In answer to your question about the past week's news on BSE, yes I was surprised! Fran, I'm sure you know a myriad of people who performed the BSE and found lumps that were malignant; therefore early diagnosis; lives were saved. I do believe ‘they' were talking about women in particular who are frightened and are doing BSE on a daily basis.
I feel pre-menopausal young women should continue to do BSE after they menstruate. As a woman I do appreciate how most of us do have benign lumps or fibrocystic breasts. The general public has been taught to feel for lumps but we're working diligently to educate woman to LOOK for changes in their breast.
Although Inflammatory Breast Cancer (IBC) is not common in comparison to other forms of breast cancer, how many people know you don't have to have a lump to have breast cancer? When a person is diagnosed with mastitis, a benign breast disease usually with a fever of 101 F this is treated successfully with antibiotics. IBC can mimic mastitis and with IBC there is NO fever.
How many people do not know, even while pregnant or breastfeeding, if the antibiotics are not working, IBC should be ruled out!
How many people do NOT know if they have what appears to be a bruise, insect bite or a rash on their breast that doesn't dissipate with creams or salves, they should see their doctors. Mammograms do NOT usually detect Inflammatory Breast Cancer
IBC has other symptoms and doctors continue telling woman it's ‘nothing' and if they have severe pain in their breast(s) it's not cancer because breast cancer doesn't hurt!
Are you aware (and you most likely are) Carolyn McCarthy introduced HS Bill#1300? http://carolynmccarthy.house.gov/?sectionid=155§iontree=155&itemid=771
Bottom line is YES .. we do need to focus more on research but my personal feelings are to expedite on our focus for more research dollars, physicians, hospitals, pharmaceutical companies, researchers AND advocates will have to stop competiting with one another, share their data before we can come up with the cause and hopefully the cure!
Thanks for allowing me to vent! On a personal note with a smile on my face my daughter Karen is an 11 year IBC survivor and continues to do remarkably well. I had proudly lobbied several years with NBCC and admire you and your staff for all the time and efforts you have put forth! Thank you!
Marilyn ‘Mare' Kirschenbaum
Vice President
Inflammatory Breast Cancer Foundation
www.Eraseibc.com
www.komotv.com/ibc
In answer to your question about the past week's news on BSE, yes I was surprised! Fran, I'm sure you know a myriad of people who performed the BSE and found lumps that were malignant; therefore early diagnosis; lives were saved. I do believe ‘they' were talking about women in particular who are frightened and are doing BSE on a daily basis.
I feel pre-menopausal young women should continue to do BSE after they menstruate. As a woman I do appreciate how most of us do have benign lumps or fibrocystic breasts. The general public has been taught to feel for lumps but we're working diligently to educate woman to LOOK for changes in their breast.
Although Inflammatory Breast Cancer (IBC) is not common in comparison to other forms of breast cancer, how many people know you don't have to have a lump to have breast cancer? When a person is diagnosed with mastitis, a benign breast disease usually with a fever of 101 F this is treated successfully with antibiotics. IBC can mimic mastitis and with IBC there is NO fever.
How many people do not know, even while pregnant or breastfeeding, if the antibiotics are not working, IBC should be ruled out!
How many people do NOT know if they have what appears to be a bruise, insect bite or a rash on their breast that doesn't dissipate with creams or salves, they should see their doctors. Mammograms do NOT usually detect Inflammatory Breast Cancer
IBC has other symptoms and doctors continue telling woman it's ‘nothing' and if they have severe pain in their breast(s) it's not cancer because breast cancer doesn't hurt!
Are you aware (and you most likely are) Carolyn McCarthy introduced HS Bill#1300? http://carolynmccarthy.house.gov/?sectionid=155§iontree=155&itemid=771
Bottom line is YES .. we do need to focus more on research but my personal feelings are to expedite on our focus for more research dollars, physicians, hospitals, pharmaceutical companies, researchers AND advocates will have to stop competiting with one another, share their data before we can come up with the cause and hopefully the cure!
Thanks for allowing me to vent! On a personal note with a smile on my face my daughter Karen is an 11 year IBC survivor and continues to do remarkably well. I had proudly lobbied several years with NBCC and admire you and your staff for all the time and efforts you have put forth! Thank you!
Marilyn ‘Mare' Kirschenbaum
Vice President
Inflammatory Breast Cancer Foundation
www.Eraseibc.com
www.komotv.com/ibc