Thursday, February 16, 2012
Just Diagnosed with Cancer? Chat with Experts

Laughamycin and Smile-ophosphamide

It's sleepless night tonight after Taxol infusion no.9 today. I've reached 3/4 of the way through this part of the treatment and there are only 3 to go. I'm getting excited already, so goodness knows what I'll be like the night before. Unbearable, probably.

 

This week marks the retirement of my wig. I took the plunge on Monday and went out without it. No-one stared at me and when I went to school on Tuesday to have lunch with a mate, there were compliments. I must have only run into the nice colleagues! It is so good to go out and not have to worry about wig-creep at the back of my head.

 

I have also spent some time orgainsing the next charm on my bracelet. I have the breast I ordered from the jeweller just before my surgery and have found someone to make me a Chinese hamster. It amuses me greatly that Herceptin comes from the ovaries of the Chinese hamster. Once again, the female of a species gets a raw deal. Personally, I think it would be wonderful if they discovered that the best anti-cancer drug ever came from the testicles of certain war-mongering and profit-plundering men (At the risk of offending, I name no names here). Just think of the fun of harvesting it! That's one career I might consider as an alternative to teaching.

 

A touching experience at the clinic today. Sitting in the next chair was a young man in his twenties. The look on his face reminded me of how I felt during my first session. The place reminded me of an opium den and was a little overwhelming, to say the least. I wondered what effect those cytotoxic substances were going to have on me. We struck up a conversation and after testing the waters, I began to administer the therapy of Laughamycin and Smile-ophosphamide (LS? Side effects - a lifting of the heart. Effectiveness - not yet measured scientifically). I've been thinking lately about why I have chosen to joke so much of my way through cancer treatment. It just makes me feel good to smile. So we managed to make some jokes that had the whole room laughing. Much more pleasant than nausea, peripheral neuropathy and alopecia. When his infusion had finished, my new friend was able to admit that he didn't feel like baying at the moon and hadn't grown frighteningly hirsute.

 

Sometimes I feel overwhelmingly grateful for what my doctors and the oncology nurses have done for me. Making a few people laugh and feel braver about their treatment is one way of giving something back.

 

In some ways I'll miss the clinic when I'm finally done.

4/ 2/09 3:24pm

Hi Sue,

I think so many of us feel the same way.  That is what drew me to this site in the first place...the humor. 

As far as missing the doctors and nurses....I really did feel that!  I had been going in there every week for a year!!

So, I go back at least 2 times a month.  I drop off books and hats and treats.  I visit with the nurses and doctors (who all get a kick out of my curly hair - it had been straight...and my amazing cleavage - I'm almost done with reconstruction).  I also visit with the patients who ask me a ton of questions.  I have left my contact information with the nurses so that if any patient wants to talk to someone...they can call me.  I had always been on the look out for "new" chemo patients.  You know the deer in the headlight look, the fear on their faces, the worry that the loved ones show, the tears that are right on the edge of falling...I remember that feeling...so I try to spot it and talk to those patients.  The nurses always pointed me out to people if they wanted to talk with someone.  I always give this site out as the number one support site.

 

Going back and giving back.  It really does make me feel better.

Take Care...You're almost through it!!!

Koponen (Sandy)

4/ 3/09 5:26am

Sandy your deer-in-the-headlight expression reminds me of my Year 12 French students when we practise for the conversation exam and I ask them a question in French. I've always called it the rabbit-in-the-headlights look and my aim is always to eliminate it by the end of the year.

 

You've also got me thinking about what I might do during my PT (post treatment) life. I'll be going back to work part-time in July and if my school doesn't make me go full-time next year hwen my Herceptin treatments have finished I might offer to be a volunteer at the clinic on my day off. I love our volunteer, Judy, and we really miss her when she goes on holiday. She's a lovely, calming presence.

 

See what a good influence you are!

 

Sue

4/ 2/09 11:20pm

Thank you both for reaching out to those around you who need it. Amazing how cancer really can have the most positive effect on your life. I always say, if I had to go back and choose... yes, I'd choose to have cancer again. It opened my eyes, and my heart. Cheers to you both - PJH

4/ 3/09 5:28am

I agree with you PJ. I wouldn't change ANYTHING about my life. Even losing my hair has brought the joy of seeing it come back!

 

Sue

4/ 6/10 10:05am

Hi Sue and Sandy, wow you both subscribe to my attitude in regard to my her2 breast cancer also humour in the treatment room and cheering up the first time treatment ones, was starting to think I was a bit strange for doing all of the above, glad to see I am not after reading your posts. I started this journey april 2009 and am nearly through my 3wkly x 1yr doses of herceptin after epi and cyclo x 4 lots followed by 12 lots of taxol and 20 lots of radiation and like you will miss the regular contact with all the wonderful medical staff, volunteers and patients, but not the 644kms round trip from my inland country hometown every 3wks for treatment and doc appt every 4wks. For the earlier more intense stuff and radiation I relocated to the city!! Since I had had an acoustic neuroma (non cancereous tumour of the 8th cranial nerve) 22yrs before this diagnosis I thought it would be an easier journey as I had been there done that, (I was left like a stroke victim from that experience and was up and literally running after 12mths and got on with life), however I found this journey different so had to learn a few new lessons however like you both I don't regret any of it as have learnt so much and met so many fantastic people!! I hope I also have made a difference and helped someone along the way on this latest journey!! Thanks for sharing your journey as it has helped confirm to me that my view of life and yours, is most assuredly the right one, that laughter is truly the best medicine!! God Bless!!! Annette

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