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257 and counting...

By sue dyer Wednesday, June 24, 2009

Today, for some inexplicable reason, I got out the calendar and counted up the number of days since I was diagnosed with IBC. Since 10th October last year, 257 days have passed.

 

On day 256 I had the last of my 30 radiation treatments. Today I am looking at the purple flesh in the treatment area and feeling relieved that it's over. I have a few sore spots, but overall it's not too bad and it will get better.

 

At first I was quite intrigued by the Star Warsy nature of the treatment, with laser beams criss-crossing to mark out the treatment areas on my chest and neck. It led me to investigate how the linear accelerator makes the x-rays that kills the cancer cells that may or may not have been left behind after chemo and surgery. Apparently, micro-waves are used to speed up the electrons that collide with a heavy metal plate and are converted into x-rays. That's the simplest way I can put it.

 

I did miss the company to be found at the chemo clinic. It can feel quite lonely lying stretched out on the treatment couch on your own. However, I did make up for it in the waiting room and made a few new friends, sharing sympathy at their soreness and elation as their treatments finished. It became something of a joke that the receptionist always seemed to call me to go to the treatment unit just as I was getting into an interesting conversation. One day she said, "You're having too much fun in there!"

 

One thing about radiotherapy that does make me feel somewhat miffed is that there is no visible evidence that the treatment has been effective. You just can't tell what is happening with microscopic cancer cells. My radiation oncologist even had to admit this when I teased him about it one day. I am, however, aware that the statistics are on my side and am happy to pay this insurance against a recurrence of this stupid, ugly disease.

 

I'm also glad that 90% of the $10,000 AUD cost of the treatment is well and truly covered by our universal health system. A few years ago the government introduced a safety net to assist patients with large medical bills. When a family has spent just over $1,000 on out-of-pocket expenses in a calendar year, 80% of those costs are re-imbursed, which means that we will only have to pay 10% of the treatment costs. I'm glad to see my taxes at work in this way.

 

I will continue to see my taxes at work as I continue to receive Herceptin treatment until next January. I do thank God for the dear little Chinese hamsters whose ovary cells are the source of this drug that will give me additional insurance against recurrence. This drug is another aspect of treatment that is covered by our health system and costs me precisely nothing.

 

I cannot say how good it feels to be taking my life off hold and getting back to school in two weeks' time. Finally!!

Battle-scarred but not battle-weary
PJ Hamel, Health Guide
6/24/09 6:18am

Sue, it's been a lonnnnnng and winding side trip, but I'm glad you're nearly through. Bet you're a whole lot happier about going back to school than your students - but then, bet they had a whole lot more fun on their vacation than you did! Or, did you take a leave, and they've been soldiering on without you all this time? At any rate, congrats on finishing the 256-day challenge. Please stay in touch here - I know you will. Your words are invaluable to so many women still out there on that path... Cheers! PJH

Anonymous
Jan in Washington State USA
6/25/09 11:10am

Hi there - it so good to hear the story of another survivior.  My daughter just had her first check-up after treatment for IBC, and she is NED - no evidence of disease too!!  Although we are continents apart we are all sisters in this fight against IBC.  Please check out our blog about our journey with IBC.  Wishing you all the best and a long, long wonderful life.  Jan Kiss

 

http://kickincancersass.blogspot.com

 

Anonymous
Anonymous
7/ 9/09 10:30pm

Jan, I to can be placce on the IBC survivor list. 5 months of chemo, double mascetomy and  6 weeks of radiation and as of 1 month ago NED. Congats to you and your daughter. We all have a lot of living to do! Pam Sperstad/Colorado

6/25/09 1:36pm

Sue,

Congratulations on finishing up the radiation. I know the "countdown" feeling well--I just finished #21 out of 33 about an hour ago. I also have come to enjoy the camaraderie of the waiting room--but that doesn't mean I want to keep going there!

 

All the best,

Teresa

http://thedoglived.blogspot.com

Phyllis Johnson, Health Guide
6/25/09 8:29pm

Congratulations on finishing treatment!  I hope the transition back to school goes well.  I wanted to be back to 100% energy right away, but I learned I had to be patient.  Take good care of yourself.  I know you will use your fantastic sense of humor to help you make the next set of adjustments as you start to think about IBC in the past tense.

Anonymous
Anonymous
6/25/09 10:37pm

Sue, I am so glad you are finished with your treatments. I am still going every week. Keep me in your prayers. Dianne Rogers

Anonymous
Pam Sperstad
7/ 9/09 10:38pm

Sue, We were diagnosed 14 days apart with the same terrible cancer. IBC, it has taken 10 months of my life, but not MY LIFE. I also have completed chemo, surgrey and radiation and now NED. I will see my oncologist every 2 months and plan on a long cancer free life. Congratulations to you and your family. I've taken the journey with you, just didn't know it. Pam Sperstad/Colorado

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By sue dyer— Last Modified: 12/22/10, First Published: 06/24/09