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Wednesday, December, 02, 2009
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1 1/2 years later

csurvivor06
csurvivor06
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csurvivor06 is currently suffering from side affects of chemo

i am a mother of 3. i have a 29 yr. old boy, a 20 yr. old boy and a...

csurvivor06

Tuesday, October 21, 2008
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Well I thought that after a year and a half after the bilateral mastectomies and chemo I would not have to worry about anything but to watch out for more cancer returning but I was wrong.  I just recently learned that when I had my chemotherapy that the chemo has caused some nerve damage and I a...
  1. There's always hope
    PJ Hamel
    Wednesday, October 22, 2008 at 07:17 AM

    Hi - The current state of medical research and knowledge will be constantly changing and always improving. I think there's hope - really good hope - that you won't be in pain forever. With the new survivorship clinics springing up, and the growing awareness that cancr is a lifelong challenge, I think more attention than ever will be paid to these treatment "lasting effects," as they're called. Keep your eyes on the horizon - there's hope for your future, truly. - PJH

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  2. Neuropathy
    Phyllis Johnson
    Sunday, October 26, 2008 at 07:36 AM

    When my hands and feet started hurting about a year after I finished chemo, my oncologist said I had ,"Taxol toes."  Of course, she went on to explain that a more accurate term is peripheral neuropathy, which means nerve damage in the extremities--hands and feet.  There are quite a few drugs that can help neuropathy, mainly in the anit-seizure family like Neurontin and the anti-depressant family.  In my case, I've decided that enduring my level of pain is better than coping with the side effects from the meds I've tried.  However, I know other people who are very happy with the results of their medications.  I've learned to ignore the tingling in my hands and feet, and to compensate for the numbness by being very careful when walking on uneven surfaces and to hold on extra tight to small objects.

    A neurologist is a good doctor to talk to about possible ways to reverse the damage.  Some people do get over it.

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    re: Neuropathy
    csurvivor06
    Sunday, October 26, 2008 at 06:58 PM

    Thank you so much for your help.  I see my onocologist in about 3 weeks and I will discuss this with her.  I am seeing a orthopedic specialist also who has got me into light physical therapy twice a week to see if something there might help me also.  I had that test recently that said I too have nerve damage to my legs and feet and they think in my hand also.  Hoping something works.

    Reply
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