Thursday, February 16, 2012
Just Diagnosed with Cancer? Chat with Experts

Cancer's back and a sneeze broke my back!

Written by

Barbara C

Barbara C

Sun, October 25, 2009

I was diagnosed with breast cancer on May 15, 1006 (3:30 pm).  After a mastectomy, chemo, radiation and 4 reconstruction surgeries I hoped I was done while realy not believing it.  From all the reconstructions, I had persistent chest wall pain and my wonderful oncologist sent me for a bone scan.  Everyone involved, except me, was sure this was a waste of time, there would be nothing there.  In part they were correct.  There was nothing on my chest wall, but they did find a tumor in my spine (T11).  After many tests, I can't believe people could'nt see me glowing on the horizon, I started teaching this year as usual.  New school, new kids and faculty members.  This really didn't last too long.  While getting ready for church on Sunday, I bent over to get my hair dryer and sneezed.  Oh the pain was immediate and extreme and I went done like a ton of bricks.  Amazingly I was able to get to church where I met my Dad who took me to the ER where they found that I had indeed cracked my vertebra where the tumor had been living.  For the next 2 weeks  I went in and out of the hospital where they eventually removed much of the tumor and performed a veterboplasty to repair the spine.  While in the hospital my friends called to check up, but no visiting.  Since I've been out even the calls have slowed down.  I know cancer is scarry, but do friends realy have to run away from it?  They know they can't catch it and I know they are busy, but I have been there for them and they need to do the same.  What do I do to feel stronger, survive the future treatments and not do these things alone?

10/25/09 1:16pm

Hi - I highly recommend either/both of Elizabeth Edward' books: Resilience: Reflections on the Burdens and Gifts of Facing Life's Adversities; and Saving Graces: Finding Solace and Strength from Friends and Strangers. Both available at Amazon. Elizabeth has been trough every conceivable awful life challenge: death of a child, terminal breast cancer, infidelity of her husband. And yet she's living a good life, a peaceful life, one she finds pleasure in. Hoping you can do the same - PJH

Anonymous
Mary BK
11/22/09 3:12pm

I was diagnosed almost one year ago today.  My dearest and longest friend dropped out of my life completely.  She told me she just didn't know how to handle this.  My calls to her were not returned and emails ignored.  I saw her only once during 9 long months of treatment.  If she had called and told me she had cancer, I would have been on her doorstep within minutes but she was a no-show.  To say my heart was broken wouldn't even begin to describe it.  It was and still is like going through a paintful divorce.  It took a long time to deal with the feelings of betrayal and I still find it hard to think about.

 

My sister, to my surprise, came to most of my chemo visits and a long-lost friend who had dealt with her own BC also listened when I needed a shoulder.  It seems like people don't believe that bad things will happen to them one day, and don't consider that someday they too will need the support of loyal friendship to get them through rough times.  Or maybe they have their own reasons for moving on that they don't want to share.  Whatever it is, you need to decide that you are going to guard your heart, just like you are going to guard your body.  Make new friends (maybe other survivors) and treat anyone who sticks by you like gold. Those who were not there for you, don't give them another moments grief.  You have enough to deal with.  Don't let them hurt you more than you are already hurting.

11/22/09 4:08pm

Mary - I hope you continue to heal from this. You're right, you have to take car of yourself. Maybe someday this friend will come back into your life, asking forgiveness (or not) - and I hope you'll be able to find it in your heart to take her back. Sometimes broken friendships, mended, are even stornger than they were. Good luck - PJH

Anonymous
Anonymous
11/24/09 7:36pm

Mary,

Thanks for sharing.  I know that it is difficult for friends and family to hear that you have cancer.  My friends were wonderful with my first diagnosis.  We no longer work together and they have completely drifted away.  I know that I would not deal with an illness of theirs this way and have to remind myself that my expectations can not be placed on others.  They will only do what they can or are willing to do.  I know that they feel they are doing their best, which is sad.  I'm getting more used to the feeling of being let down.  I had surgery yesterday to have my ovaries removed.  They knew about the surgery, but have not even called to see how I am doing.  I guess this is how things are and I need to accept it.  I hope you are doing well.  You are in my thoughts.

 

10/25/09 1:49pm

Barbara,

 

I have only been living with cancer for about 7 weeks. I have told all my friends and family and I have posted my blog so that most of my friends can read it and they know what is going on. Although they are being great now (coming over, sending cards and flowers), I know this will slow down as my cancer becomes more routine and my fight gets even harder. What I found is that my friends dont know what do DO for me. So I have been reaching out to them. I said "feels like a tomb around here! It is too quiet! Let's have a party at my place, bring food and your fave beverage and come on over!" And even when I don't feel so well, I have decided that I just want people around, and I can go in my bedroom and shut the door if I need quiet, but when I want to come out I can. 

 

I don't know if this will also happen to me and my friends. I think a lot of my women friends...they just don't know what to say... and there is a sense of fear that I feel from them they fear my reality will become their reality. 

 

I hope that you can journal here some more, because I for one am rooting for you and I want to know how you are doing every day!

 

You have come through so much already and you have come this far!  In 2006, did you have a big lump or a little lump? I have a small one and they just found another one. No I am thinking..it's better to just get rid of em both...I dont know.

 

I am doing a little bit of gardening right now and that is helping my mood. I hope you are mobile enough to do something like that, or go to your local nursery and just wlk around. I do that  a lot.

 

Hugs and Good Energy Going Your Way,

 

PegLove.

Anonymous
BarbaraC
10/25/09 2:17pm

Thanks, you are right.  I know that they are afraid, especially those who were there the first time around.  I know that the drugs I'm taking (zoladex) make me VERY hormonal and I just can't control myself.  Knowing all this helps, but I am still disappointed in their behavior.  I hope that I would never let them go through this alone and I feel llike they are letting me do this alone.  I'll get over this, but right now they have let me down.

11/ 4/09 1:51am

So sorry you feel let down. How are things now?

 

You know, everyone rallied around me two weeks ago, then my surgery was cancelled, and now it is happening on Friday, and everyone is done rallying...it was kind of like a birthday...yay! Be Brave...now it's over. 

 

I don't feel let down though, because I know how busy I have been and I called a bunch of people I haven't spoken to in a long time and they were busy, but stayed a while. I am now worried because my Hubby has to work the week of my lumpectomy, and I will be home alone. I really don't know how bad my pain will be, or what I will need...if i will be hungry at all, or what.

 

But I think all in all, I can't ask for my friends that have kids and families, and jobs to be calling me...even though I really do want them to be around. Well. I hope you can blog more about your experience. I really love reading everyone's stories on here. I am here...

 

Fair Better,

 

Peglove.

12/22/09 3:36pm

I remember going through the same thing.  Especially after the recurrence.  People are afraid of facing their own mortality and don't know what to say or do.  It really is about them and not you, but it is so hard not to take it personally.  What I have learned is that people respond a lot to how I am responding to cancer.  I had to feel, grieve, laugh at every emotion I went through and eventually not care about how the others reacted. People who can handle it will come along for the ride.  Sometimes it will be the ones you least expect.  In the end, this is your cancer journey and your life.  Cherish the friends you have and make new friends.  There are wonderful and supportive people out there.

8/ 5/10 9:08am

Hello Mary,

 

I get these e-mails sent to me via my e-mail. I have a sister that has lung cancer who is only 46yrs old. One yr older than me. She too has a tumor on her spine. I'm not in both of your situations. But, I feel for you and care. I want you to know your not alone. I know you feel sad about your friends. But, with my experience of seeing friends, my husband, and family go to the hospital it seems like alot of people just cant bear to see someone they love sick or in the hospital. They still care for you, it's hard. I dont stand by that completely, for of course you would be there for them, no matter what it took or if you were busy you would stop in and say "hi" and let them know you care. Remember,your a good person, and dont stop thinking that way. I know it's hard on you, and I dont know if your christian, but faith helps too. God will always be there for you and never leave your side. I know sometimes its hard to understand why it happened to you. But, at this time you have to have less stress and worry in your life. Having a positive mind when your going through this illness does help. My sister who has battled alot of things in her life, set backs, mental illness now has lung cancer. She is so much stronger than me, who hasnt' been through all of that. I wish sometimes I was more like her in many ways. I dont know if this is helping you, but wanted to let you know many people feel alone and just remember the ones that are there for you now. "you teach gratitude to others by living it-every moment,every hour, and every day. Others will see happiness that gratitude brings, and soon, they will be grateful. Well, take care and god bless you always! Cheryl Crane