prognosis

invasive lobular carcinoma

svryberg Community Member November 17, 2007
  • my sister was diagnosed with ivasive lobaular cacinoma and i wanted to know if anyone has this type and what treatment they had and how long they've had it.  What is the suvival rate.  How do i give my sister hope she is filled with gloom and doom
8 Comments
  • JudyV
    Feb. 24, 2009

    I was diagnosed with Invasive and in-situ lobular breast cancer in Oct 1998. I felt the lump but it did not show up on mammogram. It was Stage II by the time they diagnosed it. I required a bilateral mastecomy-they said it more than likely would recur in the other breast. I did a tram reconstruction which I am very sorry I did-It has caused me many problems...

    RHMLucky777

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    I was diagnosed with Invasive and in-situ lobular breast cancer in Oct 1998. I felt the lump but it did not show up on mammogram. It was Stage II by the time they diagnosed it. I required a bilateral mastecomy-they said it more than likely would recur in the other breast. I did a tram reconstruction which I am very sorry I did-It has caused me many problems and I wasn't a good candidate for the procedure, but I didn't have a very good plastic surgeon either. He was thinking more about his profit over what was good for me. I ran away, sold everything I had to come home to MI and went to the U of M. By that time I had opened up and my wounds had all turned black. Fortunately I found an excellent plastic surgeon who saved my life. I healed after surgery (he's the one who said I wasn't a good candidate for bilateral tram-flap reconstruction). I had Adriamyacin and Cytoxan chemo (4 rounds). I had no lymphnode involvement. Cytoxan can cause bladder cancer (I was dignosed with that last June), but so far have not had a recurrence of breast cancer. I think they use newer drugs now so she should check that out. I started my chemo Jan 21, 1999 and my last was April 1999. So I have gone the 10 years without breast cancer. I did do Tamoxifen for 5 years and am on my 5th year of Aromasin-mine was estrogen positive. I was 45 when I was diagnosed and went into menopause after my second treatment (Feb 17, 1999). Tell her to find a very good doctor!!

  • Anonymous
    judith
    Dec. 22, 2007

    I was diagnosed with ILC in July 2007 - 3.5 cm.  After the shock and horror I was quickly reassured by the new treatment of AI's.  I started Femara (Letrozole) straight away and by December it had reduced to 1.0.  I am having a quad removal through the nipple next Friday.  They had no signs of cancer in lymph glands but due to being...

    RHMLucky777

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    I was diagnosed with ILC in July 2007 - 3.5 cm.  After the shock and horror I was quickly reassured by the new treatment of AI's.  I started Femara (Letrozole) straight away and by December it had reduced to 1.0.  I am having a quad removal through the nipple next Friday.  They had no signs of cancer in lymph glands but due to being over 2 cm they will have to take some out to test.  They are very confident I will be ok.  I will then have 3 weeks radiotherapy and probably be on Femara for next 10 years.  I am over the moon with the way my cancer has gone but it all rest on the ILC being Oestrogen Receptive.  Mine was 8/8.  Your sister will have these tests and hope she has the same results.  Five years ago we would have probably both breasts removed, chemo etc.  and with probably reoccurance within 10 years.  So we have come a long way with this new treatment. I wish her well. 

    Judith

  • Anonymous
    Andrea King
    Nov. 28, 2007

    Hi - I was diagnosed with invasive lobular carcinoma in July of this year.  I had a mastectomy in September and have just started chemotherapy (FEC/Taxol). Radiotherapy is also recommended because I had a large (7.5mm) tumour with close margins.

    'Survival rate' depends on many variables and everyone's cancer is different.  Your sister will...

    RHMLucky777

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    Hi - I was diagnosed with invasive lobular carcinoma in July of this year.  I had a mastectomy in September and have just started chemotherapy (FEC/Taxol). Radiotherapy is also recommended because I had a large (7.5mm) tumour with close margins.

    'Survival rate' depends on many variables and everyone's cancer is different.  Your sister will learn more about her own case as her treatment progresses.  Some things you can do to help her: 

    encourage her to carry on as normally as possible (bizarre as that may sound right now);

    go along with her to medical appointments as a support person, and ask questions that she might not come up with;

    help her with everyday needs (for example, my mom started paying for a cleaner to come in once a week after my surgery);

    if she doesn't have a good personal support network, encourage her to take advantage of whatever support is available in her area for breast cancer patients.

    All the best to you both!

     

  • daniel mcnamara
    Nov. 23, 2007
    HEY BERG,  my wife is a cancer serviver , and the thing I have to remember is that I must take care of myself to be the best for her . I can't get hunger , anger , lonely or tired{ H.A.L.T.}. In order not to feel down myself I must try to talk to other caregivers who are going through the same thing . To deal with this alone is to much for anyone ....
    RHMLucky777
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    HEY BERG,  my wife is a cancer serviver , and the thing I have to remember is that I must take care of myself to be the best for her . I can't get hunger , anger , lonely or tired{ H.A.L.T.}. In order not to feel down myself I must try to talk to other caregivers who are going through the same thing . To deal with this alone is to much for anyone . Reach out to others and be there for when your needed. If you take care of yourself , you will keep your strenght and patients when the times get tough for her and for you . Stay in touch , Dan
  • Meg Wolff
    Nov. 23, 2007
    I had it and it has been nine years. I am, cancer-free and healthier than I was before I was diagnosed. I attribute this to a macrobiotic healing diet. I feel that the food we eat is a big missing piece of the breast cancer "puzzle". There is a lot we CAN do to prevent and HEAL breast cancer...that needs to be more available to the general public....
    RHMLucky777
    Read More
    I had it and it has been nine years. I am, cancer-free and healthier than I was before I was diagnosed. I attribute this to a macrobiotic healing diet. I feel that the food we eat is a big missing piece of the breast cancer "puzzle". There is a lot we CAN do to prevent and HEAL breast cancer...that needs to be more available to the general public. For more info. visit my educational Web site: www.megwolff.com, and my blog: www.becoming-whole.com
    • Anonymous
      Barbara
      Jul. 28, 2009

      Hi Meg,

      I was just diagnosed with ILC and will have surgey in two weeks. Can you offer more information on the macrobiotic diet? I am extremely interested. Thank you  - Barbara

    • Anonymous
      meg wolff
      Jul. 28, 2009

      Hi Barbara, For more info visit my Web site: www.megwolff.com or my blog: www.becoming-whole.com Best wishes on your own healing journey.

  • Maria Gifford
    Nov. 17, 2007

    Hello. Welcome to our community.

     

    Your concern for your sister shows how much you care about her - she's blessed to have you.

     

    Here's some information for you:

     

    Infiltrating/Invasive Lobular Carcinoma (ILC)

    http://www.healthcentral.com/breast-cancer/types-36007-5.html

     

    Just Diagnosed?

    http://www.healthcentral.com/breast-cancer/just-diagnosed.html...

    Read More

    Hello. Welcome to our community.

     

    Your concern for your sister shows how much you care about her - she's blessed to have you.

     

    Here's some information for you:

     

    Infiltrating/Invasive Lobular Carcinoma (ILC)

    http://www.healthcentral.com/breast-cancer/types-36007-5.html

     

    Just Diagnosed?

    http://www.healthcentral.com/breast-cancer/just-diagnosed.html

     

    10 Favors You Can Do For Someone with Breast Cancer

    http://www.healthcentral.com/breast-cancer/caregiver-1823-143.html

     

    If I can help further, just let me know.

     

    Best to you,

    Maria

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