,............................

I WISH YOU THE  BESTSmile

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sunny_03, Community Member
1/17/11 5:06am

there will be no weight loss on seroquel, only a steady increase over time.  there are other alternaties out there! astra zenace\a psuhes this drug had for off label uses and the side effects are horrific.  i will NEvER take it again. it ruined my body and my personality!! i stopped a month ago, went onto trileptal and have elost 10 lbs rapibly.  im not a doc, obviously, but there are many options and great dofs with compassion... but this one worked for me! id rather be manic than fat though lol

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Britttttt, Community Member
2/25/11 12:22pm

Wow.  It's great to know that I'm not alone!  I'm 22 and 5'5" and at this time last year, I was 115lbs.  After being on Seroquel for a few months, I am now 140lbs.  I take it for insomnia and it generally works pretty well, but the weight gain has made me extremely depressed.  I stopped taking it last night and woke up this morning not even hungry, which is a complete 180 from my life on Seroquel.  I'm just frustrated because my psychiatrist doesn't recognize the weight gain as any sort of problem even though I have voiced my concerns many, many times.  And my primary care physician says she doesn't want to do anything because she isn't a psychiatrist.  So I'm currently frustrated with the medical community and I think I'm going to try to go at this alone until someone educated in this kind of thing is willing to help me.  And responses or tips are greatly appreciated!  Thanks!  :)  

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JLR5, Community Member
3/ 9/11 1:04pm

It looks like everyone has the same issue with Seroquel.  I was diagnosed with bipolar disorder about 5 years ago and started out on Seroquel.  I started out at about 170 pounds, and I now weigh 200 pounds.  I have asked my doctor to change my meds and she tried me on numerous other ones, but nothing worked for my bipolar disorder nearly as good as Seroquel, so i am back on it.  I am 5 10 and I weigh 200 pounds.  I used to be able to lose weight pretty easily, but not anymore!  I watch what I eat and go to the gym 4-5 days a week for at least an hour.  Lots of cardio and weight training.  I should be losing weight considering what I'm doing, but I continue to gain.  Talk about becoming more depressed!  I tried weight watchers, atkins and many other diets and diet products, but nothing works.  I have a history of eating disorders, so this is dangerous ground for me.  It's a real struggle.  My doctor is moving out of the area, so I'm hoping whoever I start seeing will be able to help me with these issues.  I am going to request being taken off of the seroquel and on a regimen that will NOT cause me to gain weight.  I really need to lose weight, not only because I look fat, but for my health.  If anyone finds help for this issue, please post it.  I think we'd all like to know what might be able to help.  :)

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msigbotx, Community Member
5/12/11 12:28am

 So sorry to hear that. I too have gained (11 lbs after being on Seroquel for about 3weeks). I do sleep better on it, but I'm prescribed to take 200mg in the morning, 200mg at 2PM, and 400mg at bedtime. I don't like getting sleepy during the day, and I don't like the increase in appetite, and decrease in metabolism. By checking out this website, I am hoping to find another med solution. I'm also on Depakote, which also has a side of weight gain. Does the doc actually believe that getting me fat will make me less depressed? I certainly hope not! I am 5'6, and now weigh 158. I was weighing 147 before the meds. I want to go off. I'm also on Wellbutrin. I think this one would help me to lose some weight, if not for the other 2 drugs. It has in the past ( teen years). I am now 32.

 

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Bill, Community Member
9/ 1/11 9:03pm

if you take seroquel in the am and/or during the day, you will for sure gain weight.  My doc's suggests taking full dosage 30 mins before bedtime...and make sure you do not eat after taking it

 

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Bill, Community Member
9/ 1/11 9:03pm

if you take seroquel in the am and/or during the day, you will for sure gain weight.  My doc's suggests taking full dosage 30 mins before bedtime...and make sure you do not eat after taking it

 

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bizzielizzie, Community Member
6/19/11 8:12am

Seroquel may well be stopping you losing weight as it affects the metabolism process. Apparently all neuroleptica do this, so getting off altogether might well be the only chance of success in losing weight.

The subject of homeopathic medicine as an altenative to conventional treatment is also worth considering.

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karen, Community Member
7/ 7/11 1:53am

When I was in the hospital. I was on 700mg. for four months. I gained 60lbs which increased the depression. Seroquel company will tell you right up front it will make you really hungry and probably gain weight. I was eating cottoge cheese or saurkraut just to try to get full. My Dr. carefully put me on Topamax, an appetite depressant and I have lost 25 and am still losing. Seroquel is the only thing that works for my bi-polar so I have to take it. I also count calories and exercise.

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moodyblue, Community Member
10/ 6/11 9:50pm

I have never heard of Topamax, but I will certainly asked my doctor.  Seroquel works very well for me, but the weight gain is just more than I can handle - I am so upset about it, I feel depressed! 

I have put on 15 pounds in 2 months and I have a small frame.  I don't mean to sound vain, but looking good on the outside helps me feel better about my self and my self-esteem is better.  It is doubly frustrating because I eat less, to no avail....

My "fat" jeans are tight!

 

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Catherine, Community Member
9/29/11 4:06pm

Hi

I have the same problem, for years I hardly slept until I started to take seroquel, so as you quite rightly said are we carrying on with being able to sleep or having to come to term with a weight increase, a real dilema. I have been taking seroquel now for at least 4 years and am on 350 mg p/night. I have lived with Bipolar disorder for nearly 20 years and the only thing I can say is that the drugs we are having now are a lot kinder than the ones 20 years ago which not only made you put on weight but also had some very very nasty side effects. I am thinking of going swimming several times a week but with my forever changing moods I find it difficult to 'stick' to what I want or plan to do.

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Catherine, Community Member
9/29/11 4:06pm

Hi

I have the same problem, for years I hardly slept until I started to take seroquel, so as you quite rightly said are we carrying on with being able to sleep or having to come to term with a weight increase, a real dilema. I have been taking seroquel now for at least 4 years and am on 350 mg p/night. I have lived with Bipolar disorder for nearly 20 years and the only thing I can say is that the drugs we are having now are a lot kinder than the ones 20 years ago which not only made you put on weight but also had some very very nasty side effects. I am thinking of going swimming several times a week but with my forever changing moods I find it difficult to 'stick' to what I want or plan to do.

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jerry, Community Member
12/ 5/11 7:33pm

meee tooo....much to consider,ay?! Ive gotten much heavier in a relatively short time. Seroquel commonly allows me a nice deep sleep- something only lots of beer would allow throughout some thirty of my fifty odd years. By lots of beer, I mean 10-16 oz. cans per night... that is 10 cans times 16 ounces... I've been told by professionals that's "alot of beer".  It's what allowed deep rest... and never a hangover... only beer, no wine, no heavy stuff.... never gained weight... thought I was truely healthy... is it possible  was healthy??

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heather, Community Member
3/24/12 11:20pm

hi my name is Heather and i have been told that i have manic depressive i'am sure i have had this condition for many years two and half years ago i tried to take my own life thank god i was unsuccessfull now i have a Doctor treating me i'am on seroquel and my weight has gone from 45kg to 68kg and swallon up like a ballon i have just taking myself of seroquel the last two nights my sleepind is not that good but my swallow feet have gone down i hope my Doctor tomorrow will be able to help me i will keep you in touch by for now Heather

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susan, Community Member
6/13/08 1:38am

kkclark and the rest, I too am on seroquel and know the battle.  I take mine at 9-10pm before bedtime at 300mgs.  I get that starving to death feeling kind of hunger that is very addicting that drives me to the refrigerator or a snack if I have one.  Sometimes it is almost like binge eating for me.  I cannot resist! 

 

I do know if you can tolerate Topamax there is a good solution.  Tompamax sort of levels things out and decreases hunger.  I cannot take topamax due to hairloss but when I was on it I just remember with the seroquel it worked wonderful. 

 

I am like everyone here and agree seroquel is a good medication for bipolar.  I think better than lithium by far.  It doesn't have many side effects like most.  I am afraid of diabetes with antipsychotics.  I am frustrated with this weightgain and on the walking track all the time.

 

Now that I have a hurt knee.......I am afraid of really gaining the weight.  Keep on moving while on seroquel or you will extra extra swell. :) one of my favorite little rhymes.  I know quite some people that say seroquel doesn't make them hungry at all.

 

Another thing you might try is don't buy the food and put it in your house.  That is one way you won't eat it.  If you do buy food like snacks make it healthy.

 

 

I am getting depressed over this weightgain so that is just another mental problem.  I am 5'4 and weigh 180. I was weighing 167 a year ago.  It is very hard to lose.

(Best Wishes to you All)

Susan

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Kathleen, Community Member
6/29/08 7:29pm

I have been trying to lose weight for months!  I have great news!  The last two weeks I have lost 8lbs.  I am 5'8 and started at 180.  I am now down to 172.  I drank slimfast for breakfast and lunch.  I would eat a weight watchers meal and veggies for dinner.  I even had a treat once in awhile.  I would have a skinny cow icecream or WW ice cream bar.  I have done so many diets.  I tried the no carb for a  month and only lost 2 pounds.  The biggest thing is I worked out hard for the past two weeks.  I did an hour weight class(Power) three times a week.  I also did 40 minutes of cardio 4 times a week.  I am so excited that I am finally losing the weight.  I still take 100mg of seroquel at bedtime.  I go to my room and read.  I don't near the kitchen.  I will eat if I am looking around.  The serequel kicks in with the food cravings within a half hour!  It is crazy how hungry it makes you!  My advice take the medication right before you go to bed!  Good Luck!   Oh and I drank lots and lots of water!!!

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anna, Community Member
1/27/10 2:23pm

my doctors are going to put me on seroquel and i am wrried about the weight gain ,your comments have given me a little hope if i work really hard i too could maybe loss or not gain weight.I will keep you posted and well done for your weight lost keep at it..

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KJ, Community Member
7/29/10 12:42pm

I've been on Seroquel for 3 months now and I've gained 20 pounds. I've had gastric bypass 5 years ago and weight loss has never been hard for me. I've even reverted back to my liquid diet and the baby food portion of the diet. I worked out everyday and I actually GAINED five more pounds. Also, I've been retaining water and I've got Type 2 Diabetes. I go back to the doctor next week and I will discuss this with my doctor. I've even tried the WW meals and the Slimfast and Glucerna shakes to curb my appetite. Perhaps I should try Topamax versus the Trileptal I'm taking. The call of the fridge is ridiculously strong, but I am not going to give up. Thanks for your advice and insight.

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Hopeful, Community Member
8/ 7/11 2:19pm

This is the first helpful post that I have found.  I am going to try this because I have been on Seraquel for 4 days and have gained 5 pounds.  OMGosh.  I have gained weight in the past on Tricyclic Antidepressants, so, I am already really unhappy with my weight.  I hate this.  I got my recumbant bicycle out 2 days ago and will use it.  I have had Depression my whole life and I am 56 y.o. now.  I am looking forward to my son's wedding but wish I didn't have to go because I don't want people to see me so fat.  Yikes! It is so strange that the medicine that should help us move out into the world and embrace life again, makes us want to hide because of the way we look.  Thank you so much for your post!

Hopeful

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Anonymous, Community Member
7/31/08 4:46pm

I am bipolar and I have also tried taking Prozac, Depakote and those didn't work for me either. I am currently taking Seroquel, Lamictal, Wellbutrin and Topamax. Like you, I also had a problem with weight gain from the seroquel. I gained 10 pounds. My doctor suggested diet and exercize, but that wasn't enough. I was perscribed Topamax. Although the seroquel causes weight gain...which causes self-esteem issues for me, I refuse to go off of it, because it is amazing! I would suggest looking into Topamax. It didn't make me loose weight, but while excersizing, I lost those 10 pounds, and now I maintain my weight.

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bjrem, Community Member
12/13/08 9:07pm

Topamax (Topiramate) works.  Plain and simple.  Your appetite will be dramatically reduced and you will be forced to lose weight, no matter what drug you are on.  I gained 30 pounds on Lexapro/Cipralex and am now down about 15, but still on an SSRI.  The weight gain was rapid at first for me, then it plateaued...then it kicked in again and has been steadily dropping at about a pound and a half a week.  It also helps to regulate mood, prevents migraine headaches and treats chronic pain with very few side effects. 

 

Nothing else works in my opinion.  Hope this helps.

 

Good luck

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Dysmystic, Community Member
8/ 4/09 5:28am

I had a sudden weight loss after dropping from 100 - 50 - 25mg, 9lbs in a week and I am pretty sure most of that was fluid retention. Do you reckon that could be part of your experience?

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bjrem, Community Member
8/ 5/09 5:10am

Hi,

 

Do you mean that you lost weight because you went down from 100mg to 25mg of Seroquel?  If this is the case with you, then my answer is no, this was not part of my experience.  I am pretty sure that if you are on a lower dose of Seroquel, then you will not have as difficult of a time with weight gain as you would if you were taking a high dose, so you might have solved your own problem.  If I am way off...then please ask me your question again and I will respond, no worries.

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Loci, Community Member
3/19/11 11:55am

Hi,  I've been on Seroquel for 4 years. I went from 115 (my doctor says I should weigh 129) to my all time high of 201.5. I am now trying to eat healthier, increase my activity and cut calories. I tried Topamax for a month, lost NO weight and it made me dopey and forgetful. I'm glad it works for some people but for me it was worthless.

 

Loci

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Jenn, Community Member
3/19/09 6:05pm

i am bipolar as well, and have taken seroquel for years.  i also gained and enormous amount of weight as soon as i went up over 200mg.  i tried EVERYTHING to get rid of the weight, and finally got some help this year.  the pounds are literally melting off now.  my doctor has me taking two fiber capsules   (over the counter) each morning and night.  i am also taking 1000mg of fish oil (also over the counter) 3 times per day.  that controls my appetite...even those late night seroquel binges.  for the weight loss, she put me on a diet called "the insulin resistance diet"  basically, i eat 5 SMALL meals each day, making sure i balance the carbs and the protein.  basically, for every gram of carbs i have to eat .5 grams of proteing everytime i eat.  and of course the basics, low fat or fat free everything.  it was a bit complicated at first...and took some life-style adjustments like packing my meals the night before.  but well worth it.  i gained 40 lbs, and now only have 7 lbs to go, in just a couple of months.

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FemDragon, Community Member
10/28/09 11:01pm

I too am bi-polar and I'm being switched to Lamictal - however, it takes 5 weeks to slowly build up the dose through a starter pack and then I have to be tapered off of the seroquel slowly.  I have been taking 300 mgXR in the day and 400 regular at night.  I've put on about 25 pounds in about 3 months.  Not acceptable.  I'm interested in the fiber capsules - what do you use?  And are you saying it is the fish oil that suppresses the appetite?  Please help - I'm having terrible dreams about my weight gain and I feel a dark cloud over me often.  I've noticed that the 300 mg of XR doesn't make me hungry - but I'm sure it's in there slowing down my metabolism.  And the 400 mg at night - OMG - I am eating the craziest stuff - I often retreat to the bedroom so my husband can't see what I'm eating or how much - but I just can't sleep while I am so ravenous!  I look in the mirror and I see a stranger and this really disturbs me.  UGH - and the mirror - it's at the end of the hallway so I can see my once flat stomach jiggle all the way as I make it down the hall.  Scary.  I hate this.

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HELP, Community Member
1/21/10 5:37pm

HAVE YOU LOST THE 7 POUNDS YET? WHERE DO YOU STAND NOW WEIGHT-WISE??

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b_woodward, Community Member
7/ 6/10 11:44am

I am also on Seroquel, but 900 mg at night.  I am also on Zonegran which cuts my appetite.  So I don't have the problem with the overeating.  The problem I do have is losing weight.  I am training to run a 5k in September so I am very active, but yet in the 4 weeks that I have been running I haven't dropped a pound.  So my question is, does the Seroquel cause the metabolism to slow?  Is that why it's so hard to lose the weight?

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missmoli00, Community Member
10/ 5/10 11:54am

HI..I HAVE ALWAYS BEEN OBSESSIVE ABOUT MY WEIGHT. I WAS 12 TAKING SLIMFAST TO SCHOOL AND EXERCISING AFTER SCHOOL. MY MEASURMENTS HAVE BEEN 36-27-36 FROM 8TH GRADE TO 46YRS OLD! MY DOC PUT ME ON 400MG OF SEROQUEL XR, NEUROTIN, PRISTQ, WELBUTRIN AND XANAX (WAS ON XANAX 10YRS) I FREAKIN BLEW UP! IN A FEW MTHS! ALL MY CLOTHES ARE MED/ 8-10..I WAS NEVER FAT..I WENT IN KHOLS AND I COULDN'T GET A SIZE 18 JEAN ON!!! I'M DEPRESSED FOR SURE..NOW..SO I KNOW THAT SEROQUEL CAN MAKE YOU EAT OR EAT WEIRD STUFF AND OR IT CAN SCREW UP YOUR METABOLISM (MY DR TOLD ME) SO I AM DOING ATKINS..I JUST STARTED AND IT DEALS WITH THE WAY YOUR BODY METABOLIZES FOOD..NO CARBS FOR FUEL= BURN FAT + IT STOPS THE BLOOD SUGAR ISSUES THAT SEROQUEL ALSO ADDS TO THE DAMN PROBLEM!!! I WILL STARVE BEFORE I WILL LIVE THIS SIZE...NO FREAKIN WAY I'M GOING TO BE HAPPY GOING FROM A GREAT BODY TO LOOKIN LIKE I HAVE HOT DOGS STRAPPED TO MY BACK!!!!! IN 2 MONTHS!!!??

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sophie, Community Member
10/28/10 1:10pm

hi...just wondering how u r doing?  I was 110 lbs 2yrs ago.  I weighed 140lbs in June 2010.  As of this past week, I weigh 166 lbs.  My doctor has currently increased my Seroquel to 300mg.  I am past my breaking point.  It may be helping with my bipolar disorder, but I can't take the weight issue anymore.  I don't know what will happen if I just stop taking the Seroquel without permission, but I can't do it anymore.  I feel so depressed about my weight gain.  And my doctor doesn't take it seriously. 

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J mama, Community Member
11/12/10 12:20pm

OMG!!!!! This is my story!!! I have gained 120 lbs in a little over a year! I have NEVER been fat!!!!NEVER!!! The heaviest I ever was before (save pregnancy which I always got that weight off very quickly) was a siz 12 and I thought I was huge then! My norm is around a 7, I'm 5'3 for cryin outloud-now I weigh a wopping 256!!! I see a stranger in the mirror who is grose looking and fatter than fat! I HATE THIS!!! I take the med to help me sleep...nothing else has ever worked like this does-but at what cost? So I can not sleep and be thin again or keep getting fatter by the day and sleep!! UUUUUGGGGGHHHH  I need some help I am at my wits end!

 

J-mama

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tjlovelocke, Community Member
4/ 7/11 5:36pm

hi my name is tj i 2000mg of epilin for bipolar putting weight n fast please help n which med is best

.many thanks

 

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Michael, Community Member
12/16/10 6:55pm

I'm so glad I found this site. Maybe someone can help me. After reading some of these posts, I almost feel ashamed asking for help here but this is something very important to me. I'm manic depressive/obsessive compulsive and have been on Seroquel since 2008, 200 mg at night and a small dosage (1 mg) of clonazepam as some nights the seroquel isn't enough to help me sleep. When I first started taking seroquel, as all of us have, i expereinced a weight gain that made me uncomfortable and I stopped taking the seroquel with disastrous rebound side effects. I quickly got back on and haven't stopped since.

 

Over the last 16 months I have been on a rigid exercise/diet regimen. I go to the gym 3-4 times a week and do heavy lifting with 20 minutes of cardio and abs work. I have a high protein/low carb diet and lost 40 lbs inside of the first 3-4 months. The problem is that i am trying to lose the last remaining bit of belly fat and have not been able to. I have a feeling that I may never be able to as long as I am on seroquel. It's not noticeable to others but it is to me as I am very into looking good now and, I'll admit it, want those 6 pack abs. What I'm asking for anyone out there is no matter how hard I work out or eat right, will I never be able to rid myself of that belly fat as long as I am on seroquel?

 

I am terrified of going off of it because of the experience I had before but I'm also loving the new found confidence and pride I feel with my body and want to take it further i.e. the abs. Can anyone provide me with the names of medications I could switch to that work as well as seroquel does minus the weight gain? I would ask a doctor but I have no insurance right now and can't afford one. I've been stuck on 200mg for almost 3 years now and know that something has to change. Thank you so much.

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Moimoimoi, Community Member
6/ 2/09 6:44am

I echo the Topamax - it cancels out the Seroquel munchies/hunger.  I take 600mg Seroquel XR, 150mg Topamax, 400mg Lamictal and 75mg Zoloft.  Also get your thyroid checked while on Seroquel.  It mentions it in the prescribing info that it can mess with your thyroid levels.  I had normal thyroid levels before being on Seroquel(I do have hypothyroidism normally, but it was treated and I was at normal levels) once Seroquel was added my numbers pushed me to hypothyroidism, which could be part of the problem some people are having with a slowed metabolism.  Your TSH should be at or under 3.0 (and endocrinologist would know this, a family doctor most likely would not and woudl probably go off of lab standards which are not updated)  Anyways best of luck & I am sure it can be done! :-)

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horsin2005, Community Member
7/ 5/09 9:34pm

I have been going to weight watchers and that is working and really doing alot of walking.  I also have thyroid problems and this has really helped.

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horsin2005, Community Member
7/ 5/09 9:36pm

weight watchers works great for me.  I also have thyroid problems and I have found unfortunately exercising will also work

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Elizabeth, Community Member
8/ 9/09 2:40pm

I am going through the same probelm. I have a history with bulimia, I was put on Seroquel a little over one year ago and have gone from 125 to 150 ish. I am also on Prozac, I just recently talked to my doctor and she told me that both medications will cause your matoblism to slow down. I am getting tappered off of the Prozac currently, and soon will get switched from Seroquel to another mood stabilizer.  Try talking to your doctor and seeing if there is anything else you could try, unless your content with the weight gain.

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reshadar, Community Member
5/ 7/10 7:33pm

Just so you know, Seroquel is an anti-psychotic, not a mood stabilizer. And I gained 100  pounds on Prozac. When I went off of it (years ago), I lost 50 lbs immediately and went down another 25 over time after that. Now I'm on Seroquel and I weigh over 200 lbs again. It's horrible. Seroquel is the best medicine that I've been on for the bipolar and this is the first time in many many years that I am sleeping through the night (I never had trouble getting to sleep, just staying asleep - I would wake up 5+ times each night), but I feel horrible about myself because of the weight. I don't know what to do......

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gettinby, Community Member
8/15/09 10:03pm

I am suffering the same consequence from seroquel. In addition, I also need over 9 hours of sleep at night.  It is a small price to pay for as terribly ill as I get from severe bi-polar, but it makes me feel disgusted with myself too.  I am going to check with my primary doc for some appetite suppressent.  I have heard terrible things about the side effects of topomax, that it is nick-named dopamax.  I am happy to hear that it is helping some of you, maybe I will try it now too.

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VictoriaandDoby, Community Member
9/ 3/09 12:59pm

I'm on Seroquel and Lithium. Now my doctors currently switching me on Abilify. I lost weight while being on Seroquel. The scale didn't go down because I was gaining muslce doing Tae Bo and running 4 miles. Now the scale is slowly going down. So now I've lost about 10 pounds. My usual weight was 130 and went to 156. Now I'm 147. It just takes time. But never give up exercising. But exercise is recommended. Just dieting won't do anything. You should try Tae Bo. Or go running early in the morning. I know it sucks but think about how good it is.Tongue out

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Cathartic Conduit, Community Member
9/ 9/09 8:24pm

I May Have A Solution... I am also Bipolar, type 2 in particular. After twelve years of just barely keeping my head from falling apart i was prescribed seroquil for the second time in my life.  The first time i was perscribed 100 mgs and after a week i decided it just way over-zombified me, so i quit.  This time i was at the end of my rope and Lexapro alone just wasn't enough so i gave it another shot about a year ago, but this time i decided to split the pills in half.  Aha, the effect has been more than enough to keep moods managable, at least i feel quite a bit more in control that is.  You get a nice sleepy effect at night to deal with insomnia but it wont knock you out too hard. I have gained only ten pounds in the course of this year and his weight has been stabalized for a few months. It may help that i don't eat sweets or junk food, though i do eat carbs and meat.  I have done much research and beleive that doctors are unwittingly being talked into over perscribing these medications by the well trained drug company representative/salesman.  Fellow Bipolars unite to Be Carefull of what chemicals we allow to rearange our delicate brain chemistry. Research Research Research.

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eringobraugh317, Community Member
3/ 3/10 4:58am
I recently came across and article you would be very interested in. AstraZeneca's Seroquel and study known as "Study 15 and AstraZeneca's internal documents released by law firm, Blizzard, McCarthy & Nabers, which also lists diabetes & hyperglycemia in thousands of US patients...check it out, quite scary how drug companies can control the available research about their products. Reply
Shelly, Community Member
3/ 3/10 9:20am

Agreed. Research whatever you put in your mouth. All the meds are is added chemicals...

 

As a bipolar person myself, I know that my body is SUPER DUPER sensitive to any changes. I've gained 10 lbs because of the depression side of Bipolar II. The med I'm on doesn't seem to have weight gain as a side effect so I know it's my inactivity. I know that it will come off again when this dang blast winter goes away and I can be outside more. I have consciously tried to eat decent and exercize to the best of my ability but sleeping so much takes a toll.

 

The key to any weight loss is less calories in than you expend. We can really screw up our already sensitive metabolisms by trying different fad diets or starving ourselves. Balance. I've taught nutrition for many years. Balance in anything with us is the ticket.

 

Eat right (see a dietician if you don't know how), Exercize at least 3x a week, get enough sleep (sleep deprevation is a major cause of weight gain and retention), and for us...see our therapist, take our meds, keep stress at bay as much as possible.

 

Good luck!

 

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Marilynne, Community Member
12/11/09 9:18am

How can I loose weight on Seroquel

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JJHargs, Community Member
1/ 6/10 6:25pm

Meth, Crack Cocaine, and other illicit drugs would help you lose the weight you want to lose!  Hope this helps!!!

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Patrick54, Community Member
1/15/10 4:56pm

you"re a fucking idiot

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diva of all things good, Community Member
1/27/10 4:38pm

AWW the words from any known drug dealer or pusher. Hopefully no one will take you seriously. What kind of person would say that to people working hard to keep their lives together. You are just sad.

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alana, Community Member
3/19/10 10:21am

If no one else wants to admit to their true and utter desperation, I will.  I would never turn to illicit drugs like Meth to take care of my un-wanted weight gain but I'll say right now that IT HAS occured to me that it would probably help me lose the weight.  Unfortunately I care about my teeth, etc--not to mention my children...  I think the person who offered that opinion either is out to be a jerk or is feeling as hopeless as I am.  Who knows.  I just hope no one goes that route. 

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nabz, Community Member
5/11/10 12:18pm

To tell you the truth...it has also occurred to me :( NOT that i'd actually go and do it...but I am SO desperate!!! My freaking doctor is NOT takng me seriously about this weight gain!! AAAAARGH!

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kristine129, Community Member
9/28/10 5:37pm

Time to find a new Doc - this one is a moron - I was on 300mg of Seroquel for 8 years I gained 95lbs. weight was gradual but NEVER stops..ever. Without lowering your dose of Seroquel significantly you will not be able to lose weight & no matter what you try you will continue to gain. There are currently many class action lawsuits against the makers of Seroquel for hiding the severe weight gain consequences they were AWARE of & HID. Seroquel also has caused Diabetes in thousands who are also suing for hiding the fact that it does cause Diabetes, (the makers also hid that info) After lowering my dose from 300mg to 75mg I was able to easily return to my original weight of 105lbs. The only things that could help the insomnia & anxiety increase I had from lowering my Seroquel was Ristoril for sleep and Xanax for anxiety, although many doctors may not be willing to prescribe these because of the possibility of addiction. I talked with my Psychiatrist & we weighed the pros & cons of my new medication schedule, but since I have no history of substance abuse issues, and the weight gain was SOOOO depressing, we decided this was best. Plus I am no longer at risk of developing Diabetes, which I was very close to. now my weight & blood sugar are normal - don't know if I'll ever be completely off Seroquel - but you can reverse the problems it causes by keeping your dose at 100mg or less. Hope your Doc is as smart & open minded as mine - I did meet Docs that thought that the weight gain & diabetes were worth the risk to avoid perscribing benzodiazapines (narcotics) - those Docs are okay with you getting a life threatening illness - they just don't want you possibly addicted to anything cheap. The Docs who feel that way should have their licenses revoked. Healthcare should not about $ it should be about improving health & the risks of high doses of Seroquel do not outweigh the benefits, since lowering my dose to 75mg & adding the dreaded "narcotics" I am in much better physical & mental health than ever before(I have been in treatment of some kind for over 20 years).  

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too tired, Community Member
10/10/11 6:59pm

I took Seroquel 300 mg for five years for chronic insomnia and boy did I sleep but I was groggy in the morning.  I am up 30 pounds but dieted and exercised some off along the way, then it came right back.  All the while my psychatrist never mentioned that maybe it was my Seroquel.  *&%$#!  All I have to say is if you are just taking it for insomnia and your doctor won't take you off of it (as mine would not) then FIND A NEW DOCTOR!  That stuff is terrible.  I just spent a fortune on a diet program and followed it perfectly and lost 1/3 of what the average woman of my age should lose, and I was down to 50 mg of Seroquel.  My weight loss doctor said Seroquel is horrible for your weight.  My Pharmacist said, "Everybody gains weight on Seroquel."  I am on Tomazepam (sp?) and not sleeping very well.  Seeng my new psychaitrist this week to try something else.  If she can't help me I am going to a sleep specialist.  My body is really resistant to sleep.  If you can try another drug, do it.   

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needsleep, Community Member
10/24/11 3:45am

I am in the samee boat I cannot sleep I take 100mg of seroquel and ambien. I am trying to loose weigh but the night time eating is killing me. What have you done to get sleep. I just cannot sleep without something.

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Patrick54, Community Member
1/15/10 4:54pm

Im a 24 year old male who has always been an average weight 200lbs 6'2" until I started taking 300mg of seroquel each night a little over a year ago. I gained 100lbs in less than a year. I have been taking 30mg of adderallXR for the past 10 months and it has not helped me lose any weight.  I have been working out doing an hour of cardio everyday and strength training every other day for the past 3 weeks and eating less than 1500 calories of healthy food a day, and as a young male I thought I would have lost a lot more weight than I have (lost about 8lbs).  I just found out that doing cardio for a long time ,even if sweating alot, does not burn a lot of fat.  So I started doing HIIT high-intense interval training, which briefly means you go balls to the wall for a short amount of time your gonna burn more fat than long periods of cardio at a less intense pace. it has something to do with helping your body produce more catecholamine which triggers your body to burn fat and when you do a HIIT workout you will produce enough catecholamine for your body to continue to burn fat for an est. 36 hours. Since your time is constricted if you can do a 20min HIIT workout everyday it should help and just be thankful you only have 10 pounds instead of 100 to shed. good luck! check out this link to learn more on HIIT http://www.fitbuff.com/how-to-burn-more-fat-in-less-time-the-secret-to-hiit/

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eringobraugh317, Community Member
3/ 3/10 4:29am

I'm asking the same question. I have been on it for 3 months and have gained 15lbs. I am only 5-2, and have weighed a steady 105 forever. It's uncomfortable, and almost feels like water retention...from my stomach down to my feet. I've also noticed a craving for sugar and everything sweet. Here's what I've decided to do about it-limit my sugar intake, cut out soda's, eat more vegetables & fruit and drink more water. I"m 49 yrs. old, and even though I've never had to watch what I eat, nor worry about exercising, I've come to the conclusion that I'll have to start, my mental health is more important to me than my outward appearance. I suggest you find some form of exercise that's fun! I'm going to buy Richard Simmons, "Sweating to the oldies" tape, because I love the music, the exercises look fun and relatively easy, plus I love to dance. Good Luck!

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mlange, Community Member
5/ 5/10 9:32pm

According to this article's abstract: "Although lifestyle modifications can help to reduce some aspects of metabolic syndrome, lifestyle modifications in conjunction with metformin therapy appear to be most effective".

Brooks JO et. al. "Metabolic risks in older adults receiving second-generation antipsychotic medication." Curr Psychiatry Rep 2009 Feb;11(1):33-40. PMID: 19187706

 

Perhaps Metformin is a drug worth discussing with your psychiatrist, GP, or Primary Care Provider if you also uncontrolled weight gain. If you do try this drug, please follow-up on this board and let us know about it's effects.

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mlange, Community Member
5/ 5/10 9:34pm

I apologize, I meant to write "its" instead of "it's" above.

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Elizabeth, Community Member
4/17/11 4:16pm

Hi, I am currently taking 3000mgs(1500mgs with breakfast & 1500 mgs with dinner) of metformin to combat seroquel weight gain. I take 100mgs Seroquel before bed for PTSD related insomnia. I am 5'4'' and weighed 160lbs when I started the metformin and now 9 months later weigh 153lbs. 

 

I am not thrilled with the pace of the weightloss or the fact that I have plateaued at this weight for a number of months now, but I look at it this way - if I wasn't taking the metformin there is no doubt in my mind that the numbers on the scale would be heading the other way.

 

I love Seroquel for the sleep it gives me, as well as the slight boost I get for my depression and anxiety, but one day I am going to have to give it the boot. I have been doing Somatic Experiencing to help me with the PTSD and hope that one day my central nervous system will be calm enough to let me sleep without medication - at least medication that causes such an intractable weight issue.

 

In my opinion, the Seroquel doesn't just increase my appetite, it also slows my metabolism. I am very active and don't eat horribly so there is no reason that I should be stuck 20lbs over my natural weight. Just my own 2 cents.

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fiona, Community Member
5/ 9/10 11:05am

I take topamax for controling the weight.

 

It is also used for pain and migraines.   I know several people who where prescribed this with seroquel.

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iheartpeaches, Community Member
5/13/10 5:25pm

I was taking 200 mg of Seroquel and gained 25 lbs.  So I moved down to 150 mg in hopes that my weight would drop.  No luck.  I usually weigh 135 and now I am at 160.  I do 45 minutes of cardio a day, and I work out with a trainer for an hour and a half on Mondays, Wednesdays, and Fridays.  I am not losing weight, but since I started working out a month ago, I have not gained weight.  I have spoken with three doctors as well as a pharmacist and my trainer.  I have received several different ideas for losing it.  One is chromium picolinate.  I take 400 mg a day with a meal.  It is a vitamin that you can get at the drug store and it burns fat and helps convert to muscle if you are training.  I have not noticed a change in the scale, but definitely a change in appearance.  My arms look more slender and my calves are starting to look good.  My core is a little smaller, but b/c I am gaining muscle, I am not losing weight.  At this point, I am more concerned about the way I appear rather than how much I weigh and the weight training and chromium picolinate is helping with my appearance.  I am starting a cleanse that my trainer suggested today.  It is made by Advocare and it is called "Herbal Cleanse/ Metabolic Cleansing System." I have also been talking to a friend who had her thyroid removed.  She has had success getting B12 shots.  Locally, there is a place called Meditrim that administers these shots, so you might look for a place in your area that does the same.  The commercials for it say that it is like getting liposuction, without surgery.  And it's healthy, so I am all for that.  I am going to try the Fish Oil and the Fiber Capsules suggested in an earlier response.  Also, keep this in mind... Green Vegetables are free.  If you are hungry in the middle of the night you can eat pickles, edamame, green beans, broccoli, cabbage... really, anything that is green is ok to eat at night.  Carbs turn to sugar, so don't eat carbs after 6:00 in the evening.  Look for instant Jello and Instant Jello Pudding.  There are no calories, no sugars, no fat and that will help satisfy sugar cravings.  Elations (the drink) 1 gram of sugar and it's a sweet drink.  Crystal Light, not just as a drink, but as a popsicle.  Your body needs food to survive, so eat as much as you want (healthy foods).  Replace white carbs with wheat carbs.  Instead of white spaghetti, eat wheat and whole grain noodles.  Brown rice, instead of french fries.  Grits, oatmeal, sweet potatoes... all good for you... especially if you want to lose weight.  I have been following this diet for one month.  I have a cheat meal once a week to satisfy cravings.  I have not lost weight, but my appearance is better.  My face has dropped that swollen look, my belly is a little tighter, my arms and calves look great.  Like I said, I am about to add B12 shots, herbal cleanse, fish oil, and fiber, so hopefully that will work.  I have battled this issue with Seroquel for long enough.  I know that there has to be a way to win without giving up the medicine and acting as out of control as I used to.  I will try to follow up after I try the new ideas.  Hope this helps a little.

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sirena89, Community Member
5/27/10 2:20am

My doctor wants me to start taking Seroquel. I have depression and anxiety and many bi-polar symptoms. I also have on-coming symptoms of schizophrenia. I am already taking Wellbutrin and I want to begin to take the Seroquel because i have heard many good things and I know that I do need the help. I have also heard many things about weight-gain and fear gaining weight; my self-esteem and anxiety couldn't handle that very well. Does anyone know of anything i can do to prevent the weight-gain before it happens?

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Colleen, Community Member
2/10/11 11:17pm

I have bipolar 1 and  been taking Serequel now for 3 years and I am also a type 1 Diabetic I have 5 injections a day but as of yet I have not gained any weight in fact I have lost 30 Kilos sorry as I  dont know the diversion in pounds I just make sure I dont over eat this takes willpower but does work I must admit that my dose of serequel has just been increased from 100mg at night and 25mg in the morning to 50mg in the morning and 100mg at night  I also take 200mg in the morning of Lamactil and 400mg of Lamactil at night I sincerely hope the extra dose of serequel doesnt affect me but I can assure you it is not wise to stop or decrease you meds without a doctors advise or monitoring as the side affects of this are severly extreme, believe me I have been silly and done just that and have ended up having to be put into hospital for up to 3 months. I believe only a psychiatrist should monitor and prescribe this sort of medication as General practitioners dont have enough knowledge or experience to correctly prescribe such psychotic and mood stablising drugs successfully. On this Medication I am a completely a different person my moods have become stable my depression episodes have decreased dramaticly. Please if your specialist has prescribed this medication discuss with him your concerns about any weight gain and ask him how this can be addressed and be firm with him that this is a major concern for you  I am not a drug company or representitive of any kind just a fellow sufferer of Bipolar as type 1 which is the most severe kind Please let me know if this post has helped at all. I would like feedback.         

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sirena89, Community Member
2/11/11 12:35am

Thank you so much, it really does help to hear that you haven't gained weight, its the first i have heard! but it makes a big difference. i stopped taking it without really giving it a chance but i moved away for school back in October and have tried to be in contact with my doctor to find a solution and all he had time for was a 5 minute phone consultation and an Rx for Clonazepam... which does nothing at all. in the short amount of time he had, i told him i was sleeping for the most 2-3 hours a night because of my insomnia and therefore everything else was getting that much worse. i called back to tell him many times and still have not heard from him.. and that was in November. i still have my Serequel Rx of 25 & 50 because i didnt take it for long because of the weight fear before but for the very short time i was taking it, i did feel better so i have been trying to remember to take it to try and get myself on track again, ive been having angery mood swings but i'm very much hoping that after it gets into my system that it will settle out for me. again, thank you for responding! it truly means a lot to me!

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Colleen, Community Member
2/11/11 5:32am

I apreciate your response to my post it does take at least 2 weeks or more for you to really feel the effect of Serequel. My mood swings were unbelievable one minute on an extremely high and the next angry then in the deepest of depression where suicidal thoughts were in my mind this could all happen within a day or 2. The small amount of Serequel dose that you have been prescribed should not affect your weight I personally believe the pro's and cons should be weighed up. What is more important weight gain which can be managed if guided in the right direction or severe mental health issues?  I stick to a diabetic diet and I believe that is a contributing factor to keeping my weight down. Unfortunately most bipolar sufferers feel they dont need their medication because they are feeling better  and then believe I dont need this, I feel good now, but it is quite the opposite they are feeling better because of the medication. My personal opinion is my personal opinion only but from my own  experiences you desperately need to change your doctor and keep looking till you find a doctor who will respond to your inquiries but most doctors these days dont advise over the phone they really do need to have you go to their rooms to discuss all issues you may have. that is the professional way to do it.  Please dont try to be your own doctor let your professional psyciatrist do this for you. I have found over many years of study on Bipolar and the many therapies that are available to help manage this crippling condition. Self diagnosis and changing medications without GOOD medical advise is a dangerous thing to do. I have suffered this crippling desease now for 14 years or mabye longer but I have found medicaton and continual therapy which you must be viligant about will change your whole world for you As I have previously said this is a personal opinion but one mad with a lot of ups and downs and when you find the right method to remain in good health STICK TO IT. I sincerley hope that I have not come across as a know it all, but just a long time sufferer who has finally found acceptance and peace in my world.   

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Colleen, Community Member
2/11/11 5:32am

I apreciate your response to my post it does take at least 2 weeks or more for you to really feel the effect of Serequel. My mood swings were unbelievable one minute on an extremely high and the next angry then in the deepest of depression where suicidal thoughts were in my mind this could all happen within a day or 2. The small amount of Serequel dose that you have been prescribed should not affect your weight I personally believe the pro's and cons should be weighed up. What is more important weight gain which can be managed if guided in the right direction or severe mental health issues?  I stick to a diabetic diet and I believe that is a contributing factor to keeping my weight down. Unfortunately most bipolar sufferers feel they dont need their medication because they are feeling better  and then believe I dont need this, I feel good now, but it is quite the opposite they are feeling better because of the medication. My personal opinion is my personal opinion only but from my own  experiences you desperately need to change your doctor and keep looking till you find a doctor who will respond to your inquiries but most doctors these days dont advise over the phone they really do need to have you go to their rooms to discuss all issues you may have. that is the professional way to do it.  Please dont try to be your own doctor let your professional psyciatrist do this for you. I have found over many years of study on Bipolar and the many therapies that are available to help manage this crippling condition. Self diagnosis and changing medications without GOOD medical advise is a dangerous thing to do. I have suffered this crippling desease now for 14 years or mabye longer but I have found medicaton and continual therapy which you must be viligant about will change your whole world for you As I have previously said this is a personal opinion but one mad with a lot of ups and downs and when you find the right method to remain in good health STICK TO IT. I sincerley hope that I have not come across as a know it all, but just a long time sufferer who has finally found acceptance and peace in my world.   

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niecy2211, Community Member
6/ 6/10 9:59pm

I have been on seroquel for two months and i cant lose weight and i also continue to gain weight i am 5'1 and i am a solid 200 lbs imagine how that looks on me i dont know what to do because the medicine is really helping me i am only 19 and i feel uncomfortable with myself i need answers and i plan to find them it feels good to know that im not the only one experiencing this

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kristine129, Community Member
9/28/10 5:35pm

I am 4'11" went from 100 to 200 back to 105 here's how-I was on 300mg of Seroquel for 8 years I gained 95lbs. weight was gradual but NEVER stops..ever. Without lowering your dose of Seroquel significantly you will not be able to lose weight & no matter what you try you will continue to gain. There are currently many class action lawsuits against the makers of Seroquel for hiding the severe weight gain consequences they were AWARE of & HID. Seroquel also has caused Diabetes in thousands who are also suing for hiding the fact that it does cause Diabetes, (the makers also hid that info) After lowering my dose from 300mg to 75mg I was able to easily return to my original weight of 105lbs. The only things that could help the insomnia & anxiety increase I had from lowering my Seroquel was Ristoril for sleep and Xanax for anxiety, although many doctors may not be willing to prescribe these because of the possibility of addiction. I talked with my Psychiatrist & we weighed the pros & cons of my new medication schedule, but since I have no history of substance abuse issues, and the weight gain was SOOOO depressing, we decided this was best. Plus I am no longer at risk of developing Diabetes, which I was very close to. now my weight & blood sugar are normal - don't know if I'll ever be completely off Seroquel - but you can reverse the problems it causes by keeping your dose at 100mg or less. Hope your Doc is as smart & open minded as mine - I did meet Docs that thought that the weight gain & diabetes were worth the risk to avoid perscribing benzodiazapines (narcotics) - those Docs are okay with you getting a life threatening illness - they just don't want you possibly addicted to anything cheap. The Docs who feel that way should have their licenses revoked. Healthcare should not about $ it should be about improving health & the risks of high doses of Seroquel do not outweigh the benefits, since lowering my dose to 75mg & adding the dreaded "narcotics" I am in much better physical & mental health than ever before(I have been in treatment of some kind for over 20 years).  

Reply
97 Harleyman, Community Member
6/13/10 12:48pm

I too am bipolar II. For many years I was on Lithium. After the 10th year it almost killed me. I was losing it bad. I lost some clients(I'm a CPA) and my family was very concerned. I had a white chalky look. I had Lithium toxicity and my test resilts didnt show it until it was too late. Thank God for my wife she dragged me to an Endocronolgist who discovered my toxicity. I got off lithium and onto Seroquel (400mg) and Wellbutrin(300mg). I haven't felt his good mentally in 40 years(since puberty) I am 54 male.  Seroquel actually reduced my appetite, but made it impossible to lose any more weight. I am 40-50lbs overweight and it won't budge. I fluctuate 3-4lbs up and down each week, I dont gain but I dont lose . My sex drive is not what it used to be. I'm italian and used to go forever. Not anymore. Oh regarding Topomax, it changed my personality so bad , my wife almost left me. It should be called Dopomax. Does anyone out there have any suggestions? Sorry for the lenghty sermon, but it was some therapy for me.

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anonymous, Community Member
6/19/10 2:54pm

ask your doctor about adding in topamax...

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Jerseygirl918, Community Member
6/20/10 12:43pm

I'm reading this and don't know whether to laugh or cry.  i've been taking topamax for 5 years fo migraine prevention as well as for bipolar - 4 years ago Seroquel was added to my meds and my weight has never been the same.  i went to a dr that specialized in weight loss with a 1000 calorie diet and a personal trainer and i still can't get it off.  i'm currently taking 200 mg Topamax and 100 mg Seroquel + 150 Lamictil and going to a nutritionist and i'm stuck at 150 lbs at 5'4.  i've been as high as 180 lbs and want to be 135lbs.  It's so frustrating to work so hard, eat right and exercise, with the help of professionals, AND want to be mentally healthy.  I tried going off Seroquel once and hated the way I felt. 

 

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b_woodward, Community Member
7/ 6/10 11:52am

I'm on Seroquel too, along with Lithium, Zonegran and Wellbutrin.  The Seroquel dose is 900mg for me and the Zonegran is being used as an appetite suppresant.  I have tried a laundry list of drugs with no success and didn't want to try Seroquel because of the weight gain issues.  But when it came down to it, I had no choice.  It has been the only thing that has controlled my cycling so that I can live a normal life.  Thanks to the my doctor, he prescribed the Zonegran which took away that awful hungry feeling you have all the time with Seroquel.

 

I exercise everyday and eat healthy.  I have been unable to lose weight.  I'm not sure if the Seroquel messes with the metabolism but it seems like that's the only answer to my weightloss problem.  I'm training to run a 5k in September and have been running for 4 weeks now with no weightloss whatsoever.  It's very frustrating when your working so hard and getting no where.  So I just wanted to let you know I know where you're coming from.  Except I'm at a much higher weight than you.  I hope things get better for you.

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kristine129, Community Member
9/28/10 5:31pm

I was on 300mg of Seroquel for 8 years I gained 95lbs. weight was gradual but NEVER stops..ever. Without lowering your dose of Seroquel significantly you will not be able to lose weight & no matter what you try you will continue to gain. There are currently many class action lawsuits against the makers of Seroquel for hiding the severe weight gain consequences they were AWARE of & HID. Seroquel also has caused Diabetes in thousands who are also suing for hiding the fact that it does cause Diabetes, (the makers also hid that info) After lowering my dose from 300mg to 75mg I was able to easily return to my original weight of 105lbs. The only things that could help the insomnia & anxiety increase I had from lowering my Seroquel was Ristoril for sleep and Xanax for anxiety, although many doctors may not be willing to prescribe these because of the possibility of addiction. I talked with my Psychiatrist & we weighed the pros & cons of my new medication schedule, but since I have no history of substance abuse issues, and the weight gain was SOOOO depressing, we decided this was best. Plus I am no longer at risk of developing Diabetes, which I was very close to. now my weight & blood sugar are normal - don't know if I'll ever be completely off Seroquel - but you can reverse the problems it causes by keeping your dose at 100mg or less. Hope your Doc is as smart & open minded as mine - I did meet Docs that thought that the weight gain & diabetes were worth the risk to avoid perscribing benzodiazapines (narcotics) - those Docs are okay with you getting a life threatening illness - they just don't want you possibly addicted to anything cheap. The Docs who feel that way should have their licenses revoked. Healthcare should not about $ it should be about improving health & the risks of high doses of Seroquel do not outweigh the benefits, since lowering my dose to 75mg & adding the dreaded "narcotics" I am in much better physical & mental health than ever before(I have been in treatment of some kind for over 20 years).  

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krivers, Community Member
7/16/10 3:46pm

i am bi polar and i am on lithuim and seriquil. i have struggled with my weight also i use to be 125 pounds and nor im 175 i ve never been this big in my life and i ve had two kids.. i have tried exercise and all kinds of diets and the adkins one works the best but lost weight very slowely. i personnelly got tired of waiting for the weight to com eoff at one point i only ate dinner and exercised two hours a day but if i missed a day or two of exercise the weight i lost that week was back on in the matter of two or three days. if anyone figures out how to lose more then just a couple pounds let me know im so tired of being fat. my kids remind me of every day

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trios, Community Member
9/15/10 11:12pm

When I first started Seroquel I gained 60 pounds in 2 months without changing my eating. I tried every diet and exercised constantly. The only thing that worked for me was the Atkins (low carb.) After consuming only 20 grams of carbs per day while taking the Seroquel, I lost 50 pounds in 3 months. Hope this helps

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erica123, Community Member
2/ 9/11 11:51am

Trios

 

Just found your post. im on low carb (cavemen diet) and have my fingers crossed. after 9 days ive lost 3.5 pounds. will see how it goes!

 

Erica

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kristine129, Community Member
9/28/10 5:28pm

I was on 300mg of Seroquel for 8 years I gained 95lbs. weight was gradual but NEVER stops..ever. Without lowering your dose of Seroquel significantly you will not be able to lose weight & no matter what you try you will continue to gain. There are currently many class action lawsuits against the makers of Seroquel for hiding the severe weight gain consequences they were AWARE of & HID. Seroquel also has caused Diabetes in thousands who are also suing for hiding the fact that it does cause Diabetes, (the makers also hid that info) After lowering my dose from 300mg to 75mg I was able to easily return to my original weight of 105lbs. The only things that could help the insomnia & anxiety increase I had from lowering my Seroquel was Ristoril for sleep and Xanax for anxiety, although many doctors may not be willing to prescribe these because of the possibility of addiction. I talked with my Psychiatrist & we weighed the pros & cons of my new medication schedule, but since I have no history of substance abuse issues, and the weight gain was SOOOO depressing, we decided this was best. Plus I am no longer at risk of developing Diabetes, which I was very close to. now my weight & blood sugar are normal - don't know if I'll ever be completely off Seroquel - but you can reverse the problems it causes by keeping your dose at 100mg or less. Hope your Doc is as smart & open minded as mine - I did meet Docs that thought that the weight gain & diabetes were worth the risk to avoid perscribing benzodiazapines (narcotics) - those Docs are okay with you getting a life threatening illness - they just don't want you possibly addicted to anything cheap. The Docs who feel that way should have their licenses revoked. Healthcare should not about $ it should be about improving health & the risks of high doses of Seroquel do not outweigh the benefits, since lowering my dose to 75mg & adding the dreaded "narcotics" I am in much better physical & mental health than ever before(I have been in treatment of some kind for over 20 years).  

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Chris, Community Member
10/28/10 10:17pm

I can't believe all the feedback.  Ask the psychiatrist if you can swap the seroquel for something else.  I'm struggling with weight gain (i'm not on seroquel, and never have been), and I don't know where it's coming from.  I've amped up my exercise, and am scrutinizing what I eat.  I use livestrong.com, myPlate to track my calories in and my calories out.  My boss is convinced that high-fiber foods are good (what weight watchers points are based on).  I'm in the process of switching from a 3-day p/week to a 6 day p/week exercise routine. 

 

Chris

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nick1981, Community Member
11/10/10 3:19pm

anyone try amantadine (symetrell) to counter weight gain from Seroquel?  I have been trying metformin for over 6 months and unfortunately have not lost any weight, although my weight stopped gaining.  I went from 160 to 185 from Seroquel only 50mg per day.  I went from 500 to 1,000 mg of metformin per day and nothing.  I also don't feel that hunger is the problem seroquel is causing because I have been eating pretty lightly most days, I think its more the metabolic problems.  I recently saw some things on Amantadine, any know if this is worth trying?  

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LYNJN, Community Member
8/ 6/11 10:47pm

THANKS FOR THE HELP WITH SYMETRELL   IM ASKING MY DOCTORFOR IT BECAUSE I CANT  KEEP GAINING  AND   I CANT THANK YOU ENOUGH . I'LL SEARCH THE MED AND SEND IT OUT

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Kathryn R, Community Member
11/30/10 9:01pm

I have had some success with loosing weight on Seroquel by going to a drop in Centre CAG and mixing with people. Now the drop in centre is closed due to lack of funding. It was a relaxing and casual environment for morning tea not a therapy centre. I'm not into diets as they are a life style change and I don't need that. I went from 1000ml Seroquel a day to 400ml and lost about 5kg. Some stairs were involved.

I have read that when you eat you never feel full when taking seroquel but I'm a binge eater and it took three of my friends to discover that it was my home environment that was troubling me.

I had known that Environments and Colours play a big part of our lives. How to remove myself from one environment and go to another, physically and mentally.

You may remember how true colours are distorted when you suffer depression?

The Decor Colours affect how we feel and sometimes in my case when things are not in the right place, this bugs me.

However I can stop myself from eating by saying 'do I have the need to feed' all these words are not connected to words of hunger, eating, diet so I don't get put off by saying no to food. I also have snacks in between food at 350kj and have had a stable weight with in 1Kg in the last 3years.

I'm 100Kg, I also have Type 1 Diabetes and an Under Active Thyroid. I window shop walk about 3 hours a week and not on a diet. 

Hope this may help. Always Rely on three friends for advice.

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Kathryn R, Community Member
12/ 1/10 5:12am

I'm a binge eater and it took three of my new friends to discover that it was my home environment that was troubling me. Everything was not in the right place. I had known that Environments and Colours play a big part of our lives. How to remove myself from one environment and go to another, physically and mentally.

 

The Decor Colours and Placement effect how we feel and in my case when things are not in the right place this bugs me.

 

I have a trick I've developed that can stop me from eating. I say to myself 'do I have the need to feed' all these words are not connected to words of hunger, eating, diet so I don't get put off by saying no to food. When you reply ‘No' the Brain cloaks the whole body. Sounds strange but try it and you can see for yourself. It is how you get to a place of wellbeing. If you say ‘Am I hungry?' you feel your belly and you're bogged down and depressed.

 

I had an intellectually handicapped autistic Brother (24yrs/18mths mental capacity) and realised how in his life he constantly was doing things that made him happy. Isolated in his own mind he developed on his own things that made him feel good. You need to listen to the brain, eg. A fashion colour may look good but stop and say ‘how do I feel?' A good exercise is to go into a store and put materials up to your cheek and study how the Brain works.  I tried this and found 3 fur throws gave me three different types of feelings. So I now know that I am aware how to change the brain (3 times). This is very individual and you can only develop it on your own, and develop your own stratagies. It took me about three years on my own.

 

Mind you I only use this 'do I have a need to feed' trick now and again because I love food and food craft. I also have snacks 350kj in between meals and have had a STABLE weight with in 1Kg in the last 3years.

 

I'm not a life changer, I'm 100Kg, take 400ml seroquel and I also have Type 1 Diabetes and an Under Active Thyroid. Hope this may help.

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Maria, Community Member
8/ 2/11 4:14pm

Love your food hunger trick. im going to try it on food and by compulsive shopping habbits.  you rock!

 

thanks for your post.

 

many blessings to you and ur family

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soberlunatic, Community Member
12/ 3/10 10:41am

I have successfully taken Seroquel for over 5 years now, and my weight has fluctuated accoridng to the dosage and the tolerance I develop over time. My Dr. also prescribed Zonegran, and migraine and seizure medication that has mood stabilizing effects, as well as acts like an appetite depressant while taking anti-psychotic medication.  I have at times developed a tolerance to Zonegrant and have needed to adjust the dosing or stopped it for a while to regain tolerance.

 

Weight watchers is helpful because of the points, portion sizing and encouragement to eat healthy foods.  Anti=psychotic medications increase your craving for carbs, and there are healthier and less-weight gaining foods.  I find that if I eat a fatty meal before I take Seroquel, the medicine kicks in faster.  I also have taken the XR and the regular seroquel, and I find that the regular increases my hunger immediately, while the XR spreads cravings through the day.  I guess it depends on what you want.

 

Weight gain is not inevitable, but how much can be prevented.  Apples and high-fiber foods satisfy hunger longer and won't pack on the pounds.  I found that after a while, I chose to stay on seroquel because of it's benefits instead of taking myself off because of my vanity and cholesterol.  I just need to be more careful about what I eat when I am "starving," and make sure I exercise. 

 

I once weighed 195, lost 30 pounds on Seroquel, then gained some back, and am now losing again on Weight WAtchers.

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rockymtnlily, Community Member
12/12/10 5:13pm

I would like to know the answer myself. I was on 500 mg of Seroquel and I gained 60 pounds. I finally had to flat out refuse to take it anymore before my doctor found me something else. My doctor said after I stopped taking it I would lose the weight and I haven't. That was two years ago. I watch what I eat and I exercise regularly, I have tried Slim fast, Alli and others. Nothing has worked. I would like to know if other people have had the same problem. I just can't seem to get below 200 lbs no matter what I do.

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sunny_03, Community Member
1/17/11 4:48am

I have to opine on this since ive had a long and tumultous 5 years with Seroquel.  there were benefits but i have definitely been more depressive and i believe, it is due to the weight gain.  i had gained 20 lbs (alot for my small frame of 5'2" and living in LA lol) I tried everything from obsessively working out, green diets, starving, trainer, 6 meals small meals a day, and finally, lipposuciton!  Guess what!  I qit taking the Seroquuel and 10 pounds fell off in a month.  The appetite this drug unleashes at night in me for carbs and sweets was impossible to overcome and i hae decided t go natural.  our brains are naturally made to repair and overcompensate for checmical embalances and things like meditation, lifestyle changes and postivie attitude is working for me.  No longer will i sbject myself to being pathologized by docs, pharmecueutical and insurance companies and hooked on these pills that actally hae way more negative effects than postitive.  i do believe topamax is a great altrenative that does not make yo gain weight but in the meantime i am trying the natuural route.  after 5 years of feeling like a fat zombie (that didnt want to go outside since i was so fat) it is counterproductive to my mental state.  i can feel the sunlight and hear the music again and i am happy.  i am certainly not a doctor, just sharing my experiennce!  i think these drugs are way overprescribed and should be reserved for extreme cases, not just people with insomnia etc.  theside effects are too dangerous - my theroid was affected in tests which wound me up on theroid pills errouneously and i feel like a checmistry experiment.  i want my true self back and 2 weeks of seroquel that is exactly what im getting :) peace and good luck on your journey

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sovietborne85, Community Member
2/ 1/11 11:57pm

move to africa, live their life for a month, your depression will float away and you'll loose more weight then you ever dreamed of!

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erica123, Community Member
2/ 8/11 9:43am

i hear ya. i am reading all of these posts and getting more and more depressed.  i googled "how to lose weight on seroquel" hoping i may find some wonderful news but alas.  just a repetition of my story, over and over again.  i am taking 200mg of seroquel at bedtime. was taking 400mg before and still not losing.  i gained 50 lbs very quickly and cannot for the life of me take it off.  recently i went on the "caveman diet".  which basically restricts sugar, flour, pasta, bread, rice and potatoes.  actually i eat none of those things and normally would lose very quickly. so far i lost 4 pounds in a week but i know how this drill goes.  i will probably stop losing after maybe one or two more pounds, and level off. then i will realize that it doesnt even matter if im dieting (i also exercise religiously which makes me feel good and does some toning, but doesnt make me lose weight. in fact it makes me even more hungry!). 

 

i remember reading an article by carrie fisher who is bipolar (she played princes leia in star wars).  she said being bipolar makes you ugly. that resonated with me because the drugs may be effective (some of them) but have so many bad side effects (most of them.)  anyhow, im just about ready to taper off my seroquel (w/o doctor knowing) just to see if i can lose some weight. ive had it. we will see because when i was off of seroquel before i got very manic so ill have to see how it goes.

 

sorry for such a long post. id love to hear from anyhow who can relate!

 

Erica

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GabrielleC, Community Member
2/ 9/11 5:28am

Hi all, sorry this is kind of long but I'm just seeking advice. I am just finding this blog after several attempts at googling "seroquel and weight gain" and I instantly didn't know whether to laugh or cry. I am a twenty year old female who has been on seroquel for 18 months. At first it was 100 mg and now I am up to 600mg. I have asked about getting off of it but my doctor insists that I continue it because it's "the cornerstone" in my treatment. I started gaining weight whenever it was increased to 200 milligrams. Since then (about 10 months) vie gained 45 lbs. At the beginning of college I attributed the weight gain to the freshman fifteen but after that I realized that there was more to it. In HS I played 3 sports on both the HS and national level, I was toned and in shape and had the capability of losing weight or looking good whenever I pleased and merely two years later my life has been taken over by the medication and my new found obsession with humiliation. I have cancelled spring break (I refuse to be on the beach) and have lost many friends due to my lost motivation because it sickens me nearly everyday to see what I have been morphed into. Its been 2 years since I graduated HS and my classmates and close friends do not even recognize me. Most blogs that vie read on here have talked about taking 100-200mgs. I am up to 600 now and I feel that it is a lost cause. I'm pretty sure that along with my BPII, ive gained an entire new set of severe anxiety causing hours of sleep deprivation, ranging from 30 hours to 96, and weeklong periods without eating from the anxiety that I get when I look in the mirror. Working out doesn't work, low carb doesnt work, even reducing myself to a one meal, 2smoothie king low calorie proteins a day. I feel like a lost cause. My doctor keeps asking me to wait it out. I'm tired of waiting. The girl that I look in the mirror and see horrifies me. I no longer wear tank tops or even athletic shorts due to the stretch marks covered by my body and have resorted to sweatpants and ovresize teeshirts because it makes me feel alright to walk out of the dorm and onto campus. I went from secure and active to depressed anxious and humiliated. I'm just wondering if anyone can give me any insight on gaining a leg to stand on regarding this situation. Like I said, I'm young, I've "conquered" my BPII (dr said this is only because of the seroquel, even though I take lamotrigen, oxcarbazepine, Xanax xr, along with lunesta and diphrenhydramine together to aide in my sad attempts to sleep) and my moodswings and racing thoughts have subsided for the first time in my life. I don't know if its even worth it anymore, do I get off of it and risk the progress vie made or do I suffer through it and try to get through college and onto medical school hating the way I look (ESP if I keep gaining) I'm fed up, I'm beat down and I just would love to hear if anyone has any positive feedback. Thanks so much.

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erica123, Community Member
2/ 9/11 11:48am

Gabriel

 

I think that probabaly most everyone who has posted on this website can relate to you.  The sad truth that I have come to know is that the only effective treatment w/o too many side effects that I have found is seroquel.  So, like you said, its either manic or fat.  Im right there with you.  I am 46 years old and very athletic.  I take 200mg. I used to take 400 but found I could do as well on 200mg. The thing I have noticed, however, is that I seem to gradually build a tolerance to it and eventually become manic and unable to sleep.  I got sick of the weight gain when i was taking 400mg and switched to lithium which i couldnt tolerate. it felt like poison in my body.  Lamictal I found was effective but i got a rash which couldve been indicative of a dangerous and life threatening reaction (this is common with lamictal).  And risperdal made me feel just awful!  I think i have tried everything there is.  The thing about seroquel is that it works so incredibly well to tame the BP and to aide with sleep but that one horrible side-effect, weight gain, is enough to make you reconsider whether or not its worth taking.  Im at a point where Im trying one last time to lose weight since im now on 200mg and being really careful about my diet.  Im doing the low carb which used to keep me at a size 2 prior to seroquel, but now im a size 14-16 and have gained over 50 lbs.  Ive been on the diet for 9 days (yes im counting!) and have lost 3.5 pounds.  The thing is I know this might just level off and I stop losing no matter what I do.  But this is my last ditch effort and Im going to see if it works.  If it doesnt Im going to decide which I can live with, being manic and thin, or sane and fat.  My family and my husband are 100% behind me and my husband truly understands and accepts my weight gain which is fantastic.  My advice to you, after all of this babble, is to weigh your options. I would never go against doctors advice though.  But perhaps you can talk to your doctor about options. Have you tried other drugs to treat the BP that dont cause weight gain?  Have you considered a lower dose?  Im not sure how much of a difference a lower dose would make. im investigating that now!  anyhow, keep in touch and let me know how things go!

 

Erica

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Di, Community Member
3/24/11 5:30pm

Gabriel -

I just left my doctor and he suggested using Seroquel on an as needed basis.  All that aside, I have found wonders in using 400 mg Topamax (losing 20 pounds when I was at my heighest- - I am 5' 1" and now about 102 pounds), Lamictal, and Wellbutrin - 300mg.  It has changed my life.  Also a "Happy Lite" for SAD, as I live in New England.  Amazing.  Just my thoughts. I lost the weight in about 2 months.

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Elizabeth, Community Member
4/17/11 4:35pm

I am so sorry to read how unhappy this is making you and can totally understand why you feel frustrated. 

 

My advice to you is to get a second opinion. It's possible that you don't need to be on all of these drugs or at least not on high doses of them. There is such a thing as pdoc's prescribing too aggressively, and you owe it to yourself to make sure that there isn't another way for you to go. Seroquel is a good drug, but it is also a huge moneymaker for Astra Zeneca and BP II can treated with other medications.

 

Good luck and I hope that you are able to find some peace with this soon.

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GabrielleC, Community Member
2/ 1/12 10:53am

So i first posted on here about 11 months ago because i had gained 45 lbs on seroquel. I was on 600mg and after my doctor increasing my dose to 1200mg every night, i had not only gained 45 lbs, but my weight skyrocketed almost immediately and by this past october i was 65 lbs heavier than the day that i started taking the seroquel. My doctor is relentless and the other psychiatrist that i saw said that since ive been on the medication for 2 years and its been working so well, ive not had a manic episode in over 7 months so i guess it justfifies his persistence. But anyway, after doing plenty of research, i read somewhere that seroquel makes it next to impossible for your body to metabolize the carbohydrates and sugar that you are taking it. So, 2 months ago i started a self modified of the Atkins diet which is no carbs, high protein/veggies (i know most people think its really bad for you, but since ive been on it, my LDL (bad cholesterol) has gone down significantly as well as the triglycerides, and my HDL has increased very significantly. Basically my diet consists of meats and fish, a salad practically everyday, and pretty much zero simple sugar. I try and stick to less than 25g of carbohydrates per day and i use brown rice, wheat pasta etc whenever i think its appropriate to venture into carbs for that day. My diet is not as strict as the one that is in the book, but in 2 months an 18 days i have lost 36 lbs! and that is with ZERO exercise. My brother in law who was also on seroquel (only 100 mg Frown) and had gained 20 lbs has done the diet with me and he has lost 22 lbs in this time frame. I encourage yall to atleast look into it, i finally have that weight of the severe weight gain on my shoulders. and while i still have about 30 lbs to go, my future is bright! (and i need to start working out again)!

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nd4spd190, Community Member
2/16/11 3:08pm

Hello I am on zoloft for depression and seroquel for the rest lol. I have experienced a large increase in my appetite especially for sugars. I believe that while studying the chemical makeup and how seroquel actually effects the brain that the reason for the increase is the medication. I am a male 30yrs old 6' and about 250lbs. After being on the serequel for only 3 weeks I noticed a 8 lb increase. I work out every morning doing no less than 30 mins of cardio and 30 minutes of weight training. I have worked out my entire life and I am not a stranger to the gym. I slowly came to the conclusion of my cravings subtracting all other options for it. I currently take clenbuterol and cytomel to aid in my wieght loss feel free to google them. I will be consulting my doctor in the next week about an appetite surppressent. I am able to obtain phentramine where I live and will ask the doctor what type of adverse reactions I might have taking the meds together.

By the way I drink a slim fast for breakfast have a banana in between bfast and lunch have a healthy meal for lunch another type of fruit in between lunch and dinner and a slim fast for dinner, usually a bowl of popcorn with dinner to just fill the void. This low calorie diet still has gained me weight and it is under 1000 calories a day and with my cardio every morning I should not be gaining weight.

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taurusg32, Community Member
3/ 8/11 3:22am

Well watch it - cos Im about to tell you a truthful tale about myself - I'm male and was 10 stone 3 pounds and Im 5' 8" - I have always been really thin - this was really my ideal weight (I was 35 then) - Depression hit me hard and fast - I went back down to being bony and skinny - when I was 19 I used to have to drink these protein shakes to make me look healthy as I hated being so skinny (at that time I was around 8 stone. 

Well 2 years ago I was admitted to hospital after trying to commit suicide (not recommended) - it was there they tried Quetiapine - I noticed within a few weeks I felt better, happier, more in control - I slept better - Life itself was so much better - but I started putting weight on - I didnt mind at the time because I had never felt so good and having a little bit of weight on was a novelty - Id never had weight on - and when people said 'your putting the weight on I used to laugh - Id never had anyone say that - normally in my past it was always - ooh arent you thin - (looking back - I wish I'd said - 'your only effin' jealous, ya fat git - lol.

Well after 8 months I gained - weight for it

'pun intended'

10 and a half stone - I weighed in at 21 1/2 stone - I was massive - so then I realised my depression hadn't gone away I had simply eaten it.

To this day the Doctor denies that Seroquel can make you put weight on.

Quetiapine (Seroquel) - When a person eats - their body tells them when they have had enough - Quetiapine takes that away - your appetite is never satiated - I have lost 3 1/2 stone since and I am just under 18 stone - I have 7 stone to go - and I will do it!!! - carrot sticks, low calorie cupa' soup - ditch the bread  /dairy / deserts - BUT -(I was never a fan of sweet things anyway so that has never been the problem) - mine was crisps and bread + cheese and never let anyone tell you that you can have even a small amount of those foods when you are on Seroquel - if you want your waist line trim  - You Can't have it AT ALL!

So be careful!!!!

To lose the weight I tried dieting - everything under the sun - and it was getting to the stage where I was having difficulty walking and moving about - all in the space of 1 year at most.

To lose it - I cut EVERYTHING OUT - cos on Seroquel your body doesnt even burn things off at the same rate - everything slows down - so well to put it mildy - my little shih - tzu eats more in volume than I can (or I should say than I will allow myself) - but that is the only way I have been able to do it - and thank goodness for great appetite suppressants (Ill not list the ones I used cos then it makes my whole story an add for some brand or commercial product).

So take care and keep an eye on the Seroquel - and be careful you don't start wearing elasticated jogging bottoms cos then you can really jump clothes sizes without really noticing it.

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Drummer, Community Member
3/26/11 7:50pm

I have been on Seroquel for 4 months at 200 mg and 400 mg and I have gained 32 lbs.  I eat less and gain more.  The drug works great but the weight gain out weighs it's benefits.  Bummer.  I have heard you can go up 60-100 lbs on this medicine.

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Tarcy, Community Member
4/ 7/11 3:04pm

I have no answer, I'm actually answering the same questions.  I have the eating disorder history also.  Just wanted to say to hang in there. 

 

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tjlovelocke, Community Member
4/ 7/11 5:25pm

hi im tj i had by pass three yrs this may i got down to a uk size 8 from 22 but put a little back on so i was a 12  in the last five weeks i been taking epilin for persanality disorder i now a size 16 uand going up it not fair dnt know weather to change meds .

                               

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christy, Community Member
4/14/11 2:43pm

I know what you are going through. I've been taking seroquel XR 300mg, wellbutrin XL 300mg,vistaril 25mg & buspirone HCL 15mg. This medicine has changed my life. I have been taking it all for almost 2years. (I'm Biploar) I look at it this way. A year ago I hit rock bottom. I almost lost everything and I didnt care. I put my friends and family through HELL. Then I was put in a mental hospital & it was the best thing that could of ever happened to me. I have gained weight being on the medicines but I'm a better person today because of the medicines. Weigh out your options. Would you rather be a sane person or over weight?? Life is short and life is hard, but you deal with it. Choose your battles (weight shouldnt be one).  

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Hopeful, Community Member
1/28/12 7:11pm

Christy...you are so wise !!!!!  I wish I didn't care what other people thought of how I look and I sure "ain't" telling them WHY I'm gaining.  Tried that a couple times, our enlightened (HA..HA) society is NOT that enlightened about Mental Illness.

 

I have recently been diagnosed with Bipolar.  I have been wrongly treated for Panic Attacks and Clinical Depression for 20 years.  Guess what?????  The Seroquel has helped BOTH. 

 

 It is really !!!!  hard for me to accept the diagnosis as my husband is Bipolar 1 and just last year had a psychotic break and caused all kinds of HELL.

 

Weight gain !  Can I just say...OUCH !!!!  140 lbs - 250 lbs in 10 years.  Most of the weight gain was from Tricyclics like Elavil.  My counselor told me to ask my Psychiatrist about adding Topamax.  I did and I just started it.  You do not know how much I want it to work.  BUT....I was taken off SSRI ( Zoloft ), had to increase my Klonopin (no remarks, please, from the peanut gallery about having to take this medication.  Walk in my shoes before you judge,) and I feel so much better.  Seroquel is the ONLY thing that makes me sleep.  Glad to hear others say they have bad dreams. 

 

I will remember that Kristy said: " Choose your battles and weight shouldn't be one of them ".  Thank you, Christy, so much. (BTW, I am a nurse and I still have trouble doing exactly what my Psychiatrist says.)

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TrueBlue, Community Member
4/15/11 1:57pm

I've been on Seroquel (200mg) for almost 5 years.  I'm 5'7" and was 135 and put on 20 lbs in two months.  I religiously did Weight Watchers and lost the weight in 6 months.  I also worked out three times a week for a half hour.  Of course I went off Weight Watchers and put on 30 lbs over 5 or 6 months.  So I'm back doing Weight Watchers and it's working, but very slowly.  I take off 1 1/2 lbs every week so far, but I've done it before so I know it's possible.

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lindeelou, Community Member
4/15/11 8:17pm

I posted last year when I had gone from 155 - 167 in no time after starting Seroquel... Well, the only thing I can say is that you can QUIT taking Seroquel. I kept some to use "as needed", but soon my Lamictal, Ambien and Klonopin combo with Ritalin added for my ADD, I started to lose weight. Now, I'm down to 150 and I can't even say that I miss the Seroquel. You get used to being without it... and your doctor can wean you off or offer another med in it's place. We are all different but the only answer I have is to stop Seroquel and if you can get diagnosed with ADD - the Ritalin is like an amphetamine, so you not only gain focus you lose your appetite. I can eat small healthy meals, and work well, and I've found that to be just what I needed. It does a lot to help get you out of a funk and "get things done" - I used to be so overwhelmed, didn't know how to start or finish projects, I've lost glasses, forgot my keys, and I am working from home with online work and finally making some money and I feel better than I have in a long time. I also stopped drinking alcohol TOTALLY, I think I have had a glass of wine now and then but know that it's been months. I had to learn the hard way that alcohol and all these meds do not mix... 

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boom, Community Member
5/27/11 7:53am

I have been on serequel for 4 years, and have not gained weight, infact i'm considered 'underweight', I do want to get off it, I've gone from 900mg to 50mg, hopefully 25mg stating from now! i just can't sleep when I'm off it (I hate that I'v come to rely on it) Obsessing over weight only makes things worse, you focus on food and will eat more ( I delt with that before seroquel). 

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just me, Community Member
6/ 5/11 1:50am

I am Bi Polar axis 1.  In the past year i have worked from 50 mg of Seroquel to 400 and I have gained 50 pounds.  I have a appearance complex that when pushed can reduce me to eating disorders.  I am in my 30s and have gone from a size 2 to a size 8/10.  And I know compared to some of you thats not much.  My eating styles havent changed much other than my craving for sweets.  I will be seeing my doctor in a week to switch to something else.  Yes overall the seroquel works great for controlling my bi polar.  However the weight gain has taken my mind to another place and cause more depression than happiness to counteract the medication actually stabilizing my moods.  I cant say for sure if it works out to water retention, but it feels like thats what alot of it is.  Of course that could just be my head telling me that so I stop freaking out every time I go shopping for clothes because mine are too small.  And though I am sure gaining "some" weight might be part of the actual aging process, I shouldnt have gained so much so rapidly.  When your self esteem fautlers and creates a deeper hole for depression because of weight gain is it still a good idea to continue taking the medication you are "fairly certain" is behind it????

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just me, Community Member
6/ 5/11 2:01am

I re read what I wrote and I want to clarify....Seroquel works.  Its done great things for keeping my moods in check.  The weight gain, however trivial, has had the adverse effect on the depression part of my illness.  Somewhere there has to be a happy medium....Im just not sure what that is.

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dossk, Community Member
8/17/11 12:30pm

I have been on seroquel for 2 years now and it has worked wonders for me. I am in my early 30's and I am only 5 foot tall. I went from being a size 2 to a size 11 to 12. I didn't wear jeans for 2 years because of it. It has been a horrible experience. I gained about 45lbs in 4 months. I am very active and eat very healthy and nobody could understand why my weight wasn't going down. They didn't understand the effects of Seroquel. My doctor told me there was a chance of weight gain but he made it sound like a slm possiblity.

I am just now lowering my seroquel for different reasons. After 7 years of treatment they think I have been misdiagnosed.

I hope to see some improvement of my weight.

Good luck to you

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Brandi, Community Member
7/ 4/11 1:34pm

you may be symptomatic of all antidepressants like me. I can only handle mood stabilizers. ALL Antidepressants cause me to rapid cycle.

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Hopeful, Community Member
1/28/12 7:24pm

AMEN to that !!!!!   Innocent I, also, can not tolerate SSRI Antidepressants at all.  I rapid cycle and can not sleep.  Was put in the hospital because I couldn't sleep.  Now I have found Seroquel.  I  HATE  the weight gain.  Will not stop the Seroquel.

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Chris, Community Member
7/ 6/11 9:48pm

use livestrong.com (myplate) to track what your eating.  Set a calorie goal and stick with it.  There is an android application to track myplate also.  The key is to eat what you ate before the medication change.  Another tip, when your hungry, drink two glasses of water and wait 15 minutes.  If you're still hungry, then eat.  Keep a supply of healthy foods (spinach salad with broccoli, beans and chunks of chicken).  That's my standard lunch, and I have lost one inch on my waist.

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mary beth, Community Member
8/ 5/11 2:51am

i was on Seroquel for  a year, i weighed 120 and now im 160, all that from just one year, i am now on geodon because i asked to try something that doesnt make u gain so much weigh, and my doctor said geodon is the one of the bipolar meds that make u gain the least weight, im still trying to loose my weight from my seroquel, im working out non stop so i prob weigh less now i havent weighed myself, i just wish my doctor would have talked to me about the side effects of seroquel before putting me on it, thanksfully i see another doctor now  hope this helps :P

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kookiepoo, Community Member
8/17/11 2:51pm

Wow, I can't believe the doctor didn't tell you about the weight gain. That was the 1st thing my doctor told me about, you were right to get a new doctor. Good luck with the weight loss.

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mary beth, Community Member
8/17/11 5:38pm

well i got put into a psyc ward and the doctor there put me on it, but then even my real doctor didnt even tell me, yea and thank God my bew doc put me on a kind that dont make you gain a lot of weigh, im still having trouble loosing the weight from the seroquel, but i love geodon sooo much better and im fine now :P

 

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robyn, Community Member
8/21/11 10:15pm

I gained weight the first few months but then evenutually that went away, wasnt hungry all the time after a while, and the weight was gone againm, thank god

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bipolarpj, Community Member
9/ 8/11 11:48am

I am currently on depakote, seroquel, risperdal and paxil. I believe all but the paxil are weight-gainers. I have gone from 130 to 165 in 4 mos. I am 4'11" so you can imagine how heavy I look. I have trouble getting off my recliner! And all my weight is around my middle, so I look 8 mos pregnant (I am 57 so that's not even a possibility). I am just starting to walk - but can't go far. I am thinking of stopping the seroquel (100mgs at night & 25mgs morning) and just using sleeping pills when I can't sleep. However, I am feeling so good, I hate to mess with my meds. (I am bipolar.) I use to take geodon & loved it, but since I went on medicare, it's a high tier med & costs like $140 for 3 mos. I'm going to ask my pdoc if he can give me samples next time I'm there. Sorry, I'm no help - just wish you all the luck. Maybe you can find time to walk around Walmart or some grocery or other store a few times a week for 20 min. I've been told just walking will work - you don't have to join a club or use weights, etc.

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bipolarpj, Community Member
9/ 8/11 11:50am

I am currently on depakote, seroquel, risperdal and paxil. I believe all but the paxil are weight-gainers. I have gone from 130 to 165 in 4 mos. I am 4'11" so you can imagine how heavy I look. I have trouble getting off my recliner! And all my weight is around my middle, so I look 8 mos pregnant (I am 57 so that's not even a possibility). I am just starting to walk - but can't go far. I am thinking of stopping the seroquel (100mgs at night & 25mgs morning) and just using sleeping pills when I can't sleep. However, I am feeling so good, I hate to mess with my meds. (I am bipolar.) I use to take geodon & loved it, but since I went on medicare, it's a high tier med & costs like $140 for 3 mos. I'm going to ask my pdoc if he can give me samples next time I'm there. Sorry, I'm no help - just wish you all the luck. Maybe you can find time to walk around Walmart or some grocery or other store a few times a week for 20 min. I've been told just walking will work - you don't have to join a club or use weights, etc.

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nora, Community Member
9/ 9/11 9:00pm

I am bipolar also. I am on Seroquel and have lost 18 pounds in 4 weeks and still losing. What I did was to cut out all wheat products (bread, biscuits, crackers, cookies) etc anything that contains any wheat. I also do not eat any processed foods, like even if it is made out of rice or oats or something I do not eat it if it is processed. I only eat whole foods like vegetables, potatoes, brown rice, corn, fruits, popcorn. As a personal choice, I do not eat meat or dairy products because I do not like cruelty to animals, but you can still lose weight if you eat it and give up wheat and processed foods.

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nora, Community Member
9/10/11 8:39pm

I am on seroquel and have lost 18 pounds in 4 weeks. I do not eat any wheat products or processed foods. I only eat whole foods, in the same form that they are grown, like brown rice, oatmeal, potatoes, corn, other vegetables, popcorn, nuts, fruits. I do not eat anything that is made out of flour or that has been processed to make like bread, biscuits, pancakes, cakes, cookies, because they all have wheat. I also do not eat any other product that has been processed even if it is made out of something other than wheat like rice or oats. Eat whole foods only, it must look like it comes out of the ground or off of the tree. This may sound hard, but it is not. Eat as much as you want and after you do it a few days you lose all your old cravings for processed foods. That is the miraculous part. As a personal choice I am also vegan but you can still lose weight if you eat meat and Unprocessed dairy. Like a good cheese would be alright, but not an overly processed cheese like Velveeta or not those processed single wrapped American cheese either.

Of course, no ice cream or anything like that as that is processed  (not as it comes out of the cow)

Heard a doctor on public television talking about this, give up wheat and processed foods to lose weight.

What I like about it is that I can eat as much as I want and I end up eating less because it gets rid of all those food cravings for junk foods after a few days.

Good luck if you try it!

 

 

 

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Bonnie, Community Member
10/18/11 4:56pm

Bonnie                     

 

I was on Serequel for about 9 months 800mgs.  During this time I gained 30 lbs and it was mostly in the stomach area.  It had nothing to due with my intake of calories and Serequel had a very negative effect on my health.  My stomach was so sore that I could not sit down without being in pain.  I finially had to slowly take myself off of it and have the doctor prescribe something else for me.  However I have not been agle to lose all the weight.  

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Bonnie, Community Member
10/18/11 5:01pm

I was on 8oomg of serequel for about 9 months.  During that time I wnt from 110 to 140 lbs, and it had a very negative effect on my health.  My stomach was so sure that I had trouble sitting down.  I slowly weined myself off of it, I now take effexor, lamactil, topomax, and xanax.  But I still have not been able to lose all the weight from the serequel.

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Mace windu, Community Member
11/ 9/11 10:59am
Hi there. I understand how you all feel. I'm 16 years old. Been off and on few medicines for 2 years. I am 70 kg, standing at 1.80m. I am currently med free for 6 months. To be honest, it is more challenging living and sleeping without seroquel. However I feel that I am at least in control of my life and moods and can attribute my successes to my own diligence. To face the sleeping issue, I recommend you guys try natural means such as meditation , reading a boring book or listening to soothing nature sounds from your iPod. Let's face it . The main reason we have our moods can be linked to our sleep, or lack of it. Btw, before going on my first dose of lithium at the hospital, I weighed around 62 kg and sported a 4 pack. After 1 and 1/2 years, my weight ballooned to 75kg with seroquel( I stopped lithium after 3 months). 6 months ago, after my granddad passed away, I decided to stop my 400mg seroquel intake totally. Gradually, after exercise, living a balanced lifestyles and trying to maintain my moods, I maintained my weight around 70 to 75 kg range and am still physically fit. To challenge the weight issue, I recommend you guys try adopting a multiple prong approach. Firstly, you must love yourself enough to change for the better. 1. Eat 6 small meals a day instead of 3 big ones. This will jumpstart your metabolism. 2. Sip cold water and unsweetened tea throughout the day 3. Hit the gym and run if you can 4. Lifting weights boost lean muscle mass which helps you burn fat throughout the day. 5. Share your ambitions with your closest kin. They can motivate you continually when u begin to feel down and out 6. Live your life as you would want to live it! Be free and proud of your achievements. 7. Stay motivated and do not expect immediate results Hope this helped. Life is short. But you still gotta plan it. God bless all you. Mace Reply
judy, Community Member
11/14/11 8:49pm

I have been taking seroquel for almost 3 months and i have gained 27 lbs, WHY and plz what can i do to prevent this.

 

Judy

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judy, Community Member
11/14/11 8:49pm

I have been taking seroquel for almost 3 months and i have gained 27 lbs, WHY and plz what can i do to prevent this.

 

Judy

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chris19, Community Member
11/28/11 2:04pm

I feel your pain. I was 95lbs; (I was underweight by 15 lbs); last summer. I quit smoking and started having manic/depressive episodes. One year later I weigh 120 and go on Seroquel. 3 months in I have gained nearly 20 lbs. I mentioned it to my sister and she said she quit taking Seroquel for her Bipolar because she gained 30lbs. I went to see the PCP that prescribed them and she apologized for putting me on them. I am of course much more depressed now because I look and feel awful. She set an appt for my with a phychiatrist and said my weight should start going down when he changes it for me. I certainly hope so. Every 2-3 weeks I go up a size in pants. I diet and go to the gym and the weight still increases. I currently have 2 pairs of pants that fit, and refuse to get more until I lose weight. I can't wait to get off these pills. 

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onomann7, Community Member
12/ 6/11 8:39pm

Here is a little part of my weight loss journey. I hope it is encouraging. For years, I was on Risperidol. Over 10 years of being on it I weighed 200 lbs. I am only 62" tall. I finally decided to try a weight loss program. My doctor also switched me to Geodon. Because of the accountablity and support from the counselors at the center and my family, Ilost 60 pounds in around 8 months, going from a size 2-3x to a size 10. However, I could not stay on the Geodon (as much as I loved it), because of facial tics. But my doctor (who was a female) switched me to Trileptal and Lamectal, since they have the least amount of weight gain. Now, I am on Serequel for sleep and the weight gain does begin, but because I am back on the weight loss program, I am working with my counselors to figure out how much is just water or muscle, then we will attack the fat and begin to burn that. Also, they are looking into hormonal changes (estrogen dominance, progesteron deficiency, etc.). There are so many components to weight gain and I know that everyone thinks that it is a just matter of will power and discipline. Not true! I truly had to realize that there was more to me than what people could see. Like in "The Help" I had to tell myself "I is pretty, I is smart, I is kind." I hope this helps.

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Hopeful, Community Member
3/31/12 6:56pm

This is such a wonderful post. Thank you for your kind and caring spirit!

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RMCG1975, Community Member
12/14/11 1:05pm

Oh My God.

 

You are all terrifying me.

 

I am on a cocktail of meds;

Toporol XL 25mg

Topamax 50mg

Celexa 20mg

Wellbutrin

SEROQUEL 150 XR

SEROQUEL 25 (3x a day)

Sumatriptan

Cryselle (BCP)

and one more that is escaping me right now....and I can't stop EATING.

 

Before I became pregnant I was 140.  I stand 5 foot 4.  At delivery 2 years ago I was at 210.  I slowly got a decent chunk of the weight off and am now at 174, with obviously a good 30 to go..and now THIS.  It scares the hell out of me.  I was hoping the Wellbutrin would help counteract the Seroquel but no luck.

 

This sucks.

 

My self esteem is low enough to begin with and is one of the many things that put me in Intensive In-Patient to begin with in November....gah!!!!

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Blondie83, Community Member
12/27/11 2:40pm

Hi I currently am on 300 mg seroquel and 40 mg Vyvanse (stimulant for add) and have lost 20 lbs. I also do weight watchers and work out. I would definitely suggest if you have add/adhd that you get on a stimulant and seroquel. I started taking 25 mg and I actually ate more than on 300mg. My psychartrist said the lower the dose the more tired you feel. I mean seroquel changed my life. For years I thought I was just a moody bitch and everything bothered me. But actually I was on the wrong meds for years. With seroquel I am friendly and have better relationships. Its like would you rather be skinny and miserable or happy and fat.

 

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Blondie83, Community Member
12/27/11 3:25pm
Hi I currently did not gain weight on seroquel . I take 300 mg seroquel and 40 mg Vyvanse once a day and I am on weight watchers. I have actually lost 20 lbs. I do have to watch my hunger at night when I take my seroquel. No one understands the hunger you get in seroquel. When I first started seroquel at 25 mg I actually ate more then than now on 300 mg. seroquel actually changed my life. I am not mean and bitchy and I am a happier and positive person now! I can't imagine going off it. I'd rather be happy and chubby than skinny and miserable ! Reply
On the up?, Community Member
1/17/12 10:39am

Hi!

 

It's all been exactly the same for me. Put on 50 pounds in 3 months when starting quetiapine. I'm got some of it off, and now that I'm decreasing my dose and will be stopping soon the rest is gradually going. Some things really helped me:

 

1. Get your thyroid hormones checked. Especially if you have sleep issues. Turns out I was hypothyroid too so not all the weight was quetiapine's fault. Starting thyroxine made me loose 8 pounds.

 

2. Fibre supplements really help. They make you feel fulller (and help if, like me, you got constipation from the quetiapine too). I prefer soluble fibre as long as its not psyllium based, but thats because I get a lot of gas and bloating thanks to IBS. For most people any will help, I like tablets coz its easier than a powder but you have to drink a lot of water. 

 

3. Don't stay on it any longer than you need to. If you need it then its great, but its easy for things like the tiredness to actually make you feel worse, especially if you're taking it as an adjunct for depression. I went to the psychiatrist feeling awful wanting to increase something (also on 300 venlafaxine) and when he suggested decreasing the quetiapine I was surprised, but it actually make me feel better! The anxiety I had before has gone and so far not come back, as has the rapid changes in mood, which were the two reasons I was on it.

 

4. If you can, avoid anything sugary (snakcs, chocolate, bread, pasta) for 3 or 4 days (lots of protein and fruit and veg). For me, it stopped the rapid changes in blood sugar levels, which is what was making me hungry - I'd snack, get a sugar boost, insulin released then causes sugar levels to crash making me want a snack... Getting out of this cycle REALLY helped me, but it probably won't help everyone. Think the venlafaxine actually helps in a way because it meant I got full from a small amount of food - when I 'grazed' constantly it meant I actually snacked more, but now that I'm eating properly it means I don't over eat at meal times.

 

5. Try and build exercise into your routine. Even just cycling 2 miles to work made a big difference. Easier said than done though with depression, believe me, I know! 

 

6. For me, the quetiapine made me less depressed and therefore gave me a chance to eat right and exercise where before just showering was beyond me. If quetiapine makes you feel better in whatever way - use it if you can to beat the side effects. Kinda a mental thing rather than a practicle one, but it helped me.

 

Good luck to everyone. It's a pretty messy drug, but like all drugs can be very beneficial to the right people if dealt with in the right way. 

 

Hope this helped xx

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Hopeful, Community Member
1/28/12 7:34pm

OK..... a little humor here and maybe some help.  I am growing out of my clothes.  I don't have the money to buy a whole new wardrobe. 

 

Anyone want to start a Clothes Exchange?   Laughing   I'm TOTALLY serious.  I have some beautiful Size 18 and 20 dresses and pants outfits.  I, unfortunately ,am at a Size 3X now and growing out of them. 

 

I'm in the market for some nice roomy Size 3X's.  I will not stop taking my Seroquel because I feel better than I have in 20 years.  Went from 140# to 250# in 10 years.  Not quite sure how to get everyone's email addresses and I'm not sure I want to put mine on here just yet.  Any idea??????  Surprised

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Hopeful, Community Member
1/28/12 7:44pm

I certainly hope that you are feeling better by now.  I am writing in 2012 and your post was in 2008.  But, as our disease tends to be a lifelong process of highs and lows, I thought that I would share.

 

I was misdiagnosed with "Just" Panic disorder and Major Depression that would never go away.  I was recently diagnosed with Bipolar.  Have been on a low dose of Seroquel for a year, just got put up to 150mg for now and maybe higher later.  I am on this roller coaster ride for the rest of my life. 

 

I have gained A LOT in the 20 years of being treated with various meds including Tricyclics like Elavil which is what made me gain the first part of weight gain history.

 

The doctor is trying me on Topomax.  I hope desparately that it will decrease the weight gain because I WILL  NOT go off of my Seroquel.  It has changed my life. 

 

I will post my progress with this med.  Big Hugs to all of you.  We often suffer in silence.  This is a safe place.Cool

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Erel, Community Member
3/ 8/12 1:37pm

BEFORE you eat, take the herb GYMNEMA.  it works I know... I've lost 3-4 pounds the weeks I use it.  I take seroquel and on 1200 cal diet I won't lose a thing ...take gymnema and it starts FALLING OFF.

 

gymnema helps heal the pancrease and regulate insulin.

 

I only take gymnema once  a day in the morning but depending on how much seroquel you take you may need more.  I am on a very low dose of seroquel and its the only medication I take.  So if you need to take it before every meal  but, you have to figure out works for you.

 

If it seems that this herb causes constipation for you... try a probiotic.  but seriously you have to try it out!

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Hopeful, Community Member
3/ 8/12 5:58pm

Well, I certainly am going to do some research into GYMNEMA.  What do you consider "a very low dose of seroquel"?  Where did you hear about this herb??????  Thank you for your post. 

Hopeful

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desiree, Community Member
4/16/12 2:05pm

Yell

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desiree, Community Member
4/16/12 2:05pm

Yell

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sammyb1979, Community Member
10/ 3/12 3:38am

Hey Guys, my GP says an increase in appetite on Seroquel is the reason behind the weight gain. I know for a fact that i eat like a ravenous pig at nights after taking seroquel.

sam

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Lyssa, Community Member
10/21/12 11:17pm

I'm 19 years old, I was just diagnosed with Bi-Polar. It scared me, but what terrifies me is the weight gain. I'm currently at 115 lbs. I don't want to get fat. 

 

I know I should take meds, but I don't want to gain the weight.

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Mandy, Community Member
2/14/14 11:28pm

I'm a 30yr old female with bipolar 2.

 

For one reason or another seroquel is the only mood stabiliser which will work for me combined with lamotrigine. I was put on it 3yrs ago and was so upset by how much weight I was putting on (went from 60kg to 80kg in 3mths) I took myself off it and pretended to my doc I was still on it... until I was hospitalised for a clinical depressive episode last November and was in hospital for 79 days. I told her why I took myself off and we tried everything to find another option but I apparently am 'drug resistent' (great! wonderful!). During this admission I also had 12 ECT sessions.

 

Now I am on 400mg immediate release Seroquel and 300mg doxapin plus 50mg Topamax for migraine prevention.

 

I don't have an exact figure how much weight I've put on since I've been back on Seroquel since January but I know I lost weight in hospital before I went on Seroquel due to no appetite and now none of my clothes come close to fitting me. I predict I've gone from size 8/10 to 12/14 since January.

 

The thing I find hardest with Seroquel atm is the fact that it makes you so heat sensitive and when it's over 35 degrees celcius everyday, there is no exercise you can really do apart from swimming (which I have been doing).

 

My doctor told me it destroys your metabolism and makes you crave sweet stuff and increases your appetite but even with a very strict diet, the weight still piles on. I think I could eat nothing but the medication, exercise all day and still put on weight Frown

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Pemi_g_wasset, Community Member
2/25/14 11:50am

I've been on Seroquel for about a year now, I'm at 900mg/day right now, and I've gained about 30 pounds since I've been on it. The past few days I put myself on a "water diet" and I've had almost nothing to eat (except maybe two pieces of fruit a day), and drinking about 10 cups of water a day. I've lost 2 pounds in the past three days, so I guess that means it's working. Smile 

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clarebear, Community Member
3/12/14 5:50pm

I take 200mg for Bipolar 2 and have lost almost a stone since starting it 3 months ago...it is possible. Started at 170 pounds (I'm 5.5) which was a bit overweight, now 158 pounds. Initially I was hungry all the time but after switching to XL (modified release) much less cravings. I found it didn't matter how much I ate it didn't go away, so I told myself I wasn't really hungry just a drug side effect. I do an hours worth of exercise a day, eat normal meals and when I want a snack I eat a small amount of popcorn (about 50 calories - you can buy it in ready made packets in the UK (Sainsbury's and Marks and Spencers or alternatively make your own bags up by spliting up a big bag into small portions) which seems to rid me of cravings, I have maybe 2 a day. Before I give into cravings I also drink 3 large glasses of cold water which helps me feel full. I also take the diet pill XLS medical in the evenings which blocks fat absorbtion. Please don't give up.

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By kkclark, Community Member— Last Modified: 06/24/14, First Published: 05/29/08