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I am looking for some guidance, Dec 20, my wife joined club mets

By Dorel Tuesday, January 01, 2008

Hello from Indianapolis. My wife and I only met this last February but its been the happiest days of our lives. She a brest cancer survivor 2005 Stage I but proceeded to have a double radical masectomy and chemo. The chemo triggered a ruptured appendix. Reconstruction went beyond her expectations.

 

I to am a cancer surviror. I had found a cancerous polyp and then colonectomy in 2004 - since then clear. Dec. 20, 2007 our plans for life looking at retirement took pause to jump on the emotional roller coaster called Stage IV Mets. At her 2.5 year oncology visit she shared w her Dr that she had been experiencing a sharp pain just to the right of her backbone - mid back. He ordered a precautionary MRI. She talked w the rad tech about her brest cancer and offered her some information to share with this young gals mom who had BC and seeking a reconstruction. At the end of the session (last of the day) she asked to see the scan. A whitish grey spot lit up the screen. We are not radiologists but we both knew something was not right. The next day the radioligist confirmed the spector as probably being cancerous. Affecting the 7 and 8 vertebrae and the soft tissue next to the spinal cord and outside.

The next day, a full CAT scan- thank goodness nothing else. Hitting the Christmas Holiday, a pre scheduled trip for her to see her mom, Dr is off on vacation, provided only minimal time to strap on the seat belts as it were. She is back has finally spoken with the Dr. we now are looking at a bone scan first thing Jan 2 then biopsy, then the start of radiation and then possibly another chemo maybe?

Like so many if not all husbands, I have been with quivering lower lip, hesatancy in speech to come up with the words to share what has befallen our world with my children, my ex wife (we are still good friends) extended family, friends and colleagues both close and far. As word has spread its with great appreciation that we are hearing people offering up prayer. One friend, who is spiritually wicken, immediately summoned her coven to lend a positive spell. Hey, if it can help - we will take it!

Oh the nights - sleepless churning. Sitting at work - just in a numb stupor. I can say more than once I have just yelled and screamed - or just broken down and sobbed. Doing chores, driving those alone times The realizaton that cancer has again invaded my life with those whom I love - my mom died of mets 4.5 years after colon cancer, my grandmother mets, brain, my grandfather mets throat, my aunts, mets post lung cancer. Now again.

I lost my family members by the time I was 23. My mom just before my soph year in HS and my dad in middle of my sr year of HS. I am an only child. This time, I am the lead caregiver, a whole different seat To say I am scared does not quite capture it.

Despite the past, the here is the now and I am not unique - I suspect each husband has a unique story what and how but we are now the husband brothers sailing on the same boat as they say.

I suspect the bottom line is the same for lots of men in this forum we all want to monitor, share, and learn. I do know that I will assist, support, love and cherish every day as a gift with my new wife as we take this ride. Did I say we hate roller coasters? But I will hang on for the whole ride.

1/ 2/08 1:48pm

Hello, Dorel. Thanks for writing.

 

I'm sorry to hear your wife's cancer has returned. I must say that you are a very compassionate, thoughtful, caring husband -- it comes through in your words.

 

Please see:

 

Breast Cancer Husbands and Partners

http://www.healthcentral.com/breast-cancer/breast-cancer-husbands.html

 

There are many men in our community who can relate to what you're experiencing and feeling. Please feel free to tap into all they have to share with you. Their support is here for you, and our expert breast cancer husbands, in particular, stand ready to support you. Contact any of them any time.

 

Keep us posted on how your wife's tests turn out today (Jan. 2). Best of luck.

 

Sincerely,

Maria

 

Anonymous
Monica
1/18/08 12:46am

I really don't wish to give false hope or anything like that. But I will share with you my experience in looking for answers for my extremely painfully sick daughter especially starting May worsening and peaking in August and Sept to improving beginning October/November (spuratically now vs daily)  2007. No one knew what was wrong and  I as a Mother couldn't take the pain away from her.  So I began  my own quest to not give up on the thought of her being a healthy child especially since her MRI and CT came back clear Praise God, and I did not want to settle any longer for stronger and stronger painkillers for her that weren't helping anyway, wouldn't they just keep masking the problem, yet they were  just prescribing drugs that weren't working to kill the pain unless they were so strong she couldn't walk on her own and made her sick.  I was fortunate to stumble onto something so incredible, with technology so advanced, that I found myself amazed...and a Different Doctor, about the 7 or 8th one we saw- recommended healthy products for my child! Wow! To build up her health at a cellular level...wow! This was so different! Of course i felt the need to pursue it and give it a try. A Doctor finally recommended something different to me for he...perhaps a new twist on trying to help her and free her from this horrible pain that causes her to scream and cry for up to 12 hours at a time...I had nothing to loose, so why not try? Although still not 100% sure at the time what she might have - I knew I couldn't let this go on any longer and Doctors were not able to give me much answers, nor could the Hospital.  Now, my daughter is improving, she's laughing and playing much more than she is crying in pain - its all good.  I have learned so much the last 6 months about so many different topics, I just have the need to share the knowledge as I wish someone had shared it with me years ago, peprhaps my Dear Mom in Law would still be with us today.  I have actually read and heard testimonials about rare types of breast cancers and prostate cancers stoped in their tracks...it is incredible. Makes me wonder where we might have been heading with my daughters head pain if we didn't find this when we did and continued drugging her.  I make no promises, or gurarantees but, ...I know of some products that have helped people in their battle with cancer - they are not meant to treat, cure or prevent disease nor are guaranteed to work for that or any other existing illness or sickness...but widen your horizons, email me with your phone number and time zone difference. I would be happy to share my knowledge with you. Wishing you all strength and persistence and prayers and love.My phone number in letters, as we can't post numbers: m_d-pwg-_ppw

 

Anonymous
Sherri
2/ 8/08 10:05pm

 

You are already on the right track for providing help to your wife as well as yourself.  I have been fighting extensive bone mets for the last year and my husband has been in denial for that length of time.  It took a year for him to attend a drs. appointment with me and he has yet to learn anything about the disease.  I consistently have people calling me with totally incorrect information about my treatment after speaking with him.  It is only now even beginning to seep in (against his will) and I must admit that even though it has angered and saddened me to face this last year without his assistance, it is now painful to watch his labored awakening to my situation.  There are so many great support groups out there and more information than we could absorb in a lifetime.  I would just remind you and your wife to 1) Share your research with your doctors and ask their opinions  2)  Ask questions - as many as you want and as many times as it takes to get an answer you understand - INSIST ON ANSWERS  3)  At those times when she is unable to be assertive herself - be her advocate  4)  Enjoy memories, delight in future plans, but, LIVE TODAY - EVERY MINUTE YOU CAN GRAB!

 

Sherri

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By Dorel— Last Modified: 12/20/10, First Published: 01/01/08