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Different strokes
PJ Hamel
Monday, August 25, 2008 at 06:24 PM -
Educating Young Women about Breast Cancer
Phyllis Johnson
Monday, August 25, 2008 at 07:19 PMI understand that the studies don't show a significant survival difference in women who do BSE monthly and those who don't. And I understand that some of the resources that have been poured into BSE education could be better directed. However, young women do need to be taught what is normal and what needs to be called to a doctor's attention. I took the quiz on Jill Biden's foundation's website, and I was pleased to note that it emphasized looking for changes, not lumps. From my point of view as an inflammatory breast cancer survivor, breast awareness has overemphasized looking for lumps. Sure, I read the wording about dimpling when I learned how to do BSE. But I assumed that it had to do with a lump pushing out and causing a "dimple" when actually dimpling can be a sign of inflammatory breast cancer which often has no lump. When I had breast changes, I didn't know they might indicate cancer because I couldn't feel a lump and I had a mammogram just six weeks before that didn't show anything.
A monthly breast exam might not be the way to go anymore, but becoming familiar with what is normal for us at various times of the month is crucial to knowing when to call the doctor for further evaluation.
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Untitled Comment
Jennn Fusion
Monday, August 25, 2008 at 08:04 PMFrom what I have gathered in my research, it seems that Jill had a personal calling after her three friends were diagnosed with Breast Cancer (one of those friends dying of the disease). So it seems that she wanted to get involved somehow but wasn't really sure how, as she admits that she's not "into the medical aspect." She teaches English, not Biology I suppose, so she seems to be approaching the topic as an outsider. She hasn't really had the direct calling that, say, Elizabeth Edwards has had -- the type of direct calling that would make her militant. She also professes to not be a very political person, so it seems she's just trying to approach it from an Educator's perspective because that's her comfort zone. I think it's cool that she is interested in this arena, although you're right her goals are a bit dated... Perhaps with Joe & Barack working on health care, she'll find a more prominent role. (Thanks for checking out my post at Donklephant, btw!)
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Untitled Comment
theo
Tuesday, August 26, 2008 at 12:04 PMyour assessment is way too harsh. she's not claiming to be an expert, just someone who's doing her part to drive awareness. to say it's back and white, bse or nothing is not a realistic nor only approach to helping prevent breast cancer. unless you can cite that she's making bse recommendations explicitly at the exclusion of anything else, i think all and all her contributions are a net positive benefit that should be welcomed.
Why we still need to discuss breast self-exams
Sarah
Wednesday, August 27, 2008 at 01:47 PMGood points, Theo. Thanks for posting your feedback. I would submit that your responsibility for getting your message right on such an important topic (early detection of breast cancer) increases when your soapbox lends you a national audience. Would you agree?
An unclear or mixed message is certainly not as bad as false or misleading one. The problem is that Jill Biden's breast health message requires clarifications and caveats that may not get the same national media attention as her one-liners on breast self-exams. How Jill's message gets played is what's misleading, and the information on the Biden Breast Health Initiative website does little to help.
Breast cancer survivors PJ Hamel and Phyllis Johnson (in their comments above) have offered personal takes on the "every little bit helps" approach to breast cancer awareness. And, their insights are representative of the context necessary to flesh out Jill Biden's stance on breast cancer detection and breast health in young women.
Where breast self-exams fit into the spectrum of efforts (breast MRI for high risk women, digital mammography for dense breast tissue, behavioral or educational programs that address racial disparities) aimed at increasing early detection is still a very important topic. It's too bad that Jill Biden's message has been simplified to one of "proper breast health."
From media reports, we can gather that Jill is smart, passionate and humble. I am sure she has much more to say about her breast health initiative (as well as her focuses on obesity and smoking) and would welcome the opportunity to hear her expand on these topics.
Sarah
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Jill Biden on Smoking Cessation
Sarah
Wednesday, August 27, 2008 at 01:53 PMAlso worth reading: Anne Mitchell's post on Jill Biden and quitting smoking.
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Wow, Sarah, you have a way different take on this than me. Yeah, the BBHI site is outdated - says it hasn't been updated since 2006, which is like the Stone Age in Web time. And the American Cancer Society did downgrade the importance of BSEs (breast self exams).
But "breast awareness" is still front and center on everyone's radar screen. What's changed is how you go about it: not in the formal BSE way, but in an everyday, informal way. TLC - Touch, Look, Check - is how Breakthrough Breast Cancer (Canada's Komen semi-equivalent) puts it. Know what your breasts feel like; be aware of any changes.
As young women, my generation never heard anything about breast cancer; it was a dirty secret for old people, something your grandmother whispered about to her friends. Thanks to Jill and people like her, women are hearing their first hard facts about breast cancer awareness as teenagers.
So maybe Jill needs to shout a little louder and stand a little taller on the stump. 2 milion survivors will be glad to hear about what she's done. And anxious for her to carry it forward. GO JILL!