Hi survivor,
I don't think you need to feel badly about choosing silicone implants. My general take is that, at least as far as breast reconstruction is concerned (cosmetic augmentation is a totally different animal), the women who choose saline implants often have more complaints! I should probably mention that in addition to being a breast cancer patient/survivor, I am also a nurse anesthetist. My work gives me the opportunity to see beyond my own perspective. The incidence of implant dissatisfaction among breast cancer patients (keep in mind that this is anecdotal, but pretty impressive to me in terms of consistency of feedback) is far higher in the women with saline implants. I see FAR more patients who complain about pain, hardness "heaviness" and unrealistic "feel" with the saline implants.
As far as I can discern, the problem with implants as a whole for reconstruction, anyway, is that they are only partially covered by the chest wall muscles. Because there is no remaining breast tissue this generally leads to the implants basically being right under the skin where the muscle is not covering them. I believe this is more commonly a problem at the bottom half of the implant, but since everyone has a slight variation in their anatomy and of course, the surgical technique of the surgeon, it's not inconceivable that it could also be the top portion of the implant that is more exposed and causing more symptoms. I have recently discovered that one of my implants is migrating (moving) down on my chest wall while the other has a slight movement up! (MRI and it is becoming more visibly prominent). So, I guess what I am trying to say is try not to worry to much about this. Get the tests to rule out more nefarious issues, but then just realize that all implants are "foreign bodies" to our human bodies. Over time you will be able to determine whether the extent of this will be acceptable to you or you will want to consider other options. Good luck!
Jayne
I had a mastectomy with tissue expander of my left breast in January 2007 then a prophylactic mastectomy with tissue expander of my right breast in May 2007. The past several months (still have expanders in), I have experienced some itching and pinching pain at the outer periphery of the mastectomies (i.e., area where the nerves were cut during tissue removal). From my research, this is simply some of the nerves trying to regenerate. While it won't get to far, some minimal nerve regeneration is to be expected, causing this pain. Also, where the nerves have been cut and/or are regenerating will always (as I have read) be extra/ultra senstive to touch. It might not explain the pain that you speak about, but just a possibility to consider for some types of pain.
Hi Jayne. *Thankfully* I did not have to do chemo or radiation. I started tamoxifen a month and a half ago.
At the moment, I need to decide between saline or silicone implants--tougher decision since doing more research on them! Although it's not currently an option for me, form-stable ("more cohesive" silicone gel than standard silicone) implants seem great on many levels (some disadvantages vs. saline or standard silicone, but minor in my opinion compared to the fact that they basically don't leak!) and have been used in Europe for over 20 years, but have only *very* recently been approved (and only Mentor's implant at the moment) in the US.
Thank you, Phillis,
I have an appointment with the surgeon, who was talking about nerve blocking injections, which I suppose I will have to repeat each month ( or not?). I don't really know that this condition will be a life time companion for me or not, that is why I came here to see if some of the BC dx ladies with similar pain were free of pain, since 2007.
Pain clinics are my last hopes.
I will keep you informed Phillis!
have a sunny day!
I had a double mast. 3 1/2 years ago-
and had the rib tenderness a while-
I put it off to lymp nodes and surgery
whatever..
it doesn't hurt unless I actually press on the area..
anyway- today I went in for a regular checkup and mentioned it
next thing- you know
I am getting xray'd and have to have
a bone scan
as the Dr. said, it is very likely nothing,
but its better know and get past the worrying- so while I can't help you
with your question, I can tell you its not
isolated
Colleen
Thanks, Colleen. I mentioned it on my visit recently and it got me right back to MRI! Well, it was negative, thank God. I have recently heard people (not any of my doctors, they seem just mystified about this
), but from other patients, is that it may be related just to not having any breast tissue there anymore. My pain seems similar to yours...only when it is touched (including ALL bras!) I have implants, I wonder if it is also true when reconstruction is done with tissue flaps. It seems like they may get a little more coverage, but, maybe not???
Jayne
Thanks, Colleen. I mentioned it on my visit recently and it got me right back to MRI! Well, it was negative, thank God. I have recently heard people (not any of my doctors, they seem just mystified about this
), but from other patients, is that it may be related just to not having any breast tissue there anymore. My pain seems similar to yours...only when it is touched (including ALL bras!) I have implants, I wonder if it is also true when reconstruction is done with tissue flaps. It seems like they may get a little more coverage, but, maybe not???
Jayne
Hello!
I had my mastectomy surgery in febr 2010 and one year I had a reasonable weak pain, living my life happy that I am a survivor! After one year, it started the same pain you described, and went to GP, prescribed elavil. Did not help, only I slept better. Returned to onco dr and she sent me to Bone scan and X-ray for a possible met to bones. It came back negative! ( meanwhile I tried accupunctre, not too much help). I turned now to my surgeon and all he test were repeated: X-ray, CT scan, Bone Scan, MRI a core biopsy an open biopsy. The surgeon wanted to rule ou a chest wall cancer, and even a mulptiple myeloma. Nothing was found and I suffer, my life is miserable for more than 8 months. Nobody came up with any treatement to ameliorate the pain.
Is difficult for me to describe this pain, but mostly in evening night morning, when I move , it is a stabbing burning shooting pain, sometimes with 8 out of 10. across of the mastectomy scar! I am writing with the hope, that somebody had it and now is free of pain
Sonia
Batsheva, now that possible metastasis has been ruled out, I would suggest asking for a referral to a pain clinic. Did you discuss the possibility of scar tissue causing the pain? Massage might give you some relief if this is related to muscle spasms. I hope you soon find some relief.
Hi Phillis,
I posted a reply to you 2 days ago, I don't see it!
Yesterday I went to anaesthesist and got a shot of hydrocortison. Yaaay!
I just hope that it will work for me, the doctor said that it takes a week to know it.
Another option, he was saying Gabapentin tablets. I prefered a fix with injections, one in 2-3 month (if it works)
I will keep you informed
Thank you for replay
Batsheva, you'll find your previous answer at the bottom of this thread; I believe the Tuesday post is the one you're referring to. Sounds like the hydrocortisone shot has had an effect already - excellent! Hope you continue to feel good, and that this is the answer. Take care- PJH
Batsheeva, I hope the injection makes a big difference in your pain level. Gabapentin (generic name for Neurontin) makes many people drowsy. I take it at bedtime so that I can be alert during the day. If you don't get the results you want with the injection, you could give the gabapentin a try. Each person is so different in how she responds to pain medications, it may take a while to find the best solutions for you.
Hey I was looking online for these symptons. I am abreast cancer survivor 12 years out.. I have had soreness under my right breast for 4 weeks now! t's a irritating pain. I had my masectomy 12 years ago at first I thought I had shingles, now I think their leaking, though I have saline. I have had PET SCANS and recently an X-RAY the pain is a real obnoxious pain. Let me know if anyone else is experiencing this.
Dawn
Is it soreness in the tissue or on the skin - or farther inside? You could be experiencing rib pain if you had radiation - believe it or not, it can happen all these years later. I'm glad you're having this checked out; hopefully it'll disappear on its own soon. PJH
It feels like it's in the tissue. Annoying like creepy crawlie.. i had radiation 9 years ago..
Dawnlyn
Sounds like a nerve issue to me. Have you spoken to your plastic surgeon about making sure the implants are OK? Saline ones usually do need replacement aftr about 10 years... PJH
Sounds like a nerve issue to me. Have you spoken to your plastic surgeon about making sure the implants are OK? Saline ones usually do need replacement aftr about 10 years... PJH