hi everyone its been awhile, i wish i could feel happy to come back here and i wish i could say im 100%.
I finished chemo march 1, 2010 a banner day, cancer free. All i could think is its finally over, surgery, radiation,chemo. It was what they said "simple". I had survived the on going reactions to the drugs, the depression, bone aches. lets just call it what it was Hell. My husband to me and our kids to Florida for a much needed vacation and reunion. It was heaven.
Time went by and i thought it was great my hair was coming back fast and i was feeling better every day.The year went by uneventful, mamograms were good, I was fine.
In January 2011, I was watching TV and strangely enough this is when i, feeling relaxed touch my chest and immediately encounter a lump. I at first felt this was a mistake, when i went to feel it again it was no where to be found. but it was in the back of my head so occasionally i feel around. soon I can find it immediately, I went for my January mamogram and then a biopsy. Negative was great news. But it needed to come out for further examination. Still negative, a simple Oil Cyst. I was again fine.
I celebrated my 50th birthday, greatful to be alive.
July 4th my mother commented my breast looked larger, swollen. It was and slightly sore. but i was busy and ignored it. The next morning it was huge, red and painful under my surgical incision. I went to urgent care and was told i had a infection and they gave me a huge shot of rocephine. That night i awoke soaked, thinking i must have broke a fever, I blindly walked into the bathroom to change, flipped on the light and was shocked to see myself in the mirror covered in strangely colored fluid. Looking down at my one nice looking breast my incision had burst open allowing the infection to pour out. I covered it in gauze and went back to bed. There was actually a relief in the pain and i was able to sleep the rest of the night.
I saw my surgeon the next morning was admitted for IV antibiotic, with no improvement 4 days later she operated to remove the radiated dead tissue and i had a nice golf ball size hole in my chest. my surgical site had "collapsed" unusual so long after surgery and something i was not aware could happen. add that to the list of new and interesting side effects of cancer. I went home with home care to come and pack my wound 3 times a week while my husband being the wonderful man he is packed it the remaining days if the week. antibitics worked until i was done with them and then the infection was back. My infection was gram negative which the determined that i must have had a bladder infection at some time , asymtomatic, which traveld through the bloodstream and planted itself in my weakest place, MY BOOB.
this hole think went on til October, emotionally drained and just wanting it over , healing had stopped, the tissue to damaged by radiation to heal anymore, I headed off to a plastic surgeon who was going to make me complete again and fix the hole. Surgery October 26,2011. I was scheduled Dec ember 8th for more surgery just to clean things up and make the twins , identical twins again since it had been two years since they remotely resembled eachother.



Laura, I am so, so sorry for what you're going through... you've had all kinds of bad luck. Surgery is still an imperfect science, and unfortunately, you're the proof of that. There's no "why" to anything connected with cancer, as far as I can see; seems like a pure roll of the dice, who gets off "easy," and who really has an awful time, like you're haivng. It's nothing you did (or didn't do); nothing you "deserve." You've drawn the short straw.
Have you considered a second opinion? I don't know if this is still considered a cancer issue, but you might want to see a breast specialist. Perhaps you could get a referral to Wisconsin's only Comprehensive Cancer Center, which would probably have the state's best breast specialists:
University of Wisconsin
600 Highland Ave., Rm. K4/610
Madison, Wisconsin 53792-0001
Tel: (608) 263-8610
thank you, and i have considered that a second opinion could be helpful. i did call one dr. and he said he probably wouldnt have anything further to add. my dr is a comprehensive breast specialist, she is chief of cancer related surgery or something like that.
thank you for the help.